I have tried for 10 years to get my brother and sister to help with my mother who is very physically disabled. In the past 3 years, it has gotten much worse, and they seem unaffected. She has almost died many times, and I have been the only one there for her. I have always helped with her shopping, cleaning, etc. Recently, she had a very serious neck injury (chronic spinal cord compression) which made her mobility almost zero, and she became incontinent. I changed her diapers, fed her, did laundry, shopping, held her when she cried, everything. All I asked my brother and sister to do was to call her 1 or 2 times per week to keep her spirits up... they could not even manage to do that! She had the surgery, almost died, but did make it through. She is slowly getting a little better, but has been in a nursing home for quite some time. I am moving her to assisted living near me when she gets out. I have asked my brother and sister to help me many times with cleaning out and moving her apartment items. They continue to ignore my emails, texts and phone calls, or make amazing excuses. I have fully given up on my brother and sister to help physically, and really need them to help financially. I keep asking for help, but they keep avoiding me. My new plan is to do everything, and to start keeping receipts and billing them for each and every thing I pay out for my mother. I am tempted to start billing them for a portion of my caregiving hours just to prove a point to them. I have started keeping a log of exactly what I do, and how many hours I help her because I am not sure they know exactly how much I do for her.
I truly hate my brother and sister, and when my mother passes, I am going to let them know just how much I hate them. I am only being nice to them out of consideration for my mother at this point. I can't wait to tell them how much I hate them for putting me through 10 years of ABSOLUTE HELL.
The main thing is the financial liabilities really. When a parent names only one power of attorney and only one executor and one to inherit...and it is the same one in all instances what do they think is going to happen? Parents need to realize THEY are setting up these problems.
Last night the son of a 95 year old ladystepped in to do the care, for his mom, telling me my care is not wanted now, as he steps in this week. She got a cold which got worse last weekend. I felt confused, insulted, because I know that my first hand, steady experience, is the best source of care for that woman, especially if she gets sick, better for her than her son's care, because he pays no attention to details, knows her best as an "independent" person.
So he is NOT good at just helping her when doesn't ask explicitly, but any first hand person who observes closely, can see she wants and needs it. Frail or homebound elders know they can't talk as fast as less involved family, and so she asks him for nothing. But when I'm there, 4 hours each day when he's at work, I'm close enough to notice and offer or just start helping her - not to take over her choices, but to see that she often needs "respectful persuasion" - a phrase and process I found online today. I love the phrase, I use it all the time, with my animals, with those I help directly, used it with my brother - it takes time to persuade frail beings to add any changes at all.
So those not close think the person is independent, but is being taken over by the direct caregiver, or they have no idea how to hang in there after failure, as we learn to do, from our close and longstanding view. Moral judgments and battles set in, too often adding disruption and upsets, which solidify positions and take the place of learning how to best contribute and help each other.
I stopped complaining about my being left out of the the care setting after the son decided to do it himself - and just made a call to offer him tips - and emailed him a tip. By helping him learn, instead of blaming him, I'm affirming my care and knowledge - which will be better seen, when I don't approach with resentment - even if the resentment is for being devalued and judged wrongly.
Somehow,I doubt out Dad realized THAT would happen. No doubt he plans to leave town,asap. Him and his "new" wife that retired as soon as Dad passed. This, of couse, means he Is hoping to leave mom behind. As her half is in his name too.
Real world: different children have different relationships with their parents - born at different times in the shared family experience, so have different resources, different fears, challenges, different preparation to meet the adult worlds they try to enter. Yet the only discussion of roles of home and family, relates to children - somehow we are all supposed to grow up and need nothing, and feel nothing any more, move on, past family of origin.
But connections are needed, and sometimes it's the ones nearby, who maintain them more than those who went their own way. That happened in my case, and yet at times I still resent coaching and contact that others got, that I missed, but I have to remember, I did move away early...!
