My husband is 75, I'm ten years younger. Since he retired, I've seen a decline in him. The three most apparent are his poor decision-making skills, his driving skills, and his willingness to help out around the house -while physically he is in reasonable shape he mostly sits all day. I'm at the end of my sanity.
I know we need to have a discussion, but I don't want to hurt him and I don't want to face his anger, which is how he typically responds to hearing things he doesn't want to hear.
I see from your profile that he has Alzheimer's has he actually been diagnosed? If he has Alzheimer's you will not be able to reason or explain anything to him. An Alzheimer's brain can not process the information that you want to discuss. It will only cause frustration and anger for him.
As far as confront/versus discuss rationally, you are talking semantics, I'm looking for advice from someone who had had to have this difficult discussion. (My mother never admitted she had a problem, BTW)
"I am caring for my husband Richard, who is 75 years old, living at home with age-related decline, alzheimer's / dementia, depression, and sleep disorder."
Many, many years ago, I realized that my (first) husband had had a change in mental status and was reasoning in an entirely black and white way. I contacted the neurologist who was treating his seizure disorder. It turned out that there was new literature on this med that indicated that long term use could cause personality changes.
The doc contacted his patient and asked him to come in based on " new information". To this day ( 30 years later) he doesn't know what prompted that med change.
Sadly, I feel so depressed (I love this man) and crazy and exhausted from this situation already she topped it all off by making me feel stupid and irrational for asking her how to start the diagnosis process.
Although your mother suffered from Alzheimer’s, understand that no two people travel this journey the same way. My mom was nasty, delusional, hallucinatory and combative. My father-in-law was bewildered and lost in his disease. Admitting one has a “problem” like Alzheimer’s solves few of the issues. It’s not like a nicotine or alcohol addiction where one can go to rehab. It’s not like Chicken Pox where one breaks out, goes to the doctor and eventually gets better.
Firstly, your husband needs to be formally diagnosed by a neurologist. If his evaluations show he does suffer from it, it will be the elephant in the room but one doesn’t need to constantly call attention to it. One handles it by making sure paperwork is in order such as POA and estate planning. Others have suggested on this site that having the physician speak with the person who has become a danger on the road can help. Keys may need to be hidden. He may be able to handle some decisions on his own for the time being. As time goes on, you will handle more and more of them.
Frankly, if he does have Alzheimer’s and you already find yourself at the “end of (your) sanity”, you may want to explore other living arrangements for him now. This can be a long road, and it only gets worse. Caregiving for an Alzheimer’s patient is a huge undertaking.
But he is aware he's slipping. It's been going on for some time, and is in large part due to the fact he is very deaf and is missing so many of the clues that hearing imparts (I am thinking of the "lights and siren" cop chase we were involved in last week---he simply did not hear the cop....and I didn't say anything b/c I wanted him to have to see for himself that this is IMPORTANT to be able to hear the best you can).
He sat in the car and said "She didn't even have the siren on!" And I said, "Well, I heard it" He disagreed, of course, so when she came back with the "warning" he asked her if she'd had the siren on and she said "Yes, sir, I did."
Couple days later he talked about not being able to be so quick on the draw at work with problems that come up (he's an electrical engineer and has always been top of his game). I agreed that yes, I had noticed his increasing forgetfulness, but as he doesn't listen to me, I had not made a big deal of it. All I said was "You do realize that you forget something every single day of work and on trips?" He did agree, and I know it's bothering him.
I guess this isn't a hill I'm willing to die on. He barely hears and I really think that he would feel better if he could hear what's going on. He refuses hearing aids and so that is a moot point.
I honestly do not know what to do--as you don't. DH has had a couple of concussions in the past couple of years and they DID thorough exams. That doesn't always give the answer. I think it's more the day to day forgetfulness that slowly slides into dementia or just plain "battiness".
None of us knows what's in store. His mother is as batty as they come--but is also as deaf and seeing the two of them together is like an "aha" moment. He acts just like she does.
If DH wants to talk about it--do. That's not very helpful, I know, but every person I know who has some type of dementia has had a period of time when they "knew"--whether or not they "remember". DH is quite depressed about getting old. I did tell him the alternative was probably "worse". I don't know what he EXPECTED getting older to be like!
