How do you continue to be a caregiver when your parent has always had some form of mental illness...in my case Narcissitic Personality Disorder. My mother has always suffered from this and now trying to be a more closely caretaker is bringing me down. No one is realizing I cannot take care of her by myself. She is crafty and her aging just makes is all much worse. More and more calls from neighbors to the police or paramedics with her stunts. They say she cannot be alone but I cannot tolerate to be around her. She refuses to go to a nursing home, so now trying to find someone who will at least come and check on her a couple times a day at least to give her her psych meds. There is no one to help me. I have been of work for almost a month on FMLA and it seems to be a waste of my time, since she can do many things by herself...(she just tore apart the patio cleaning it ...an 85 year old pushing and pulling couches and vacumns...) mental illness in an aging parent..HELP!!!!!!!!!!!!!!!!!!!!!!!!!
well said and thats the spirit you can do it I can do it an so can everyone else that has had to deal with this kind of parent/parents. It is ot our responsibility to do their bidding 24/7 and I am sorry but every one gets old and dies I have a great life it can be better, it is going to get better and I'm going to enjoy every minute of it. These are the good old days so don't waste them on someone who won't even admit they have PROBLEM And think you can fix everything in there life that didn't go according to their wishes. If mine tells me one more time what a great mother she was she may leave this world sooner than she thinks NOT but oh how I wish sometimes God forgive me.
You say that "We need to understand in order to be satisfied with it, and move on."
I must confess that I still don't understand it after 50+ years of trying. The only thing I do understand is that I had a childhood worth forgetting and a lot of emotional scars that haunted me throughout my life. What helped me most--especially during my mother and father's final years was taking that first step:"Admitting that I was powerless over the effects of alcoholism and family dysfunction and that my life had become unmanageable" Then I was ready to turn it over and that is when I really began to recover and get healthy. Before that point I had tried everything, short of self-destruction, to find peace. This included all manor of forced solutions like trying to please at the cost of my own identity, being the perfect son etc. Agreeing with neighbors and relatives when they told me what a wonderful person my father was and how good of him to take care of my mother. Then I did nothing as he verbally abused my mother when she was in the advanced stages of Alzheimer's. Yes I understood it. Yes I understood that it was a crazy and unhealthy environment. And being raised Catholic, I tried to reconcile all this with the Commandment "Honor thy father and thy mother" which locked me into inaction. I did not want to piss off God and my parents at the same time. (Yes that is how I "understood" the commandment. Then someone sent by God explained to me that we honor our parents simply by admitting that they gave us life--nothing else is required. Wow--did that unlock a large portion of my personality!) My wife-who comes from a similar background--said to me as we were going to my father's wake: "It is going to be hard hearing all his friends and neighbors telling you how wonderful he was...don't you wish just one person would say 'He was a mean ol SOB, but were probably going to miss him'" That got me through it because I knew I had at least one person in this world who knew the truth. And I said before in this forum that although I may never understand it, I can honor my father because he gave me life and I can forgive him because he really did do the best he could with what he had.
Please folks read the post about forgiveness that I posted. Don't let what society dictates what is politically correct or religions dictate what you must do for yourself. You do what is right for you. So much has been taken away or for granted about your life, it's time that you get to be the phoenix and rise from the ashes.
Many of this I feel is because of the heavy 'quilt complex' these types of parents but on us, or what society pressures to put on us due they are parents, but abusers in the eyes of society will always be abusers don't loose sight of that.
It was so difficult, and extremely emotionally painful for me to have all that vengeance directed toward me. The Pharmacist told me she felt sorry for me. She said, "Good luck." I felt so dejected, not knowing what to expect, but hoping for so much more. I felt relieved that I was driving home, alone, and her with hired transport. An uglier scene I have not seen. Not looking forward to the appointment with the unknown Psychiatrist on Monday. I feel like crying, but can't. The relief is just not coming. I feel like I'm hemmorraghing inside. How can one be so vindictively evil toward their own child?
I just hope for a professional to listen to our whole lifelong struggle, and offer some type of hope and help. So far, I have only disclosed a portion, but if they only knew...
