My wife's confusion has become more pronounced lately. For example, putting cloths on backwards, inside out, etc. I took her shopping for clothing, sometimes I have to help her in the dressing room. On this particular occasion there was a sale thus there were a lot of girls/women going in and out of the dressing room area. Since some of them were young girls I was uncomfortable helping my wife in the dressing room so I decided not to go in the dressing area, I explained to my wife what she needed to try on and sent her in and waited outside. She came out and all was good so I told her to go back in and change back into her street clothes. This is where she usually gets confused. It usually takes a few trips back and forth before she gets it right. This time after a few tries she came out with the new top on and her street clothes top on around her waist, I quickly sent her back in to correct the situation. The whole time I was getting anxious as to what she would do this time, About five minutes later she came out the same way, so I decided I had to go in and help her regardless of the traffic going in and out of the dressing area, After I got her dressed I told her we would come back later in the week when the store was less busy,
Activities like this are stressful and stress always makes things more difficult for her.
The last few times we traveled the stress has made her agitated. Going through security is so difficult for me to handle that we may not fly anymore. On this particular trip she got cold in the plane and was so upset that she tensed up, she was very angry. She started rocking back and forth in her seat, I tried to calm her to no avail. On top of that there were no blankets on board. I began to think we may have to cancel our plans and return home after we landed. Finally I set up the phone so she could watch TV, then everything was ok as if the previous incident had not occurred.
She has begun to get confused about a place where she used to work. She was convinced that she used to work at Hobby Lobby. Reluctantly, I explained to her that she never worked there, that she worked at a similar store. Naturally she became very defensive. With evidence I convinced her. I am learning that this probably was not the thing to do.
She has a friend, that she used to work with, this friend works at the movie theater. Now she is convinced that she worked at the same theater, since her friend works there. We go to the theater about once a week. Now she is telling people at the theater that she used to work there. She told this to the person that handled our ticket purchase. The girl thought it was nice that my wife worked there so she asked her details and all my could say was, 'How do you expect me to remember'. I need to try and discuss this with my wife before someone at the theater challenges her.
I read the article on Validation Therapy and believe it makes sense so I am torn on how to handle the situation.
Sometimes I am not as patient as I need to be and lose my temper and this worries me since the dementia is not nearly as bad as it is going to be.
This is just me venting.
Thanks,
Tim
and its always ok to vent and/or complain!
Seems like we are always looking for things..
If she would use nouns....how easy it would be.
I have gotten better at guessing....
The other day she asked me ...’How can you forget....we talked about it yesterday?’
Usually this is in reference to something she can’t find. Of course there are no nouns in her description...like...’Where is IT?’
This last time...I told her that she can blame it on me....that it is my fault that I don’t remember what she is talking about, which calmed her down... Then... she found what she was looking for....
She is always reminding me how good her memory is...
It is especially hard...since she has a very high IQ....the way she could process numbers was amazing....Now she can’t even write a check....She wrote a check for over a thousand dollars to hair stylist..he fixed it...And she was a speed reader...I use to tell her that we could not afford to purchase books at the rate she could ‘consume’ them.
Now she stumbles with words when she reads.
It breaks my heart.
If I could take this from her and give it to myself....I would do it in a heart beat...
Thanks
Tim
Your wife is in her own little world now. TV, dreams and reality are going to be one and the same. Her memories are all jumbled up. She is going to see things that aren't there. Her brain is dying. As someone else says here, her brain is broken.
I think my wife is still aware of her appearance......at least most of the time...I think she is at a stage where she is not sure and needs guidance....and assurance.
A change of scenery is when the stress sometimes kicks in..and matters get worse....but with time she adjusts...thus airline travel is difficult because everything happens fast and the scenery changes quickly.
Car travel seems easier and less stressful.
Thanks
Tim
Lately I have had to be more actively involved in clothing selection.
I look for the correct size and coordinate the selection.
I will take you up on your suggestion.
