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Tough one when they refuse to "listen"! My mother's hearing loss happened long before dementia and she refused to have the surgery (otosclerosis - replace the little "bones" with stainless steel, because doc had to give the usual surgery warning, which in this case is that they only do one ear at a time, just in case there are any balance issues. Rare, but if it happens you just don't do the other one!) Sad, because she might have some hearing now. Hearing aids helped over the years, but eventually the loss will become total and permanent. Adding in dementia, she would forget to replace the batteries, then forget she wore one, where she left it, etc. Now she keeps taking the one that was working out so they take it away (original one she moved to MC with went through the laundry, then she lost one of two brand new rechargeable ones, probably wrapping it in tissue or napkin and it got tossed.) Hard enough to stay in a conversation that repeats over and over, but even worse because she can't hear me at all now! Also sad - during a recent visit I met a newer resident who thought mom was stuck up or something because she wouldn't respond when talked to!

I also would get the crap when I raised my voice on the third attempt to be heard/understood, but in her case she'd get in my face and angrily say "I have a hearing problem, don't you know!" This was even with hearing aids and long before dementia.

If she won't get tested and refuse any aids (either in the ear or the headsets or any other options suggested), you could try writing responses if she doesn't hear what you said the 1st or 2nd time. To avoid having to find paper to write on, I got a Boogie Board on Amazon. There are many options and sizes/colors. It's just an LCD screen that can be written on with the stylus, or any pointed object, even fingernails, but try to avoid pens/pencils! Then there is a button to clear the screen. Funny that mom's short term memory is shot, but she DID very quickly learn how to push the button to clear the display! Can't remember what she just said or asked, but she somehow got this.

She may not like this option either. If writing responses seems to work, do consider this item. Otherwise, avoiding her, or just responding as simple as possible (yes, no, nod, uh huh - depends on what she said) even if she claims you said something you didn't. No point in getting angry yourself!
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My dad had hearing loss and I had to scream at him to be heard over the past few months before he died. Part of the lingering bad memories about him, which is unfortunate. He was a good dad, other than using the belt on us kids when we were little. He turned up the TV to max volume, so I also had to listen to that all day when I was taking care of him. In his defense, I think he turned up the TV so he wouldn't have to listen to mom, who has dementia and repeats herself multiple times a minute all day long. Before he got too sick, he spent all day outside in the yard, which I think he did to get away from listening to mom all day. They could have managed things better, but did no planning and made no adaptation as they aged.

As for hearing aids, these elders are careless about things like hearing aids. You could buy new ones every other day and they'd get "lost," or go through the laundry, or they wouldn't remember to put them in or the hearing aids "don't help." Unfortunate but in many cases, buying hearing aids is a waste of money and just one more source of frustration.
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This is so familiar:) Buy or make her an ear trumpet!
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MumsHelper Mar 2020
Teehee 😂
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My mom does have some hearing loss (can't hear vehicles pulling up outside) but also "selective hearing," where what's said at close range simply won't sink in.

The hard part is knowing which is which, and when. The more (you think) you have to yell to get a point across, the "meaner" you're accused of being. There's no winning.
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Davenport Mar 2020
Oh, yeah ... I painfully learned to remove emotion when I spoke louder & slower, and enunciate carefully; a point for me, yes? Not quite--then would come the occasional "stop yelling at me"--which is pure emotional manipulation. Meanness + self-pity does NOT elicit compassion for me. Hang in there!
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I have not yet come up with a solution to Mother's hearing loss problem.
Hearing aids have been suggested for years, but she says NO. At this point she wouldn't be able to used to them anyway.
We bought some over the chair wireless speakers for when we watch tv. Great gadget since we can keep the tv volume down and she can manually adjust the sound for herself!! Well problem not really solved because of we don't have control of the remote, she mutes the tv volume and cranks up her chair speakers!!
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This is so darn frustrating for the caregiver. Oftentimes, the elder spends a lot of $$ on hearing aides, only for them to be kept in a drawer! My daughter's MIL is one of these people and she and her husband live with her. I've worn one hearing aide for over 20 years and if I didn't wear it, I would not feel whole - much like a person with a prosthetic limb! Take the elder to a GOOD ENT. Not all are good.
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I'm sorry for your struggling, Sue. I look forward to reading helpful responses. Of the healthy array of stressful 'things' my mom and I experienced separately but together, the hearing issue made me the maddest, somehow. My mom was generally easygoing, but the hearing thing caused us big problems. I was living with her [otherwise alone] and felt very lonely because I had no one to talk to, even though she was right there. And her uncharacteristic angry "you don't have to yell" just made me more upset. Stay strong m'dear : )
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StrugglingSue Mar 2020
Thank you for your response, I sympathize. You’re not alone friend 😊
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Davenport again, here. After I threw the primary caregiver towel and forcing a sister to come in when I vacated--mom acceded to my younger sister, to the tune of Many thousands of $$. And yup, as so many of us have experienced, she doesn't use it/them. A waste of $$ that could've been used for ANYTHING short of pure waste. :(
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I feel your frustration. Mom was not hearing. We repeated sooooo much. I remember telling her that the tv was way too loud. I told her the neighbors were calling to complain. She recognized the joke and laughed but because she has Alzheimer’s she doesn’t remember. After much shouting and encouraging from me (her caregiver) and her other children, she did give in, and to the tune of $4000.00. She refuses to put them in and, of course, if she learned, she would forget before breakfast. Is your patient in a nursing home? I’m not sure they would have the time to put them in for her. God bless your efforts. You have her best interests at heart.
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StrugglingSue Mar 2020
No my mother lives with us.
I have given up on the idea of hearing aides, know my mom she would never get use to them and I can’t deal with any else for her to complain about.
Thank you for your input 💕
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I want you to know that the company we use for her hearing care is not just a seller of hearing aids. They provide batteries when we need them. They provided a cleaning machine and the filters. They will see her when there is a question. And important for me, they clean a large wax deposit from her ears every visit. All this is so helpful. There are other companies that do not offer the extras. Good hearing.
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Folks the first thing that needs to be understood by everyone is that the whole vanity thing and inconvenience of it all are the minor takeaways of hearing losses. Far more important is the permanent damage being done to the brain and cognitive functionality of the impaired person. See: https://www.hopkinsmedicine.org/health/wellness-and-prevention/the-hidden-risks-of-hearing-loss