Linda
My mom isn't fighting the meds but she is not so good at taking them, no matter what system I devised. Today I called over there around 11:00 because the visiting pyschotherapist wanted to visit her. Well the phone was busy, but it stayed that way. He called me when he was at her doorstep at 2:30 and no matter how many times he rang the door bell no answer. So oh Shit, gotta go over there. So I went over there, and the key I had for the front door wouldn't work all of a sudden. I tried to get into the back gate and I guess she heard the commotion and let me in. The phone was off the hook due to the tangled up cord laid over the receiver so it did not hang up properly. I asked her didn't you hear the door bell? She was sleeping in the patio and did not hear it. Oy Vey! I noticed she did not take her dinnertime meds for Monday nor Tuesday...didnt the friggin homecare worker notice that? She notates every thing else so busily on a note pad but always misses that. Guess I have to send another email to her supervisor about that. I guess she only concentrated on the meds for the day she was there. My mom seems to be slowing down a lot, but it may be the meds keeping her that way.
Secret Sis, the trick for you now...who is going to make sure she takes those meds....that was my biggest dilema and still is.
I started cleaning the house when i was about 11 years old. Because she was to tired.
I learned to live with any choice i made, because she had no sympathy for me. it didn't matter what it was. i can remember sitting at the table in the dark choking down cold lima beans or whatever because "you dished it out now you eat it".
Hearing her bitterly complain about someone and than later watching her smile and laugh with them and act like she just loves them.
Of course there was the hysteric's too if i ever said anything against her. In her world she is perfect.
And controlling with fear. There were things that i never asked for because i just knew better. That was a given, and you know when it dawned on me as an adult, i was amazed, because as a kid i never reasoned it; that was normal, but as an adult, i realized, that isn't normal.
Like i said before, when i moved my mom into my house about two yrs ago, i started to have memories of my childhood that i had strangely forgotten. i realize now that it is a survival mechanism. But i still wonder exactly what she did to me to make me so afraid of making her angry. i still bend over backwards to not make her angry.
My brother, the oldest, is her favorite. My sister and i just "knew" that and never questioned it. That's just how it was.
We learned early not to tattle on him because we got the worst of it. If he broke one of our toys, " well what did you do to him to make him so angry". He is still her golden boy,a disgusting momma's boy, at 60 yrs of age.
Oh my, i had best stop this, i think i could go on for a very long time but to who's benefit. I am so thankful for you wonderful fellow suffer'ers of mama drama trauma. Peace
I'm hoping too, but not holding my breath. Mom was a raving mental case today. Don't mean to sound disrespectful, but can't find adequate words to describe it. And it puts me into a state of confusion. I'm only just now (6 hours later) feeling the cloud of condemnation lift. Mental illness is very serious, and I've never encountered it like this before. Her's is escalating. The home health lady I contracted to do the transport for mom's appointments told me it will snowball and get worse, reinforcing the prediction I'd already received from the 1st clinic visit.
You know, I don't know this Psychiatrist, and don't know anyone who does. I have encountered so many physicians who didn't help or provide answers or resources, that I'm skeptical. The appointment is Monday. What do I have to lose? Time and $$$$ I will learn whether or not they can "help" or not, but there is no cure, correct?
I think I know why mom is fighting me. I think it's because she's trying to run from the past, and I know it, full of abuse, and she wants me out of the picture thinking no one else will know. Or she thinks I'm trying to have her committed, and am lying to do so. She says she's fine, and doesn't need a Guardian. They say she does, but I've yet to see it in writing by a Physician. That would help if we end up back in court. All I can do is pray that someone PLEASE help me deal with mom. I feel like I was drowning today. I start second guessing myself. I just want someone to put it in writing, so I can see with my eyes that this is real, serious, and where to go from here. I'm tired of people defending her, and not believing me.
And I'm tired of people (including my husband) telling me to "just get another Guardian." He knows how hard I've worked to alert them to her addictions, and finally get her off narcotic pain meds. And she's doing better (meaning no pain). So her addiction was driving the "need" for them. She kept finding doctors to write scripts. That makes me angry. But I'm thankful I found enough to believe me, and discontinue them. And she "couldn't breath" while 200 miles away in her home, wearing herself out trying to maintain it. Since moving her, she's off oxygen, and no more headaches. She's also found a social niche in the apartment building, no longer isolated in a huge subdivision.
It was a harrowing day. I wish they could have done more.
