I have currently been taking care of my elderly grandmother for the last 7 years from the time I was 20 till now at the age of 27, and before that I helped take care of my great grandfather for a few months till he passed away at home.
My question is how can I deal with the burnout or how can I possibly come to the conclusion of when I've had enough and give up? I hate to say that, I really do, but it's affecting me mentally to the point that I don't know what to do or how to react anymore.
When I agreed to stay here, my aunt was helping by providing some financial assistance and taking my grandmother (her mom) to her doctor's appointments. After a year, she just quit and has since then not done anything to help.
I do not have a vehicle or a job (I live with my grandmother about 5-6 miles from town). So we basically have to make it month to month on $900 from my grandmother's retirement, which I don't think I have to explain how that is difficult in its own way. My dad takes me to the grocery store and to pay bills but other than that, it is the only help I receive.
The house is in need of repairs badly, we barely make it through the month as it is with just a few dollars left, if that sometimes, and it has gotten to the point that I just want to run away from it all. My grandmother adamantly reminds me she would rather die than go to a nursing home, and me being as big hearted as I am towards my family, it is hard for me to come to terms with it all.
I practically gave up everything to take care of my grandmother. I haven't had friends or left the house for anything besides grocery shopping, paying bills and the like in many years, not to mention haven't had a girlfriend or job either since moving here. And the constant reminder of how hard my life is going to be after she does end up passing away just gets worse as time passes.
Please if anyone has any kind of suggestions or advice, I desperately need it. Thanks for taking the time to read all of this if anyone does.
Research what care is available to your grandmother on her own funds. If she qualifies for Medicaid, it may mean placement in a Medicaid facility. When you find out her options, tell your grandmother you are moving out and she can choose to go to a facility or to hire in home care.
What are you left with if your grandmother dies? No more of grandmother's retirement or social security money. Will you move from care taking your grandmother to care taking your father? You are going to need to support yourself or remain in your current dependent situation forever.
Please start caring for yourself. Get some job training and get some sort of job even if it means pumping gas or working at the local grocery store chain. You need a young man's life, and not the life of throwing your life down the drain. Your best formative years for a good training have been taking care of your grandparents. You can train to become a Nursing Aide working in a facility since you have seven years of hands-on experience. This is how I got started in the field of nursing.
The OP must have access to internet and a computer. He wouldn't be able to post things if he didn't.
You're spot on about getting in touch with a social worker though. That could be a big help to him. He has to be careful with that though. As in don't let one anywhere near grandma's place.
If a social worker came to the grandmother's place and finds it unfit, they will put her in a facility and Dennis will become homeless. That's neve better.
Even at 20 an hour, that’s 41600 a year just for 40 hours. Over the past seven years, your forgoing that opportunity has cost you 291,200. It means that you must work that long for seven more years to even qualify for ss. It means that you now don’t have that sum for college.
Forget about her house. Your parents and aunt will get their mitts on it first. I don’t even think you’ll get thrown out for just getting a job. After all, you sleep there with her creeping, the mildew, the rot. They don’t have to pay anyone else to.
A month or two of paystubs, you will find a house share pretty easily and perhaps even an efficiency apt. Which should make your family proud. If they won’t be it’s also a blessing as it relieves you from the clutches of such damnable selfish toxic leeches.
If there is one thing I would tell my younger self, it would be to enforce boundaries to protect myself. It is good to be kind, but time after time, when you are dealing with aggressive or narcissistic family members, and you are the younger one, you will get run over and taken advantage of. I know this because it happened to me.
With burnout, I think you know when you know. I was in a caregiving situation for about a year, with a family member who was well enough to stay in their home, but refused an outside hired caregiver because they knew I would do it, and it made life easier for them.
But day after day of being unappreciated, talked down to, and having an endless "to do" list that only got larger the more I did, finally caused me to snap. I ended up getting a list of local caregivers from the hospital and called every company I could until I found one that was available and did not have a waiting list. Now the person I was caring for has a caregiver coming in, and I can live my life, which was sorely neglected for a year. This neglect includes my husband, children, pets, home repairs, and most importantly, my mental health, exercise, sleep, etc.
I understand that I could do this because the person I was caring for was in a financial situation that they could hire a caregiver, and that this may not be the case for others. But I tell you, if I needed my freedom, I would take on two jobs, cut back expenses, coupon, get a roommate, sell things online, babysit, walk dogs, cut back on electricity and meals, and anything at all I could do as a healthy young person to get the hell out of there and get my own place. You are worth it.