Had to take my car in for repair this week. I followed him. He blew past the car dealership, several miles. Although I had a cell phone, didn’t call him, while driving. Thought perhaps he had made the the appointment at the mid-town dealership instead. Nope, he eventually made a U-turn, and I followed him to the correct dealership. He had insisted on taking the dog in the car, which I hate, when having car trouble. Being broken down is bad enough, getting a tow, calling a cab to get home, don’t need the dog in that mix. He refuses to listen to common sense. I had to shut car off and restart at theee different traffic lights, to limp in to the dealership. Most men would tell the wife to drive the reliable chase car in such a situation. Not this one. As his cognition declines, I’m in for a merry ride, being on oxygen and walking with a cane myself. Shuddering!
My dad swears up and down nothing is wrong with him. Yet everyone that talks to him can tell something is wrong. Does he know and is in denial? Your guess is as good as mine, he has his story and he is sticking to it, come what may. Ugh!
If you feel like the NP treated you poorly I would find a different provider, she will cause you more heartache than she will ever help. I had a PT do the clock test and told my dad he doesn't have Alzheimers or dementia, regardless that the brain scan showed a walnut in his head where his brain is. That caused untold arguments, so be sure and start this process with a doctor that knows what they are talking about.
Best of luck, not an easy situation for sure.
Op, at some point you have to confront what you are seeing daily. Hoping it goes away is something we, many us did, but it got to the point where one could not rationalize anymore. LO jeopardized safety, finances, other people, if still driving. I know this is hard. I do. We do. But at some point you have to take the bull by the horns. It is unpleasant, a battle, harsh things said, accusations made--terrible ones at that. Has he accused you of cheating on him? That could happen. I wish you the best here.
Are there guns in the house?
I was friends with an older lady who tried her hardest not to put her husband in a facility. He was clearly suffering from advanced dementia, knowing what I now know.
There was some smart Azz young
Man who knowing nothing, played to the husband fears that his wife was cheating on him. Told him repair man took her into bedroom. That's all the husbsnd needed. Attacked with a hammer. It did not end well.
This is difficult but can go south so quickly. Best of luck to you.
It would not hurt to see a neurologist since he is still ambulatory, and you may want to see an eldercare attorney to get your affairs in order, establish POA, and so on.
clean up his medication list. They try to stabilize mood and treat the dementia. There are many causes of dementia. They are not all treated the same way.
Another great resource is support groups for dementia caregivers. Also, there are programs available to learn about these diseases. Your local area agency on aging can help guide you.
It takes a village to care for a dementia patient. A nurse care manager may be a place to start. That could be the beginning of your team.
Good luck.
I'm 79 and feel things are going downhill. I'm alone and will make sure, as much as I can, that I don't suffer in the dark.
And I bet he has been covering symptoms for quite a number of years. (I have read that it is often as long as 10 years that people are able to mask, hide, work around problems they have been experiencing)
First thing, your family doctor. discuss depression, very common when someone retires and now finds themselves with less to do. (You used to go to work where you were "needed" now you are not needed in the same way it can be a difficult adjustment)
Then discuss the memory issues. Get a referral to a neurologist or a neuro-psychologist to discuss issues.
And you both might want to take one of those driving classes, it will give you a good indication as to what is going on and it might reduce your insurance rate.
The anger issue if that is new it might be related to the depression, it could also be an indication of a type of dementia. (Umbrella term for all types) At this point it might be beneficial to diagnose the type of dementia.
but I am sure he is well aware of what is going on. It is possible that it has gotten tot he point where he can no longer mask the symptoms or since he is around more you are noticing them. Or a combination of the two.
I realized my husband is coping by “ anosognosia”, choosing to believe he is OK with some difficulties!!! I now know not to discuss it anymore. He does not remember, he does not get it and he is happy most of the time, believing that he is improving...He was an electrical engineer, successful, handy, hard working. Now, his world has shrunk terribly, and his many talents disappeared.
He wants to help and I let him if it is safe like washing the dishes. He loves that because he feels successful at something. Very sad but I am always accepting and adjusting.
