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It is only getting worse daily. Hallucinations have been vivid also. I wonder if the Seroquel and Risperdal is causing severe speech problems or if it just from the frontal temporal dementia?
Seroquel is a sedative. However, please get her checked out to see if she's had a Transient Ischemic Attack (TIA) ASAP. Risperdal has a slight side effect of a possible TIA and as such, should be monitored by a doctor.
DKuser, my mom also has frontal temporal dementia and she started speaking gibberish in 2016. She was diagnosed in 2012. The gibberish started in English and at that time she went to her native language, Spanish. After time, she started speaking gibberish in both languages. She also had hallucinations. I just did my best to keep a positive attitude about both. For the hallucinations, I just did what I could to redirect her to something else. I took it that it was Dementia, she has no history of strokes. At the beginning when I couldn't understand her, I would ask her "Can you show me?" That usually helped. Because I have been her primary caregiver for the past 3 years, I listened to all her stories a million times and I'm glad I did. When she got to this stage, every now and then I could figure out what she was talking about by a single word I had heard in one of many repetitive stories. I also tried to pay attention to what she was doing because she was asking for something specific (a dust pan because she was sweeping). I also tried to pay attention to her body language. I could do this because I do not work outside my home. I am at home with mom 24/7. Mom was also on Seroquel because she would sometimes get mad at my youngest daughter for no reason. At the time my daughter was 8/9. When I switched mom to her current doctor, the first thing he did was remove mom from Seroquel. Mom's agitation did not come back until recently, but this time her doctor prescribed Lorazepam. I am not discouraging you from having your mom checked by her physician. I just want you to know that I have been where you are and it was just because of her Dementia. Just do your best every day and take it a moment at a time. Its all you can do. May God give you the tools to help you get through this stage.
Old Sailor, could you find a volunteer who speaks your mother’s original language and would come in occasionally to see if they can interpret? It might be a real relief for your mother, if she could understand and communicate, even occasionally. Most migrant groups have clubs, many with older people with time to volunteer, so it might not be too hard to arrange.
You can't cure Dementia. My Moms neurologist stayed away from giving her any meds. Her anxiety got really bad so she was medicated for that. Ols Sailor, people with Dementia will go back to their first language. Second language is a learned thing so the brain forgets it.
I agree, Runchickrun, all meds my husband has been given over the years had worse side effects than the disease so he doesn't take then anymore. He still hallucinates but not as severe as when on drugs. He also speaks a lot of jibberish....makes no sense at all. I just chalk it up as part of the dementia and leave it at that. I think people sometimes are looking for a "cure" and will try anything, just let it be, there is no cure.
Yes, speech is a real issue for us but in my mom's case we know it's due to aphasia post stroke but will get worse, gradually or suddenly depending, when she has something medical going on, a cold, UTI... Doesn't sound like that is necessarily the cause for your mom but obviously something is happening. Does she seem aware of her problem, does she know when the words aren't coming out right or does she think she is communicating exactly what she intends? As you and others have suggested I would get to the doctor and look at medication first (I don't know if the particular dementia on it's own can cause this) if you are certain she hasn't had a stroke of any sort that might cause it. Then if you find you are looking more for methods to communicate with her let us know.
When my mom was on Seroquel she began to talk jibberish. I told the doctor to take her off of it. No longer an issue. I refuse to give her any meds for dementia because in my opinion none of it works.
Yes I do. She has difficulty speaking English and tries to use her native language, which I speak very little of. In her case it is the PPA (aphasia) There is nothing that can be done for her. Some times she will use a single word that I can look up on the internet other times I can't. She will speak more like a ventriloquist without moving her mouth. This will drive me nuts but I just take a deep breath and play word games to try to figure out what she wants or needs. That works about 50% of the time.
Have you checked the side effects of Seroquil and Respiradal? Agree get Mom seen as soon as possible even if it means an ambulance ride. At least you will know if it is advancement of her disease or another catastrophic event has occurred.
I read an answer that you gave a month ago and you stated that you are a nurse. Apparently your Mom's symptoms have been gradually getting worse so you don't think that she has suffered a stroke or TIAs. Do you think that your Mom's symptoms are signs/symptoms of extrapyramidal side effects or tardive dyskinesia related to Seroquel or Risperdal? Whatever the cause, a stroke or side effects from medication, I think that you need to have your Mom seen by her doctor as soon as possible. {That is what Davis's Drug Guide for Nurses" suggest you do if the patient has side effects.} {:-) [Nurse's cap]
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
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APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
Risperdal has a slight side effect of a possible TIA and as such, should be monitored by a doctor.
Agree get Mom seen as soon as possible even if it means an ambulance ride. At least you will know if it is advancement of her disease or another catastrophic event has occurred.
Luckily he was able to get most of it back. But it took a long time.She definitely needs to get checked over as SusanA43 suggested.
Good Luck