My mom is in her late 70s, has issues with dementia (though not formally diagnosed) because she is stubborn and cheap. She has signs of Narcissistic Personality Disorder and is extremely resentful of any family. She's recently told me not to be in contact with her. (I'm letting her be for a while.) But, I swear sometimes it's like I'm dealing with a very helpless and wildly imaginative (and not always in a good way) 5-year-old and other times it's like I'm dealing with a very angry, spiteful, paranoid old woman. It's very rare to have a day where it's just "mom."
Growing up as I did, surrounded by amazing people [including the ones who were dysfunctional!], yet left to "sorta grow, like Topsy", probably encouraged me to be a philosopher. Even as a small child, I could see how much stress others were operating under, and didn't want to add to their platefuls. A number of elders shared all those good old sayings--didn't much explain them, but said them; those were helpful.
Sometimes it's very hard to bring up feelings of love, after someone has stomped and broken them to bits too many times. But forgiving them so I can move on, has helped; as has setting firm limits on their access to me and my immediate family.
I still have doubts sometimes. But, here it is, more than 3.5 years since she moved in with a different sibling, and I'm just now finally finding an hour or few that has palpable relaxation--I can't remember how long it's been, since I last just took time to sit and relax, hear birds, smell flowers, read a book...every time I tried, for decades, I went through those same motions, but never Felt the Relaxation that permeates the soul.
The other day, though, doing that, it felt very deeply relaxing and soul-reviving. The last time that was experienced, was when I was between about 6 to 8 y.o., and rarely, then. That's about 6 decades too long to wait to do that again!!
I do check in to this list.
Maybe, there is something to be shared or counseled, that might help others. This list helped me heal, when there was no other source of validation and support. I still learn!
Healing is on-going, like learning.
If we stop doing that, things might fall apart!
What one can learn from other's posting here, too, might also be used as "volunteer hours", and/or, as "practice hours" for nurses's license requirements.
This, is community. Community too many are short on!
Thank goodness for the internet, which helps reestablish a sense of community, interpersonal exchanges, helping those who can't get out in person much!
Carol
Her family all knew it, but then, there was nothing anyone knew how to do, except help her mainstream as well as possible.
Mom managed to accomplish some amazing things, but, because of her mental and emotional issues, was unable to sustain the good things she started.
As eldest, and only of the 1st marriage, that floated me between 2 households as the oldest, but in my absence, the next child down in each household was the defacto eldest child. That could cause some complications in pecking order, not only for the younger kids, but for parents.
Mom has signs and symptoms of bipolar, narcissism, and/or D.I.D. [dissociative identity disorder--multiple personalities].
Not all the time, it goes in irregular waves. She believes she's normal.
The kids raised with her mostly full time [except when she farmed us out 1 or 2 at a time], have some of her behaviors, I think because they learned them.
She never meant to be nasty, but cannot help it.
On top of all that, she's a binge drinker, or a chronic alcoholic when she can afford it. Great stuff.
But I managed to find a way out, as a young teen...and left.
Guilt trip myself, for leaving the others to fend for themselves, yet, cannot be around them for very long either, because they do her tricks too.
After Mom managed to shatter my spirit one too many times, it's not safe for me to be anywhere near any of them, I feel. Much safer to restrict communications to what they are willing to commit to print....which is precious little...because one of their fav. games is verbal Plausible Deniability.
I can't play that.
So, at this late age, finally have determined to keep my safer distance.
It might get pretty ugly if I never show up for her final curtain.
I just no longer have enough pieces of me left, to run their gauntlets anymore.
IF they don't like that I refuse to phone or visit from far away, they will have to chew that bone without me.
She doted on all of them, and showed me her backside...sometimes literally...while telling /them/ how much she loved me [but not me], and being abusive verbally and physically while living with us.
The swath of destruction she left behind when she moved out of our place, was pretty epic; some can't be repaired. She ruined friendships with neighbors, almost got us evicted from our rented home of years, and managed to trash our house and our other property, and break apart relationships with siblings--to this day, I seriously don't think they realize what she did, fully, because they do not see her behaviors in themselves.
All we can do, is forgive our dysfunctional relatives--that's for our benefit, not theirs, because they often cannot hear it.
We forgive them so we can go forward and heal ourselves.
If any cannot manage to do that yet, then you can simply say "I wish you well." You may be saying it through gritting teeth, but saying it is as neutral as you can get. It's about the rule "Be impeccable in your word".
Then strive to embody unconditional love, the best you can. Choose to walk a higher path than your relatives have. You will feel better for it, and they can go on their merry ways without you, if it's necessary.
It's healing, and can be freeing. But it is still hard.
Kids from dysfunctional families mourn for the good parents we never had [not what we got]. We must learn to love ourselves, parent ourselves, find stand-in parents for ourselves, to fill in the gaps left vacant by our own.
Love is still the answer...just for some, it needs to be from a safe distance.
The problem is that we are the ones who suffer the burdens of dealing with those reprobate minds. Please Lord, a little mercy on us.
How an affected elder cycles through their behaviors can be dangerous, alarming, baffling, impossible to respond to [or not], at any given time.
Talk about tangled wiring! Elders can make the sanest person feel like they've lost their own minds----Mom's favorite game was gas-lighting---1st isolate the target person, then gaslight them to oblivion..
