I haven’t stopped to process how my sister’s suicide put me in instant caregiver role 5 years ago. I used to be organized, deliberate, more ‘together’, and more professional ( teacher). Now I just cry out of nowhere and I’m just sick of being the expected answer to everything for my mother. Organized? Hah. Stress eat? Medicated? Completely. There are times I just wish she would pass away so I could regain my own sanity. She was not a good mother in many ways, but am I alone in these dark thoughts? I am on my own family-wise. It’s all on me. Am I a horrible person for my thoughts?
I watched my mother suffer in hospice (despite their promise to make "her comfortable). She was unconscious but screaming in pain...every single day and night! It was horrific.
One morning, I witnessed her choking at 3:16 a.m. and ran to the nurse's station. While running back to my mom's room I was scared to death she was dead and another part of me was scared to death she wasn't. I just couldn't bare to see her suffer anymore. It's a totally helpless feeling and I do understand your situation.
If I can do anything to help you, please let me know.
In the meantime, my prayers are going out to you and your family.
I wish you peace and safely going forward.
You have helped me. Thank you. We need to take care of ourselves because no one else will. We need to find a happy place we can escape to. We need some me time. We need to allow ourselves to have these thoughts and not feel quilty!
Take care. I hope life gets better.
I run a small home healthcare agency in the Fort Lauderdale, FL area. I frequently get calls from the adult children wanting me to "make their mother go away" - they don't want anything to do with her - usually, it's just because they are too busy watching their "shows" to be bothered. I turn down a lot of those cases because I always want to be working with a family that has their parent's best interest at heart.
You Ms. Scully are not horrible - you are a hero!!! You obviously have love and compassion for your mother - even if she wasn't the best mother. (I promise you she was the perfect mother for you, but that's a different conversation.)
Here's my advice: Take a few minutes and stand quietly in front of a mirror. Let yourself breathe for a minute and "be" with the "woman in the mirror". Then honor that woman for the love, caring, compassion, strength, confidence, and everything else you provide for your mother. Honor yourself for your sacrifice and honor yourself for the contribution you are to your mother. The world needs more daughters like you!
You may also want to have a local home healthcare agency to spend 4-6 hours a day with your mom a day to two a week - respite care - so you can have a break!
What they say on airplanes is true... put your oxygen mask on before you help the person next to you. You have to take care of yourself so you can take care of your mother!
Breathe... you and your mom are both blessed!
Brad
If your mom passes away, there will be a whole new set of stressors that will hit you like a brick.
Find some outlets: meditation, reading, music, yoga, working out, long walks, researching an interest, support groups. Diversify your interests to protect yourself from depression.
Hold yourself accountable for your happiness and future.
Also, there are many cures now being found to help people. Do not give up hope! God will see you through this.
Place her somewhere safe, hire help and make sure her needs are met. Caring for her does not mean you have to do it all.
You need to have peace and rest otherwise your health will fail even more.
Do you have someone to help you sort out these feelings and needs of your mother?
I wish you love and peace.
Feel free to share all thoughts with us here.
One thing that helps is my support group. We're allowed to vent without judgment. It's the Alzheimer's Dementia Caregiver's FB Support Group.
Praying for you to have some peace.
You should have a chat with your mom and let her know how you feel and what it's doing to you and that other arrangements will have to be made.
#1 Mom can pay for Caregiving help or a Live In.
#2. Mom can choose a Senior Home to go to.
It is a vicious circle.
I love my mother. And will miss her terribly when she is gone. But I am so tired.
I really know how you feel. I have been told many, many times it is normal to feel this way.
Some days are better than others.
I guess I will just keep dreaming that one day I will have my life back.
Good Luck and don’t be so hard on yourself.
She is lucky to have you!
It doesn’t mean that a parent isn’t loved. We can love someone with all our hearts but still be completely exhausted from caregiving.
Wishing you peace as you navigate your way through this. My mom recently died in a hospice house. I cared for my mom for 15 years in my home. It was the toughest job that I ever had.
DO NOT FEEL GUILTY! My mother is horrible and I dread seeing her. She is verbally abusive and occasionally physically. I love her and do not want her to suffer. But I just can't listen to her tell me that she is going to die, come back and make my life a living hell, to get even with me for "Ruining her life." Or that I'm fat, or need a face lift before I lose my husband, or my rear end is a wide as a barn.
She is in a nice Board and Care with her own room. I make all her doctor appointments, take her to them, get her medications to the Board and care, pay all her bills, cook special treats for her, buy her sushi, etc.
I am not an evil person, I'm just tired, hurt and feel unappreciated.
So, no guilt! I'm a saint and so are you.
God Bless you, hang in there.
bless your heart