This may sound mean, but I have learned from my own experience and with age and time passing, that some of these people (narcissists in particular) will bleed you dry mentally, physically, emotionally and financially. They'll destroy your relationships with your spouse and children and even get jealous of your pets. They will take all you've got and expect more. Just to have a couple more comfortable years. Then they'll die, and you'll have absolutely nothing in any aspect of life, and then what?
Make a plan for yourself now. Make a list. Stay up at night and write it down and think about what you can do. Save yourself. Do it sooner rather than later. Love yourself enough to do this! You will be glad you did.
Contact elderly senior services — it might be called the Agency on Aging —in your area to find out what support your grandmother can get. But do not take on the role of figuring it all out for her. Let your grandmother and the rest of the family know you can no longer provide her full time care.
Visit your local community college. Perhaps something in the health field appeals to you? You have shown yourself to be very caring and there is great need for healthcare workers. Don’t waste time on something which doesn’t appeal to you. And do not continue to undervalue your life and happiness.
Counselors at school can advise you on the steps. Do not assume you can’t afford it. Once in school you will be on track for a better life and will make friends. Your grandmother will be ok. Let go with love. I hope your family can find it in themselves to let you go with love and appreciation. But regardless, get out. Make your plan. Give them all notice. It can be a long notice. If school starts in August, let them know you’ll be leaving then and in the mean time, get a job. Anything that gets you out of the house and pays you something will be a great step. If your grandmother cannot be left alone at all, the other family will need to step up. Or grandma will have to move where she can be cared for.
Good luck! Call the community college today and make an appointment with an admissions advisor. (Be sure to contact a state accredited school.)
Call that business, "A Place for Mom" (free of charge) and ask how they can help grandma get placed somewhere near you so that you and the family can visit her. We all have feelings about being cared for; some love it, while others refuse it...................for some, they need it, but don't want it. That is not YOUR issue, it is grandma's and she can get some clarity by working with a social worker who can sort out her issues, emotions and needs.
You can make a decision to stay or move out. Grandma's money will go to her care, so you will need to hit the road and get yourself a good job.
I'm going to speak plainly to you so as not to be misunderstood.
Walk away. I know you love your grandmother but you're living a life that nobody your age should be living and have been doing so since you were 20 years old. Yes, you are young but you're not a child. You're a grown man and have to stand up for yourself with your family and everyone else. Otherwise the whole world will take advantage and walk all over you for the rest of your life.
If your grandmother would rather die than go to a nursing home, that's on her not you. She is manipulating you by putting this kind of guilt trip on you. By saying such a thing to you she is blaming you in advance for something that hasn't happened yet.
Is there any way you can go and live with your father? Or a relative? Or a friend? That way you could get a job and maybe get yourself into some kind of schooling.
Realistically you can't just pack your stuff and walk away today. You have no money, no skills, and basically no work history if at your age you've been unemployed for seven years. This doesn't mean that how you live now has to be the rest of your life. Start with taking just one step forward.
Let your aunt and grandmother know that you will be taking weekends off. There will have to be some alternative caregiving brought in to help grandma. Then leave for the weekend. Ask your father to pick you up. Take a weekend live-in caregiving assignment for other people. I know for a fact that weekend help is hard to come by because no one wants it. Male caregivers are hard to come by as well. You would be earning and could put a bit aside. The important part is to make sure you follow through and get out on weekends. This is the only way your aunt, grandmother, and other family will know you mean business and are serious.
Also, take grandmother to visit a lawyer. There's no reason why her adult kids should be the only heirs to whatever property and assets she has. They do not take care of her, you do. They do not pay for her care either. Why should they fully inherit whatever she has when they do nothing? You do not even need to tell anyone if you bring her to a lawyer. If she hasn't been diagnosed with dementia and declared incompetent by a doctor, she can arrange to leave her property and assets any way she sees fit.
If you want to continue being grandmother's caregiver and living with her you may be able to get paid. If her income is only $900 a month, she is low income and probably on Medicaid. Your state may have a paid family caregiver program. It would be worth finding out. Contact your state's Department of Social Services and they will direct you.
This is not good advice. Encouraging Dennis to check out couch-surfing and make himself homeless will not be a better alternative to the situation he's in now. Nor is it realistic that he can take off to Hawaii to work on a farm.
He doesn't have much support or any money. If he gets a job, he'll need a place to live and it's unlikely he will be allowed to stay at his grandmother's house if he isn't doing the caregiving 24/7.
If his state has a paid family caregiver program he should look into that. Then collect the money from it every month, deposit it into a bank account, and bide his time for a while caregiving. With a bit of a nest egg, he will be able to make a real plan.
Maybe he can return to where he lived in the BC times (Before Caregiving) and go back to life there.
Making himself homeless is never a better alternative.
It sounds like you started out helping but ending up owning it. You are too young to be in this position.