Thanks,
Tim
In most dressing rooms there are rooms that are larger to accommodate wheelchairs. I don't think anyone would think twice about you going into one of those stalls with your wife. If they approach you with concern, hand them one of the cards.
I see the caregiver for the person in my life with Alzheimer's slowly making his own life smaller because he's afraid to ask people to accommodate her symptoms.
Thanks
Tim
I know that the behavior and seeing them struggle, can be exhausting. I think that getting away and taking breaks replenishes your patience and energy. I'd encourage more of that. I also learned to adjust my expectations. I no longer expected her to provide correct information, recall names of objects, understand me or process information. If she did, it was great, but, normally she didn't and I just didn't dwell on it. If she was remembering things wrong, what did he really matter? I just tried to get into her world of all things new.
My mother exhibits all the behaviors you described. It's been so hard for me to learn NOT to try to explain things or help her understand when things aren't as she thinks they are (i.e., when she's wrong). She has a pathological need to be right about everything. I chalk this up to a need to have some control over something in her life.
No matter how much we can intellectually understand all of this, it doesn't make the day to day dealing with it any easier. Don't be hard on yourself as you navigate this new phase of your relationship. It is damn hard.
My wife is similar when it comes to the desire to be right all the time....I was used to that....but before we could discuss her being wrong (not that I won)...but now...well it is just different.
Thanks
Tim
Part of it is...she enjoys getting out of the house...so I try to accommodate her..gives her something to do..she just can’t do it by herself anymore.
We are taking a road trip to the beach for a week and it will interesting to see what happens.
Thanks
Tim
All was good.
Tim
For someone with dementia the stress of travel, change of environment, layers of security and following the rules and procedures is totally overwhelming. It was a trip a few years ago that made us realize mom had an issue and it was their last trip. A sad reality as it was also my last staycation and sliding deeper and deeper into the caregiver role.
You will learn over time that there is no one answer, and that the easiest path is one that is not contradictory or corrective. You cannot win this game. And to be sure, no matter all that I know and have learned, no matter all the best guidance here and elsewhere, we are human, and the demands on our patience are great. Remember that as much as they forget, if you lose yours, they will not remember for long if at all.
I think validation is a technique you can learn, but in the end I think it helps to try to take things in stride and just be easy-going about all the issues. Check out the local Alzheimer's Assn and see if there is a support group you might want to attend...or join an on-line one. You also might want to check into other resources so you can have a bit of time off. It is an impossible task to do 24/7.
Apparently bathing suites are sized completely different that shorts.
A Support group would be nice...but I am not in a position...yet... to go somewhere for the evening without her knowing where I am going..since, as I mentioned in another response....I am not sure she knows her diagnosis.
I know I cannot put this off forever... her not knowing.
I am waiting until she is ready to see a specialist again.
The last time was a disaster.
Thanks
Tim
Do think about the cards someone else suggested - I use them and they are helpful.
I had an epiphany recently. I like (really like!!) to be right (a huge and humbling fault of my character). Couldn't stand when Mom mixed things up after we'd discussed them repeatedly. I'd say "I told you..." That was at the beginning of what has been almost two years now. I couldn't accept the fact that she was losing it. I thought I could fix her. Sadly, I know now I can't. My mother hasn't had delusions about working at places, but she constantly insists "I've been here before" when I know for a fact she hasn't. Used to drive me nuts. Now I just say, "I hope you liked it because we're back." Just think path of least resistance now.
For as vibrant a person as you described her, I think it's extra difficult and my heart grieves for people - husbands and wives - in that situation. Being a child (and the baby at that) is a different dynamic but still painful.
I hope - for both your sakes - her long term memory has remained. The best thing for my mother (84 y.o.) is to go back to her childhood and teen years. For her, that's still intact for the most part. You can reminisce about those things and she'll get to feel "right."
Take care of yourself and good luck.
It is a combination..short, mid, long...
Just when I think I have it figured out...she surprises me.
But some things are consistent....
For example...
Last week she was supposed to decorate canvas shoes for a club project..She would have to come up with the idea (to match a specific theme) purchase the parts and decorate the shoes.
