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A little background: My mom is 79 and my dad is 83. My mom was outgoing and a workaholic. She did everything for my dad. September 3, 2021, my mother had a horseback riding accident leaving her with 4 broken bones in her back and a major frontal lobe TBI. While back and forth between hospitals and rehab, my mother got MRSA in one of the broken bones in her back that we still haven't got cleared up.


In the beginning we all had hope that mom would be able to bounce back from this as she seemed to have her mind about her and was participating in rehab, but as time went on she slowly began to stop eating, stop doing rehab, and her mind was slowly going.


Six months later we decided to put her in a nursing home. She can no longer get up out of bed. She has lost 70lbs and has no muscle mass. She still knows who we are, but you can't really carry on a conversation with her.


So here is my problem, my father wants to bring my mom home.


He says she begs him to bring her home so they can be together. My dad barely takes care of himself. I am the one who goes to the store for him, does all of his errands, takes him to his doctor appointments, cooks his meals, cleans his house, does his laundry, does all his yardwork, and I work a full time job and visit and care for my mom as well. Even if we were able to get some outside help (my mom and dad do have long-term care insurance which is a huge help), I still do not think I could care for both of them at home.


I do have a wonderful husband that helps and a brother that steps in when he can.


My dad is the master at making you feel guilty and he knows how to play me. He tells me that he will help more when mom gets home, but I know he will not. He has done nothing over the 6 months she has been gone.


I feel like he wants mom home more for him than her. This way he will not have to drive to see her and he can just sit at home and have me or someone else continue to do everything for him.


I do have POA medical and financial on my mother.

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sflangham: The elder (in this case, your father) does not get to make any decision for care. Don't let the guilt trip win. In fact, your father may require facility living as well because in all honesty, how much longer can you carry on all that you do for them both? That sounds literally exhausting.
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Your story is beyond sad and I feel for your mother who it sounds like did everything right and led a full life. Life can be so unfair. I ride too - and know for some it is a passion. It is really great that your parents have LTC policies - that will help a lot. Based on what you have described, I think you have things set up the way they need to be. Giving him the benefit of the doubt, your father may be grieving the sudden loss of the life he had with your mother - whether it was perfect or not - it is still a major change.
If she needs skilled nursing, and he doesn’t need that level of care, it might be difficult to find a facility that can/will take them both. You also have to be mindful that he may not meet the criteria to use his LTC policy to pay for an AL or SNF yet if he is still independent and does not have trouble managing “activities of daily living” (ADL’s). If your parents have the financial ability and assets, your Dad could buy into a “continuing care” community. Continuing Care communities have living accommodations for 3 levels: independent, assisted, and nursing home care. There, he could live with or at least live nearby your mother. But, CC communities do have a high “buy-in cost” up front. Or, if your Mom can qualify for assisted living then they can both go there for a monthly fee. Realistically it sounds like your mother may need skilled nursing making that idea moot and additionally your Dad may or may not qualify for his LTC to cover his AL cost. If either of the above are off the table, then he is going to have to accept that this life change is permanent and at their age could have happened to either of them anytime - anywhere. One of them could have suffered a major stroke. Then what? They would be at the same crossroads. Hard as it is, he needs to try to accept the limitations of this new life and show love for his wife by visiting as much as he can. You would need to be retired and hire at least 8 hours of help per day to even consider home care - unless your parents are very financially set and can afford to hire 24 hour care. If you end up doing some or all of the care it will dramatically alter your life because you will be tethered to the house every day that you provide care. You will have no life. My advice? Don’t do it. Your Mom is where she needs to be and your Dad needs to help you help her by adjusting his expectations. Hugs and prayers to all of you for this unexpected and unwelcome change.
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I know this is not the main issue but your letter reminded me of myself a few years ago. Take care of the easy stuff to give yourself a break and some breathing room in this situation. Use your mom and dads money and hire a yard person to come every two weeks and do the basics of the yard so you are free of that. It is such a relief. I paid the yard service 6 months at a time in advance so parents could not cancel it when I was not around. Hire a housekeeper or hskping service (with Dad's money) to come do the major cleaning, change sheets, mop all floors, vacuum, clean bathrooms, showers, and kitchen, once a week if you can or every other. That way, you do what you can or want in between, but you know someone else is coming to handle it if you don't get to it. We hired a home aide through one of the agencies to come for 4 hours weekly for housekeeping and socializing with dad. She also makes some sandwiches for for him and leaves them in the fridge. Shopping is usually the least bad duty. Ask Dad to participate by making his list. he should be paying for his groceries. You can add what you know he needs. I agree with Flowerhouse, do not let you dad guilt you into bringing mom home. Even if you are able to hire the caregivers, they can get sick, quit or need time off. Guess Who will fill in or have to make it work?? Is it possible for you and brother to present a united front on this issue and support each other saying No to dad? As others suggest, Dad can go live in AL on the same campus if available, but I suspect he is not keen on that either and it costs a lot. Does LTC insurance pay for that? I somehow thought no, not for AL. I am very sorry about your mom's situation. She sounds like a very vital woman who was living life well up until her accident. Its a difficult situation and you are doing a great job managing it all. Be as kind to yourself as you are to others.
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I wouldn't get into explanations as there's really no point. Mom coming home is off the table, so it's time to figure out solutions for what's really going on.

