I'm about to have joint replacement surgery and then I have to have a non-malignant tumor removed and all the while I have to be in P.T. and I'm not allowed to drive because of the drugs I have to take and my leg recovers from surgery.
My husband is supposed to be my support system, but he's showing signs of early dementia and won't talk about it and won't get any kind of help. I need someone to talk to for me, but I can't afford $200 or more/hour.
HELP!
We're probably coming back to MA, but not till we get some medical questions straightened out.
Thanks for the options
for you..
Contact your local Senior Center and ask if they have a counselor/therapist that works on a "sliding scale" fee basis.
Another option for you one that is FREE.
The Alzheimer's Association has a FREE toll free line that is answered 24/7 and there are people that you can talk to any time day or night. 1-800-272-3900
And
You should look for a Support Group in your area. One that meets in person. That will be a safe place for you to express what is going on and get help from people going through the same thing,
Thanks
The cost was not $200 an hour, in fact, I think insurance covered most of it.
She was GREAT because she cared, for one thing, and also because she was being 'mentored' by a couple of professors.
We have a teaching hospital here and he went through that. I wish she had stuck around after graduation--he really clicked with her.
If the 'problem' is your DH--and you need him to drive you--maybe you can reach out to family, friends or even take an Uber to appts. My DH knew that after therapy appts I was always 'raw' and he didn't WANT to be involved.
I wish you luck in this. I'm a firm believer in having a therapist you can trust to talk to. Mine was wonderful and she gave me many skills to work with. I hope you can work this out.
Have any medications such as Namenda being one, been considered for your husband? They tend to be more helpful in the early stages. I understand he doesn't want therapy but could he be open to medication that might help him?
Do you need to work out safe & supportive after surgery care?
If your Husband cannot provide that service/support, then look beyond him.
Have you asked your medical team what options there are? Eg rehab instead of straight home? Or even residential respite care?
If home, what services can come to you? Home health aides? PT? Can you take a taxi or uber while you can't drive? Other patients must have been in similar situations right?
Regarding your Husband seeking advice or therapy for himself - if he lacks insight of any issues, he won't see the point. No therapy will cure dementia or help retrain him.
But advice & therapy can be very useful for YOU. Calling a Dementia or Alzeimer's organisation could hopefully have more resources & ideas for you.
This will be a big time of change. Surgery & illness does happen... but hopefully with support you will do great!
Do you have any family members or close friends you can lean on?
If you look on the Psychology Today website, you will see lots of therapists who accept no insurance and charge $200-$300 per session.
If you call your PCP, or a local Women's Health Center or organization like your local Area Agency on Aging or a mental health referral line, you are more likely to get a therapist who accepts Medicare and your supplement.
I pay $15. per session to see my Licensed Social Worker. In NYC.
I'll begin to check out our available organizations.
There is also Jewish Family and Children's Services.
You write: "he can't know that he's the problem" which IS part of the problem. Seak with "I" statements... you are not accusing him of anything.
Do not address the issue of "You don't xxx..." or "you this and you that ... " (as)
He will be-come more resistant and defensive (causing both of you more frustration and not getting your needs met.)
However, if he is in denial of his mental abilities / brain changes / inability to support you as you need, you must make decisions. (And, part of the disease is that he will be in denial --- "he doesn't know what he doesn't know" (or perhaps he does at this stage-although denial is certainly a common response).
* You need couples counseling / support; not just for you.
* Ask your MD (and his) for support and guidance.
* Check into schools offering counseling interns hours. Their fees will be less and they are supervised.
* Check into group therapy.
* Peer support (group) may be better than nothing (try Next Door, Church, dementia organizations).
You have several 'issues' / needs here to address:
1. Your physical (and otherwise) needs requiring a care-giver.
2. Your husband's denial of his brain changes. And, by way of you wanting to 'not let him know, you are being a 'co-dependent' - of his dis-ease.
He doesn't want to believe he cannot function as he used to and certainly, he feels frustrated and sad not being able to support you as he wants and likely has for decades. This is a harsh / hard reality for anyone to face, individually and as a couple.
3(a). The relationship between you / stressors / communication / fears.
3(b). How you move forward in this relationship, as both of you change.
This is a lot on your plate. Not easy.
It appears to me that you first need to deal with your need for care after your surgery as this is a timely need. If he cannot support you as you need, arrange to have a caregiver in for several hours a day. Or you may need to go to rehab to recovery (if possible).
Gena / Touch Matters
About your husband, take a piece of paper and start listing all the things (not situations) that your husband CAN do. Then take another piece of paper and list all the things he cannot do. To go on the "cannot do" list, he should exhibit that behavior more than once. Be specific. Try to be honest with yourself and your husband and beware of your biases.
Review both lists often. Modify it as you learn more about his behaviors. Then partner with your husband and utilize his strengths. Make sure you use both lists when you come up with your care plan with the social worker.
As time marches on, these lists will be helpful for dealing with his dementia and where professional care givers can assist you.
You need to be explicitly honest with your primary care physician about this concern. You need to schedule a time to see your Physician asap prior to procedure. Your safety and, the well being of your spouse are both compromised by what you share. Perhaps you could have another relative drive you to the doctor? You have " patient rights" to be able to state what your wishes are, say yes or no to who is going to be responsible for you , yes or no to medical procedures, etc etc.
It is not unusual for someone in early dementia to ignore symptoms, fake it, be in denial and or be angry with someone who tries to point to the symptoms and concerns.
Get help.starting immediately with speaking with your Physician; you can change the name of who will be your designated caregiver and spokesperson. Your spouse may have his feelings hurt or get angry but do not let this stop you from making a necessary and vital decision for yourself that will ultimately be best for everyone.
Blessings
I wish you the best.
Others have also mentioned using an online provider, but I'm not knowledgeable enough to provide any info about these services.
Strength, happiness & hugs to you today 🦁🩷🤗