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I looked at the one very close to my house and am concerned that there might be too many people that are way worse than my mom to make MC a good option for her. It has a great reputation but I wonder if I should lobby for her to be in a regular LTC room instead of MC. She is on the waiting list but should be coming to the top in the next few months. Or sooner? Who knows. She is not a flight risk and does not have any bad behaviors like violence or anything. She is currently in LTC but I really want her at the nicer facility near me. She is currently a level 5. I saw lots of people that are a 7 that are out of it in special reclining type wheelchairs. Kinda heartbreaking!

againx100, it is up to the facility to evaluate your Mom's condition. The facility would know what section would be best for your Mom. She may not be a flight risk at the moment, but that could change later down the road.


I can understand wanting to move your Mom into something nicer. If your Mom gets to the top of the waiting list, please note that anyone who has memory issues, moving can be very stressful. New building to learn her way around, new faces of Staff and residents, new sounds/smells, and different food.


Try to set up her bedroom the say way her bedroom is now set up at LTC. That way if she awakes in the middle of the night, the room won't feel strange. I did that for my Dad and it helped. My Dad loved the sunshine, so I was able to get him a south facing room :)
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Reply to freqflyer
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You have pegged a real problem here for all those requiring any level of care. Often in ALF people who are too demented and too impaired are allowed to stay with people more able, with better mental capacity, simply because they are "inbetween".

I am afraid the only answer I see is for EXCELLENT facilities to come up with the "inbetween" care and that's rare as hen's teeth.
Will they ever be created in any number?
Only when they are money-makers; because honestly that's the American model.

My brother was at Pacifica Senior Living in Palm Springs 5 years ago. I cannot say enough good about this facility. They had at that campus cottages. There was one larger cottage that was a locked memory care. The other cottages had approximately 14 rooms each around a common area divided in front with a common room for TV, visiting, and dining in read. Tube room and office for staff, small kitchen for snacks in the middle. These cottages were, in Assisted Living, open to coming and going with only a sign in and sign out. The corner rooms were two room apartments; other rooms all a single room. At the point that my brother died they were just beginning to come to the concept of a "middle" choice for care which was that one cottage was locked, better staffed, and for those who are beyond ALF but not yet needing MC.

This would be, I think, IDEAL for your dear mom. She may need level four care, but she isn't a good fit for those with more advanced dementia.

I don't know what will this or any other country has for making things "good" for the aged. The truth is, when you look at the support provided them and their caregivers, this and any other country for the "most part" don't seem to have the will or want to invest the money. Sad, that. We see "Village Models". We know they WORK. But we know the cost and we aren't willing.

I can only wish you luck. Do speak with the admins there. My very best to you.
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ElizabethAR37 Oct 16, 2024
No "will" to make things "good" for elders (that's me at 87)? When we can no longer take care of ourselves after a lifetime of work, "place" us in (mostly) marginally adequate, horrendously expensive, facilities tended by staff who are usually earning a tick above minimum wage? THIS. . .so that private equity fund billion/millionaires can reap even more profit? So sad. So anger-inducing!

Well, then, if that's our national truth, let that truth be known and allow reasonable end-of-life laws that permit us (or our MPOA) to make merciful decisions in our favor.
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I think my Mom would have been able to stay in. Her AL longer than she was, but her money ran out. She was really an easy care. She made jo problems for the staff. They loved her. I do think some people fall in the middle. Maybe MC should be split. Those that are still somewhat aware from those that need a lot more care. Maybe separate by stages. 1 to 4 stages on one side and 5 to 7 stages on the other. I do think men and women need to be kept separate.
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Reply to JoAnn29
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My mom's MC had residents (25) at all levels of dementia, from moderate to severe. The staff introduced mom to the folks who were at her cognitive level, and they sat together for meals and activities mostly. My rude mother still insisted they were ALL "nuts" and "crazy", except her, of course, who was perfectly normal and "living there for no good reason."

If she had an issue with a resident, the staff always resolved it for her, I must say. There was a man named Denny who'd knock on moms locked door all the time, which made her anxious beyond belief. Staff wound up placing a big club chair in front of her door so he couldn't navigate his wheelchair close enough to touch her door anymore.

Memory Care is a difficult environment, especially for difficult or complaining individuals who expect silence and normal behavior 100% of the time, like my mother. There isn't too much "normal behavior" in a group of elders suffering varying degrees of dementia, I'll tell you that. So my suggestion is to wait as long as humanly possible to place your mom in the MC. It's a last resort, honestly. My mom went in about a year too soon, imo. She became wheelchair bound at the same time her dementia had taken a nosedive. Plus she was falling a LOT and often required 2 people to assist her in regular AL. So after she went to the hospital and rehab, she was rejected for readmittance to AL. I could've tried getting her placed in a different AL, but the move to MC within the same place she'd lived at for 5 yrs seemed more prudent. She was 92 at the time and lived to 95.

There is no good answer when dementia is in the house. It's a lose lose situation for all concerned and no matter WHAT we do, we tend to feel it's the wrong decision. It isn't.....its the disease that's the problem, not the tough decisions we're faced with.

Best of luck to you, my friend.
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Reply to lealonnie1
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againx100 Oct 16, 2024
As always, a pleasure to read your response, lea. She is too bad for AL and is in LTC. I will talk to the new facility about trying her in LTC for as long as possible. Thanks!
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I have been doing NH tours lately & I empathise.