Is he lonely? Fine -- time to move to AL where he can be around other people and possibly Mom if there's a facility for her attached to his place. If not, he can be taken to see her (or drive himself if he's capable).

Once the non-existent option of bringing Mom home is removed from the discussion, I think you'll have much more luck dealing with what's going on with Dad.
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Sounds like both of your parents need Assisted Living. Thankfully, that type of living together is available. Call A Place for Mom or something similar and find out where your parents can live together and you can visit them without being their caretaker, which lends to healthier relationships. A Elder Law Attorney can discuss how they can qualify for medicaid.
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Hello. I agree with drivesmemad3. There are facilities ... and i hope one near you ! ... that are assisted living ... for your dad ... and skilled for your mom with inside access between the areas or across a small private street.

that way your dad could easily go visit your mom whenever he wants to.

there is also the possibility ... depending on the facility of course ... that for a charge he could eat a meal with her in the dining room or her room.

if you find something agreeable put their name on the waiting list immediately !!! if there are no openings when you visit.
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Honey, DO NOT let your dad drag you down that rabbit hole and refuse to allow yourself to feel guilty! What you've done for your mom is the absolute best and don't let ANYONE convince you otherwise. I had a husband who demanded to be waited on because he was head off the family. I made the mistake of doing this. When i injured my knee and was down with an elevated leg for 6weeks, i had to ask him to take out the garbage, of which he put it right outside the door instead of 20 steps round trip to the garbage can. Our dog got into it, ate something, got sick and died! I needed help going to the bathroom. Because he didn't want to see a potty sitting next to the bed he said he'd help me into the bathroom. If i asked for help, I'd always have to wait till a commercial came on, same with coming back. There were many many other incidents. At those points, i realized what a mistake i made trying to show my love and appreciation to this man. I spoiled him! I gave him the best years of my life and rarely did i ask for anything from him! Needless to say my feelings for him escaped me. 3 yrs later, he got sick with a rare disease. I know it's hard hearted of me but he got basic care from me... and nothing special. I just wasnt into caring or feeling love for this man any longer.
He refused hospice help, wanted me to do more for him, and i continued on with the basics. If you've ever seen "diary of a mad housewife", that was me.
Men don't change much.... especially older men. They are stuck in their ways and no one is worth changing for. Not even themselves. PLEASE do not bring your mom home. Least he can do is get off his butt and go visit her. You've got a demanding life, don't complicate it by adding to it. Mom is in a good safe place just as she should be. You've done the right thing. Your dad will cry and beg you, try to pull your strings but stay strong girl. It's time someone tells him he's not going to win this argument no matter what because legally, you're the one in charge and there's nothing he can do about it.
Good luck and hope your mom gets better. Big hugs to you!
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sflangham, my Dad also wanted to bring Mom home from the Nursing Home. Mom had fallen in her kitchen, and she had major head trauma.

Even my Dad's daily caregiver tried to talk Dad out of bringing Mom home, as Mom condition needed a whole Staff to help out. Dad's caregiver said could not take on helping my Mom. She would burn out quickly. Dad would need to hire a second level of 3-shift caregivers per day.

