My husband and I own a mountain home 2-hours away. We have no children and no other family to spend Thanksgiving with. We are planning on spending Thanksgiving at our mountain home. With my mother's ALZ, stage 6, I feel so guilty for leaving her. She does not remember my visits from one day to the next. Most days she does not know who I am and asks me where Trish is. I'm not sure who she thinks I am. I know she trusts me and believes that I am someone who loves and takes care of her needs. I take her treats when I visit and on good days we go out for lunch. I disconnected her flip phone when she moved into the AL facility (9/19/19). She hasn't mentioned her phone. I know that the facility will call me if something happens: a fall, sickness, etc. I keep telling myself that it's okay for me to go and enjoy myself and that Mom will not remember if I'm with her or not. Still, I'm so sad and torn over leaving her. I live 2 miles from her facility. I am all that she has to visit her. I hate this disease! Some days I feel as if this disease is destroying both of us. Thank you for any advice on how I can move past this horrible guilt and live my life.
You are over identifying with her disease and are making your happiness dependent upon her's. Please don't let it destroy both of you. If you find this hard to separate, then you may find a therapist helpful to make this important transition.
Your mom is well-cared for. You see her often and make sure she is well-cared for. Spend time nurturing your marriage and yourself. Those relationships also need your care.
Do not let her disease destroy you. You MUST give yourself permission to take care of yourself!!!
If it makes you feel better, tell the facility you will be gone from X to Y and do it. And plan on doing it again. Having her in a facility is an opportunity for you to start living your life again instead of being quite so heavily invested in care taking.
Guilt is a choice.
You need to change you semantics about this. Change the way you speak to yourself about it all. You need to change it because after you give yourself your daily "beating myself up" talk, you end it with "Why am I DOING this to myself. What's the MATTER with me".
As long as you continue to stir this stew of self recriminations it will simmer on the heat.
How about "I am a human being, and I have limitations".
How about "The thing about Saints is, as much as we love them, they end shot full of arrows and spending eternity trying to answer everyone's prayers".
How about "I deserve this, and so does the rest of the family, so I am going to do it and I am going to love it, and sure, I will have a few moments in which I feel bad, as well".
We can tell you all of this. And that is what we will do if you post it here. But you know, my guess is that you really are a decent person. I don't know a whole lot of psychopaths and narcissists who are sitting about tormenting themselves. You can do this for yourself.
Stay mindful. Stay in this moment of this day. Don't go back to all the pain. Don't go forward to the pain you imagine (it will be here soon enough, hee hee).
Please, hon. Do go. Please have fun. You know, there isn't a WORD, not a single word I wrote above, that you don't already know.
I just came back from a six day trip to the North Carolina mountains. Beautiful! The opportunity for the trip just fell in my lap unexpectedly. I, too, worried about going especially since my father had recently died, and I was spending almost every evening with my mother who had been his roommate in the nursing home.
Could you arrange to have someone come in to be with your mother during your vacation - perhaps from your church or even pay for a professional companion to come in and report to you daily or not at all? Just knowing that your mother had a daily visitor might help you. My family was so happy that I was going on vacation that they all stepped in to fill the void of my not being there. I realize that you are your mothers’s only visitor, but this could be an opportunity for you to set up caregiver visits that could continue even after you returned,
As I was writing this, I thought about the guilt you are feeling. As so often happens, we sometimes confuse our emotions. As I recall my feelings prior to my trip, I did not feel guilty about going on the trip, but I did feel very anxious because I knew that I was a big part of my mother’s life and I was worried about how she was going to do without me. Could you be confusing guilt with anxiety? You are understandably anxious about leaving your mother as she gets no other visitors. Please look into getting someone in to take the place of your visits. You could look at it as respite care. You are a caregiver that has been dutifully seeing to your mother’s needs who is now going on a much-needed vacation with your husband. Even though your mother’s physical needs are being cared for in a facility, you are going to provide “respite” care for her emotional and social needs. You have plenty of time to set this up. You could even start it the week before. We used Home Instead for many years when we were taking care of my parents at home, but I have heard others speak positively about Visiting Angels.