People are staying home longer. Entering into 'care' older, frailer, sicker. I have been told this at every single place so far.

So.. this means less 'walking' to be seen in the corridoors & more 'slumping' in wheelchairs or recliners. Heartbreaking? YES.

Also told how this affected the designated Memory Care areas (ie locked door sections). Not for those experiencing memory loss (coz that is nearly all) but for those with *significant needs*: being those with #1 elopement risk, #2 aggression, #3 ISB.

So far I have found places that look like 5⭐️ hotels but staff don't smile much or say hello. Older but friendlier & also 'classic' ie shabby shamefully neglected dumps.

Where I live, it used to be High Care or Low Care & people got moved around & this was traumatic for them. This has mostly changed to an *Aging in Place* model now. People stay in their room (unless need that locked door MC area). It's an improvement but there is a long way to go..

Best of luck finding a good place!
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My reply to AlvaDeer's post below may seem rather confusing. I am not anti-placement for elders when it is needed. When/if we get to the point of being unable to care for ourselves/perform ADL's, my husband and I intend to seek the best placement we can afford rather than wearing down our adult children and destroying what should be a free, unencumbered, enjoyable time in their lives.

What rattles my cage is that there appear to be so few really "good" placements for old people unless they have LOTS of $$$. (AlvaDeer's late brother's placement sounds like a true exception.) Many AFLs and hospices have become, of all things, profit centers for investment by the extremely well-heeled so that they can become even wealthier. I think that, on the whole, elders have earned a better old age than most of us ordinary Americans will experience/(endure?).
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Reply to ElizabethAR37
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Expect changes, always. Clients of all levels come and go. Who is to say that she enters at a certain time. A year later, the residents make up will change. My mom was one of the ooldest residents and she always complained that her mates were too old. When you visit facilities, go with your "good vibe" feel.
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Reply to MACinCT
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Coming from working in Memory Care for almost 2 years. I suggest that you personally " shop" around. And stay for a minute to see what really goes on behind the scenes. If you can... Keep them at home with in home care services. Have the home senior proofed. To make the care and transitions more comfortable environment. Staffing is sparce in a Facility. And you might wanna see the staffing to resident racial. It is different with each state. Residents don't get the quality of life they deserve. Not to say all facilities are like the one I worked at... Depends on $$$ and family involvement. Good Luck with your search.
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Reply to PauletteJ
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In the Tristate area I have found places that a offer what is called free standing memory care. In short it is AL but only for those with demenita. Instead of a locked down floor for everyone really only the most advanced patients are in a single ward.

Like my MIL often does respite at such a place and they use bands that are pre programed with available access to areas. The campus itself is locked down but for the most part she is free to go where she pleases outside of private rooms.

They have very few patients ratio is around 3 or 5 to 1. Activities are always present to accommodate the different sleep cycles for each patient. These are far from the norm and extreme expensive. Room and board itself starts at 12 to 14k.

Options exist but they are out for reach for most people because unfortunately for profit is how things work.

Some places also have what is called article demenita village which is far more expensive.
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Reply to Caregivingsucks
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againx100: Best of luck in placing your mother in the nicer facility.
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Reply to Llamalover47
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Anyone has the right to request a AL as aposed to MC. It's usually more money for the MC of which she may at this time not need it. They have a list (points) that are needed to suggest MC. If you feel the list they have does not fit your mom at this time then please decline. If they kind of push the issue then please look else where. One flag for me is your statement Special Recling Wheel Chairs ???? Becareful if your mom can't on her own recline to upright position and have freedom to leave that chair. That chair is a form of restraint and that is illegal. I have seen facilities with 10plus recliners lined up in front of a TV, reclined all the way back and residents unable to get up. That yes is very sad. Don't judge a book by its cover. If a facility is in perfect condition that tells me more time is spent cleaning and scrubbing than time spent with each residents. Talk with staff if they are closed lipped that's a flag. Please be careful.
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Reply to LoniG1
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At first the Memory Unit seemed the wrong place for my Dad. As he had come from home it was hard to see his dementia other than mobility and incontinence. Dad could not initiate conversation. The other units would have caused him more social isolation. We have got to know the patients curled up in their beds, they are people who once were like all of us. The staff ratio is much higher. The intervention to support patients with annoying routines is readily in place. We've had to sell the family home to pay for Dads care and put Mum in a smaller house. The age home is not for profit. Society doesn't really want to know about aging.
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Reply to Toughpatch1
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Was the memory care suggested by her LTC staff? No flight risk or aggressive behaviors would be a reason that MC is not necessary. If she is cooperative & socially "appropriate" it might better to stay in the regular living areas. That move might cause the dementia to worsen (decline). Be aware of that.
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Reply to Nurse4life
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My mom was at her AL facility for only a month before she “wandered”. The AL was nice with lots of activities but they made it clear that they didn’t have the staff or ability to watch for residents leaving. She didn’t have any problems when she was at home but think the move had her anxious to return to somewhere she lived before. The AL was nice but the MC portion was such a downer with everyone sitting in big groups of recliners and so many advanced behaviors I couldn’t do it. She still knows her family and has not been difficult, we are still deciding next steps and researching
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