I am saddened that my 93 year old mother insists I continue taking care of her because of all the years she sacrificed for me. I didn't ask to be born and that should have no bearing on me taking care of her now and doing so for the last 10 years. She inflicts guilt on me with these insensitive comments. At times, I don't want even want to do anything for her. I will never ask my son to care for me now that I see firsthand what a guilt trip parents can lay on their children. Everyone should be entitled to live their own lives and not feel guilty for the decisions they felt were right for themselves. My mother has Dementia but she's been saying this to me for years before Dementia set in. My only source of freedom is having caregivers for 4 hours 2 days a week. One of these caregivers is very good but she tells my mother I should be doing more for her like taking her out 2 or 3 times a week. This puts extra stress on me because I have a back injury due to a fall. When I do go out, I dread having to return home to more complaints. Any advice? Thank you for letting me vent.
I'm sure you've considered an assisted living/nursing home for her. Dementia will only get worse, as you know. Caring for a dementia person is hard (I cared for my mom.) It's far too much for one person, especially with only a few hours of respite a week. You can't continue. While she's 93, she could easily live for many years.
Seek out AL/NH for her. It's for the best care for her. You can tell her you'll still care for her and ensure she's getting great care in the facility.
I'm sure it hurts when she says you owe her. Please ignore it for your own sake. You matter too, and your profile says you're 68. It's time you became primary in your own life. {hug}
You have been doing this for ten years! Enough! You have gone above and beyond and you need to get your life and freedom back. Forget her ridiculous demands. Get her into a care home ASAP. If money is an issue start the medicaid process and if anything happens and she requires a hospital stay refuse to bring her back to your home. That will speed things up.
Seriously Essie.... ten years is LONG ENOUGH! Please put yourself first for a change and get your life back. No guilt because you owe her NOTHING. What she is saying is cruel and manipulative. Don't tolerate it anymore.
I cared for Mom for 20 months. Her decline was steady. I went to an AL to get info on respite care when I found they were having a sale on room and board. I placed Mom. Ten yrs is a long time. You are a senior yourself. Her Dementia will only get worse.
This is what you owe Mom. To be safe, clean, fed and cared for. If that means an AL, then thats where she can go.
https://www.agingcare.com/questions/who-can-i-contact-for-mom-to-be-placed-in-a-safe-facility-if-im-unable-to-do-this-alone-448657.htm
I hesitate to go into further detail as I do not want to start a "fight" here. I too am a 24/7 person for my wife, and have been since open heart surgery caused extensive strokes to her and none of her four children (by a prior marriage) are willing to discuss "in-home" living. The operation took place a bit over four years ago.
I have given up my life's work as a lawyer to at all times be with my wife and to help her in any and every way I can. ( I am also divorced from my prior wife). I have lived with her in every situation involving some form of care and know that if the dementia is bad enough....and with my wife it is, and she has great problems staying on her feet and she will quickly fall and eventually break her pelvis or other bones and the absolutely need great institutional care at that point.
Yes, I do think children do OWE their disabled parent or parents MUCH. We saw our children though all that happened when they were growing up and we
should have a similar commitment to them in their times of need.
There are generally, in my view, almost always the ability to have a "team" that will assist the needy person, but it takes open and honest and face-to-face discussion to work out details in every respect.
The fact is that there is a national crisis going on in the United States. Many foreign countries do care about the elderly. Just watch lawyer advertising on the televison sets here in the good old USA, and you will see hords of lawyes descending on suing nursing homes and others for failure to properly take care of their residents! Are we all to just send our needy people somewhere and wait for the inevitable call that "MOM (or Dad) fell last night and is now in intensive care at some hospital?
I realize that us 24/7 folks need help too, and a lot of it, but that is a different and another need that needs open discussion and resolution.
I respect you all and know that those of you who can and will comment that my four years or so of 24/7 is VERY little and only qualifies me as a "NEWCOMER", and you have your right to do so, BUT, I have lived with my wife all the time and seen people being carried on in emergencies where they fell, and some came back with black and blue marks and some did not come back at all.
And, let the comments begin, or you better bar me from this wonderful resource that allows us to do what we are doing.
