My father has never been easy for anyone to get along with...opinionated, demanding, headstrong and prone to temper tantrums. So I'm confused as to whether he has early dementia or his personality quirks are just more pronounced with age. Can anyone shed some light?
Four months ago, when he turned 90, he decided to sell his house because he was lonely and isolated. 6 weeks ago I moved him into an independent/assisted living facility in my town. He did not adjust well, did not make any friends, did not want to participate in activities—in or out of the facility, and called the place a warehouse for people who were just waiting to die. I did everything I could to make him comfortable and get him involved, but nearly everything back-fired.
The good relationship we seemed to have forged, after a lifetime of battles, eroded quickly. So I reduced my visits to 2 or 3 times a week. Two days ago, he packed himself some minimal necessities, took off in the night and left a dramatic letter on my kitchen table: he compared his "bad decision to move here" to one he made 60 years ago; he compared his "flight by the dark of night" to that of Mary, Joseph and Jesus to Egypt, even though he's an ardent atheist. He would "not wait to become a spoon-fed, tail-wiped victim", and declared he "must follow the spirit of our Swiss ancestors, who risked all on a promising future that they would control".
The day before he left, I consulted an elder expert who, after hearing a few accounts of his unsettling behavior, memory lapses, etc., suggested I have him evaluated for dementia, recommended I obtain guardianship and definitely don't move him again. He had already talked of "going home". She said it takes at least 5 months for someone to adjust to an ALF, and that each move takes 18 months off an elder's life. He's been through a lot changes in the last 6 years:
1. Sold his house of 20 years in 2010 and
2. moved into ALF with my Alzheimer's mother.
3. Lost his wife of 62 years in 2013 and
4. moved in with a friend for 1-1/2 years.
5. Bought & lived his own house for 2-1/2 years, then
6. sold the house and
7. moved to ALF in a different state 6 weeks ago.
In an effort to keep him from "feeling like a prisoner", I returned his car 10 days ago...which he initially said he wanted to me to have, but subsequently accused me of stealing (a long story).
This morning, he finally called and told me he was about 500 miles from here, but hung up furiously when I told him everyone was very concerned and had been looking for him.
Hindsight is 20/20 vision. I can now see many mistakes I made during his transition, but at the time I couldn't tell if I was dealing with the same old craziness (as one sibling said, "What did you expect? He's Dad!") or a new medication side effect or dementia or what. I still don't know.
It will be a huge job for me to close out this chapter, an expensive fiasco to say the least. I'm not sure if I should begin clearing out his apartment or wait to see what eventuates over the next few weeks/months. BTW, nobody has any sort of POA in place for him.
So, is there any way you can conceive of to manage the situation w/o becoming aggressive, and perhaps alienating him even more? Is that something you're willing to chance? From what you've said, he'd be very angry if you got guardianship and took over. Are you prepared for his last years to be ones of conflict, even if you know that he might be better off with someone taking control of his life?
I do understand the desire to reach out and care for him, but I also understand that some people just don't want to be cared for and want to live the end of their lives in a manner of their choosing. And I think you realize that.
I've asked myself I would do in your situation. I'd be stressed to the max, be inclined to take over and bring my father under my wing for care, but I would also know that he may want to go out on his own terms and I have to respect that.
You write of the changes in his life; perhaps that's due to impetuous nature, perhaps it's still creating stress b/c they are drastic changes. If the latter, I suspect he's going to want to find his own way to some more settled mode of living.
And, seriously, I do understand his desire to follow the spirit of his ancestors. I think he's on a quest, and needs to go through this until he either finds or doesn't find what he's seeking.
So, I don't really have any good suggestions, but I think you might want to give him some slack and see what happens. He may realize that he's out on a limb alone and actually come back more willing to be helped. I do think though that if you get guardianship, take control, and place him in some facility, he'll resent you even more.
So, looking ahead, how do you want him to spend his last days, and how do you want to contribute to the - either by giving him his freedom (unless he really, really gets in trouble), or by roping him into what he probably would consider a prison?
I would just be cordial and friendly when he calls, ask him to share his experience, but don't tell him family are worried.
The elder expert gave you good advice. Many of us deal with the horrible Bermuda Triangle of elders who are legally competent but in reality have zero executive reasoning skills. I hope he turns up, is ok, and has not spent his life savings on god knows what. You may have to try for guardianship to protect him from himself.
There are 6 of us siblings, 3 boys and 3 girls. My Dad treats 2 of my brothers with considerably more respect than the rest of us, especially the girls. I've read so many nightmarish stories about guardianship on this website (the process, the expense, the conflicts) that I'm inclined to think it would be a mistake on many levels for me to pursue it. I do think my oldest brother should get some POAs, but he's 3000+ miles away, and all 3 of my sisters-in-law want nothing to do with my Dad. My desire to do what's best for Dad, to take control of the situation seems to be what provoked him to leave, so we are all definitely in that Bermuda Triangle.
I take some comfort in the fact that during the 6 weeks he was here, he went from living in a hoarder's dream house, using a walker, having frequent unbearable foot pain, skin infections and sleep disturbances, to walking without assistance, sleeping well, controlling pain without narcotics, eating healthier (although he complained plenty about the food) and getting 10x the exercise he had been for years. Time will tell whether all that continues.
You're right about not letting him know we're worried...concern is interpreted as an insult to his competence. I'll give it a few more days, but I'm coming to the conclusion I should go ahead and vacate his apartment here. UGH.
In support of Hengwen's efforts-Dad did greatly improve with the help of assisted living, so at that time it was what he needed.
Maybe now, he has outgrown his need for that.
Reminder, if he has a cell phone, the cell phone works both ways.
We know you tried your best. No problem. You are searching for answers with the small amount of information you have. This is in no way a failure on your part.
Maybe start thinking ahead what you want to see happen for your Dad, and how he can be happier. But also, for your own self-and a commitment that is doable to protect your own boundaries with Dad, thinking what you are able to give willingly.
Your statement: "I obviously underestimated him" may become the theme song to your caregiving plan along with your siblings. Take this into consideration when you stand by to help him obtain a suitable living situation. Start with his choices, what he wants-then go forward with what is reasonable for him.
You may only need to have more information, and advice from caregivers here...
many more will be along soon, just ask, you are a part now.
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