For the past 3-4 months my 93 year old mother (with stage 5-6 dementia), says that she wishes she was dead every time we visit, often, many times during the visit. I have answered, "God will take you when He's ready for you." I asked what I could do for her to help her not think this way. She can't think of anything to make her want to remain living. She eats and sleeps well and has no medical problems. She's lived alone for the past 30 years before the dementia, so is not very social with the other residents.
She's aware that her memory is gone, that she can't figure things out anymore and that she's confused at times. I've asked the staff at the memory care facility if she tells them she wants to die and the nurse said no. I asked the nurse to get in touch with the doctor to ask about anti-depressants but, knowing how poorly very elderly people metabolize medicines, I'm not sure that would be the best answer either. She was always a drama queen in her adult life and bordering hypochondriac.
Is she fishing for more attention from my husband and me or is she just expressing her real opinion to me, something she wouldn't say to the caregivers.
I've tried diversion (good for about 5 minutes) and explaining the benefits of living (waste of breath). What's the best way to respond?
Frankly, if I had been in her situation I would have felt the same and would have wanted someone to help me die.
We couldn't do that. Instead we had to keep her alive, somewhat medicated but unable to change her feelings, and then to watch her suffer bouts with urinary infections and sadness until she died.
What I would want in a saner world is to have all my family around me, have them ask again the very good question of WHY I want to die, have people love me, maybe cry and say they will miss me but that they understand.
And then have someone put me to sleep forever.
My husband has Alzhiemers, after beating metastatic melanoma for 14 years that went many places, including to his brain. Until now he has never said he wanted to die. He always had hope.
I know I am going to hear from him very soon the words of his mother, "I want to die."
It is heartbreaking. We both had hoped if we had those thoughts a kinder world would be available.
Over the years, as a nurse I have heard it many times .. its a natural reaction for dementia patients. They dont remember living, so think death will be better.
My response to the person in my Mother's body is .. well arent you lucky, cos we all die, so yes you will. and turn it into a joke.
My Ma is religious, I am not, but she is not talking about the wanting to be up in heaven dying.. so I dont do the God aint ready yet, or no spaces in heaven... as that brings more worries
I check her over for warmth, no ingrown toe nails, bruises, UTIs, then get the staff to make her a cup of tea... and she is right again.
Next visit I find she is too young to die, and life is wonderful.
I put it down to we have some default settings, and "I want to die" is one that is at the bottom of the bucket, when memory fails , it pops up
I see this a lot--also with parenting of children.
That things work and that the basics are covered is the top priority.
Not someone's whim, not someone's preference, not someone's special memory, or antipathy, or proclivity. The basic system has to work.
FOR EVERYONE IN IT!!!!!!!!!!!!!!!
Parents and caregivers have to establish a system with rules.
I recently got a little dog and read some dog training manuals. Everything I read about dogs, rules, boundaries, limitations, should also be ground zero for people. How funny!
Thanks everyone! :)
I think it's helpful for you to know the situation and I'm at fault for not explaining it. Mom has Stage 5-6 Alzheimer's and has lived in a memory facility for the past 9 months. She cannot recall most things, (previous husbands, siblings and even who I am at times), so trying to rekindle old memories is pretty much impossible. I've done that and she "zones out".
I'm an only child. Hubby and I can only visit once a week due to work schedules. We try to take her out to eat and a break from the monotony of the care facility. I have to order for her.
My mom was raised by very stoic, old country Swedish parents, so she is the opposite of a "touchy-feely" person. It actually agitates her to be touched and you can feel her tense up. So much for hugs, kisses and rubs. (Never had that as a kid, either, although I love it).
I will ask the geriatrician connected with the facility if he thinks it would be a good idea to prescribe antidepressants but I'm hesitant to further alter her already compromised mental state. Medication titration and side effects can be tricky in the very old.
She is able to walk with a cane but needs to be strongly encouraged to get out of bed. Previously she lived alone for 30 years so she's not very social. In her younger years she never had any girlfriends (I'd die without mine!) much preferring to be the center of attention with men. To this day, she prefers talking to my husband over me.
I will try to change my response to her "I just want to die", and attempt to get more response from her, instead of shutting down the conversation. I see now how my "when God's ready for you" response discourages further conversation.
Since she is aware that she is failing (in memory only-her body is as healthy as a horse) I would assume that she's disgusted with her plight and limitations and may not see a future. She'd be correct.
What a lousy situation for everyone. I hope the end for her would be sooner than later, for both our sakes. I can never make her situation any better and her disease will only get worse.
I know there is a reason for everything in life. What does God want us to learn from this? That we are not invincible?
Compassion? Patience? Empathy? I've been told all of life's difficulties are allowed so we have a need for God. We cling to Him and He helps us with our troubles. Some of us just hang on by a thread. Ask then expect to receive help (maybe not in the way you thought).
I hope I do not suffer the same fate as my mother so I don't have to put my son through this.
It is too bad that we aren't mentally and physically healthy up until our last breath.
'But we are here with you and we will see you thru this part of your wonderful life together. You are not alone. We are in this together.'
Some thing like the above might help her. Good luck. Just be present. That says it all. Very hard time for you.
She is living with her daughter in MD. She wants to move back here with me. But, unfortunately, her daughter is refusing to send her. Why? Only God and her knows the Truth. But, my mom said to me 'let's just pray, God knows best..." She is tired of the drama between us her children.
It depresses me a lot. Bring tears many times to my eyes. Hoping my mom desires be fulfill before it is too late. It hurts. It really does. But, I am trying to maintain it all for the sake of my own family life too.
My dad died since my mom was 35 yrs old. Never marry back. Never took anyone. Worked all her life to take care of 5 children. Dedicate her life to God. Today, her dreams are not being fulfill.
As I write my story. I relive every moment. Every day. Every pain. Every fight. My mom does not deserve this. But, as she said, "God knows why or best..."
Let's keep praying for each other. Especially, being in these situations. It is not an easy road to be on to see your mom (parents) suffer.
Certain behaviors are reserved for certain people. Her mask falls off with ME and me ONLY, now that my Dad is gone. I will try to remember that the next time she's crying and telling me she wants to die.
If she said to me now "I want to die" or "I am going to kill myself" I would respond either . "Yes, you will die someday" or (to the suicide threat) "Please don't leave a mess". Sounds heartless, I know, but she does not have much dementia now--just a general forgetfulness that is getting worse (my 64 yo hubby is WAY more "demented" than she is).
IF she had dementia, I would be much more understanding. She's a drama queen and we're all tired of her antics.
When I asked what I could do for her, she said, "Oh, I don't know." Then she said, (smiling) "Sometimes I say that but I don't really mean it." I asked her if she was trying to make me feel bad and she said, "I have no idea." Same answer to why she doesn't tell the staff at the memory care facility that she wants to die. "I don't know."
Seems to me like this is a way to get attention/sympathy. The smile during the confession that she "doesn't mean it" says it all. Sure Mom, do anything you can to get more sympathy, more attention, make me feel bad/inadequate. At least I know the truth now and won't respond the next time it's said. Once a narcissist, always (even in Stage 5-6 Alzheimer's) a narcissist. Glad I didn't waste a lot of emotional time on this "problem".
Even though I found the reason why MY mother says such things, I'm not discounting that other dementia sufferers (or just the elderly in general) may mean something different and may need different intervention.
You've brought up a good point. During the time my mother with dementia was just "existing" in our family room, my 14 year old began acting out in school and I was afraid I would lose my new job for taking off so much time from work. I finally found a good family run group home for her.