Update on mom in assisted living. I had a hard time convincing my mom to go to assisted living. She was diagnosed with dementia 2 years ago and she couldn't stay alone anymore. I work, have a family she kept wanting them to leave. In March, she went to assisted living. I go twice a week and at first called her every night. I now only call three times a week because she is so negative I cannot take it anymore. When I go to do her hair, she constantly complains. She complains how I do her hair, about the place, about the people, about everything. She keeps asking me "could you live here?" Actually yes. It is brand new, wonderful people and great food. I worn out with the negativity. I have explained to her about her complaints, but she says I am "fussing" at her. Not true, just need some peace. Is it normal for a dementia patient be so negative? I do not want to go visit or call her. It would be so easy to just stop. I am an only child and feel obligated to help her. I feel so much better knowing she is safe and well cared for. She will not bathe or change her pajamas. She doesn't want to get her clothes on. She just wants to complain. She tells me she doesn't eat there, but they tell me different. Her memory isn;t so much the issue, it is her personality change, her inability to care for herself, and her reasoning skills are gone. Oh my, you cannot reason with her at all. When she truly believes something..well, she will say.."well, you are always right and want to argue with me." I want to walk away and enjoy my life without her in it, but I feel guilty for even thinking such a thing. Is all this normal?
I don't think I will be able to continue the way I have living with my mom is making me depressed and I am starting to resent not having a life. I used to be able to find some humor in it but her negativity is draining me!
It seems "normal" how you feel but I would say hang in there. She just needs to vent her emotions on someone who loves her as you do. You just have to learn to shake it off when you leave her side. Good luck!
And also DO NOT bring her to live in your home. You need space in order to retain your own health.
MISTAKE!!!
She has made my life living hell....every day is a battle that I have been recently been trying to my own sanity.
Take care of yourself 1st!!!
I was in a bad nursing home and left to take care of myself at home. My wife, now my ex, hated me for what little she did, like doing laundry and changing sheets every morning. I got sick of that and moved out.
Sounds like you are sick too.
Wish I had died instead of surviving a stroke.
No, it likely isn't 'she just wants to complain.'
Google Teepa Snow. Read, listen to a few of her free offerings and some of her webinars. She is one of the country's leading experts on dementia. I studied with her for close to two years. Good information. Supports making educated, kind decisions - for both self and the other person.
Gena / Touch Matters
How long has she been in her facility. Mine moved in in April and things seem to be getting better. Who knows what tomorrow will bring.
I can't say if that's you, but I can tell you, Turn your phone recorder on while you meet with your mom and let it run for an hour. Catch what you say and your mom's "bad" responses, and then review it later that evening or the next day, OBJECTIVELY. Listen to how you come across, as if you were an independent observer. Be honest with yourself. You may find you are just being taken wrong, and can figure out how to change your delivery. Usually the brain on the second time through an event is able to process things differently, see things it didn't see the first time, and then as you reflect on it, maybe replaying a section, the brain will provide you with more things that stand out. Then you have to use that, to change.
This is not to say that I mean you are the whole problem, but that this is a problem that does occur for everybody. Have you never said, I know I texted that to you, but that's not how I meant it! because the person couldn't see your emotions and you wished they had seen your face so they would have known, right? Same kind of thing but this is just an audio issue, but like that. They hear or see the words, but they don't get your real intent, and I don't think your mom is lying. I think she's most likely just not getting your real intent.
If I treated you in the office, the best advice I could give you is to tape your conversation and follow the above instructions. If she also is contributing due to who knows what mental disabilities, at least this will help you, and her, to eliminate anything on your end of the equation. If this seems complex, it's not. You can do it. Let your recorder aid you. This divide between what we think and how we feel and are perceived often happens when we have high emotions about an issue we are talking about or trying to resolve. So remember to smile. A real smile. Even you are in tears, love, remember some wonderful thing she's done for you that always makes you smile, and smile, and that may make it come across completely different. But YOU will know after you reflect on the audio tape, and that change in you will help eliminate hopefully all of those negatives coming from her. If so, be glad you figured that part out. And don't blame yourself if you find the audio needs to be changed. You just didn't realize it like I didn't. My hope is it helps most of the negatives, and leaves you with less of them, and thus be more manageable for you both. Don't give up either, because I found that at the breaking point, my brain became focused on finding a solution so that I would not burn out, and it came through faith in myself and God that I would find a way, that there was a way, to make positives happen.
I recommend having her put on 1/4 reg Tylenol for general pain twice daily, esp. if it effectively replaces her already-prescribed daily NSAID; then change it from ibuprofen, naproxen, etc to acetaminophen (Tylenol). Most centenarians I know who do all their own business use nothing else but Tylenol for aches. There's a risk factor for liver conditions. But it's the only NSAID that enters the brain and it fights brain inflammation! Proven.
