Update on mom in assisted living. I had a hard time convincing my mom to go to assisted living. She was diagnosed with dementia 2 years ago and she couldn't stay alone anymore. I work, have a family she kept wanting them to leave. In March, she went to assisted living. I go twice a week and at first called her every night. I now only call three times a week because she is so negative I cannot take it anymore. When I go to do her hair, she constantly complains. She complains how I do her hair, about the place, about the people, about everything. She keeps asking me "could you live here?" Actually yes. It is brand new, wonderful people and great food. I worn out with the negativity. I have explained to her about her complaints, but she says I am "fussing" at her. Not true, just need some peace. Is it normal for a dementia patient be so negative? I do not want to go visit or call her. It would be so easy to just stop. I am an only child and feel obligated to help her. I feel so much better knowing she is safe and well cared for. She will not bathe or change her pajamas. She doesn't want to get her clothes on. She just wants to complain. She tells me she doesn't eat there, but they tell me different. Her memory isn;t so much the issue, it is her personality change, her inability to care for herself, and her reasoning skills are gone. Oh my, you cannot reason with her at all. When she truly believes something..well, she will say.."well, you are always right and want to argue with me." I want to walk away and enjoy my life without her in it, but I feel guilty for even thinking such a thing. Is all this normal?
My Mom just stopped walking in 2018 and is stuck in a wheelchair...just like I told her she'd be if she quit walking....now I'm very limited as what I can do with her anymore. I used to take her out to eat, to go get her nails done, etc but now all I can do is take her for fast food or a ride in my car cuz I can't get her out cuz she can't walk. I don't feel sorry for her because I warned her. I told her she gave up on herself and she did and it's not my fault....and it's not your fault either. They lived their lives...it's time for us to live ours.
The problem sometimes is getting an elder to take a med for these issues . My mother refused , said “ those are for crazy people , I’m not crazy “. Some ask what every pill is for and in my 2 LO’s experiences , both facilities would not lie to them .
Or like my in laws , “ there is nothing wrong with me , my brain is fine “. It is interesting that they both said the same thing considering they are divorced 35 years and did not communicate with each other . FIL passed Jan 2024.
We just saw MIL this weekend ( lives 4-5 hours away) . Spent all day with her . I’m convinced that my suspicions have been correct that she has dementia as well . Definitely saw the progression from months ago . We did not bring up dementia or her brain at all . We talked to her about driving since she recently had a fender bender . We brought up her reflexes since she is very physically frail as well . She argued the accident wasn’t her fault . She made a right turn at a stop sign. She did not have right of way obviously . Her excuses of why it was not her fault were not rational .
Then she kept repeating that there is nothing wrong with her brain , and that if she thought she could not drive , she wouldn’t . We never brought up her brain , she did . There were other examples , in various conversations , which convinced me she has dementia as well , her reasoning is off . She like my FIL will never agree to cognitive testing . ( FIL was finally tested later , but refused to go to neurology for follow up , and his primary was not willing to list it as a diagnosis . She wanted neurology to do that ). MIL’s memory still appears good .( I did notice some comfabulation) . But I highly doubt a doctor will pick up on anything during a 15 minute visit . She can showtime well , seem normal .
I can't stop her from watching "Anger-tainment" fear-driven news all day but I have learned how to blithely redirect our conversations away from mental and emotional and pointless junk. Or, I just pretend my phone is buzzing and excuse myself to "take this phone call".
I just wanted to put a plug in for prescription meds to deal with demented elders' anxiety, agitation and depression. It doesn't work for everyone, or all the time, but it's worth pursuing with their primary care physician so we caregivers don't get ground down to a pulp. Also, our LOs with dementia are losing or have lost the areas of their brain that can bring their minds to a place of peace, contentedness and acceptance. They can't help it and the meds are merciful for them...and us.
The counselors had a saying for such situations. it went like this…
”If you try to make sense of insanity, it will drive YOU crazy!” No matter what, she’s your mom, you want to do the best you can by her! Most mothers want the best for their kids. It’s okay to assume that is what your mom wants, but can’t do anymore. So, you have to take care of you now, and that is very hard to do right now! Just do the best you can and try not to be too hard on yourself or her! Both of you are in a very difficult and new situation. Be gentle with yourself and your mother. You are both doing the best you can under your new circumstances!