Have you been to College. Do you have any "paid" work experience. Check out your nearest Community College and apply for financial aid and enroll in school or a trade. There is a lot of $$$ out there nowadays for schooling.
Call on the troops to help out Grannie and then get your own life in order-checking account, utilities in your name, driver's training, library card, join a Church, gym. Build your life.
Make some new friends and invite them visit Grandma. This will add to her life.
You have probably have done the same thing for so long that you think there is no way out. There is. You are NOT stuck in this.
There are Academic Advisors at Universities that can help you make a plan.
In the mean time work online, get some new clothes and have a town meeting with your family. Check out The Buy Nothing Project.
You need to make a plan. Read everyone response here and write down what you think you can realistically do. I will pray for you and do not be afraid.
Do something everyday that will get you where you want to be. Check in on this posting. You sound like you are a wonderful young man that does have a good road ahead, you just need to get out of the position you are in now.
You are in my prayers....
Dennis should apply for welfare (ga), food stamps and Medicaid for himself. In my state that will entitle him to a free phone plus free internet and community college tuition as well.
You are basically a live in slave for grandma and your dad and aunt selfishly sold you into said slavery.
In my opinion, I believe k’s parents should have stepped away starting at 18-22 by getting Kay into a group home setting instead of where they ended up. Given the post is nine years old, I wonder where the parents are now. Their own health. Like Kay, your son might well outlive you only to navigate group homes and apps by himself. It honestly is in his self interest for you to introduce him to the housing resources now because you’ll be around to help him navigate it.
I also disagree with the posters who say Dennis should go all out to acquire services for grandma. Frankly at 72 that is her problem for which there is an immediate solution, which is going into a nicer home than not and getting prioritized for Medicaid. Or dad and aunt can move in there themselves cause it’s their inheritance.
Did you see how Dennis said he caregave for some great grandpa nefore this. Betcha dollars to donuts he got no money and that he got recruited as a child.
Dennis is an abused child. The sooner he leaves, the better.
I must say I have been reading all of the input and your responses.
You write extremely well. Could you possibly get paid for a blog. I read the beginning entries and yes I realize I think everyone's intentions starting out were different then they thought the outcome and lengthiness would be.
The years went by and a precedent was set without anyone really reviewing should this continue. It's almost when you know you need to break up with someone but you keep going out anyway.
Again, I think you're a truly remarkable young man that set out to do the right thing and you somehow got saddled with everything.
The fact that you are on this forum is a step in the right direction. You don't have to solve your entire life in one night but a step at a time.
Keep in mind folks, we just got through a 2-year Pandemic, the economy is faltering and inflation is at an all-time high. I agree a lot of these NH are crap boxes (these are my words, not Dennis'). They took a poll at an Assisted Living and NH and asked the Board of Directors, how many of you would like to live here? No one raised their hand, everyone said they wanted to remain at home. But that doesn't mean this is Dennis' choice to do this.
Amen...
You seem like such a loving and caring young man.
You are being used and abused by your family, which is so very sad and frustrating.
Judging by the amount of her retirement,
You should qualify for medicaid to pay you to care for your grandmother. Most states will pay the live-in caregiver wages. This way you have some sort of income for yourself.
You should also qualify for medicaid and possibly food stamps.
There are online classes you qualify for, too. This will help you to achieve a college degree. There are also work-from-home jobs out there. Many businesses have gone remote.
Every person's situation is unique. I don't know the level of care your grandmother needs. But it isn't right you have become her sole caregiver.
This isn’t Dennis’ burden anyway. He needs a real job with real fica, real health benefits now that he’s aged out of Obama’s letting kids on parental insurance and a 401k. His immediate need is having the immediate support so he can launch as he’s on borrowed time too.
Dennis has no obligation to this woman who’s not even his mom, and if that whole family doesn’t understand that he gave up 300k in potential earnings already, plus seven of his most productive years not counting great ?? Grandpa, they are truly people who won’t care when he’s 53 with no prospects to even have a family he provides for
if grandma does not want any other help that’s up to her and it’s very selfish to guilt trip you into staying. A loving grandmother should be aware of the needs of a young man.
You are allowing yourself to be used.
I am 68 caring for 97 y.o. mom. We live together. She walks with a walker but needs assistance with most activities. She could easily live another 10 years. There are many days I feel torn between staying retired or going back to work and getting her help or maybe ALF. Many times I have felt burned out, but I am 68!
You are only 27. What if your grandmother lives another 20 or more years ?
You MUST start your life.... Give notice to your aunt and your father ASAP!
Others here gave a lot of good suggestions of what and how to do.
And, I have another... if you are really wanting to change and have the support you need to get started .... what about enlisting in one of the branches of the military ?