If someone has had mental ills all their life, particularly undiagnosed and untreated, then dementias, or just plain aging challenges are so much harder to deal with!
Yes, they DO, at some level, KNOW their behavior is screwy--and they can't stop themselves doing it. Many of us have witnessed that.
There are LOTS of ways and tricks to dealing with it, but like herding the proverbial cats, no one thing consistently works.
My Mom did this over her lifetime by doing/saying something really mean to someone, then finding a 3rd party "confessor" [She's sooooo not Catholic!]---to tell how bad she felt about it---no apology to the victim/target; and woe the "confessor' who mistakenly thought they were supposed to carry an apology to the target/victim---no, no, no!
It's the pressure relief of doing something inappropriate that they can still do---something that brings even a fleeting feel as if they still have power over their world, even a bit. Sometimes that makes trouble and grief for caretakers. Sometimes they threaten. Exactly like small children...if they can't get their needs met by being good, they will try it by being bad---and it's impossible to predict, 'cuz even when a caretaker is great, th elder hs their own perceptions.
They can't help it--it's tangled up in deep-rooted survival instincts.
Sometimes one can only walk away from the elder and their messes,
to allow Help Systems to step in--they too often can't bridge the gap if any family members are in the way trying to "do right by Mom"---they'll see the elder getting their needs met--not a destroyed caretaker.
In the process of trying to love their elders and respect them, caregivers get hurt, too.
It's important we prevent sacrificing ourselves on the altar of life-long dysfunctional family---we're worthy of having a life, too....we're not supposed to be disposable lifesavers---that's not care-taking. So, rowing away from her sinking boat is a great analogy that sadly, must be done sometimes.
I just had incident yesterday where mom called panicking about a burglary where her purse was stolen and checkbook raided. I steeled myself to be calm and patient and tried to walk her thru looking in the house. She was very angry and accusing me of burglarizing home even though I live in another state. I understood how frightening it was to lose her purse --aren't we all?! But she couldn't be reasoned with. I was certain from our conversation that it was just misplaced. She ended up calling police and reporting burglary. She did not call me back and isn't answering my calls today....punishment for not driving 6 hrs or being there "as a good daughter should".
Don't take it personally. Do what you can, when she gets crazy, calmly hang up or leave and tell them you love them and will see them later.
Our incidents are always forgotten and I used to hold the hurts, but just let them go now. She's my mom, I love her, but I won't let her destroy me or ruin my happiness, spoil the good things I have going. I deserve happiness. You do to.
PS they always treat those closest to them the worst --we're their punching bag for all their fear, loss of control, and ailments as they age. Everyday, I tell my husband to please put me in facility when I get old and mean. I never want my children to go thru what I deal with. I pray to be a nice, loving, kind, pliable , happy elder.
I do agree that the Teepa Snow videos on Youtube are very helpful. I just want to add that what she teaches makes so much sense but is hard to keep doing for any period of time. Sort of like a diet. When you get really aggravated (and you will) and forget her guidelines (bound to happen), just pick back up where you left off after you've cooled down. My husband can't seem to stop trying to reason with my mil even though we know she just doesn't get it or want to get it. He sounds like a parent trying to reason with a two year old and over explaining.I know he lost her after the first sentence. He'll come to me afterwards and say "Yeah I know I just wasted my time but I couldn't help myself". Sigh...Having an autistic child prepared me for this to some extant but it doesn't make it any easier.
She is in a retirement home that has a lot of assistance, so I can avoid being there in the evening. She can do her complaining to her dog. :-). I wish the best
For you and your mom.
Internet YouTube Channel: Senior Helpers National - Anything by Teepa Snow. She has truly excellent seminars and I have found them incredibly valuable.
You can also Google Jo Huey and the 10 absolutes. This not only works with Dementia but any elderly narcissist.
Don't argue - it only escalates the contradiction.
Don't try to reason with them - they don't have any reason.
Do divert - diversion, diversion, diversion is the key. If you encounter resistance change the subject & try again later. You may eventually get through but you may not. We do the best we can but at the end of the day we may not have accomplished anything. Take deep cleansing breathes & walk away temporarily when we have to.
They are regressing. Meds may help but it will get worse and not better. This is not a battle we can win but we do what we can when we can to ease the transition into oblivion. Understand that they are as scared as we are. They will lash out at those closest to them, hopefully just verbally. That is what we do when we are afraid and see no remedy. It is a primal response and they are becoming primal creatures.
Thank you all for sharing your experiences. It really helps to understand that mom is not the only one displaying this confusing behavior.
With my mom, they didn't really do it. So mom's sliding thru life without a diagnosis except for catastrophic ills, which means no treatment for her mental ills. Which makes caregiving that much more "interesting"...and potentially dangerous.
Be concise and specific on descriptions you give the professionals who do an intake for her. It seems these days, too many Docs need the symptoms served up on a platter for them to find.
The angry explosion is a release for him, I think, and he needs it to put up with his increasing disability - can't walk even with a walker nor feed himself now. He has lost feeling and control of arm, hand and leg muscles..
VNA with PT begins sometime tomorrow... derned week-end interferred with action.. Wish us luck!