Then the phone rang. It was the nursing home. They found my dad sitting on the floor. No fall, no problems, but he couldn't communicate so they understood him. We drove over. He was fine, but not fine. He's blank. No recognition on the screen. No smile, no talking, and definite decline. Nothing marked, but noticeable. Just what I need; more drama. He was fine, but who likes getting those calls at 10:00 at night?
Some of mom's rantings today concerned him. She bitterly complains that she moved up here to see him, and no one will let her. (She isn't nice, and has been abusive in the past) She's on restriction, and doesn't like that she can "only go with..." me, but that I can go anytime I want.
She doesn't like that I've been doing her meds, won't give her all the $$$ her heart desires, won't run every time she calls, buy off brand food, and that I make the decisions about how her money is spent, etc. She bitterly rants: "So many things have been taken away from me; my car, my driver's license, my dog, my meds," etc. It's true, and it's sad, but it's also necessary. She's incapacitated, due to cognitive decline, but she wants them to see me as having the problem. And it makes her angry that it's her instead of me. I truly believe she would be pleased to see me destroyed mentally. And she's working on it. I thank the Lord for his grace and mercy, and the power of prayer and loving friends. Otherwise, this nightmare would swallow me up. I hate Alzheimer's, and I hate mental illness. Where's the grace and mercy in that???
I was writing my post while you were posting your's, so am responding after the fact. I am amazed at what you've gone through. (Any of us, really.) How in the world did we survive all that stuff? As you write, my jaw dropped. Just reading about this brings so much emotion. What a sorry mess to deal with, for many here on this thread. Ever wonder how many more out there dealing with it?
Anyone else get told, "Children should be seen and not heard." Or the famous saying: "Dont talk. Don't trust. Don't feel." Those were the rules in my family. As a teen I added, "If it feels good, do it. If it feels bad, grit your teeth." What an awful creed to live by. Wonder where I learned that one? Mommy dearest.
Wow! You have so much on your plate. I'm not sure who has the better situation here on this site. It's a tie. You get some rest girlfriends. :)
I did go to see Mom today and she was doing better...still confused, but happy at least. She can be so sweet and loving when she is like that. I don't know if the new meds they have her on are working to improve her mood or this is just the up and down cycles she's been having (that I'm assuming are due to her bipolar). Like I said, she is still confused but I could manage her if she was this way all the time (I think). Of course, she could be putting on act, just to get to come home sooner. She does that sort of thing too. She doesn't yet know she'll be at least temporarily going to an assisted living center and I really dread telling her.
I HAD TO HAVE A HYSTERECTOMY IN 86 I ASKED HER A MONTH IN ADVANCE IF SHE WOULD COME TO HELP ME WITH MY 5 YR OLD HER REPLY "I MIGHT BE SICK" SO THAT WAS THE ONLY TIME I EVER ASKED HER TO DO ANYTHING. THE NIGHT BEFORE MY SURGERY I WAS DOING LAUNDRY LAYING IN GROCERIES, CLEANING I GET A PHONE CALL FROM DAD YOUR MOTHER IS IN ER SHE'S HAD A HEART ATTACK, OH MY FIND A BABY SITTER RUN TO THE HOSPITAL, I WENT BACK TO TALK TO THE ER DOC. HE SAID THERE IS NOTHING WRONG WITH YOUR MOTHER AHA I WILL GET ATTENTION BECAUSE OF MY SURGERY DON'T LET ME OUT OF THE PICTURE, OH HOW I COULD WRITE A BOOK AND I THINK I WILL LIVING WITH A NARCICCISTIC MOTHER A NARCICCISTIC/ALCOHOLIC FATHER THAT SHOULD BE A BEST SELLER CUZ BOY DO I HAVE A MEMORY LOL
Now we can ignore it no longer. And I am getting the full brunt of her wrath. After establishing a separate life of my own, and discovering distinctly different values, my own separate identity, and developing my strengths, sensitivities, empathy and compassion, I am ready to tackle this last valley with mother. I have no idea what to expect, but it's not looking favorable. Lord, please give me strength to endure and persevere in caring for mom. The only reason I don't walk, is because this is mom. Mean, cantankerous, nasty, cussing, angry, belligerant, vindictive, self serving mommy dearest. And God made me a firstborn. So here I am, till he calls one of us home, or the court relieves me of my duties. What a mess! I'm also praying I stay sane, and mentally intact in the process. Or maybe I'm not...just as mom can't see her illness...hmmmmmmmmmm
Don't you hate that second guessing?
