What hurts the most is my sister knows the work involved taking care of mom (even before she came to live with me) - she visited mom on Tuesdays and Thursdays (unless something came up) and wrote checks to pay bills. I did the rest. She knew all I was doing but never offered to do anymore. I know I could have asked...it just hurt that she knew and didn't offer.
Time makes things better. (Repeatedly reaching back to siblings does not).
A counselor, although trained to deal generically with problems, likely has no idea how terrible this feels.
Feel free to reach out to me personally if you ever need to talk.
My younger brother was always the 'golden child', though since my mother moved to live in AL near us he has been supplanted by my husband, as my brother gets ratty with Mum and my husband puts up with her selfish and narcissistic ways and gives her what she wants so she has transferred the role to him. My brother knows I get very stressed by my tense relationship with Mum, yet as he has a full-time job and a dysfunctional family life of his own, I feel reluctant to ask him to do more for her. He does visit a bit more often since coronavirus meant his working from home, but we're not allowed into the building.
Mum worries about my brother driving a 50-mile round trip to see her but expects us to take her anywhere she needs to go, and quite often gives him money even though they earn more than we do and do far less for her. I don't want or need the cash, but do somewhat resent the inequality!
Until you ask, you really won't know. She may be assuming that you have it all worked out and are doing fine. Then again, maybe what she is doing now is all she is willing to do. BUT, until you broach the subject, how do you know?
One time, just ask. Don't make a big deal out of it, don't make it about her or you, but rather focus on what you each do to help mom. If she declines, then you have your answer and then you can drop it and forget the anger and frustration. That's what it is and will be. Perhaps you will be surprised and find that she is willing to do more, but didn't know you needed/wanted help.
Do come back and tell us if you tried this and what the result was. Vent your frustrations and anger here (or in a document, like email, without sending it, like I did. It really did help me to "get it out" and then put it away!) Note that I DID ask for help, but just got flak back from the brothers. So, at least I tried.
All too often one sibling gets the bulk of the work. I can relate to that also! Ignore the comments saying you chose to do this. It isn't important. It IS important that at least one does try to ensure the LO gets the care they need. Whether we WANT to take it on or not - SOMEONE has to commit to something. These people telling you that YOU chose to do this aren't considering that unless you stepped in, the LO might be left hanging.
My brothers both talked about taking mom in when they found out how much MC costs, but neither ever did make a move to do this and it would've been a mistake! One lives about the same distance from where mom lived, the other isn't local. In my case, I was laid off, and decided to just retire then. I was able to help mom while she lived in her own place. I wouldn't have been able to care for her myself, so I looked to alternatives. First was bringing in help, to check on her (1 hr/day) with plans to increase as needed. Less than 2 months later, she refused to let them in. I was the one doing all the research, planning, locating a place for her, etc. I'd already taken over her finances and would take her shopping or to appts, and bring supplies, but it was difficult. Once we had her in MC, then came about 1.75 years of dealing with her condo and contents - clean, clear, repairs. It was about 1.5 hr each way!! MOST of the work I did or hired help. Even after it was sold, all the necessary advocacy, oversight of finances and supplies not provided, appts, etc were/are MINE to continue to deal with. OB isn't local, so he was little help. YB was finally asked to take her to Mac Deg appts that were not local and she wouldn't stand/walk without major help. I couldn't support her weight. These are 4x/year, not a big deal when every week I have to juggle something, money, supplies, other appts, visits, etc. He complained about it. I'm sure I heard a sigh of relief when I told him I cancelled the 10/8 and future appts now that mom has had a stroke!
Resentment? Sure. But who does that hurt? You know the answer. No amount of resentment, anger, bargaining, coercement, arguing, reasoning, etc is going to change them. You can only change yourself. When I mentioned it was getting to be too much, OB bellowed at me to "give it up." No offer of support, no suggestions for alternatives. Nothing. YB's answer, more recent, is that the facility takes care of everything. SNARK! Sure they do. Idiot.
At my worst point (anger wise), I started email to each one, addressing the issues and trying to make the points. I'd leave it in draft and come back to edit/add later. Eventually I just stopped. They are still in my draft folder, but won't be sent. It would serve no purpose, at least not for making things better for me. It would most likely just stir up THEIR anger which they would then take out on me. They ARE clueless and nothing I can say or do will change that. So, the emails were like a catharsis - pour out all that negative crap, and leave it there. Sure, a few times here and there the anger tries to poke out, but deep breath and move on. It doesn't help to harbor it and nothing will change them, so use that "anger" time to do something nice for yourself instead!
I know that when mom passes, there'll be even more work for me, tidying up everything, filing taxes, paperwork, etc. I know I've done my best to manage her finances so far, and neither has said boo - all I can say is they'd better not question ANYTHING as the dust settles. We 3 are trustees of the trust, but only 2 are execs of the will (I am one.) All that old anger just might make a reappearance!!!