I was also working full time, and doing pretty much what you were doing around your parent's house. Thankfully Dad was open to having caregivers help him. A new set of ears to hear all of his stories :)

If you Mom was brought home, and it turned out it was more work then your Dad ever imagined, chances are getting your Mom back into the same nursing home may be difficult. Some places have long waiting lists.

Let us know the out come.
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Can they go into a home together as a couple? So they are looked after well & he can be with his wife. Sell the house so it pays for their care? That is the only other solution I can think of? I should discuss your mum & dad's wishes to the care home see what they say first. Maybe they could talk to dad about everything. Other then that like someone else said in chat to have hospice care in the home? Sounds like your mum & dad realise that she is very unwell & wants to possibly just be together in the time she has left? At the end of the day it's your choice what you want to do. I should discuss everything with Drs & social workers to see what care can be offered at home. I am caring for my bedbound dad 24/7. He has carers 4 X per day & I have carers come in at 5.30am to relieve me as we both want him to stay at home.
It is hardwork & a struggle but we are going by his wishes I have been told by a Dr that if he is coming to end of life I will have support from an end of life team. Best wishes to you all
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I would not bring your mom home unless you have a caretaker that will
be there caring for her 24hours.
I know it’s hard for your Dad to admit but he won’t be able to care for her. He will only be there to keep her company but it definitely will be hard on you. It will be tough on you. Say no before you regret it. You can’t feel guilty.
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Abandonment is the real issue here . He feels he has abandoned His wife who did everything for him . You could get in Home Hospice . I Know taking care of 2 sick people is nearly impossible . This is a tough one .
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Flowerhouse1952 Mar 2022
I think you have that backwards? I think you meant to say he feels abandoned? He didn't spoil her. She spoiled him.
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HI Your mom has a continuing MRSA infection and lost 70 pounds and is bedridden? She must be a real fighter because she sounds like she is pretty ill or am I misreading this? Does she have a feeding tube, catheter and a picc line(for antibiotics for MRSA)? I think it will be REALLY hard to care for her at home in this condition . Have you spoken to her drs about her prognosis? IF they feel she has a poor prognosis, would you consider InHome hospice - this way your dad gets what he wants, you get some assistance and your mom can go home BUT im not sure (eventhough she sounds like she has lots of issues) she would qualify ie end of life needs to be 6 months or less......hospice is a big decision - i made it for my dad while he was in hospital and he died within 3 days on inpatient unit - i still dont know if i did the right thing....the guilt with these decisions are haunting!
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I am with Alva here.

There are resources out there you need to take advantage of. You cannot run two households for long. Dad has to do as much for himself as he can. Do not disable him. He should be able to get himself something for breakfast. A bowl of cereal and toast. Lunch he can make a sandwich. My Mom waited on my Dad hand and foot. I swore my DH was going to be more independent. I do do for him. But he doesn't rely on me. He washed his own clothes when we worked after retiring he still does. I do make breakfast but when I don't he is capable of getting himself something. I don't do Lunch so he will get a sandwich if he wants. I cook dinner or we go out.

You have meals on wheels you can get a least lunch for him.
Senior bussing will take him shopping and to appts.

Call your Office of Aging to see what is available in your County. Maybe Adult Daycare. At Moms there was a bunch of men who just sat around the TV and talked. They were served breakfast and lunch. A bus took Mom to and from. Maybe your county has a Senior Center. I am sure my MIL would have enjoyed ours because the ladies played cards. Or maybe its time to place Dad. You cannot be his solution.

You need to sit down in front of Dad and firmly but gently tell him that Mom will not be coming home. Her care is beyond what he or you can handle. You will not be quitting a job to care for her and you can't care for her once you get home. You have your own home and responsibilities. You understand he probably misses her. Maybe its time for him to consider an AL near Mom. Because to be honest, you can't keep at the pace you are going now. Remind him that you are now a Senior or will be considered a Senior in the near future. He can't expect u to do it all and u won't do it all.

Elderly tend to get self-centered. They forget what it was like to work a job, raise kids and keep up a home. All they know is they need help so why not there kids. Its up to the kids to say No and find ways to get parents help. My MIL was 60 when we married and she thought I could just quit my job.

Do not move him in with you especially if he pushes your buttons and tries manipulate you. I loved my Dad but he had a personality flaw. He could push my buttons. I told my brothers to never expect me to do his care. Either they take him in or he goes to a NH. Actually, he would love a NH. He would get waited on, 3 meals a day, laundry done and he could tell his stories to people who never heard them before.

