My Dad fell and broke his hip last week. We decided on surgery since he was a good candidate. We had to take him off hospice care for the surgery as the broken hip was considered a result of his dementia, which is his hospice-admitting diagnosis. Dad ended up getting a new ball and socket in his hip, as part of the hip bone had broken off rather than the hip sustaining a fracture. He was released from the hospital yesterday and re-admitted to hospice care (God Bless the folks who are part of hospice, they spent their entire Sunday afternoon getting this done!). His first day back was spent sleeping, which left us quite worried, but today he was awake, ate well and told us he needed to stand up! (The hospital staff only ever got him moved between the bed and a chair a couple of times, never had him walking, which I thought they had to do before releasing a patient?). Tomorrow one of the aides is going to get him up and into a chair and they'll begin some light therapy (we opted out of sending him to a rehab place because we didn't feel he'd get any better "therapy" than he does at his nursing home and with his cognitive problems a rehab place wouldn't have kept him around long!). We are very optimistic about Daddy's chances at a good recovery. Has anyone else (probably a stupid question!) gone through this experience, and if so, how did your loved one cope?
I am optimistic about your daddy's chances at a good recovery if he does as well as my father in law. Yours having had surgery to repair the break makes me even more optimistic. All the best to you and your dad.
I'm curious as to why my post didn't end up in the Alzheimer's & Dementia category as I selected and where I normally post. Oh well . . .
wamnanealz -- isn't it wonderful to know that when our loved ones do eventually leave this life of suffering that they'll have new bodies in Heaven! And, as you said, brains! At least out of all this suffering something wonderful will come and someday we'll see them again as we knew them before this horrible disease took their lives while they were still living.
Lucysmom -- I've heard and read that an anesthetic will most likely move a person's dementia to the next level. Dad has had a bad disk in his back for years that causes him pain off and on. His neurologist said that there was no way he'd suggest surgery due to possible problems with the anesthetic. But when something like a hip break happens to someone who, though he has dementia, is still mobile, what are you supposed to do?? It was either take him off hospice for the duration of the surgery and hospital stay, then readmit him to hospice, so that surgery would give him some quality of life during his remaining time; OR just leave him on hospice, which meant they would treat him palliatively with pain meds, etc. but he'd be bed-bound for the rest of his life! Whatever may happen in the future due to the anesthetic, other health issues, etc., we felt our only choice was to have the surgery. Mom is also paying out of pocket for his care, so I know where you're coming from where that's concerned! She has the NH fee budgeted but every time some small expense pops up she freaks out. I know their finances can handle it because I don't think Dad will survive beyond another year or two, but Mom worries about it, cries about it. She's very obstinate and wants things done her way, and to know exactly what's going on, so when something doesn't go quite the way she thinks it should she, as I said before, freaks out!
Again, thanks for your input!
Maybe 8 years ago she had surgery for repair to torn rotor cuff, she was still living @ home at the time. Lewy is a long range dementia and they can continue to appear pretty cognitive & competent for a long time. This went well for the surgery but the rehab not so.I was there for the first couple of post surgery weeks and worked with her 3 times a day plus taking her to 3 X a week PT (I am pretty much a bad bitch bossy on this type of stuff), then we hired home health for a couple of months afterwards to work with her plus drive her to therapy. Maybe 4 months of daily someone working with her to enable the use of her arm. She set her own goal to be able to roll her hair & sew a button, which she could at 4 months. Things went well for maybe a year and then she had trouble remembering that her arm was damaged and she would do things (reach, pull) that she could not do. She flat didn't remember she had a break and surgery.
Maybe a year after the surgery, she moved to IL where things were manageable as they provided meals, shopping trips, etc. She went from IL to NH 3 yrs ago.