Finally, through Doctors’ intervention, the DMV suspended his Licence. We mailed it back together. I removed the car keys.
I told him the Motor Vehicle asked for them.
I removed the credit cards and I provide him with cash. So far it is working, until the next crisis...
We are not the good team we were for many decades.
I am not a wife anymore, only on paper and in memories and pictures... I am now a Nurse, a Manager and a Mama.
Stay strong and hold your ground!
This shall pass too.
Hugs 🤗
Joni
Don’t try to address his decline by yourself with him. It will certainly result in anger. If driving is an issue, discuss it with the doctor what the next step should be.
1) went overdrawn at the bank because she made the rent check out for the wrong amount ( all this for the first time in her life ), 2) accepted a bottle of rum from someone before I intervened ( mom takes the opiate Percocet daily for excrutiating spinal pain and knows better ), 3) come in from cold damp weather in a euphoria saying "it's a sultry day."
I also feel like everything, and I mean everything, she tells me is a lie.
Mom also suffers from Lupus and I don't know if I am seeing psychiatric issues.
Currently, I'm recovering from yet another bout of asthmatic bronchitis, am out of work, broke, exhausted, and have heart disease that appears to run in the family. Together we keep the roof over our heads, etc.
Are your husband and my mom in the same place? I feel completely unequipped to handle this. Financially, we are both unequipped to handle this.
I saw the early signs with mom (she lived alone), such as repetitive statements/questions, problems paying bills, not really cooking, etc. I also noted by observation and some feedback from a neighbor that she was self-isolating. The ladies would always go to the Senior Center with bells on, especially the free meals from time to time. She started to make lame excuses and not go.
For those who mentioned hearing loss/issues - there is speculation that hearing loss can contribute to developing dementia (MidKid58 - have seen some of your posts in other threads. Considering his mother has dementia AND hearing loss, there may be a connection! It is a shame that he doesn't even want to try - keep working on him!) Our mom had a correctable hearing issue, but chose not to have the surgery. Now her hearing is really bad AND she forgets to put the aids and/or batteries in!
Keep in mind that Alzheimer's is just one form of dementia. Dementia is the umbrella over all the cognitive disorders. We never got a real Dx for mom, just knew that she had dementia (likely vascular.)
Denial is not just the name of a river in Africa. The problem with those who have dementia, there is no point in trying to reason or argue this (or any) topic. It is a futile effort and can result in anger, frustration and burn out. Sometimes, so long as it doesn't hurt anyone, you just have to go along with it.
Mom is/was adamant that she is fine, independent, can take care of herself and cook. Nope. Anything came up about memory, she would just say she's old, so she is entitled to forget some things (was just over 90 at that point.) There is forgetting things and there is can't remember what you just said or did, can't process cooking (microwave dinners, and packaged stuff in a box is not cooking!) and cannot manage finances is a whole different category! We do NOT mention anything having to do with memory with her.
For those who have issues with the mail, bills, debit cards, etc, I think dazednconfused covered it well:
"I have two suggestions that might help with some of the challenges. One- a post office box and have all your mail directed there. Two- open another account with very limited funds and get a debit card for it that is his alone. Then hide all your other accounts. That way he will feel he has some money and yet if he overspends since it is a debit card it won't be accepted."
As soon as you get your PO Box, fill out the change of address form, sending all mail to the box. Be aware that this is only good for 1 year. You will need to contact all the important entities (billers, insurance, credit cards, SS, etc) and have them change your address to the PO Box.
For the new account/debit, ensure there is NO overdraft protection. Some banks will "float" the overage, leaving you with a negative balance and FEES!
My mom also had dementia (never precisely diagnosed) but it was one of her problems. She would not accept help & showed poor judgement in many things. I worried myself to death, & finally decided that I could not control everything in the world, so if she fell or did something foolish, I would just let it happen. Fortunately I had managed to get both parents into assisted living, but staff were not omnipresent.
Dad is lucid & sharp for a 92-year-old, but is legally blind & hard of hearing. He finally quit driving when we emphasized that if he had a wreck, he could hurt someone else which he would have to live with.