Thanks to all!!!
My Mom lives in an adult foster care. She had a heart attack ...we thought..but turned out to be broken heart syndrome bc the aide was allowing another resident to enter her room to use the bathroom. My Mom got really upset. I spoke with a nurse expert in Alzheimers Dementia and she said the aide should not be doing that, and in fact the aide should be knocking on the door adking my Mom if she can enter her room. It irritates me how they treat them like ...Idk ..less than people.
That's why my Mom complains. They scolded her and she had the " heart attack". She was on a cardiac floor for 9 days and is in rehab now.
My Mom was also abusive and has relied on me way top much even as a child. It's called parental inversion.
I'd how you do it...having her live there.
I struggle with some health issues that cause chronic pain and when my stress flares so does the pain.
Some medical community state that things like my issue and autoimmune are our bodies trapped unresolved conflicts from adverse childhood events that leak into our present
I also struggle with resentment.
I found an adult foster home for my Mom..its worked so far ...and they are cheaper.
But I am not her mother, never have been and should have never ever been put in the positions she put me in.
If CPS knew what we went through they would hsve removed us from the home.
I have to remind myself that she has been a mentally ill broken person bc of her own mom. I ask Jesus to help me ...or give me His heart for her without neglecting my own.
I will pray for you.
Even with her feistiness and allegation of hitting a nurse, when she left the facility not only set up the ride for her, but put her up in a motel for a week, until she could make her next steps.
Your family needs you. Be kind to yourself.
Also I do not think you should just walk away from your Mom. She was there for you through your preteen years then your teen years and I'm sure that you knew if you needed anything at all you knew you could call your mom. It's now time for you to be there for your Mom NO MATTER WHAT THE CASE MAY BE it time to be there for your Mom. Plus I'm positive that this dementia thing is scary for your Mom cuz my mom every now and then will state that this dementia thing sucks and she gets scared cuz she's afraid she's going to lose herself. Ok just reassure her that it's just the dementia that we all know that and we don't think she's crazy cuz she's not. I look at lit like hey she changed my diapers and took care of me all those years now it's my turn. I reuse to put my mom in a facility cuz what she could afford would be a place that's run by the state and it would be a nice ritzy place. I've told her the only way she's gonna go into a facility is if she gets mean and starts hitting us or if she gets to the point where she does not recognize any of us then she will go into a facility. Hang in there you can do this and if you walked away from her I GUARANTEE you that you would/will regret it. Also I'm sure she's depressed besides the fact of having to leave her home and move into a place where she's doesn't know anyone at all. Just be patient with her she needs some time to get acclimated to everything there it's ALL NEW TO HER. hopefully she will make some friends.
Good luck and if you need someone to chat with or to just rant to feel free to reach out toethanks
Liz
I believe (and support you) that you need to do what you can comfortably do - in terms of visiting / contact.
The negatively may not stop as she may be very lonely, depressed or a combination of factors due to dementia and other health decline / issues.
If possible, find volunteers to visit. I called LITA (Love Is The Answer) and check out local churches. You must take care of your own mental, psychological, and physical health. You need to focus on your family.
She will not change and it may get worse. Ask her MD about medication.
You could also try gentle massage - either a volunteer or a professional. Or call massage schools to get students to give her a gentle massage (hand massages, feet massages, neck and back rubs are good - (I am a massage therapist). If you mom is open to being touched in gentle, supportive ways - easing into it with conversation first, it might help her feel better - feel more connected.
I wish you well in setting your limits and taking care of yourself.
A family member (you) can be both compassionate and set boundaries. In fact, it is necessary. Take care of you first.
Gena / Touch Matters
Seems it must be normal, then?
I will say, there's simply not a lot to love about old age. I say that as an 81 year old.
Move mother into AL.
Bring father to visit.
Gradually, withdraw support for living at home alone.
You are right to try and keep them together.
