My husband‘s unexpectedly positive response to a switch in his Parkinson’s medication made a friend who is an RN specializing in neurologyquestion whether he had been misdiagnosed with Parkinson’s when what he actually had was Normal Pressure Hydrocephaly. He’s currently in hospice, so pursuing tests to discover whether he has NPH would require taking him out of hospice, getting him under the care of a primary doctor, being referred to a neurologist, and having an MRI done and possibly cerebral fluid tested. I suspect this would be a 4 to 6 month process. If the test for NPH was positive, treatment would involve the implantation of a shunt to remove fluid from his brain with no guarantee that his physical mobility would be significantly improved. I’d be interested in hearing from anyone who has experienced this, if they pursued the NPH diagnosis and treatment, and whether it was worth a time, effort and expense.
The singer Billy Joel went through this (misdiagnosis). Apparently he's doing much better now but I'm not sure how ill he was when it was corrected. If it were me, I'd want to get tested. I know this impacts your life, but keep researching as you've been doing. I wish you much wisdom and peace in your heart whatever you decide to do.