Your wife is blessed to have you and your ability to take on her caregiving. I am so sorry her children do not take an active role in their mother's care. Sadly, too many are willing to step back when there is someone willing to provide care.
Its hard enough to deal with dementia but when they are mean, demeaning and ungrateful it’s life draining and toxic. You have served your sentence.
I disagree with your statement " you truly owe her nothing". Even if the parent was and is abusive, we absolutely owe them everything( easier said than done, I know).
We honor God when we take care of such parents. When done in love it is not "toxic and life draining" it is liberating. It becomes toxic and life draining when our motive is toxic.
One thing is for sure dear, it's difficult to care for your mom especially when you feel you don't even want to do things for her or with her. Please do not feel so offended of words spoken or take personally the comments. I do this still for a living because first I want to. Your mom should be given the best of the best of what you can and there is available. Of you, of care and compassion, of foods, of time. I have seen both good and bad in these situations..... Believe me when I say some of the bad betweeen caregivers and facilities is scary. Think of yourself being 93....if you can....really visualize.....
You should not be doing this alone for sure. It takes a village.... I'm sorry if you are. Your mom is your mom. And if it's the only thing she can say to validate your taking care of her is you owe her well let's just say we kinda do....😉 after all our parents did go through some changes in their lives to have us bathe us feed us listen to us school us clothe us and put up with our antics..... To say the least.... But what I've found. Is they.... A lot feel opposite.... They really don't want that for us.... No matter what our occupation.... Our now family situations....you are the last person they would pick to do it....they love us. Gave us a begining of life... In some ways gave you your chance at having a child. Son or daughter.....they along with our grandparents gave us beginnings. You know. God first? For Some. Would you want someone else to do it to care for your mom? I would not. I felt bad for some of my residents who had family but they never came. We in fact gave them birthdays and Christmas .... Now that's 😥 sad. You should probably put her in God's hands.... Meaning what ever is the next step for her let it be the right thing to do. For all concerned 😟.....the guilt is worse later if you can't handle it now. Worse to the point of sickness. 10 years is a long time. Imagine it stops all of a sudden? Then what? There are many different factors into this. Many differences in the ways we live in what our purpose brings us to do. Love thy mother and the father with all your being.....if you cannot commit then let someone else do it ok. Be honest and true to your feelings ok.... Eventually....oh it's all going to be alright. And this too will pass..... Feeling your situation.... Wish I almost knew more. Feel free to contact me and leave message... God's blessings to you and yours........ Much love for it takes a bunch of it.
If she says it isn't her, then no harm done. If she says it was her, give her another chance. Given dementia and all postings I have read about what those with dementia come up with, I would suspect this is mom's dementia talking.
In either case, one can choose to ignore it and not take on guilt for it!
As people age, I notice they can become less like themselves when they’re good people and bad characteristics are often more profound. They can become selfish, self-centered, rude, reactionary, dramatic, unfair.
Its really clear we should NOT feel bad about saying no and setting boundaries but the parent child relationship makes it hard. In that same token though, as a parent it’s not always easy to say no to your kids. We/they do it because it would be insanity letting kids/teens/young adults guilt us into doing things that we know aren’t good for them OR us. So we should feel more strengthened in knowing the same applies to our parents who are cognitively challenged and whatever other issues they have.
Your mom will suck THE LIFE out of you if you let her. She doesn’t have it within her to make less demands but you have it in you to say when is enough.
Good luck! 😊
It’s very hard, and you’re at a milestone and need a change. I’m another vote for getting a counselor or support group, asap. Another voice echoing that caring does NOT mean having to BE the caregiver. It’s in the frame of each person’s life-long relationship with the elder and what they can do without losing their own psyche or life. I work on this every day, if I go down the crapper even ‘just’ emotionally then I’m not there for her. Yes speak directly to the one aide, consider the source of how you heard what she ‘said.’
The sooner you get more third-party care or a change in residence for your mom the sooner you can have the proper relationship - one of oversight and assurance. NOT so hands on, there are many forms of love and support besides that. My mother has had friends who she was always happier with than with me - they’ve passed away, but it proves that ‘strangers’ can be family too. I am tenuously bringing one into the fold now for pay, and I need that, Mom needs that. Praying she’ll be a good fit and can fill more duties and hours. GOOD luck essie, please don’t make this just a vent but a spur to action. 💐
I hear you.