Hope you ladies have peaceful a day. God's mercies are new every morning. Praying your blessings are many. Take care of you, because you are worth it! And thanks for being on these threads, and sharing your hearts deepest desires and saddest emotions. You have been a blessing to me. Thank you.
After my last post I felt so much better. I laid in bed last night thinking how different my entire body felt. I felt strong. I have had health isuses my entire life. Bad enough to seek help, but not bad enough for there to be any help. IBS. migraine, allergies to everything, Fibromyalgia, chronic fatige...I got labels but no help.
I guess I should have gone to a therapist first.
My first thought after reading your posts was OH NO! I am getting better, and they are having awful days. I wish I could drag you with me.
I guess that is why I though about you so much yesterday, sis. epathetic trama waves.
The bright side: NOW others know. and your mom now knows others know.
That will eat on her. Any time either of my parents had to see anyone from a nurologist to a therapist they freaked out. ''It was her! It was HIM! They did it! You don't know how they have made this look!''
You can lead a horse to water, but you can make them listen to the shrink.
Stop spending money on mom and follow Neon's lead. Help yourself before you get really sick. Do it for you and the people you love. It doesn't mean we are crazy, it means we need coping skills, and fast.
As I laid in bed thinking how great it felt to have answers ,and to be starting to understand this, I thought it was like mental chocolate. I want you all to enjoy mental chocolate.
Ezcare, My husband is like you, accept, move on. But I am a scientist. I need answers. I need 'cause and affect.' I managed to survive by making everything a lab report. Everyone copes whatever way they can. I can write 'null hypothesis' under the title "I am to blame" and move on now. My mother likes the quote,"you can not escape your early beginnings." I am now ready to prove that wrong.
Sis, take a long walk quickly. It really will help.
Maybe coffee plays too important of a role in my life. Nothing works without it.
Have a better day today ladies and gentleman, I need to nurse this sinus infection. Sleep feels really good lately.
I talked to the Home Health Agency Director this morning, who reported nothing negative from yesterday's transport encounter. The lady who took her was smiling when they arrived. Mom was not when she saw me sitting at the Specialty Clinic. Oh well. They needed me to be there to see her in action, or so I think. Others are seeing the things I've known all along, and are beginning to get the real picture. The little abused girl in me from long ago is finally feeling vindicated and starting to understand the lies she was told. Others are seeing and hearing the lies, too. I don't buy them anymore, but they still hurt. I'm human, and don't apologize for that. I'm sensitive, which is also my strength. I can root for the underdog, because I know how it feels. That is empowering.
Mom's Heavenly Helper will be taking her to see her husband tomorrow, monitoring and documenting the visit. She will redirect and will direct both mom and dad. This dear brave soul (who's not worried about Mom) will take her to the grocery store as well. Mom's feeling too restricted by my limitations, and I don't want to see her go off the deep end with things, so in my compassion, I'll allow her to exercise that "freedom" against my better judgment. Mom's a covetous hoarder, not understanding limits or restrictions, so I loosen the reigns a bit. How bad can that be? At least a mature, responsible adult will accompany her, and direct her activities, and I don't have to be the heavy.
I can relax with my wonderful nine year old. We're planning a birthday party for my husband. It's Saturday. We all need a break, and I'm praying for some respite, rest and refreshing.
gvergrl, I love to read your posts. You go girl. I think God is smiling on you. I love the mountain top experiences, when all seems well. But we don't get to stay on the mountain. We grow in the valley, as he walks beside us. Enjoy the heights! We rejoice with you. I am so glad your chains fell off. You are free to soar, and mount up as with wings of eagles. Enjoy the ride.
That goes for the rest of you, too. Each and every poster has so many talents to share. What survivors and encouraging ladies, (and a gentleman) you all are. Thank you.
But for anyone struggling, there is hope. And this is an incredibly healing place to share our stories, fears, experiences, struggles, and our victories. We don't have to crouch down in fear anymore, silently enduring torture and isolation. For that, I am grateful. Piratess, I know what you mean about the "Adult Children forums." Been there, done that, had to leave. Beyond, there is hope.