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Just looking for help and thoughts--- she is sleeping a lot - vitals still good-- 87 years old - they started her on Haldal and phenobarbital--is the end near? She didn't want any food yesterday-- anyone experience with those types of drugs?
As the body starts to shut down, it no longer has a need for food or drink, so if your grandmother is now not wanting to eat, that could very well be a sign that the end is coming. My husband was on Haldol, Lorazepam, and extremely high doses of Fentanyl during his dying process. My husband's dying process lasted 6 weeks, with him not eating for 41 days, and not drinking for over 25 days, but he was home under hospice care. Had he been in a hospice home, his death would have been quicker, as they are allowed to use stronger drugs there, that they can't use in the home. And do remember that hearing is the last sense to go, so make sure you leave nothing left unsaid with your grandmother. Praying for peace and comfort to envelope you during this sad time. God bless you.
5 days is typically the time spent in an In Patient Unit at a Hospice facility. Medicare pays for about 5 days Respite, or for symptom or Pain management in an "IPU". Typically after 5 days a person will be transferred home or to a facility depending on where they were before or if this is from a hospitalization you would discuss where you want your loved one transferred. there are exceptions. Just as a hospital you can pay for days in a Hospice facility IF they have beds available. OR if pain or symptom management can not be controlled they will keep a patient until they are comfortable. There are circumstances where insurance may cover a longer stay. You should discuss this with the Social Worker or the Head of the Hospice Unit.
there are indications when death is near or End Of Life. Skin coloring can change Breathing changes there are other indications as well. Not eating or drinking might indicate EOL but that can go on for days or weeks. PLEASE discuss all your concerns with the Nurse assigned to your Grandma. They will be more than willing to spend some time with you and explain what is happening and what they are looking for. But please keep in mind that everyone is different and death may come faster than they expect.
The haldol is common in the end of life toolkit alongside narcotics, but the phenobarbital is new to me - the aim is to allow the person to float away free from physical and emotional pain. This does sound as though she is actively dying, I'm sorry.
Mottling of the skin is a sign that things are shutting down.
I am sorry that you are left to wonder what is going on. I would speak with the hospice nurses and ask them questions about what they see and believe is happening. They can give you the best information.
May your grandma have a peaceful passing and may God grant you and your family grieving mercies and comfort during this difficult time.
Her breathing has probably slowed. She is not able to get enough oxygen to her brain. It does sound as if she is shutting down. Very peaceful. Bless you.
My Mom would not get out of her bed. She shut her eyes but seemed to be aware what was going on around her. After a week of this she was having a hard time swallowing so I brought Hospice in. She passed six days later.
My GF was with her Mom when she passed. Her Mom said that her feet were cold and then the cold went in waves up her body before she passed.
Ok - we had her home on hospice for few months--- she got admitted inpatient hospice on Sat (6/5) she started having trouble swallowing about 5 days ago. now only water on sponge
she is still lingering on, no food since Thursday: today will be 5 days- no water intake (only the sponge) her medicine is now being given by suppository- can no longer swallow. my heart is breaking watching this- no urine output as far as i know- they said a small amount when i asked. shes on Fentanyl (patch) 25 mg and the other two meds listed above. eyes are no longer focused---how long can this last?
I am so sorry for you and your family, tboudreaux. You have the difficult but sacred task to escort your grandmother on her final journey. It's so hard as so many of us on this forum can attest.
As you know, the body's an amazing organism. She could pass at any time or she could last for several days or even weeks more.
Doing something is important for us who are waiting. Talk with her in gentle tones of all the things that she has done with and for you. Tell her it's okay to move on, that you'll miss her, but you'll be all right. Play soft music or make the room as quiet as possible. Place photos of her loved ones around her. Read to her portions of her favorite books.
It's quite fine to leave her alone too. There are so many times the dying will not pass until they're alone, which many believe it's because the dying don't want to pass in front of others.
On a strictly technical side, one action that helped me step away from the emotionalism of Mom's passing, was to slip an oxymeter on her finger. I could see Mom's heart's rhythm, its strength of pumping, and watch her oxygen level, all of which gave me an indication that that was her final night.
Wishing your grandmother, you, and your family peace.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
My husband was on Haldol, Lorazepam, and extremely high doses of Fentanyl during his dying process. My husband's dying process lasted 6 weeks, with him not eating for 41 days, and not drinking for over 25 days, but he was home under hospice care. Had he been in a hospice home, his death would have been quicker, as they are allowed to use stronger drugs there, that they can't use in the home.
And do remember that hearing is the last sense to go, so make sure you leave nothing left unsaid with your grandmother. Praying for peace and comfort to envelope you during this sad time. God bless you.
Medicare pays for about 5 days Respite, or for symptom or Pain management in an "IPU". Typically after 5 days a person will be transferred home or to a facility depending on where they were before or if this is from a hospitalization you would discuss where you want your loved one transferred.
there are exceptions. Just as a hospital you can pay for days in a Hospice facility IF they have beds available. OR if pain or symptom management can not be controlled they will keep a patient until they are comfortable.
There are circumstances where insurance may cover a longer stay. You should discuss this with the Social Worker or the Head of the Hospice Unit.
there are indications when death is near or End Of Life.
Skin coloring can change
Breathing changes
there are other indications as well.
Not eating or drinking might indicate EOL but that can go on for days or weeks.
PLEASE discuss all your concerns with the Nurse assigned to your Grandma. They will be more than willing to spend some time with you and explain what is happening and what they are looking for.
But please keep in mind that everyone is different and death may come faster than they expect.
I am sorry that you are left to wonder what is going on. I would speak with the hospice nurses and ask them questions about what they see and believe is happening. They can give you the best information.
May your grandma have a peaceful passing and may God grant you and your family grieving mercies and comfort during this difficult time.
My GF was with her Mom when she passed. Her Mom said that her feet were cold and then the cold went in waves up her body before she passed.
she started having trouble swallowing about 5 days ago. now only water on sponge
shes on Fentanyl (patch) 25 mg and the other two meds listed above. eyes are no longer focused---how long can this last?
As you know, the body's an amazing organism. She could pass at any time or she could last for several days or even weeks more.
Doing something is important for us who are waiting. Talk with her in gentle tones of all the things that she has done with and for you. Tell her it's okay to move on, that you'll miss her, but you'll be all right. Play soft music or make the room as quiet as possible. Place photos of her loved ones around her. Read to her portions of her favorite books.
It's quite fine to leave her alone too. There are so many times the dying will not pass until they're alone, which many believe it's because the dying don't want to pass in front of others.
On a strictly technical side, one action that helped me step away from the emotionalism of Mom's passing, was to slip an oxymeter on her finger. I could see Mom's heart's rhythm, its strength of pumping, and watch her oxygen level, all of which gave me an indication that that was her final night.
Wishing your grandmother, you, and your family peace.