I lean toward the Air Force as that's what my family did :)
But with any of the branches, you'd immediately get a salary, room and board and training ... on the job paid training. You'd make new friends, probably some lifelong friends. You could even train to be a medic, and later on work up to a nursing career. Or something entirely different. But you could a life, your own life!
If you were to consider "getting out"... where you would go?
You say you have no friends, no vehicle, no job, no income, and live 6 miles from town.
I'd like to know exactly how people expect you to just "get out of there". Would your father take you back in?
Your post doesn't directly state your father is related to your grandmother, so perhaps these are your mother's parents?
It is obvious to others by your post you are being abused and mistreated by your own family.
I encourage you to seek professional counseling. These appontments can be done online via a Zoom platform or something similar.
Your counselor should also be able to assist with directing you to other avenues of assistance as applicable to your state of residence.
Thankfully, there are so many remote jobs currently that you can begin working while at home - especially since COVID, many companies are remaining more remote as it's a cost savings - and they're minimizing office space. It's a perfect time to focus on your work skills and translate it to a profession that you can remotely do - and then take it from there. Once you're earning a salary, you'll have many more options - to rent a car and get out more, etc. And if there's a chance, your Aunt and your Dad need to become more involved - it's imperative to stand your ground and step back from all of the time that you're devoting to your grandmother and ask them for assistance. She's their mother and they are responsible for her, first and foremost.
Also, if you require any additional career training, there are also on-line courses. Try as best you can to take the time while there to focus on building a career path - and anything you need to do remotely to support that (preparing a resume, remote job, classes, etc).
I'm currently having a very difficult time with my own family regarding their support with taking care of elderly family members and expecting me to do it all, so I truly understand what you are up against. It's a really big challenge - and I hope things begin to improve for you - you sound very intelligent and compassionate and things will get better :-)
The very fact that you are asking yourself that question means that you have now reached your limit. That is good news, because I bet you’re disgusted with yourself for being everyone’s whipping boy for so long. Now you can do something about that uncomfortable feeling, starting now.
No loving parent or grandparent or relative would allow you to be emotionally abused in this way, thus you must realize there is zero love coming from them to you. They consider you a useful patsy, at best, and must be contemptuous of how easy you are to manipulate. You are essentially a slave (that is a loaded word, I know, but I consider this terrible situation no better than that of a slave). The bars stopping you from leaving the situation may be only in your head rather than real bars, but you feel enslaved nonetheless. Set yourself free. Only you can do that.
Love yourself and take care of yourself by leaving this unendurable situation NOW. That is surely what you would advise a friend to do, if you had time to curry friendships. My heart hurt for you when reading that you haven’t even time to find a girlfriend. When you take control of your situation — your precious life — you will feel some self pride and will therefore attract friends. A bright smile and hope for the future will make you attractive to normal people rather than your hopeless attitude which makes you, right now, a magnet only for your abusers. Tear off the shackles.
None of us consider you a loser. We understand how you, step by generous-hearted step, got roped into this. You took steps down down down into being trapped. Now, look up. Take steps to get yourself up and out of the trap.
You do have options, I just fear you’re too beaten down to see them right now. Start trying everything and anything right now to help yourself. Let your selfish family find options for your selfish grandma. Cut the cord. Some options:
- One wise poster urges you to apply for welfare and food stamps, and the free phone and phone service available to you. Do it!
- I have only recommended to one other troubled writer to consider going to a homeless shelter. You are now the second person I recommend this to. You only feel stuck in the ramshackle house, with the emotional abuse: I think you need to flee in order to feel alive again
- Another poster suggests you consider joining the military. You are a good, honorable man, so this could be a brilliant way out for you
- Phone every single local church until you find one that can help you with a hand up in the short term
- You are the victim of abuse. Yes you are, you may not even want to admit it to yourself. Call an abuse hotline for help finding a place to stay, starting immediately
- Just a personal comment, you have fantastic “carer” experience from caring 24 hours per day for both great granddad and now grandma. When my father-in-law became ultra frail and old and unable to live alone, we had such a hard time finding male carers for him, to help with dressing, showering toileting and the like.
a. Why don’t you look, starting today, for a carer job for a man or men who need help?
b. This would give you proven income, to help you get the required 35 years of job income to pull full Social Security when you are old, yourself. If you don’t pay into the system you are going to be stuck.
There is no shame in asking for help. You’ve taken the first step by writing, here. Read everyone’s suggestions, I am sure you’ll get alot more, and put one foot in front of the other to help yourself. We are pulling for you. Come back and let us know how you are getting along. I am sending you love and good thoughts; you sound like a great young man and you deserve all good things.