This past June she fell and broke her hip. Really more of a hip shatter than a break. Her overall health is excellent as she has no major chronic diseases, but her dementia has gotten worse. She could have gone through surgery probably with minimal issues but no way could she do the rehab needed. She cannot remember that she has had a hip break. She will complain that her foot is sore or her foot has a cramp (other non break side too). Just no way she could do rehab or be able to work with the PT/OT to determine pain or strength. As Lucy said, rehab is paid for and done only if they are "progressing". Medicare rules on rehab are very specific and the therapists have to follow them to a T and with repetition and weight and exercise documentation. For those with latter stages of dementia that is a pretty high bar to do and continue to do for the weeks needed. She is now totally bedfast and on hospice at her NH. Hospice has been wonderful, what a great benefit of Medicare!
Think if successfully doing rehab could be an issue for your dad. I would speak frankly with the PT or OT who are working with him.
Oh and the rehab group we used was one what specialized in sports medicine (some of the Spurs were there for tweaking injuries). So the equipment was all just the latest. the good part is they were almost always empty in the mornings and their client base was people who work. The place was packed in the afternoon and evening. So for my mom, who went first thing in the AM, it was ideal as she got lots of "she reminds me of my grannie" attention. best of luck.
Thanks for your response. Dad also has LBD. He is in the latter stages and does not do well among "crowds" of more than two people. He gets agitated when people hover or when they try to touch him. Even a pat on the shoulder can agitate him. So that is another reason he wouldn't have done well in a professional rehab setting. And so many (most) people, even medical people, don't seem to grasp this, even if you explain it to them. He has bad days and worse days! But his physical health is pretty good. He is used to the nurses and aides who take care of him, which is why we believe he'll do best "rehabbing" in a setting that he knows with people that he knows.
NancyH -- Oh my! Your MIL must be one feisty lady! Dad also likes to walk, though I think its more of a fixation of his dementia. He can walk circles around the inside of the nursing home. He is already starting to tell us that he "needs to stand up". The need to walk has really been one of his problems if some ways. Sometimes he just can't sit still. Even if he walks to the point of tiredness (sometimes on his own and sometimes in his merry-walker) he just wants to keep going to the point where its a foregone conclusion that he'll end up on the floor. He just tends to get so agitated in the late afternoons and evenings that all he thinks about is walking and wandering and fixating on things.
Two years ago moms hubby had a hip revision, second time for that hip that had been done 15 years sooner. The part that screws into the femur had come loose and was causing him significant pain. For about two weeks following the surgery we were very worried that there had been significant effect on his cognition. But, thank goodness he returned to normal and spent nearly 3 months in rehab because he was progressing.
Hind sight is always 20-20. She was newly married for about a year, and her husband made the decision, she had not even been formally diagnosed yet. Cancer in the 80's is very slow progressing, so given if we knew then what we knew now, then probably. Medical POA for mom was not engaged in the decision.
it was bad terrible and whatever ugly word to describe it.
he was delusional agitated and not responsive. we tried all things and medications and physical therapy, but the doctors say he shall never return to what he was.
they all relate it to the general anesthesia. I recommend for any one who has Alzheimer or any type of dementia to have some sort of local or half anesthesia, an epidural or something. the results will vary a lot.
Any kind of proceedure on the elderly takes a lot longer to recover from even without the complication of dementia.
Depending on her general health before the surgery the Drs could consider some form of supplemental feeding or at least rehydration to see if that jump starts her recovery. I would not consider that as a long term treatment because if she is actually begining her journey to the next life it will only add to her suffering. I think you are at the time when you can only prepare for the worst and hope for the best. As long as she is pain free, not distressed and has loving family at her side that is really the best you can do right now.
It is a very worrying and difficult time and no one wants to loose a loved one but it is very important for you to take care of yourself and if you can't eat at least use nourishing drinks.
Most of my LO's fractures did not require surgery and I'm glad, because she was not a good candidate. I have known a couple of people who had dementia, who had surgery and none of them did well. They actually were not able to survive for long. I'm not sure why, except they seemed to just go downhill physically, after the surgery.