Follow
Share

My mother has multi infarct dementia, egpa, liver cirrhosis and copd, and isnt terribly aware of her state or her other disorders that require care. She hates the facility though and keeps trying to escape. Shes hits staff, tried to run them over with her walker then forgets shes done this. She calls the police to get them to take her home. Every other time I talk to her she repeats I hate you, im ashamed of you, and Im cutting you out of my will and your a terrible human being for making me a prisoner. She has cluster b personality disorder(s) which have been exacerbated. I keep trying to impress on her this is a nice place she has her own apartment and the only other option is a locked memory care unit or geri-psych unit which wont be as nice. I tell her i can bring her whatever she needs and the staff will take out to lunch with friends or to a bookstore and they have outings as well she wont go on or talk to anyone on the floor. We put up her pictures to make her feel at home but she just took them all down and piled them by the door because she’s leaving. She’s making herself miserable. Shes pushed the people she knows away and many arent taking her calls anymore because she tries to manipulate everyone into taking her home or screams at them. I try to empathize with her that it must be hard missing home and I also try to distract her which works for maybe thirty seconds and I absolutely hate seeing her like this and was wondering if anyone had any tricks to improving attitude when a dementia patient is stuck on a negative loop. What might help her settle in?

Find Care & Housing
It is truly an exercise in futility to argue with dementia. Stir in a few spices as in disorders and you have truly a nasty little mix. Ignore it. Visit infrequently and do not speak on the phone at all ever; in fact it is likely best that phones are now removed. If not you simply reply to complaints with "I am so sorry Mom. Love you. We will talk tomorrow". THAT IS IT.
There's nothing you an convince her about. A nice room? Nope. I don't think so.
I would watch a whole lot of Teepa Snow Videos to get an idea how to attempt to communicate best with the very demented.
You aren't responsible for happiness, and in fact, happiness for her is now a thing of the past. It won't return. And peace will come only with death. Those are the difficult truths.

Stop thinking of this in terms of "normal life". That is done where she is concerned. I am so very sorry. It is difficult to stand witness to.
Helpful Answer (8)
Reply to AlvaDeer
Report

She won’t be there long if she keeps assaulting staff. She needs psych drugs that will make assault impossible.
Helpful Answer (4)
Reply to PeggySue2020
Report
Memory50 Oct 29, 2024
Yeah it’s a disaster. Shes had police called on her while she was in the hospital for the last two years. Shes always had a sharp tongue but she’s never been physical with anyone. Shes about 80/90 pounds so I think people are a little more lenient with her than they necessarily should be. Its like all the social niceties that kept her in check are just gone. She was a pistol in her regular life but now shes a bit of a menace. Though doubt theyll put her on any other drugs
(1)
Report
It isn't anything you can do with a personality disordered case with dementia layered on top of it.

Most of us who grew up with dysfunctional parents learned early on how to be people pleasers to keep the peace.

My reaction to adult tantrums and threats is to ignore them. When she starts on her tirades, hang up. As a nurse told me once when I was on a case, don't accept disrespect.

Realize your mother is in a safe place getting three hots and a cot. If she is hitting and abusing staff, the next step would be a psych ward for medications to calm down this behavior. What more can you ask for. She had round the clock service with aides and other professionals. There is nothing you can do to make things better for her. Sorry to tell you, this is good as it gets for her.

I've reached a point that I can keep a person comfortable in bed and provide care to a certain extent, but when the abuse starts, I'm out. I'm not going to stick around to be slapped, bitten or kicked. This is when I detach emotionally and just make sure this person is not going to harm themselves, and I refuse to let them harm me in the process.
Helpful Answer (5)
Reply to Scampie1
Report

This is her "fun"
Helpful Answer (0)
Reply to cover9339
Report

How long has it been since she was transitioned into the facility? Often it is suggested by admins to not visit or even call for about 2 weeks so that they can get acclimated.

If she's not on meds for her agitation/anxiety, why not? Even if she refuses to take them she can be held in a psych wing until she does. My cousin was held for about a month and then she finally relented. It is merciful to get meds into her. She can no longer bring her own self to a mental/emotional state of acceptance, so the meds are necessary.

I also wonder why she still has a phone? She's only using it to cause chaos. Take it away, at least until she calms down.