You are going to have to set boundries or your going to burn out.

My new Mantra...I am here to help people find a way, not to be the way.
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Beethoven13 Mar 2022
Yes, yes, and Yes! Let Dad and elderly parents be as independent as possible for as long as possible. Safety is important but if you step in and run their whole lives you quickly will not have a life of your own. For those of us with difficult family relationships, this is even more amplified. I totally agree, let them make their own cereal and milk in the morning. Make some sandwiches and keep them refreshed in the fridge so they can help themselves. Dad can move the clothes from the washer to dryer and then fold if you dump the warm load on the bed. Don't go get the mail, let them walk to the mailbox (or walk with them) and get it if they are able. Meals on Wheels is great. Hiring a home aide (non medical aide, no skilled medical needs) is also a great use of the money. She does light housekeeping and kitchen clean up and socializes with Dad. 4 hours a twice a week.
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I am confused by your profile. You live on 300 acres next to your parents, and mention a farm. Do you have a farm?

Although you say above that your brother "helps as he can," in your profile you say he does nothing. So somehow you fell into being your father's caregiver, PLUS having a fulltime job.

What are your parents' finances? Who owns their house? Do they have a lot of land, also? Can they afford facility care?
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Your father's inability to be reasonable and logical about the care situation may be an indicator that he too has the beginnings of cognitive/memory decline. Have you thought about suggesting to your dad that he move into the facility where your mom is already? Do they have a continuum of care: IL, AL, MC, LTC and hospice? He doesn't have to live in the same room, but maybe on the campus?

Have a discussion that offers him 2 options: 1) move into same facility as your mom or 2) accept and pay for outside help for him to stay in the home and your mom stays where she is at (or she comes home but he must accept and pay for 24/7 care for her, which would exceed the cost of facility care and require admin work by the PoA).

There is no real 3rd option and it may not be worthwhile to press any discussions if he's being irrational. If you are his PoA then maybe it's time to do what it takes to activate your authority.

When you go talk to your dad, your husband should go with you since he is impacted by the current arrangement (and as moral support). He needs to register his unwillingness to ramp up the level of care. I think it will be harder for your father to manipulate you if hubby is there l@@king at him.
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I think you are correct in your surmise of why Dad wants Mom home. He is lonely. For him, no matter how bad, she would be there.
The answer is "No, she can no longer come home. We could not take care of her at home. I am sorry." Don't expect that he will be happy; this is worth mourning. BUT most IMPORTANTLY, don't enable this in any way.
It is time now to be frank. Tell your father that you are the POA, and that you have a fiduciary duty to do what is right for your Mom in terms of care. Tell him that there is no way now to care for her in the home.
I am afraid it's going to be necessary for you to give a hard no. A sit down. A hard, but GENTLE no. That you understand. That you mourn this as well, but that it is getting, quite honestly more and more difficult for you to enable DAD to stay home, let alone any thought of something you could not conceivably handle, even if you gave up your entire life to do so.
It sounds in all truth as though your Dad is failing a bit as well. He is not understanding. You may need to ask the admins where Mom is to have a discussion with Dad so that it isn't YOU telling him that this wouldn't work. Because we never listen to our kids even when our "kids" are in their 60s, right?
If your Dad cannot understand that his request is inappropriate on many levels, then so be it. You will have to gently re-explain it all the time.
I am so sorry for you all. I hope Dad will come to understanding and acceptance, but to tell you the truth it is likely to go in this direction for the duration.
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You mean explain it to him while you are
‘’the one who goes to the store for him, does all of his errands, takes him to his doctor appointments, cooks his meals, cleans his house, does his laundry, does all his yardwork, and I work a full time job and visit and care for my mom as well.”
Why don’t you stop all that while you think about it?!
I would be looking for dad an ALF. Perhaps there is one near the NH.
I am very sorry for your moms accident.
You are overburdened. You will need to pace yourself. Your mom could live a long time and will need your oversight.
The chores you have taken over may have been your moms. Going to visit your mom may be more activity than Dad is used to so just realize that he may have good intentions but has lost the ability to do much more than what he is doing. This could have been the case already but you didn’t notice because your mom was doing it all. You probably make it look easy. Let us know how things are going.
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