I feel for you as well as understand you. I don't have siblings but, my mom does. They all live in other states so I get it that they can't "do" anything for her but, they could have given me guidance/advice/suggestions - no such thing came from them.
My mom wanted to stay in her house for the remainder of her life and I tried so hard to make that happen for her. I did just like you did - looked for alternatives. Did the research, planning, made appointments for places to come in and assess the situation but just like your mom, she wasn't having any of it. I already had been doing everything else like the finances, yardwork, brought some extra leftovers from our dinners etc. for ten years after my dad died in 2004. I simply couldn't do it anymore.
I especially feel for you when it came to spending "1.75" years dealing with her contents. I did that in order to sell her house because the proceeds was the only money she would have to pay for AL rent. My husband and I are paying $225.00 a month for the storage facility I had to put the "rest" of my parents stuff in. I've tried to face it many times over the last five years. Spent three hours at a time and barely made a dent. I haven't been back to the unit in several years.
Sounds like you've come a long way and learned a lot in the process!
but not ever clean wee..
Can ask what is new,
but not how are you?
Turn up when they please,
Be thanked when they leave.
Always a sibling to me..
I am sure I feel resentment but mostly I feel so let down and hurt. I can hardly get a shower once a week. Mom’s care is at such a high level and her other daughter just couldn’t figure out how to get in her car and drive here to give me one day off. It is sad because my mother deserved more. I’m now with her 24/7 since Covid (in two years have maybe been away from her for an hour or two 10x). My husband has had to do things to help me or watch me go through what nobody should ever have to go through. It is hard - there are so many emotions attached to caregiving. My mom who was my best friend (even though she had issues and could be difficult - I was still very very close to her). To watch her decline and have zero support from my sister has been the hardest part. Her brain injury along with mental health have her verbally attacking me daily now (we see her neuro on Friday and I am praying for him to find something to put her on to help with the outburst). I guess I love differently and do find it hard to accept my sister would just leave us and pretend what mom and I live every day doesn’t exist. Mom and I both have to my sister and kids lives and always made them top priority - family first - ever baby born we spent weeks up there helping - every vacation was spent going to be with her and the kids. Some days I know mom abuses me for my sister not being here.
I right now am in the process of finally selling her home. Which entails moving - packing - storage units all while being with mom 24/7 and being 100% care. I just told my sister to start calling memory care places and to plan to get here to help mom get adjusted into one. It is not humanely possible for me to do what I have done anymore. I haven’t asked her in along time “when are you coming “ or told her about the things mom’s does daily to me anymore - I had to stop waiting for her to show up and just attempt to keep going. It is not easy and I feel your heartache and your sense of loss and grief. This is the hardest thing I have ever done in my life. Just know that you are not alone. I see you. Praying for you
I'm to the point I don't care if she comes or not. It will be her lost not mines.
Many live with bitterness afterwards, which I understand that life is a journey and sometimes we go through dark passages. Glad that you seem to be doing well.
I did more than my share of caregiving alone too so I get where you are coming from.
it does hurt, you are incredible for what you do but you need help.
Why are you afraid to ask your sister to do more? Paying the bills is not physically and mentally taxing like doing Care day in and day out.
My my sister in law pulls the same thing . She doesn’t work but cant do more than 1-2 visits weekly whereas my husband goes to my fil
6-7 nights a week and he works 40 hours. I tell him to speak up but it does no good . He gets upset with my sil but then she lays a guilt trip on him about how he’ll be glad he did what he’s doing when my fil passes. Meanwhile she sits on her butt
You must ask for help, if you get sick you are no good to your mom
Best
I am sorry that she feels that the rest of us are letting her down, but we know our limits and try to live our lives within them. I wish that she would also carefully look at what she is doing and find a way to step back a bit into what she can reasonably do. We are 4 sisters who have not always been really close, but have enjoyed getting to know one another again in our senior years. I would like to see our care for Mom one in which we find joy and unity rather than resentful and involuntary servitude. Realistic expectations need to include whatever outside help might be necessary to prevent us from destroying our own lives in an effort to ease Mom's life.
I hope you can find a way to list what you can and cannot do and find some help for what you cannot do. Your sister clearly has made some decisions along that line, perhaps you might do the same. Remember that you are likely to have your sister for much longer than you will have your mother. Try to see things from your sister's perspective for a bit, you might be surprised at what you see.
There was a time when I ran myself ragged for my father. He had no idea how much he was asking of me because each request was small.....but string 100 of those requests together in a short period of time and it becomes too much. I had enough sense to say 'this is more than I can handle alone'. I refused to give up my life so his could remain unchanged. I decided what I could do and that is all I did. He eventually wanted to go to assisted living...most likely because I was not jumping ever time he snapped his fingers.