She was still capable of her evilness . She would lie and say things for sympathy like she did her whole life . She was still manipulating her children , causing us to argue . She could manage these elaborate games , but could no longer figure out how to put toothpaste on her toothbrush , and refused to shower. She died on Thanksgiving day 2018. I’m convinced she willed herself to die on her favorite holiday as her final guilt trip for putting her in assisted living
Fast forward to now . Now dealing with FIL in assisted living . He won’t shower either , wears same incontinence brief until it leaks . Can not get through to him either that he needs help with hygiene . We’ve tried everything , warned him about , infection , sores , falling in the shower if alone . The odor is so bad , We now are refusing to take him out for the dinner weekly as he demanded we do when we put him in assisted living .He made it out like he was doing us a favor by going to assisted living . He told us he would stay there but we had to take him to dinner every weekend . He tries to negotiate everything to get what he wants . He is stuck up , has a very high opinion of himself . He says he doesn’t belong there and he’s not like the others in there . Trust me , at least half of them are in better shape than he is . Took 9 months to get a dementia diagnosis . Half the staff and his primary doctor thought he was just being stubborn . I knew better . He’s getting less capable of hiding his dementia recently and yells at the staff to get out of his room . He used to sweet talk them, and get sympathy by saying he’s offended when they wanted to help him and he would tell them he’s on this earth longer than them . He used to have a sad face on or sometimes smile . He thinks if he smiles and says it in a sad way that he can say anything and get sympathy . Recently though , he’s nasty , He agreed to a cognitive test to prove he doesn’t need help . No surprise , he has dementia .
Don’t assume you are doing anything wrong . Sometimes nothing works .
2. Also keep in mind her “ opinions” are opinions and you can try the agree with her method and see if she decreases it. “ yes wow that sounds so awful. Gee it seems like they don’t have a variety of desserts...” see if she responds with “ it isn’t that bad” just to be oppositional.
3. Does she like music or reading? Wondered if you brought in music of songs if her day and have you two sing together , or a book and tell her to read you some pages - then she couldn’t be talking and talking about her own topics.
And it’s good practice (tried it successfully once and mother stopped one complaint short) but it is exhausting. We’re not talking about emotionally healthy adults you’re capable of having a give-and-take conversation if they are successfully validated.
Seems like some of our parents just suffered a lifetime of feeling like their feelings and needs were unacknowledged (complaining was somehow acceptable though), but not being allowed to talk about what they really needed or do therapy to learn how to meet their own need for validation themselves - without complaining to get others to respond the way a child would.
I'm trying to find the boundary between completely walking away and exposure that won't render me so depressed I'm not functional (and believe me I can't say anything about my own depression because either of them will turn anything I say into a guilt trip or pity party because they ALWAYS have things worse.) I stupidly mentioned going on a trip to see something 90 minutes away to people Mom and I both know - now she'll ask for a ride and I don't think I can tolerate 3 hours stuck in the car with her. It's probably time to have some other commitment I hadn't remembered come up that day.
be kind to yourself
I no longer speak with her to protect my mental health from the guilt tripping and judgementalism - even though mainly directed at others including other family members. she complains about my dad, to me! As if I don’t feel it and know she judges me too. She denies that she is complaining if I call her out on it so I simply can’t reason with her. I have my own worries and can’t “make” her happy though she tries to use my attention in that way. I’ve learned that her happiness is her responsibility. You cannot make your mother happy now. Maybe for 15 minutes, but how long does that encounter drag you down? Hours? Days or weeks??
Like yours my mother is not going to go gracefully into a retirement or memory care home either even though she may actually prefer the captive audience for socializing.
My mother never got fully dressed even while I was a teen (thin housecoats were her uniform at home) so I almost never had a friend inside my house after middle school. She didn’t want to get fully dressed or clean up the house unless family visited a few times a year. …excellent way to screw up development of my social skills. My feelings of obligation to her go down when I think of how she (unintentionally) made my life so difficult to ease her own.
If you got to know your mom when she wasn’t a childish butthead, cherish that privilege I guess I would say. You’re not alone. Your life is all you have so treat yourself well. She’s lived her best life already - make sure you get to live your best life. You cannot save her. You may be where she is someday and will have to accept it too. Accepting what is rather than denying it will happen to us or guilt we cannot save our mothers may eventually bring us all peace.
Just reply...
"Gee I'm sorry that you feel that way."
And it this particular case..if mom is complaining about how you do her hair, let the facility salon take care of it for a month or so and see how that goes.
One of the Rules of caring for someone with dementia:
You can not argue with a person that has dementia. It frustrated both and you will never "win".
We're dealing with our 90 year old mom who used to VOLUNTEER at an assisting living facility - so she's convinced all of them will have poor management (in her opinion), lazy workers (in her opinion) etc. One facility even fired her from being a volunteer!
She doesn't want anyone to tell her what to do (including her doctor, though she thinks he's "so handsome") and often exclaims "I'm 90 years old!" as the excuse for for it.
Certain questions have been ongoing for quite awhile. People continue to answer them based on their own experiences.
Lot’s of people post on ‘on my mind,’ ‘my whine moment, ‘jokes for the caregiver,’ ‘what’s for dinner,’ ‘is it wrong to wish someone dies,’ etc. They are all old threads that we continue to post on.