It is amazing sometimes, right before your eyes, the dementia takes over and a broken brain cannot make needed decisions, so use persuasion. imo.
Dad being very mellow now and mom the polar opposite.
.."well, you are always right and want to argue with me."
Yesss, same here with my Mom. Add in her 'poor-me routines' anytime I bring logic and reason....Makes me seriously think that her strategic use of these 'skills', as she uses them to 'fight back' against logic(about stuff she doesn't want to consider), shows that she CAN reason quite well!
I have found BOTH Narcissism and Dementia strategies to be very helpful in dealing with her. And you tube is helpful along with this site.
PS @NeedHelpWithMom
Thanks! I'm going to check out "Jokes for Caregivers" topic next!
I get that some stay open but if it is for a specific problem or concern anyone having the same issue will probably not look through old comments or suggestions to find answers.
I don't know...maybe I get perturbed when I see a question and go to respond and see that it is 9 YEARS old.
I will just try to ignore them and try to remember to look at dates before I reply
A lot of us post on these threads because the topic is still relevant.
I don’t see any point to posting on old threads that the topic is no longer relevant. Most of those posts are eventually closed down.
Why is this still open for responses? This question is from 2014!
I doubt anyone having the same issues would read through 1K replies/ answers to get the gist of what the conversations are about.
I think it’s because even though the original poster may be gone, others who follow afterwards will continue to face the same issues.
So, the thread stays open for discussion.
There’s the ‘What’s your Whine’ thread, ‘On My Mind,’ ‘General Topics,’ ‘Jokes for the Caregiver,’ ‘What’s for Dinner?,’ ‘What are you reading?’ ‘Online exercise buddies,’ ‘Gardening’ and a few others that remain open.
Seniors, whether they are demented or not, predominantly suffer from loneliness. Add the uncertainty, confusion and depression dementia causes, and you have the perfect recipe for anger and upset. On top of that, when a Senior sits around all day with nothing to do and nothing to say, their mind (healthy or not) is going to look for what's wrong.
If mom had someone to talk to, someone to socialize with and someone to say "it's okay" when she complains (and maybe even do something about it), I can pretty much promise you her outlook will improve along with her mood and probably her health.
If I am not already ranting, please let me take a minute to go on a side rant...
We put our seniors in very expensive assisting living centers, hoping and praying it's going to be okay. We think they are going to get plenty of time to socialize, lots of care from the staff, great food and something out of an episode of the old TV show Fantasy Island.
In reality, the facility will probably have a 30:1 resident/caregiver ratio, and you expect the $15-hour caregiver who pops in on her once or twice every eight hours to be her mother, daughter, social worker, psychiatrist, doctor and caregiver too.
FOR EVERYONE READING THIS, ONCE YOUR LOVED ONE GOES BEYOND INDEPENDENT LIVING, THEY ARE GOING TO NEED ADDITIONAL CARE! And for anyone who believes the promises the commissioned salesman at the facility tells you, please call me - I have a bridge for sale!
Jewel, you are a gem for reaching out for help, and for not entirely wanting to take Mom behind the barn; I would offer you this:
Find someone who can spend a few extra hours with mom 3 or 4 days a week. It doesn't have to be a paid professional. Maybe she has a granddaughter or a teenager who needs volunteer hours for her college applications, one of her old friends, or a friend from church.
(Burnt Out, I know you don't think anyone is willing to do a good deed out of the goodness of their heart, but I promise you they are. Mom is already in a facility; an untrained volunteer can sit and talk to her.)
You mentioned Mom doesn't like the way you do her hair. Take her to a beauty shop or have a professional come to her. Maybe it's not the outcome so much as the dependency on you for help with something she's always managed on her own.
Bring pictures or memorabilia from her past. Bring cute (cheap) gifts to keep her occupied. Watch TV together and talk about the show during the commercials. Ask her for advice on something in your life! Talk to her about upcoming events and invite her to participate.
In other words, give Mom purpose and help her have a life worth living!
https://www.agingcare.com/discussions/dementia-wish-list-484156.htm
We come out screaming and yelling and often seems to me we don't stop until we are dead for six months. As a species I find us overall somewhat negative.