These are aspects that will make whatever difficulties caregivers are having the the person, far worse because their faculties will be degrading daily.
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disgustedtoo Mar 2020
I know loss of hearing can contribute to cognitive issues (certainly not everyone does, so it is good to post this), however, difficulties can go beyond just trying to get the person to wear them! They are not cheap and if the person doesn't want them in, what would you do, force them in? That likely isn't going to help! Since we can't watch a person every minute of every day, these are little items and can easily get lost, hidden, tossed, stepped on, etc.

My mother wore hers for years, eventually just wearing one because her condition degrades over time to total loss and at that point the right side wasn't working for her. She started misplacing the one left. She found it one time, but it was likely the prior one she had, which she had broken and didn't throw away. She got a new one and at the time of the move to MC, brother found one in the sheets as well as another, so it is likely the one that was "lost". So, she had 2 on move in to MC. One vanished at some point, the other eventually went through the laundry (before dementia she always took it out at night and put it on the end table. after, it would end up in random places, such as in the bed, on the bed table, on the floor.) Once when I asked where it was, she said she didn't wear one!
So post laundry, I had to find another provider, got her a new pair, both molded for the same ear and she kept taking it out. It lasted a few months, and was likely wrapped in a tissue or napkin and tossed. She keeps taking the remaining one out, so they take it away from her.

Someone who is really adamant they won't be caught dead in one isn't likely to comply, no matter what you do. Someone with dementia will be like my mother, losing it, etc. I've decided that is it. She can't get reimbursed for another 2 years, one time replacement for each of these can be had for $400 each, but why spend it? If it's sitting on the nurse's table, no point in spending anything! At this time she is 96 (97 early August), so that is that for me. IF she hadn't been silly, she could have had this surgically corrected about 30 years ago, so no hearing aids all these years and would likely still have her hearing!

Even if you tell the person about the possible connection with memory loss, most of the adamant ones are not going to listen. It isn't like children, who can be coerced, most of the time. These are older adults, likely very set in their ways...
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Same experience here, plus all the wasted time and money on the hearing aids.

What did help was a bit of advice from the audiologist, which was loudness/shouting does not work, and just leads to frustration on all sides. What DOES work is proximity and leaning in close to their ears, and speaking in a normal voice. Don't even bother trying to speak or shout from across the room. You have to get closer to their ear before speaking.

The other thing that helped us all tremendously was a TV device from amazon. Not earphones, which she would refuse, but a small simple wifi TV speaker that could sit right next to her on the end table. That way she could actually hear the TV without it blaring!
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We solved the problem by purchasing two whiteboards and whiteboard markers. When we want to talk to mom we write it on the white board. She reads it and writes her answer on her whiteboard. It a slow process at first, but now communication in our house has increased and there is not as many disagreements. It may not be the solution for your situation since every situation is unique. But, praise God, it worked for our family.

Peggy
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disgustedtoo Mar 2020
The Boogie Board I mentioned is more portable, so it can be easily taken outside the home, to restaurants, doctor/dentist appointments, etc. It's large enough to write quite a bit, but small enough to carry around. I bought the "sleeve" for it and a pack of extra styli, but you can get by without those.

My mother reads what I write, and then responds by voice. That would speed things up for you a bit, if she can still talk! Mom can't catch everything said, really not a whole lot, so it is easier to write it down (simple things like mimicking a drink or eating can usually get the point across, but to communicate or ask questions, this works well!)

No need for erasers or markers either. It works with a stylus (but she loses those) or anything somewhat "pointy" - I resorted to fingernails. Funny thing is her short-term memory is toast, she repeats herself all the time, can't grasp/learn new things, but she DID manage to figure out how to clear the display!
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