She is being super bossy with caregivers, refusing to eat, going into periodic crying spells and just having temper tantrums. Her psychiatrist said that she believes she metabolizes her meds fast but won't increase anything or change much. We are having issues at her senior daycare now because of her behavior. She has just become such a handful. Any advise is appreciated.
My husband, with Lewy Body Dementia, saw a psychiatrist specializing in sleep disorders for years. When the dementia manifested itself the psychiatrist referred him to a behavioral neurologist who specialized in dementia, and LBD in particular. The two doctors consulted sometimes on medications.
A psychiatrist can be an important part of the dementia care team.
I do get my respite. She goes to daycare during the day and most days really seems to enjoy it. She is just getting comfortable with them now to start showing her frustration and being bossy. They didn't expect it although I warned them in advance months ago. She does see a neurologist and she recommended that we keep with the same psychiatrist. She doesn't go for counseling because she obviously doesn't have much to say that makes sense but she goes for medication management. I know the disease will progress but I was hoping that there are options in medications to help her moods. We made the promiss that we will take care of her until she no longer knows who anybody is. Best of luck to the rest of you that are in my same shoes. It's a tough, really tough job but I will make it through this. I am not really a support group kind of person but I may just join one.
Don't argue-you can't win and it just upsets both of you. Yes the sun does come up in the west!
Let her choose which sweater she will have that day but only give these choices between 2 or max 3 items - so say 'which slax to you want to wear .. the black or grey' but not 'what do you want to wear?' as that will overwhelm her & cause a new problem
When I visit mom I always bring a small treat [cookie/doughnut with premium coffee] so she now associates me with something positive - I ask her if she wants to go to garden or her room - this seems to give her a moderate level of control - this is very important to someone who had very little control because she is in nursing home where meals, activities etc are all set -
The nurse who regularly checks her blood sugar tells her that she is checking to see if she is sweet enough & they have a giggle over that - a bit of humour is a help - when mom said she wanted to be buried with her parents [3 hours away] I promised her I would even if I had to strap her to the roof & put fake xmas antlers on her ...she got such a hoot over this saying she wouldn't be 'a departed dear but the dearly departed' - she remembered this so well she repeated it to several people & laughed each time - this issue has never come up again as she was so happy with it she has scratched it off list of issues to worry about - yes they worry about issue you wouldn't think they do
Mom went through the crying stage, the anger stage, the accusation [stealing, talking behind her back etc] stage however I found her behavior improved drastically when she was switched from the super strong coffee my dad made to decaf - caffeine is stimulant & she was over stimulated [we used to joke when she woke up she headed straight to coffee pot that we should just but caffeine in her insulin] - this is the easiest change to make - we mixed regular & decaf gradually so there was no noticable change - good luck
I would also try to do some investigative work on her behavior at the senior center. Can you observe her without her knowing for a day to try to see what may be inspiring her behavior to happen. Sometimes, it's the brain that has been damaged, but other times, events and people can trigger it.
For example, is the senior center too loud for her now? She may have progressed to a stage where she has little tolerance for noise and commotion. Maybe, she's overly stimulated there. Does she get tired and frustrated? It could be any number of things contributing.
You might check to see if she has any pain that she may not be able to verbalize. Sometimes pain can result in acting out in a dementia patient.
If you can't pinpoint anything, I'd try to change up her schedule and see if that helps, along with a medication adjustment. Can you only attend the senior center for half a day? Just to see how she responds.
What is causing her dementia? This stage may pass with time. My cousin was very confrontational for no real reason for a while, but, later that changed and she stopped the arguing, anger, etc. She also is on meds for depression and anxiety though.
Good luck! This is a tough one!
It's possible that the doctor isn't getting the impact that her behaviors are having. Keep a log. Video an outburst. Present these to the doctor. If she doesn't have any better medication suggestions, the you need to find a doctor who will work with you to get your mom's agitation under control.