Dementia robs people of their reasoning and logic skills, so it is pointless to try to convince or impress anything upon her — you will wear yourself out trying. Dementia also robs people of their ability to empathize with others. Time and meds is what most likely will help her settle in.
Helpful Answer (4)
Reply to Geaton777
Report
Memory50 Oct 29, 2024
Her conditions are pretty severe, EGPA is an extremely rare autoimmune disease and basically all her organs are compromised to some degree. Because of this she is on a TON of medication. It takes her a good chunk of the day to get it all down and it really is just awful for her. So basically her doctors want to cut any med thats not absolutely vital. Theres a bunch of stuff she could be on that might help her but they really had to choose which were the most important for her. Because of her cirrhosis the medication doesn’t process that well to begin with. Luckily she managed to input the wrong passcode into her phone too many times so its locked but she still has access to the facility’s. Though I think I might be the one left answering her calls because i don’t want her to feel lonely even if shes just going to throw verbal abuse. All I can do is tell her I love her and hope on some level she hears it. She’s been at this facility a couple months but had two years mostly in hospital or living at home with aids she apparently was also verbally cruel to and kept firing, one because she suspected she stole some cheese. My brother is now POA and guardian and does all the work with getting her set up places, getting her a social worker and has been really great about all that stuff but hes no longer answering calls unless he feels they might go alright due to the verbal abuse shes been giving him, so I do worry she has no one to vent to. This place is much better than the hospital room she just left,
(1)
Report
See 2 more replies
I didn't read what others said, so this may be repetitive.

There comes a time in are aging parents life that we just have to let go, or it will destroy are mental and physical health, we will ruin are healthy relationships, friends, job , the list goes on...

This sounds to me like , it's time, past time to do that. When your talking to mom , your not talking to the mom that raised you your talking to a very sick person.

There really is nothing more you can do for her. On top of the dementia, the liver and all the health issues cause more brain issues on top of it.

I feel your pain, unlike your mom my mom is aging at home, to make a long story short , I have no control, brother has it all. I visited yesterday and moms cold, her body can't control the heat anymore. She has the heat on 68, because that's where my brother wants it. My brother will have a fit if she turns the heat up.

So should when I leave feel sad,depressed have debilitating anxiety? I have no control, mom won't care what I say only what my brother says. So I can't bring this home and let it distory me. I have to move on, I have to make my own life, no matter how much it hurts, and stuff that inside me.

I have no control, which at this point you do not either.

Read the serenity prayer, a person of faith or not, that pray says it all.

There is very little you can do to help mom right now, and keep your sanity at the same time.

Very sorry for this
Helpful Answer (4)
Reply to Anxietynacy
Report
southernwave Oct 30, 2024
Get your mom a heated vest from Amazon (or an electric blanket).

I’m going to agree with your brother on this one. I’m on meds that make me hot and so I can’t go visit my MIL because she keeps her house on 75. Her house, her rules, but when I go over there If feel like I will throw up because it’s so hot.
(0)
Report
See 1 more reply
@Memory50 - what I wanted to say to you is rather long and detailed - having a similar experience with a FIL with dementia and NPD. So I sent you a private message.

If you click on your initials in the top right corner and click Profile, it will take you to your messages.

Long and short - there is little you can do to help her settle. Cluster B personality disorders almost always exacerbate dementia.

Best of luck - and I'm happy to chat in messages if you like.
Helpful Answer (4)
Reply to BlueEyedGirl94
Report

Your Mom should be in a Memory Care. Your brother should take her phone away and she should not be allowed to use the facility phone at all. Maybe you can get an Alexa where you can drop in to see how she is doing. Calling 911 is very serious.

Is Mom considered terminal? Are these meds just prolonging the inevitable? If so, why not get Hospice involved. All the life sustaining meds will be stopped. Only those for comfort will remain. No more doctors or poking and prodding.
Helpful Answer (3)
Reply to JoAnn29
Report
Memory50 Oct 30, 2024
She is in hospice. They aren’t try to cure anything just make her comfortable and all those medications are required for that.
(1)
Report
See 1 more reply
Put her in a locked memory care ward for her own good, and stop being so available to her. It’s only a matter of time before the facility she is in kicks her out.

Why are you disregarding her cluster B mental illnesses?
Helpful Answer (2)
Reply to southernwave
Report
Memory50 Oct 30, 2024
Not disregarding her personality disorders but they are personality disorders and every therapist she’s had have only been able to help her manage them so much. They kind of are what they are.
(1)
Report
See 2 more replies
Your mother is terminally ill with cirrhosis. No meds are going to cure it, only a liver transplant does that, and I'm sure she's not a candidate. That said, mom needs a hospice evaluation where she will be given calming medications not normally prescribed outside of hospice. If you want her to stay in managed care, her behavior must be brought to a manageable level where she's not making others miserable or trying to elope. I'd have her in Memory Care Assisted Living personally, with hospice on board, and meds to control her outbursts. For her sake and everyone else's. Sometimes there's no great answer, especially where dementia is concerned, so we take the least of the bad choices available.

Best of luck to you.
Helpful Answer (4)
Reply to lealonnie1
Report

I agree with everyone. She needs to be in hospice. She has several terminal illnesses. No sense on being on any meds for any of them. Make her comfortable and maybe she can enjoy some time she has left.
Helpful Answer (1)
Reply to southernwave
Report
Memory50 Oct 30, 2024
The meds are needed to keep her comfortable.
(1)
Report
See 2 more replies
Ask a Question
Subscribe to
Our Newsletter