Many here go in with good intentions to help a parent and it becomes all life consuming. And of course it would be easier if brother or sister would just pitch in. It won't because there will always be more to do.
I know people get mad when you tell them they made their choice. But it is the truth. You get to live your life with the decisions you make...but you don't get to force those decisions on others. Of course everyone else looks like they have so much more time and money to help out...so why aren't they? So many reasons. Some children grow up in a household and each have very different childhoods. Some people just can't handle the hands on personal care....I know I draw the line at toileting. Once my father could not go to the bathroom on his own I had to make a hard decision on whether to bring him out of AL anymore. I felt terrible having to consider not bringing him home for the holidays but I also felt horrified at having to do that level of personal care for him. (Covid made that decision for me as he passed in July). One poster mentioned a falling out between mom and brother. Just because mom is sick does not undo the hurt that happened. Apologies don't always fix things...esp when the person apologizing suddenly needs you.
It is unrealistic to assume your sibling should just KNOW you need help. Or they may have felt they have offered and were turned down...but you don't see that.
Meet with your siblings and tell them what you need. If they can't meet those needs find another way. If that means assisted living then so be it. Go back to being a son or daughter, not a caregiver. People need to let go of the guilt of not being able to be everything for their parents.
I'm sorry you're having to go it alone taking care of your 101 1/2 year old mom (wow, that's amazing by the way). It's especially hard when you develop your own health issues as well as aging yourself.
I'm wondering if the fact that your sister being a retired registered nurse is possibly the reason why she doesn't help you take care of your mother. She wouldn't have felt like she was actually retired and that she was continuing her nursing duties. I'm not excusing her for that, it was just a thought as to why she doesn't help out. I can't think of one person who enjoys aging but, we still have responsibilities as a caregiver in spite of it.
Unmet "expectations" will get us every time!
I wish you well as you continue to care for your mom and take care of yourself in the process.
My niece told my daughter that she and her mom feel bad that they can't do more. It's hard to figure out what they think or what they are telling themselves about the amount of time they spend helping with mom.
I'm a work in progress with this and appreciate all the feedback from others who understand what it is to be a caregiver.
Ever wish that you were an only child? I did all of the time. I always felt that since I was doing everything on my own anyway that it would have been nicer not to have siblings that interfered by being obnoxious.
To me it felt worse than if I were an only child. An only child doesn’t have crappy siblings who can make our lives difficult.
I remember a poster on here that was an only child. He made me giggle when he said, “Reading all of these posts about horrible siblings makes me glad that I am an only child!”
I agree! It’s better to be alone! It’s not like I had siblings to share with or empathize with my situation.
My brother lives about 20 minutes away and my sister lives 3 hours away. When she came for visits she would stay for 3-4 hours. I would ask her to help me clean or organize my mom's living area and her standard line was "That's not how I choose to spend the limited time I have with her." Meanwhile she has five weeks vacation per year, one adult child, and more time to herself outside of work than any person I know. My brother and mother had a falling out about 7 years ago and I think he just decided to set a boundary to protect himself. That said, my mom has apologized multiple times and she is now a far different person than she was when she they had the argument. (It was when my dad was still alive, with Alzheimer's and my mom was going nuts trying to care for him at home).
I have tried in the last several years to get both my brother or my sister to either stay in my house with my mom or to take her to their house when I've needed to go out of town, but neither of them were willing to. Instead I have hired very expensive in home caretakers. If I hired them as often as I would like to get respite care my mom's remaining savings would be gone very quickly. Now my mom gets very anxious being away from home so it wouldn't even be good for her to go stay at either of their homes temporarily.
My sister views my role as caretaker as something I chose and thus I shouldn't complain. She thinks the amount my mom gives me each month ($1,750) is too much as is certain she could find her a less expensive option. (LOL!). My mom has dementia and it can be very frustrating and tiresome to deal with her repetition. But she is aware she has two other children and often asks me if I have heard from them or if I happen to know if they are angry with her because she hasn't heard from them. It's just depressing and not at all how I envisioned them behaving toward her or me when we were all younger.
Sometimes we burn out and simply have to let go. It all depends on the individual situation as to how long we can continue to be the hands on caregiver.
It would be nice if all children pitched in to help. Unfortunately, that only happens in very few families.
It’s everyone’s mom but usually only one primary caregiver.
I know of very few families that have equally shared the responsibility of caring for a family member that is being cared for at home.
In my own home, actually.
ALSO--- the sibs--- most of 'em are not cut out for down and dirty duty-- too weak--- you are not-- so forgive their weakness-- both physical and emotional... and let them go... treat them kindly on the holiday visits-- after MOM is gone-- they will be the only family left for you. My Sunday school teacher of 13 years since I came here to take care of Mom in 2009-- said choose your battles. Mom is gone to be with Jesus as of November 11th, 2019--- next month I will finally bury her with Dad in Arlington (VA). It takes that long for military dependents-- non-active duty---. Amen. Happy YOM !
