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Who are you caring for?
Which best describes their mobility?
How well are they maintaining their hygiene?
How are they managing their medications?
Does their living environment pose any safety concerns?
Fall risks, spoiled food, or other threats to wellbeing
Are they experiencing any memory loss?
Which best describes your loved one's social life?
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By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid. We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour. APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment. You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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Mostly Independent
Your loved one may not require home care or assisted living services at this time. However, continue to monitor their condition for changes and consider occasional in-home care services for help as needed.
Remember, this assessment is not a substitute for professional advice.
Share a few details and we will match you to trusted home care in your area:
"Kyphosis is an excessive forward rounding of the upper back.
In older people, kyphosis is often due to weakness in the spinal bones that causes them to compress or crack. Other types of kyphosis can appear in infants or teens. These types are due to malformation of the spine or wedging of the spinal bones over time."
Mayoclinic.org
It's possible you were turned down because kyphosis is not a terminal condition. Where you live it is possible that palliative and hospice are considered one and the same.
How did you lose your pain pump? Do you mean you literally lost it or you were no longer able to pay for the use of it?
Does your clinic/network have a Pain Clinic (often part of an orthopedic center)? If you are on Medicare you can see if there's one close to you, even if your physician isn't connected to it. They may have pain management options for you.
Are you a candidate for spinal fusion?
I'm so sorry you have this intractable pain. My 25-yr old son (6'3" tall) has Scheuerman's syndrome and worsening kyphosis will be part of his future.
Pain relief is becoming a horrible problem now due to addicts and their numbers in our nation. Unfortunately, people who are in need are not being properly medicated. I am seeing this more and more and over and over for everything from chronic to acute pain to post op pain. It is very sad.
You will not likely receive palliative care for this condition alone. Palliative care was created for more life threatening diseases. While it can be started at any stage of the disease and whether the disease is treated or not, it is usually prescribed for those dealing with life threatening disease. I think that a consult however with pain specialist and pain care clinic may be more appropriate for you. And Palliative MAY BE, so discuss with the doctor, as he/she is the one who will refer you for either.
Generally palliative gives stronger medications as it is generally recognized that, whether due to age or condition, this is not something the patient is going to walk out of, and pain relief is going to be an ongoing concern.
Do discuss this with your medical doctor. Be certain you already have done your advance directive. Your doctor is going to want to hear from you that your goal is no longer a LONG life but rather a shorter quality life where you can still enjoy somewhat the days left to you. To be honest, I have in the past heard patients say that telling their doctors quite honestly that they are considering SELF MEDICATING with alcohol and or street meds, they get better responses.
Sorry you are dealing with pain. I have a daughter now dealing with pain daily and nightly and chronic pain is a desperate condition that leads to depression and despair.
Yes, chronic pain can definitely lead to depression and even despair. Your daughter is young to be dealing with chronic pain, but I know from personal experience that it can happen at any age. (Mine followed 3 back surgeries in my 20s; I now have scoliosis, arthritis and degenerative disc disease.) The "opioid crisis"--which chronic pain patients stabilized on these meds had little or nothing to do with--has resulted in major disruption of medical care for tens of thousands of people. Putting the DEA in charge of pain care--and allowing them to intimidate physicians--makes about as much sense as putting the Supreme Court in charge of reproductive care!
File a dispute with your insurance company. Get your doctor to help you by sending a letter.
You may want to get a second opinion with a pain management specialist to send a letter.
Get an attorney who specializes in disability.
It may be true that you don't care what they call it (palliative care, hospice, disability) as long as you get the pain treatment needed to help you. 😥
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
In older people, kyphosis is often due to weakness in the spinal bones that causes them to compress or crack. Other types of kyphosis can appear in infants or teens. These types are due to malformation of the spine or wedging of the spinal bones over time."
Mayoclinic.org
It's possible you were turned down because kyphosis is not a terminal condition. Where you live it is possible that palliative and hospice are considered one and the same.
How did you lose your pain pump? Do you mean you literally lost it or you were no longer able to pay for the use of it?
Does your clinic/network have a Pain Clinic (often part of an orthopedic center)? If you are on Medicare you can see if there's one close to you, even if your physician isn't connected to it. They may have pain management options for you.
Are you a candidate for spinal fusion?
I'm so sorry you have this intractable pain. My 25-yr old son (6'3" tall) has Scheuerman's syndrome and worsening kyphosis will be part of his future.
You will not likely receive palliative care for this condition alone. Palliative care was created for more life threatening diseases. While it can be started at any stage of the disease and whether the disease is treated or not, it is usually prescribed for those dealing with life threatening disease. I think that a consult however with pain specialist and pain care clinic may be more appropriate for you. And Palliative MAY BE, so discuss with the doctor, as he/she is the one who will refer you for either.
Generally palliative gives stronger medications as it is generally recognized that, whether due to age or condition, this is not something the patient is going to walk out of, and pain relief is going to be an ongoing concern.
Do discuss this with your medical doctor. Be certain you already have done your advance directive. Your doctor is going to want to hear from you that your goal is no longer a LONG life but rather a shorter quality life where you can still enjoy somewhat the days left to you. To be honest, I have in the past heard patients say that telling their doctors quite honestly that they are considering SELF MEDICATING with alcohol and or street meds, they get better responses.
Sorry you are dealing with pain. I have a daughter now dealing with pain daily and nightly and chronic pain is a desperate condition that leads to depression and despair.
Get your doctor to help you by sending a letter.
You may want to get a second opinion with a pain management specialist to send a letter.
Get an attorney who specializes in disability.
It may be true that you don't care what they call it (palliative care, hospice, disability) as long as you get the pain treatment needed to help you.
😥