Just when I thought I would need to figure it allout for her, she came up with the general idea, which in this case involved beads.
We went to the store and bought the shoes...I had to find the shoes because she kept picking shoes that weren’t canvas.
I set everything up for her...placed the beads in a specific order....and asked her to thread the beads.
My job was to attach them to the shoes.
This is when she has a problem...she just can’t follow instructions...no matter how many times I showed her...she struggled.
Eventually she got it right. This is someone that used to be able to do this type of activity almost blindfolded.
After she did the beads I put it all together.
She was quite aware that I assembled the project and felt like she did not contribute but I explained to her that I just helped her assemble her idea. I reminded her that she picked the beads.
She becomes more dependent on me as each day passes, at least it seems that way to me.
Whenever we go out if town I plan on helping her prepare, pick out clothes...prepare ger hair, etc. She dresses herself but gets things backwards every now and then. We try to laugh it off....but that does not always work.
I am the only one in the family that sees her symptoms to this extent...but since I am around her every day....it has become the new normal.
Thanks
Tim
The memories are their reality and they don't realize that, not only do we not share their reality as we once did, but we have no clue what their realty is.
We've had to change how we vacation. We like to try to get to Detroit to visit my family and we like to stay with my niece. Unfortunately, she has stairs which are hard for my husband. But the real issue is that he's been known to wake up in the middle of the night & not know where he is & gets lost which makes the stairs more dangerous for him. We're working on alternative.
Shopping hasn't been a problem so far tho he does tend to lose me & doesn't know how to find me like he once did.
I try to keep us active which is hard for me as I'm very content to just stay home. But it helps keep his mind a bit more functional.
She is still functional to some extent, on her own..so I am not totally tied to the house yet, but I wonder when that will change.
She certainly likes it better when I am home...but sometimes forgets where I went.
I take her, more often, on errands with me and she likes that.
I am a very active runner and used to attend races frequently but I have had to back off since I can no longer leave her alone for a weekend.
We used to travel (fly) to out of town races...(I described want happened on the latest flight in my main post).
After that episode I was not sure I could leave her alone at the hotel for 6 hours while I ran.
I arranged for her to have a spa treatment for the duration of the race, so that I was back at the room before she was done. I arranged for her to have an escort to and from the spa.
In the mean time our daughter (who lives somewhere else) kept tabs with her via cellphone.
I believe that is the last trip by plane that we will take. It is hard on her and strains my patience...and that is not fair to her.
We are taking an automobile trip vacation next week. It should be far less stressful. It is a beach vacation...something she is looking forward to.
I am not sure how many more “running” trips we can take....
Thanks
Tim
Remember that to your wife, it is either easier, or it is real. For easier, grab a red scarf to tie on the handle to her changing room, or have her hand a bright dress from the racks on the outside of the door. Be sure to tell staff Not To clear it away. Simply say it is a Reasonable Accommodation.
As you so clearly understand, some memory errors just feel right... working at a similar store...her friend working there.
In the movie theater, be ready to jump in with a phrase like, Oh, it would have been before you started...or, when ____ worked here.
Think about it, you are sure of your reality. Anything or Anyone that might make you question your competancy, would be upsetting! No one wants to be challenged on what they believe is right.
Go with the flow! Be open to her providing details, or if someone else is interested in details, take what you understand, and be supportive. Ex: " Honey, was that before _____ started working here to? Or just, thank the woman for her interest, but the two of you want to find a good seat. This deflection, like the TV show, verses correction, works well.
You have a great grasp on what is going on, so this adjustment will be pretty easy for you. Just remembered, perception is reality. No one wants their grasp on reality questioned, even if they know they are I'll.
No one except close family knows her diagnosis...not even friends.
I am not sure she remembers what was said during that Doctors visit.
I have desperately tried to protect her from the outside world...I know I cannot do that forever.
Sometimes I have been better at ‘going with the flow’ and sometimes not.
Thanks
Tim
God bless you both