As siblings, we tend to expect "our share" of any family inheritance, and we don't expect that to be compromised in any way, by choices we made around making time to care for our parents - after all, we were encouraged to move away, and tend to our own lives and families, who all have needs of their own.
So it's a huge set of unaddressed areas that we find as neighborhoods are no longer full of familiar people, as elders live longer. As an in-home caregiver for elders, and raising my disabled brother - I know that when they have needs, they are immediate and if not met, crises occur. So some undefined part of the caregiver involvement is how often they drop their own life, in order to be "on call", and available to get into the major complexities that come up with changes for the fragile person.
You say your sibling "dumps your father on the sofa" - but that suggests that you have a different idea of what could or should be done, but that tends to undermine the idea that your sibling already made choices and accepted responsibility and losses in their life - it takes follow through to set up and manage ANY plan, and if you did not do that, it is a delicate matter to make a different suggestion, without respecting the efforts already made. Your implication suggests that the caregiver sib is essentially lazy, expects too much for their small efforts - yet you are not realizing what effort it takes to drop your own life to make yourself available repeatedly.
And sitting on the sofa, may be part of a balanced day - getting frail elders to do ANYthing, takes huge amounts of effort,respectful persuasion with follow through, then tying together all the loose ends that they no longer can keep up with. Some elders are medicated so they have even more trouble sorting out loose ends, and it also takes time for caregivers to keep up with the medical people's solutions and recommendations - that bring up major losses and conflicts. Hard to find any support, as so many people give you 10 min, and you as caregiver are left to put the whole package together and try to work it out.
So, it's not all about money, it's often about what time does it take, to meet the needs of relatives who are now infirm, in a fast moving world of countless choices, but no one to help you limit them, make them manageable for you.
Caregivers tend to ease in slowly, doing this task for the elder, then another, and over time, trying to keep things going, they neglect their own needs and goals. I for one, realize by now, that I have a major resentment towards my family, for never coaching me on financial planning, never taking time to help me see that I am valuable, outside of my usefulness as a caregiver who allowed them to live and plan lives, without disruption for caregiving. No one prepared a female for life planning - you were expected to marry and depend on a man.
I wish I had anyone looking out for ME, not just for the disabled brother, they might have sat me down and listened, and watched me try to grow, and told me to look at my own life plans and retirement savings needed - instead, I just jumped in to provided care that I saw was needed.
I'm glad I did that, just as you must be glad you paid attention to your children, caring is a value. But I see now, how I assumed that others would care about me, since they saw the risks for my disabled brother, and thought they appreciated that I was the one who offered to take time to try to be dependable and reliable in meeting them.
Others had good intentions, sent out a suggestion or two, but no follow through. Care for the vulnerable requires some long term plan - for risk management and care. OK to hire a company? That costs money and should come out of elders money, making later family benefits less.
Just listening, from my caregiver perspective, I'd suggest that if you have complaints or other ideas, maybe you can talk with elder care managers and social workers, and see what you think could be set up - otherwise, we are so dependent on what "the system" offers. I assume it was useful at one time for your mother and father to be separated - but managing care takes a deliberate attention, and if family members cant find a way to include that, the system does.
He literally had no bed to sleep in at any time. Not provided by my mom or brother or hospice for the three months he was ill. This sofa was a very rough fabric similar to cordaroy, only not at all soft. It was a wicker sofa, so the arms and back were stiff. Not really comfortable for one night sleeping let alone a sick bed for three to four months.
They would not put sheets under him. I was astonished, as there were twin beds that could have been moved into the living room and offers to help them do so. Also puzzling,when I found that the first thing MOST hospices do is come to set up a bed, and oxygen etc. For terminal patients. Let.me repeat, no bed,no sheets, oxygen was not used,ever and he sufferd from compromised lungs, due to a bad reck that punctured his lung. He was also a lifetime smoker,suffered pluersy as a child, so oxygen certainly would have made him feel better,AND Offset the negative effects of the opioids given for pain.
