Follow
Share

My mother has severe arthritis in her hip and is no longer able to transfer from bed to wheelchair. Because of advanced dementia she does not qualify for physical therapy. I have to find a new home for her that will support a bedbound resident with advanced memory loss and incontinence. She does not qualify for skilled nursing or rehabilitation, so she will be living in a private pay assisted living residence. Insurance does not cover her situation. Does anyone have experience with this type of situation and what are some of the things I should look for in finding a new home specifically for a bedbound resident and what expectations should I have for her ongoing care?

This question has been closed for answers. Ask a New Question.
Why wouldn't she be a candidate for long term care (LTC)? Have you had a discussion with her physician? My MIL is in a very nice facility. She started in AL because of memory issues, then began falling. She refused PT in spite of great efforts by family and admins even though she was very capable of doing it. She then refused to get out of bed. She lost her muscle strength and because she was 180 lbs, was a 2-person lift. She was transferred to LTC and has a wheel chair. I would say her memory loss and dementia is mild/moderate but because she can no longer get herself out of bed and has no independent mobility, she requires LTC. Medicaid covers LTC in every state. Your mom can go in on private pay and then when she runs out of funds, apply for Medicaid. Make sure whatever facility you consider accepts Medicaid (and you need to ask because many do not).

Here is an informative article from this forum:

https://www.agingcare.com/articles/medicaid-and-long-term-care-133719.htm
Helpful Answer (6)
Report

My mother is almost exclusively bedridden (has been caught walking a few times, but usually fights transferring into a wheelchair and demands to be left in bed), is incontinent and has advanced dementia. We are not in the USA and her care is private pay. She’s in a small home - about 10 residents - and her bedroom is situated such that she hears the house noise. Which is great. In her mind, she’s hearing her mother clattering dishes in the kitchen, she can smell food cooking, she hears people coming and going (she was part of a large family), she hears the great room tv, radio, and, although she refuses to socialize with other residents, she is relaxed in the busy, homey environment. Plus, I feel that the small staff means they’re quick recognize changes as the same people see her all the time. We’re happy to have found this facility.
Helpful Answer (6)
Report

These needs sound too much for a typical al. Would an snf be willing to take her private pay?
Helpful Answer (4)
Report

None that I know of. This isn't really a person who can be in assisted livings that I am familiar with as they require full care. Assisted living is not staffed for full care, and especially not staffed for memory care. Some may qualify her with full time, private pay help, but with that amount of help she could remain at home, I would think. Your Mom, sadly, may only qualify for nursing home care, or for memory care that can accept this level for care. There are no skilled nursing needs, so no SNF, and there is no likelihood of rehab and recovery that I can see.
Do feel free to call facilities in your area, however, because there is a good deal of variety out there.
Helpful Answer (4)
Report

I live in Charlotte NC. My husband is paralyzed and has Dementia. He is in a skilled nursing facility. All his income, retirement and SS go to nursing home and Medicaid picks up the rest. I did have an eldercare attorney handle this. He is cleaned daily and fed. I feel comfortable with his care, but I do visit daily to play music and read. Good luck, it’s hard 😢
Helpful Answer (4)
Report

Here in NY she would not qualify for Assisted Living, because residents must be able to get to the dining room for mealtime. Bedbound patients need a skilled nursing facility which is either private pay or Medicaid.
Helpful Answer (3)
Report

Maddie, you are going to have to contact local facilities. There is such a wide range of services offered in assisted living that you just have to interview them.

When my dad was in skilled nursing, he had a neighbor that was bedridden from a fall that broke her neck, she moved to the AL wing and paid 3k for the room and 4k for the care provided, which was the highest level of care. She was completely bedridden and could not do anything for herself.

I think continuing care facilities offer different services then a free standing AL.

Best of luck finding the best facility for her needs.
Helpful Answer (2)
Report

My mother's memory care had several bed-bound residents. They handled people all the way through end-of-life, and that's what you need to look for. She requires too much care for Assisted Living.

Mom's place had one man in particular who had a raised, reclining wheelchair that looked almost like an ambulance gurney that could be raised at the head and knees. (Kind of like this, but the legs could be straighter than this one -- https://www.spinlife.com/Karman-Healthcare-Lightweight-Tilt-in-Space-VIP-515-Recliner-and-Tilt/spec.cfm?productID=95424&adv=googlepla&utm_medium=CSE&utm_source=googlepla&utm_term=&utm_campaign=610148043&gclid=CjwKCAjwp7eUBhBeEiwAZbHwkecIrZLwUiZXtdPKnv6HNX5lKq9tZgYeyR0XvaF9PTU8YjA4VaUtPRoCiwUQAvD_BwE )

The caregivers had him out in the common room all the time, and I assume they used a Hoyer lift to transfer him from chair to bed.
Helpful Answer (2)
Report

I've never felt comfortable with the idea of people remaining in an AL facility after their needs reach that level of care, no matter what the facility claims they usually do not have the same capability to provide care that a nursing home does. No matter how much is promised or how well meaning an AL has lower staffing ratios, access to lifts and types of lifts may be limited and therefore opportunities to be part of the AL community will also be more limited, I'm doubtful there will be any totally accessible bathing, the dining room may be less able to accommodate dysphagia diets.
I get that there is a reluctance to disrupt the person needing care and move them to a different home, but once bed bound they likely will need to move to a different part of the facility anyway, and in my opinion once your word shrinks to four walls the setting hardly makes any difference. You may be counting on familiar staff, but even that isn't a guarantee because of high turnover, plus many employees of an AL work there rather than at a NH because they don't need to provide that level of care.
Helpful Answer (2)
Report

Memory Care Assisted Living is the place for your mom; particularly look into Morningstar AL if there is one near you. They do have many levels of care they offer residents, including those who are bedbound & even residents who require pureed food diets, which is not the norm for ALs in general. Due to advanced dementia being a condition your mother suffers from, Memory Care AL is the place for her, not regular Assisted Living. MC also accepts residents with more challenges than most.

My mother's MC offered great care options for all residents, but you'd have to speak to the facility administrator directly about what services they provide before you sign on the dotted line. Remember, too, that with advanced dementia at play, there is only SO much stimulation/activity that CAN be offered to your mother in any given day! With the mobility restrictions added in, that would limit her as far as scenic drives on the mini bus too, unless she could be put into a wheelchair and loaded onto the bus that way, which would be another good question for you to pose.

Best of luck!
Helpful Answer (1)
Report

See All Answers
This question has been closed for answers. Ask a New Question.
Ask a Question
Subscribe to
Our Newsletter