She has dominated her childrens' lives with little concern for anyones' feeling but her own. She is now in a wonderful assisted living and her dementia (I think) has illuminated her personality into a person who I can no longer bear to be around. She has again managed to alienate everyone around her with her insults and insensitivity. She is nasty and uncooperative with the aids (who are wonderful) And complains, complains, complains about everyone, everything and blames my sister and myself for the air she breathes. I am sick of her and I don't want to visit her anymore and don't feel that my adult children need to be manipulated like I was and be around her negative attitude anymore. I hate feeling obligated to have her at my house as I have every holiday of our lives and force my children to "tolerate" her for my sake. The guilt is unbearable but I feel that now being 60 years old I would like to feel that this person does not dominate my whole life. I would like to have a happy holiday for a change and have my children WANT to come home (without Grandma always there)
There has never been any pleasing her before and now she sends me into bouts of depression that I have a hard time shaking. Am I alone? I feel like a selfish person but I don't like her now and never did before. The guilt is killing me.
I have not been needed to do anything once hospice entered the picture. They get how mean she was, and they fixed it. They also helped me with making final arrangements and offer death education to those who want it. Ours is a non-profit and some of our friends have volunteered for them for years. I completely understand distancing yourself - the 8 years I was no contact were the best ever.
Her own sisters don't bother to ask me how she's doing. Her brother is too ill, so he's got a darn good reason, but his wife calls me (because she is a saint). Her nieces and nephews don't send cards or call. The people who were formerly her "friends" do not write or call. I have sent all of them letters updating them on her state. Out of about 25 letters sent, I've heard from 2 people. One of them sent a card to me at least, not mom! I am literally the only person on the planet who really gives any level of a care. I asked all of them to send a card to her c/o me, so I can take them to her. Well, I tried.
So the "everybody" judging me for not visiting is fictitious. I don't have to visit to make up for "everybody else" who won't. It's a curse, all this.
You go visit, then feel horrible before, during, & after. You kick yourself for even trying to expect something halfway neutral for all your effort. Forget about happy or memorable. So then you stay away, go no contact, and try to put Humpty Dumpty back together again. Time passes, you start to feel better, which is clearly a sign something is wrong! I can't feel good! I must punish myself with guilt over not visiting. Around and around and around on this crazy carousel we go.
I have had a million visits with this woman in my mind, but they don't count. I go see her every day in my head, where she continues to berate me, complain, swear, be mean, and blame her problems on the world. Followed by a chorus of "I can't wait to die" and my own complicated, awful feelings.
Then when I actually DO go visit her in person, I get to go around the mulberry bush with even more intensity.
My mom is also ready to die and keeps asking why God has let her live so long. I wonder myself as she is clearly miserable inside and out. It's been a week and one day since I've spoken to her and I feel liberated being away from the mean-spirited negative comments and complaints.
There's no pleasing her and when I try I end up getting blamed for something else - bringing leaves into the garage with my car, putting the plastic grocery bags in their little pouch incorrectly, not placing items on the "right" shelf in the fridge. Leaves me exhausted and edgy. I get in the car and want to keep driving as far away as I can.
I cannot go back.
Has your mother been evaluated lately by her doctor to see if she has dementia yet? How old is she? What are her most outstanding health problems?
This dance is a very blinding one and that is why it is called F.O.G. which stands for Fear, Obligation and Guilt.
The only way to get of the F.O.G. dance is to set boundaries of what you will and will not do in light of your other responsibilities like your husband who even if his health was not bad is still your first responsibility as well as your responsibility to take care of your own well being.
One third of caregivers die before the person they are caring for does. The major contributing factor is trying to do more than one human being can do as well as not taking care of themselves. So, if you don't take care of you and end up dying, where does that put your husband and where does it put your mom?
Plus, you are valuable as just you and deserve to take good care of yourself for your own well-being.
You can't take responsibility for your mom's emotions. You didn't make her be the way she is. The person she is comes from the combination of the challenges she faced in life and what she chose to do with them. Also, you can't fix her. Nor can you control her. About all you can really do is to place yourself on a healthy emotional path and be in control of you with realistic boundaries based on the total combination of your life's situation without throwing anyone, including yourself, under the bus.
What does your husband think and feel about you being pulled in all directions with nothing but verbal abuse and emotional blackmail from your mother plus her own negative outlook on him and his family?
Has she always been rude to your husband and his side of the family? To belittle someone's spouse and their family is mean, emotional abuse.
Does she need more time from the carers and can she afford to pay for it?
Overall, your mother sounds rather well cared for and it sounds like she may be expecting you to be her substitute company after her neighbor died. Her happiness seems to be her primary concern regardless of the other responsibilities and life that others may have. Somehow, you need to set some boundaries with your mom and firm up your boundaries in your marriage by being more focused there with your husband so that you are more fully present when you are with him instead of mom still being present in your head. It's difficult and it's tricky but it can be done.
Basically in a nutshell, learn to detach from her emotional dance with love for mom (there is a good article on detaching on this site) and cleave closer with your husband.
Hold your ground, establish and firm up your boundaries, and take no prisoners as you seek to bring balance into this very unbalanced situation with you caught in the middle.
I wish you the best and please let us know how things are going!