I was in the process of involving elder abuse authorities, as No one would change this and it was appalling. He died approx. 3-4 months after his diagnoisis. Not enough time to have poa changed.
Now brother is "caring" for mother. He as her isolated, but she refuses to see golden child for what he is. He has all her assets in his name and is selling them, with clear intentions to pocket the majority. Trust me, he is not out any money for her care either as after seeing how little he did for Dad, including others offers to help financially for the basics at least, he wont "spare a dime" for her comfort.
It would not suprise me if he has plans to move,with her and Dads money and leave her in a home Asap. They are selfish users of parents. Period, and not real sure he doesnt have a drug problem kept hidden,claiming it is medicinal for HIM.
As to others NEVER appreciating any caregiving, that is sad and true. But in brothers case such abuse, neglect, isolation, and greed will never be appreciated by me.
I was, and should have been kept, in the loop. What happened is Poa moocher brother resented his lack of exclusiveness and since he lived off of them...the end of his taker gravy train. He was impossibly isolating and this was done out of HIS fear of what he thought HE might lose.
I have researched this and he IS the classic profile of a family abuser. Seeing his "Care" convinced me this was so.
I went over unexpectedly once to see Dad and help, to find my mom asleep, my brother at his house, asleep and my Dad struggling to get up to urinate.
I had offered a handicapped potty, which I HAD from my own hysterectomy, just in case, I had trouble walking in the middle of the night, but that too was turned down.
My point? All kinds of help, remedies to this uncalled for were offered to solve,including my moms inability to lift Dad alone. All shunned.
From babysitting, so they could rest, to some equipment,etc. All refused except for the wheelchair I BOUGHT. Brother was ripping them off saving Any and all monies he and the two of them had, but not even ASKING hospice, who were on the case (in theory anyway) for this equipment.
Both he, my mom AND hospice were guilty of the grossest neglect.
He still would have inherited all, upon their deaths, but he would not be able to lord over them so, and caused such misery to the entire rest of the family to boot.
I hear your frustration. And your anger at them having full lives and you cannot. I get that because I got (as did my sis) very angry ay my brothers carefree at parents expense. Childfree and money worries free, look at me they love me best bs. While sis worked everyday of her life practically. As a sinhle mom to see her kids were supported and I struggled to raise newborns and teens with a husnand serving his country AND the local pd AND working extra jobs to make ends meet ,leaving me on my own for the majority of my adult life dealing with it all. He,nor my mom would have collected my mail, if I was severly ill,let alone relieve me.
He was actually quite rude to me and sis regarding every time on of our kids or teens gave us grief at saying that is why HE didnt have chilrens and gloating hid superior "status"over our life struggles.
And perhaps they are making small talk to comfort their patent. Social neglect is very bad for seniors.
But you were right to ask them to offer more.
my story is a little different, my sister lives next dor to mom and wont help her do nothing,,shes so lazy and selfish,look up narcicist,...that's what she is, I live in a different apt. complex within walking distance, anyways the last few yrs. my mom has had passing out spells and me and my brother,,out of nine kids are the only ones who take care of her ,eventhough my sisterlives right next door well the police are always coming over on me and my sister cause we are always into it bout mom how she doesn't take help with her me and my brother are exhausted he cant stand to be around her which remember she lives next door to mom so I cant even stand to look at her. I have bad health problems myself,really bad nerves and anxiety so im easily stressed and my sister makes me snap out some times im afraid ill go to jail for hurting her, even though shes healthy and a lot bigger shes killing me,i have the worst aniexty attacks being around her cant take much more im so stressed have so many other serious problems in my life right now, its really hard just concentrating enough to type this I also get no thanks from my other siblings who don't help they just take her side when we get in an argument which hurts so bad I will post more lateron got to stop now
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If your mom was diagnosed with dementia, that would be a different story, but it sounds like this is just long term dysfunction. Step back, don't help so much.
I'm sorry if this sounds mean. You can change this dysfunctional family dynamic, you can only set up boundaries to keep yourself sane.
It's not you. It's them.