My husband has 8 children, two of which are across the country and not able to be here and one who is developmentally disabled and lives with us; that leaves 6 children that live locally.
My husband is 84 and I am 47.
I have been caregiving alone for a long time now (over 5 years). I have given up precious time with my own family and any semblance of life outside my home and caregiving responsibilities.
I am currently trying to secure honest and reliable home care for a small amount of time throughout the week.
My question is this: Should I write an open letter asking for each of my husband’s children to come sit with their Dad once a month? Or stay over 24 hours so that I can leave and visit family?
Two of my children live about 3 hours from us (they moved closer to be near us). I would really like the freedom to go visit my children and grandchildren without the responsibility of being a caregiver for my visit.
I am so blessed that two of my children and one of their spouses (both in their 20’s) have come down a number of times to visit and help with things around the house. They want to make sure Mom is okay and know the great responsibility that I am carrying.
His kids are from 35-62 and it’s rare we see them; they live locally and Covid isn’t the reason they don’t show up.
I'm just really tired and wanted to know if you thought sending out a letter would be a good idea or even appropriate.
Thank you in advance ♥️
In retrospect, I think I might have had more success with a family meeting in which I laid out the problem as "our problem" and then stood back waiting for solutions to be offered. That puts the same pressure on everyone at the same time to respond/contribute. This would be an approach for getting regular help.
The other thing I did wrong was to leave the details/timeline up to them. I might have gotten more respite if I said, "I want to go to this thing; can you come take over for me for this amount of time?" This would be an approach for getting one-time help. Different approaches for different needs.
I wonder if a meeting would help. I think it does appear more organized but if someone doesn’t want to help, they won’t.
The thing that got to me is they didn’t have a clue as to what I was going through. Plus they looked at me as a complainer.
It’s tough all around for caregivers.
Now my brother knows how I feel because mom is with him after being in my home for 15 years.
Wakeup call? Yup. If you marry someone, typically you rely on each other. If it is someone who is 37 years older than you, sooner rather than later the are likely to be medical issues. That's a given. She didn't enter this marriage blind.
If her life is being "impacted", it is up to her to find ways to alleviate the impacts. Hire people. Find a day-care or a facility. What if there were no children to rely on? Should she send letters to other peoples' children?
They aren't "getting away" with anything. She has a "right" to a life, for sure, but he is her responsibility. If she wants respite or help, she needs to hire someone or get respite (1 week so I've read) via Medicare. Perhaps call in hospice, if he is that bad, or find a MC place, where she can visit how often she wants, stay as long as she wants, but have "respite" at home, not having to provide all the hands on care.
I think it seems like he is still alert to situation so might have issues if suddenly you are gone and someone else is there , even his child. I’d ask them to start visiting ..maybe have a get together for everyone and then start inviting them over in small groups or together regularly. Maybe a birthday party for the sibling ? If that goes well, then ask for help..first just like , for a couple hours so you can go out to lunch with friends or even for a doctor appt. This will be easier the more independent he is. And also hopefully the child who lives with you can help. Next expand that time. It won’t be a quick process but hopefully this will work,
If not , or if you need respite sooner...look for the things others have said here. If money isn’t an issue there are many agencies or care givers even from online sites. If it is , then look at what can be covered through hospice if available to you or insurance or veterans or other local and state programs. Also, pre covid anyway there are adult daycare types of things ..some very reasonably priced .
Good luck!
if you have a decent relationship with one of his children, maybe a personal phone call to that child asking if they or their siblings would be receptive to staying with their father on occasion while you visit your family. Give specific dates. I wouldn’t expect them to all of a sudden to take on their fathers care on a regular basis if they haven’t offered for all these years.
I don't know how much you are in contact with them. If they have not been required to help before, they may just assume that they aren't needed now. They may be just self-centered more than truly "selfish".
(I may have this entirely wrong, of course, not knowing your situation) But perhaps it wouldn't hurt to write to them with an "update" on dad's condition. Tell them that if they could come and spend as much as 24hrs. with him, it would help you (that you need a break to see your family members as well) and perhaps give him a boost as well. You would be the best judge of what to say and how. And you might have to hire some temporary nursing care as well to make this possible. But you will not know unless you give it a try. Nothing ventured, nothing gained.
you could consider calling them and asking for help. Or before you send the letter one of your children could call the steps and get a temputure read of their willingness to support.
I know from dealing with my own brother and sisters about helping our Step Mother with our Father and also with my wifes Mother and her husband getting his adult children to help towards the end. Adult children can be very short sighted, selfish and down right mean.
Unfortunatly your husband is NOT going to get better. This problem will only get worse. The sooner you get this extra help committed the better off you will be.
If his children do not want to help then you should probably look into a facility to put him in at some time. You can only do so much
Wonderful!!!
I am so glad that you got to take a long shower. You deserve it!
I hope they continue to support their father and you get some relief.