Hi everyone. Long story that I will keep short-ish. After being estranged for several years, about a year ago dad and stepmom contacted me. His kidney disease reached end stage, he wasn’t going on dialysis, and wanted to come visit. Then stepmom says she can’t take care of him. I agreed to have him come live with me and my family as they live 1,000 miles away so, I can’t help him there. Expected he would pass within months. I don’t want to offer money for them to hire care because I can’t really afford it and I don’t trust her to not just take it for herself. Being far away, I couldn’t verify it was being put to proper use.
Dad comes up and I get him set up with docs. No sign of recurrence of the bladder cancer that damaged kidneys. Kidney function poor, but not showing severe symptoms. Arthritic knees and in poor physical shape, had a few falls. He is happy as a clam because apparently his wife was making him miserable; we are nice to him and mostly leave him alone. He can sit around all day watching TV. My sister lives nearby but they remain estranged. His wife lives alone but off of their full, combined SS checks. They have debt and no assets except some home equity. I am taking care of nearly all his living and medical expenses but he does have good insurance from a prior employer.
A few months in the trouble starts. He is hospitalized with an infection (uses a nephrostomy permanently so prone to this). Shortly after release he is back in hospital with both onset of uremia (hallucinations) and abdominal pain that turns out to be a colon stricture. So emergency dialysis and a colostomy, yes now all of his waste comes out in bags. Took a few months to recover from surgery and he receives dialysis now.
After he came up we had talked about dialysis and his reasoning for not wanting it was flimsy. “I have cancer.” No you don’t. “We can’t afford it.” I’ll pay for it (his out of pocket max for a year is only $1k). “I wont have quality of life.” You just go there and sit and watch TV, the same thing you’re doing anyway. I needed to hear him say that he was ready to die, but he wouldn’t say that. I feel his wife didn’t want him hanging around on dialysis so she convinced him he didn’t want it. The main reason to get him up here was so he could make decisions for himself.
So where am I going with this? Dad’s health is stable now and he will live for many years with dialysis. He’s here now not because he needs our caregiving, but because he is broke and he and his wife are miserable living together. He’s not a bad person but he drives us a little nuts by leaving messes in his wake (food and feces) and just being in our space all the time. But if I try to tell him that it’s time to figure out how to get him back in his home with his wife, I know he would first argue about how his needs can’t be met (they live in a very remote area and won’t figure out how to make it work someplace where dialysis is available) and ultimately would choose to just stop treatment and die.
So, I can either let him stay here and mooch while he passes all his income to his wife, or he will effectively kill himself.
I appreciate that so many here have it so much worse. But, I feel like I’m even more resentful because the care I’m providing (I do take him to doctors, order all his ostomy supplies, and of course room and board) is worse because he and his wife could manage if they tried and made some sacrifices, they just prefer to take from me and my family. My poor wife is at her wits end.
Anyway, if anyone sees a way out here I am all ears. Did I screw up by challenging him to make his own choice about dialysis? Am I just stuck for the next 5 or more years?
Last week he and his wife once again had a dust-up and he said, "I might not be going after all." He basically had to threaten divorce/cutting her off for that to resolve. Then last weekend he was hospitalized for having a very high resting heart rate, but even by the time we arrived at the hospital it seemed to have calmed down substantially. Hospital found he was anemic (very low hemoglobin) and gave him a blood transfusion, but they never found a cause and discharged him. I thought he might try to use this as a reason why he needed to stay, but fortunately he did not. I do think stress from their argument could be a contributing factor.
We've got 3 weeks to go and I am hanging on for a bumpy ride. But he knows the deal, either get taken to the airport or be taken to the bank and SS office. I still don't feel great because I fully expect that I may never see him again once he leaves, but I try to keep telling myself that mooching off your kid to avoid your dysfunctional marriage is not good for his soul and I really am helping him by taking this option off the table. I agreed to give him an amount of money each year equal to his insurance's out of pocket maximum (its not that much), so if he doesn't get the medical treatment he wants/needs it is completely on him. I try to give him dignity of choice, I think he is making the wrong choice, but I've got to let him make it and there's nothing more to do.
You're doing the right thing. You will be living a much happier and less stressful life when your father goes home.
There's an old saying about people making their beds and having to lie in them. The choices your father made in his life are the reason why he's in a miserable marriage and has to mooch off of his child. None of it is your fault and has nothing to do with you.
You do not owe him anything. So anything you do for him like helping him financially is anact of kindness from your own good heart. Whatever you do, DO NOT allow him to move back in with you.
Who says you won't see him again? You could travel to where he lives and stay in a hotel. You can stay in touch with him.
I think it may be helpful to your father if he was put in touch with some services for people who live with an abusive spouse. Your step-mother is abusive and your father should be able to contact people that will help him if she becomes too much for him to deal with. He may also be interested in consulting a divorce lawyer.
His wife may or may not be able to offer the support he will need.
A nurse or his Doctor can refer him to a Social Worker service - to help him if he does need more support at home. Eg adding home services, arranging a family meeting with his wife, caregiver training for her or even look into respite accommodation.
The more LOCAL people in his support team will lessen the risk he panics & flies back to your doorstep for the next crises.
Remember, if he decides to come back, you are no longer going to be subsidizing him, nor have him living in his home.
If he and wife can't live together, he needs to see a divorce attorney to get a settlement that will allow him to live independently.
Stand strong.