Something else that greatly helped me to enjoy my time away was the realization that I had taken on, personally, too much of the responsibility of my mother’s wellbeing. I had to remind myself that my mother had a God, and I was not it. I prayed with her before I left and I left her in God’s hands - not mine, and I trusted Him to take care of her while I was gone. What a relief, both emotional and physical, this was!
I told my friend on the drive back that it was remarkable how well I had slept during my stay. I prayed for my mother at night knowing Someone else was taking care of my mother and I could sleep in peace. I have been mostly managing to continue this mindset since I returned. We can become so enmeshed with the vulnerable person that we are taking care of that we take on a position in their life that no human can possibly sustain - or should they!
I pray that you have a relaxing and wonderful time with your husband in your mountain home. It sounds delightful! Go hiking, if possible, and allow your body and spirit to be renewed and strengthened, which will benefit not only you but your mother also.
I just wanted to echo what others have said, GO! Enjoy yourself. Take pictures. Build happy memories. Spending so many years caring for my mom, I foolishly cheated myself and husband out of time that we needed for ourselves. Please don’t be as stupid as I was because you can’t get that time back.
As Isthisrealyreal said "I would find a way to celebrate Thanksgiving with her before you leave". Excellent, yes, do both.
That's the practical stuff sorted! The feelings are harder imo.
What are your thoughts around the guilt? She shouldn't be left alone on a holiday? That you should celebrate with her? That others may judge you?
I've certainly felt all this. I tried to change my thoughts to something like: I am a thoughtful loving daughter who came to celebrate early, as a compromise around everyone's needs, Mother, Husband & self. It's slowly working .
The disease that is slowly taking your mother cannot and must not take you with her! Wouldn’t your mother want you to enjoy your life and holiday? If she knew the guilt you are feeling... would it upset her knowing she is the reason for it? Anyone who loves you would feel terrible if they made you feel bad, even if it wasn’t on purpose. Don’t let your mother be that source of hurt. Hope that makes s sense :).
If the guilt is because Mom is being left behind, please know it would not be any vacation with her there. At her stage, taking her out of what is familiar will not be good. If the AL is fairly new, she needs a while to adjust. You would need to toilet her, dress and bathe her, etc. What kind of "get away" is that. You and DH need time alone. He is your priority this weekend. ENJOY IT!
Make it about being thankful that she is able to have 1 more meal with you, enjoy it, then head out for a fun Thanksgiving with your husband.
I wouldn't call her, I wouldn't think about her, I wouldn't worry about her. She will be okay and the facility will call you in an emergency.
Enjoy this mini holiday with your husband and know that she is being well cared for and would understand that you are having some honey time, if she was able.
When we feel guilty it is counterproductive and it is a waste of energy. When we are well balanced and do the best we can for our loved one we have no cause to feel guilty for taking care of our family and ourselves. I think that a lot of feelings attributed to guilt are more of a loss emotion than actual guilt. It is sad to lose our parents one brain cell at a time and we don't want to hurt them, intentionally or unintentionally and because they do things that resemble themselves when they weren't sick we don't know what they are really experiencing or feeling and that makes it difficult for us.
Mindfully stop yourself when you start feeling guilty. Whatever that looks like for you, remind yourself that you have done the best you can and she is safe and well cared for and she would have told you when she was healthy to go have fun being solo with your honey for the weekend or whatever gets you to stop beating yourself up with false guilt.
I know that some think that you have to feel guilty all the time or be labelled as a narcissist or psychopath, not true, very damaging thinking. Feeling bad or guilty is an appropriate response to doing something wrong, those same feelings are nothing but bondage when you are not doing anything wrong. Appropriate emotional responses do not make anything but a well balanced stable human and we should encourage one another to look at what we are really feeling and not feel guilty about wanting a break from someone else's problems or challenges.
Have a wonderful Thanksgiving dinner with mom and a fabulously fun Thanksgiving holiday with your husband.
Guilt is a self imposed emotion that just keeps one stuck in a place that they should not be or embrace. It serves no purpose whatsoever, it has become one of the buzz words of the 21st Century. Turn it around, you have done what is best for her, she is safe, she has people at her beckon call.
It is part of the circle of life, unfortunately, we are all living too long, my mother is 94, she is still here, but then again she isn't. I feel no guilt, she has lived her life on her own terms, and I must do the same.
Enjoy your trip, you and your husband have earned it.
Enjoy yourself........you're allowed to.