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How are they managing their medications?
Does their living environment pose any safety concerns?
Fall risks, spoiled food, or other threats to wellbeing
Are they experiencing any memory loss?
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Acknowledgment of Disclosures and Authorization
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid. We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour. APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment. You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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Mostly Independent
Your loved one may not require home care or assisted living services at this time. However, continue to monitor their condition for changes and consider occasional in-home care services for help as needed.
Remember, this assessment is not a substitute for professional advice.
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If you are referring to FTD, well then yes, I am. My wife has that disease with aphasia. It is just a whole lot of fun(not). Most of her memory is still good. Short time memory not so much. Speaking and expressing herself is a real struggle. Especially since English is a second language for her. Hygiene is a minor complication for us. She is pretty good after using the toilet but I still help with cleaning those areas. Dressing can be a problem. She sometimes decides to wear a bra, after she has put her blouse on. I have been told she is in the final stages. I hope this helps you some.
My mom is diagnosed with Alzheimer's and Primary Progressive Aphasia (PPA) which is part of Pick's Disease. The aphasia is progressing faster than the Alz so it's getting hard to understand her. This combination is challenging. And I would also like to hear from others dealing with PPA.
Madzeena, what have you been experiencing? I have been learning to decipher many things. DW will use her native language to talk to me and will not translate to English. Or she will use the wrong words to ask for something or a place to go. Sometimes she will stutter or look at me and just recite numbers. Many times when I want her to do something she will look at me like I am from another planet. Once she makes up her mind to do something it is a struggle to get her to change. And the list goes on and on.
It is reassuring to know there are others experiencing this problem. At the same time it is so frustrating to experience this. If you add in the echoing it gets worse. I believe that the day will come when she will need around the clock care that I won't be able to provide. I feel it is getting close. I can't relax and leave her alone for fear she will either hurt herself or damage the house in some way. Today I found that she had cut up some paper towels and put some of the strands into a skillet.
Today was a sad day. We went to the DMV to surrender her license. Though it was her license, I felt something I can't really explain. It was a sadness and a realization of losing something valuable.
I hope the OP is reading this and getting some help from it.
Old Sailor - what you describe is similar to my mom's speech. The PPA has advanced to complete word substitutions for things - sometimes real words but most often made up words. Like the other day she called a clothes pin - a slimmer. Or today she called snow - fluff. There's some stuttering especially when she's tired. And mostly she understands what I'm saying. Only occasionally do I see that blank stare of not comprehending. My mom can still understand most of what she reads so sometimes I write down short messages so she can refer back to it when she gets stuck on remembering what I'm talking about. She is not able to write anything by herself. It was one of the saddest days when I realized she couldn't write her name anymore. For the most part I can "get" what she's saying. But it's exhausting on the days she really gets going because she's mad about something. Then things break down and I have to go more by her mood than being able to understand the words because it's not making sense at all. I often wonder what she hears herself say. It must make sense to her because most of the time she talks alot and enjoys being around the other residents. The hardest part for me was when she was in Assisted Living and the other less cognitively challenged seniors shunned her because they didn't understand much of what she said. It's better in Memory Care where the residents are much more accepting of each other's short comings. Hope it helps to know you are not alone.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
It is just a whole lot of fun(not). Most of her memory is still good. Short time memory not so much.
Speaking and expressing herself is a real struggle. Especially since English is a second language for her.
Hygiene is a minor complication for us. She is pretty good after using the toilet but I still help with cleaning those areas.
Dressing can be a problem. She sometimes decides to wear a bra, after she has put her blouse on.
I have been told she is in the final stages.
I hope this helps you some.
Once she makes up her mind to do something it is a struggle to get her to change.
And the list goes on and on.
If you add in the echoing it gets worse.
I believe that the day will come when she will need around the clock care that I won't be able to provide. I feel it is getting close. I can't relax and leave her alone for fear she will either hurt herself or damage the house in some way. Today I found that she had cut up some paper towels and put some of the strands into a skillet.
Today was a sad day. We went to the DMV to surrender her license. Though it was her license, I felt something I can't really explain. It was a sadness and a realization of losing something valuable.
I hope the OP is reading this and getting some help from it.
There's some stuttering especially when she's tired. And mostly she understands what I'm saying. Only occasionally do I see that blank stare of not comprehending. My mom can still understand most of what she reads so sometimes I write down short messages so she can refer back to it when she gets stuck on remembering what I'm talking about. She is not able to write anything by herself. It was one of the saddest days when I realized she couldn't write her name anymore.
For the most part I can "get" what she's saying. But it's exhausting on the days she really gets going because she's mad about something. Then things break down and I have to go more by her mood than being able to understand the words because it's not making sense at all.
I often wonder what she hears herself say. It must make sense to her because most of the time she talks alot and enjoys being around the other residents.
The hardest part for me was when she was in Assisted Living and the other less cognitively challenged seniors shunned her because they didn't understand much of what she said. It's better in Memory Care where the residents are much more accepting of each other's short comings.
Hope it helps to know you are not alone.