My father just passes, he was 96 and had a full rich life, including 60 years with my mother, who has moderate dementia. She knows he is gone and is depressed but she also starts confusing him with her long dead parents and gets very agitated. She also starts lashing out at the caregivers who come to our home. She is taking an anti-depressant and a mild sedative at night, because she was not sleeping at night, at least since my father went into the hospital for a fall two weeks before he died. How can I help her?
MIL does remember that she had a husband and that he is now dead...unless she sees him walking around the center where she is which she has reported to us more recently. They were a couple for 76 years and had almost made 74 years married when FIL passed. Grief is difficult thing for anyone, but just imagine what it must be like to have lost her ability to remember and think clearly and to lose her husband on top of it. Odd responses? You bet!
In our situation, MIL immediately started looking for another husband. She seemed to know that FIL probably wasn't coming back to the center where they were and began trying to connect with another resident. After FIL passed, she was fully after him. This other resident has since left the center, but MIL is still looking for another man. It's very painful to watch, especially for my wife. There's no reasoning with a dementia/Alzheimer's parent, so all we can do is humor her. I told my MIL I was going to find her a big net to catch a husband, which made my MIL laugh a little. When MIL gets to heaven and regains her mind, it's hard to imagine her not being very embarrassed as this part of her life is reviewed. This would NEVER have been her.
There's no way to sugar coat it...the situation is just awful and we know what you're going through. Pray for strength and take each step one at a time.
All we can really do is be there for them and give a helping hand if they need. Most people make it through grief okay. It is something we all have to face in our lives unless we die young. It helps my mother to think that her husband is waiting for her on the other side. This seems to help her miss him less and fear her own death less.
Taking it a day or an hour at a time is all I can say. Some people want to look at photos. Others don't. Most people like to talk about the good times. If she is able, let her make the decisions about when it is time to donate your father's things. Some people have a harder time letting go of things than others. I think it is okay to let them be the boss of that.
I am sorry for your father's loss and hope the next few months are filled with good memories of him, both for you and your mother.
While your mother's state of mind may be fluid, at this point you probably have a strong sense of what best suits her needs. That you are asking for input shows you care deeply for her well being.
My FIL had Parkinson's Disease and Lewy Body Dementia. His dreams were very vivid and he had trouble differentiating what was real and what was a dream. He was often agitated and anxious especially in the evenings (Sundowners). His neurologist prescribed hydroxyzine at bedtime for anxiety and it also helped him rest more comfortably.
I am so sorry for the loss of you father, and God bless you for taking such good care of your mother.
The trick is to become a liar to your own parents after all these years of them instilling telling the truth. When it comes to patients with dementia...you can't continue to tell them the truth because they will react as if they are 2 years old again. Tempers can flare, name calling their own children for the lies they are telling(especially if she believes her husband to be alive-in her own version of her reality), and bitterness will fill them.
Not only lie about this topic. But begin to lie about other topics that seem to disrupt your mothers personal reality universe. Try to remember that the more you are truthful to the actual facts with her the more she will resent you for 'upsetting her reality'. Sure she may have many moments of clarity and true reality ah huh moments that bring her back to 'your reality' but it will be short-lived.
Hugs and baby steps. One day at a time. Adjust your stories accordingly as time passes. One day a year or two from now(if not sooner) she will no longer ask...and once that happens...you no longer bring up the subject of your dad/her husband. It will become a topic to be shelved and never spoken of again.
I found a very mild sedative given to my father over 90 years old was harmful and disorientating for him. He lost his wife at 55 years of age and it really took him about 3 years to pick up the pieces and move on. He did but it is not easy but he had to accept it, he was happy for the years he was married.
Losing her spouse after a long marriage, is painful and she probably is filled with grief. She misses his daily presence. Getting through the death of a spouse is very difficult and she is likely overwhelmed. It takes lots of time, for some prayer to adjust to it. Your post said this was a recent death, expect at least a year for your mother to accept the loss. I found after acceptance, my father had the strength and desire to go on with life. However, he lived almost another 40 years as a widower, always considering himself my mother's husband. He talked about her every day of his life.
Good luck, it will get better for her but it will be a difficult first year as holidays come and go and she will feel the pain of the loss.
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