Many of us have walked in your shoes. Resenting her hurts you, don’t waste your time or precious energy. She will be the one who loses, by her own design.
This is the story of the Little Red Hen. Enjoy the relationship with your Mom to the fullest. That is one of your rewards.
Your sister (may or may not) have guilt, but you won’t. That is another.
My parents have been gone now for a while and I still get texts from one sister who is “boasting” about all the sick and elderly she claims to be helping. She wasn’t here when my parents (and I) needed her. Her efforts and words are too late! Loving care and kindness is nontransferable!
My relationship with her is completely gone and I have zero regrets. As a matter of fact, I realize now that I am cutting my losses. There are lots of wonderful “sisters” in my life, I don’t need a crummy one.
We can only be responsible for our own actions so like you said if your sister does end up with any guilt, she has to own it herself.
I'm sorry you had no help from your sibling(s) when you took care of your parents but, I'm glad you were there for them!
Some folks consider it that it would be rude to offer help.
It sounds like she is being gracious to pay bills. Most siblings offer no help at all ( including my own ).
If you need help consider getting seniors support from your local government.
I have done just that myself and the sooner you do it the better off you will be - it helps you move forward a lot quicker! I too had to learn what you learned the hard way but, better late than never as the saying goes.
What a blessing for her to have you as a friend - 28 years is a long time to care for someone who wasn't even a part of your own family. That is the ultimate sacrifice.
You were very wise!!
The fact of the matter is the ALF probably would have refused to take her back anyway under the circumstances. So somebody would have had to step up and take care of her by bringing her home at least until the pandemic issue is sorted out and the ALF is allows visits once again. It is not a matter of CHOICE as some are stating. It is a matter of care and compassion for a parent who is in need of care.
Most siblings will not help. They do not want to or they just cannot handle it. You are all in your 60s, so you also have to look out for yourself, physically and financially.
From my own expreience in taking care of my mother, I will advise of of this... 1) You cannot go around physically helping your mother if she needs it without causing injury to yourself. So if it comes to that, you will need to get another caregiver in to help you, or you will have to place her in a facility. I have an extremely bad back from lifting my mother who had Parkinson's for over 15 years. It is to the point I can no longer clean my own house, or work. I just turned 60 and the past 7 years after Mum died have been spent in chronic pain unable to do all the things I wanted to do after she passed away. So please make sure your place a priority over your own physical health. 2) Financial - If your mother has assets enough to cover ALF, then pay yourself first from those assets, do it legally, so that it shows as you being self employed as a caregiver for mother, get taxes, SS, all that taken out. So while you retired from your teaching job, you are now employed as a caregiver. I am assuming you have the POA over your mother's financial affairs. Make sure to keep all financial records, so that you cannot be accused of stealing frmo ehr by the siblings who are not participating.
As far as resentment towards sister, be grateful! At least she is coming on Tues/Thurs and having your Mother over every other weekend. Most caregivers do not even get any help from other siblings. I would have given my right arm for a weekend to myself. I took care of my Mum for 15 years 24/7, with no breaks even if I was sick, one time I had injured my ankle, I still had to climb the stairs with her wheelchair to take her up, etc. So be grateful for what sibling does.
Unless you ask sister like you ddi for the weekends, she is not going to offer any additional help because you have been doing everything for a long time even before COVID hit, so she is under the impression that it is okay with you the way things are going. What you can do it ask her to help more. Like on Tues/ Thurs, she can stay longer while you go out or go take a nap, or do something for yourself. Or she can take your mother over to her place on those days for a day visit, pick her up early and bring her back before her bed time.
I would remain open to hainvg your mother back in a facility if and when the COVID restrictions are lifted. You do not say if you have other siblings, but if you do, you all need to have a family meeting and tell them all you will need help, make a list of things you would like undertaken by siblings and let them handle it.
Hope this helps!
To all those stating caregiving is a choice, it may have been for you, but not for everyone! So stop making caregivers feel guilty about them trying to make their parents lives easier by taking care of them under very difficult circumstances. The truth is NOBODY would ever CHOOSE to be a caregiver to someone who is slowly dying while suffering frmo pain and other physical incapabilities, but because we are human we undertake it as our duty to our loved ones. Someday we will need that type of care ourselves, just remember that.
I'm sorry to read that you had to take care of your mom 24/7 for 15 years without any breaks and especially when you were sick and when you injured your ankle. You mentioned you would have liked to have had a weekend to yourself. I understand that as an only child.
It's a shame you are suffering with chronic pain long after losing your mother - you loved and cared for her at the expense of yourself.
You gave "BeatleFan" good suggestions and things to think about based on your experiences. I'm sure many others will find it helpful as well!