I cook 3 meals a day. Give his showers. Wash clothes. Pay all his Bill's. Take him to Dr.'s. I do everything for him.
His dementia is getting worse. He gets around with his Walker. He uses the bathroom fine. No pull ups. Eats very good
Sleeps a little more. My sister has a problem with the amount of money I receive. He saw a lawyer and he drew up a contract and specified the amount. She's accusing me that with his dementia I set the amount.
Contract was drawn up almost 2 years ago. What do I do? She says $300.00 a month is plenty and I'm taking his money. She does not help me with any of his care and never offers.
i agree that sis is clueless, which makes her appear self centered. My question is this:
what kind of relationship have you had with sis? Has she always been in charge? Has she always wanted things her way? And going forward, what kind of relationship do you hope to have after dad is gone?
it would be so satisfying for a moment to tell her off now, but doing so would have repercussions later. There are ways to stand your ground politely. I’ve seen others do it and I study them. Your sister may not agree at the time and may need to get the last word in, but stay polite.
also make sure you have POA and are in charge of the trust and are his health agent on his POLST. You are with him, so you will be the one to make decisions rapidly. Get all this paperwork in order while dad has capacity to sign.
when my kids were little and complaining about friends I told them they needed to stand up for themselves, but do it in such a way that when they invited the friend to church the friend would want to go! Very difficult, must pray first.
Im less apt to bash or be so suspicious of your sisters motives, though she is being very unrealistic and probably isn’t going about it well she probably has no idea. She may even feel shut out or jealous of your relationship with Dad or guilty about her inability to be as big a part of his care, whatever the reason for that. Not everyone is cut out for or able to care for their failing parents for all kinds of reasons, one being the emotional strain of the in your face mortality and when you aren’t submerged in caring for them daily it can be harder to figure out how to make the most of each day rather than mourn yesterday. It’s like when your children are very young, the parents living with them every day don’t experience their growth and changes the same shocking in your face way grandparents, aunts and uncles who see them less often do. With an aging parent each time you experience the shocking change it’s emotionally more difficult and can become frightening, what am I going to find this time, as well as maybe a picture of your own possible mortality. Not sure I’m explaining that well but perhaps helping your sister understand in a more gentle way rather than writing her off or locking her out. I don’t know how far away she lives but if she is close enough maybe you could ask for her help, go away for a weekend and have her stay with Dad or have her take him in to visit her for a long weekend, week even. Maybe keep her in the loop more about doctors appointments, medication, vent a little about the things that get to you sometimes, lean on her a little more, laughter with her about dad things. “I went grocery shopping for a couple hours and came home to find a scorched pot, I fix something for him ahead of time every time I go out and remind him not to use the stove but...should I turn off the breaker every time I leave the house?! Lol I keep finding his toothbrush in the freezer, what’s that about? Hahaha” Let her know about some of the day to day challenges without using them to prove that you deserve compensation. You could even point out how expensive it is to get some help and ask if she could come stay with him for the afternoon, this way you are being cognizant trying to conserve his money and letting her know without that confrontational thing, just how expensive caregiving is as well as how much he needs the supervision.
If none of this is really applicable and it may not be, just hold firm both to yourself and to her that this is the way Dad wants it and set it up. Changing it up or down (though I could come up with reasons to increase it) is dishonoring his right to make decisions for himself, his last feeling of independence. Also I’m not clear as to wether Dad is actually living with you or not but there are basic expenses if that’s the case too an it’s not fiscally responsible with his money not to cover those in case he needs Medicare in he future an so their are less opportunities for bad feelings later around the settling of his estate.
Good luck and do try to put yourself in your sisters shoes as much as you can while trying to deal through this, I’m not saying it’s fair she is wrong but it’s a relationship that will be better to strengthen through the next 10 years, for you and for your dad, rather than strain if at all possible.
You should offer to take a month off and have her take your place.....she will see just how hard it is.
God Bless You for what you are doing.
More than the physical things you do for your father, you're providing him with the security and happiness of family care. If $1000/month keeps you on the job, it's still a GIFT you are giving him.
My 87 y/o father, who has dementia, lives with me, and I do everything for him too. I can assure you that $1,000 per month is not too much! If anything, it's not enough! I would tell your sister to go ahead and keep him for a month, and then decide if it's worth it. Tell her to look at prices at Memory Care facilities! They run anywhere from 4-6k per month! This is not an easy job, and it will get worse with time. It is very stressful too. I'm sure you could get an easier part time job for that amount. $1k per month is 12k per year. Who can even live on that? People who have not been in your position have no idea how difficult it is! It is a 24/7 job!
I had to get 24 7 Care for my 96 yr old Dad do he could continue living in his own home and it took me a super long time to find someone to do this for $512 per week using a few Caregivers.. most Caregivers want a minimum of $12 an hr up to $25. I'm paying $9 but $12 on Holidays.
Whole I was looking, I did find another lady that would do Live In for $500 a week but I would have to furnish her food, own bedroom and bathroom and she would be able to take one 24 hr day off per month.
You should offer the job to your sister and see how fast she runs from it.
I make 3,000.00 a month.
You are UNDERPAID
It's funny how those who don't help have lots of opinions on the matter.... Tell your sister she can do it all for $300 a month. :-)
Even if you found a private caregiver, it's on average $15/day. It's lower since they don't have to share the wage with the care agency. However doing the math it's still, at just 10 hours a day, $4,500 per month. And you'd still have to be there the other 14 hours.
Care is one of our biggest financial issues in our country. You're a gem for being with your dad in the first place, and especially for that small sum.
As mentioned, call some home care places and get a quote emailed to you and send to your sister. That should cool things off.
See a lawyer yourself. Are you his POA and Proxy? If you are you don’t have to volunteer information to no one.
Tell your inconsiderate sister to take care of her Dad full time or
hire full time caregivers around the clock, that’s 24/7 of paying for outside help for someone with Dementia bc he can’t be left alone, see if it comes out to $1000 a month OR more like $4000 a month.
She should keep her mouth shut when she doesn’t know what it entails.
Good luck with all that.
Stay safe & healthy.
I don’t think you’ll ask for more, which you’re certainly entitled to- but your sisters selfish bullying has got to stop. Send her a message, explaining that you’re giving her one last shot to be supportive with your dad’s decision to pay you. Anything less than “thank you so much for taking care of our dad” - or you’re blocking her. She can come visit your dad, but you are entitled to cut this negativity out of your life.
Good luck with everything. When it’s all said and done, you can go to sleep at night with a clear conscience. Your sister, well, let’s hope she snaps out of it.
Part of elder law specialty is Medicaid planning. As long as there is an agreement Medicaid allows payment that is comparable to what home care costs from an agency.
This study on the cost of caregiving to the caregiver may be helpful to help understand the financial impact of caregiving.
https://www.aarp.org/livable-communities/learn/health-wellness/info-12-2012/metlife-study-caregiving-costs-working.html
Did you word your response correctly?
https://www.aarp.org/livable-communities/learn/health-wellness/info-12-2012/metlife-study-caregiving-costs-working.html