That's my plan. Somewhere close by so easy to visit. Short visits offen. Ready to slide out if mood is not receptive for another time.
Pass the care duties onto the professionals & just be a daughter. Enjoy just being a daughter again.
You have done a AMAZING job. Retirement age is 67 where I live! - please don't take offence!! But maybe time for a change? Promote yourself from hands-on worker to friendly companion.
Lastly, if not continuing to care for her at home if causing you guilt, try something like... I feel proud I could care for her at home for long, I am still caring for her but in this new way.
Best of luck with a transistion if that's what you choose.
I assume you’re living with her. And I don’t have the answer. But you are important too. Try to get more help. From the family but if there really is no one, like me, and there’s funds try to use them.
I was my Mom’s caregiver after she suffered a devastating stroke and then diagnosed with dementia. I did this until my health suffered and beyond. I have just placed her in assisted living. I did this FOR BOTH OF US! Her safety and mine.
Yes mom sacrificed for me and I love her for that. However, it was no longer a question of want but need. Do what is right for both of you. You do no one any good if you get hurt or suffer burn out(sounds like you are already there). People say we owe our parents and we do but in my opinion, you also owe yourself. You have to be healthy in order to help her. Healthy in all ways! Caregiving is hard work and yes it is work! No matter how much we love our parents, we also have to love ourselves and take care of us as well as them. By neglecting yourself, you take from her as well. You are important too.
My opinion only.
I always give kudos to those who can, want and do care for their LO to the end, but it isn't always humanly possible to do that for all of us.
As you said: "...it was no longer a question of want but need." AND "Do what is right for both of you."
A calm discussion with the caregiver should happen (esp since she is the "good" one - many of us know how hard those are to find!) If she says it was her, just ask it stop. IF it continues, then consider moving on to another caregiver. If it wasn't from the caregiver, then we know the source.
Taking your mom out is up to you. Start small and work your way through how much time mom can be civil while out. Maybe a coffee shop after a doctor visit.
A walk around the block or back yard maybe.
You need to find things to break up your day and incorporate mom into them if you can. Then take the four hours breaks for yourself- alone time.
So....you take in your elderly parent. What's the timeline? What's the regression (there is no "progress")?. What's the price you will pay? Did you even expect this to happen, and what's next? What will you give up, and for how long? Until you are old or die?
Not a fair comparison.
What your mother said to BEFORE she had dementia is ENTIRELY DIFFERENT from what she now says WITH dementia, but YOUR management of YOUR reaction needs to be the same.
The comments of a person with dementia are NOT “insensitive” or “sensitive” or “hostile” or “loving” or any other LUCID comment. They RESULT from her illness.
It is jarring to me when my LO says something unexpectedly unkind, but I get over my distress about them quickly because I interpret them as having NO TRUTH OR MEANING.
It is time for you to make choices that allow you to be comfortable while dealing with her behavior.
Who is paying the inappropriately mouthy caregiver? Whoever pays her salary needs to inform her FIRMLY that she needs to do her job without offering ANY suggestions to her client about what YOU OR ANY OTHER FAMILY MEMBERS should do.
Yes, you do need to make yourself fully aware of resources available to your mom in terms of residential placement, including sites, financing etc.
Time to start thinking about managing YOUR self care in the most positive way possible while PLANNING for the best care you can for your mother. You’ve allowed yourself to be personalizing her erroneous comments for 10 years.
TIME TO STOP!
Certainly you shouldn't feel guilty. It was mom's choice, AND you still did what you could.
In any event, it's up to you, as an adult, to decide what you can and cannot do and for how long. You are a senior citizen yourself; being a full time caregiver is hard work. That's why there are three shifts of generally younger folks doing that work in nursing homes.
Your mother cannot "insist" upon you being her caregiver. You, however, CAN insist that you no longer wish to hold that job.
Yes, sometimes it is time to hand over care, be an advocate who watches over mom, and resume your old relationship as best one can.