She has been diagnosed as having MCI but it seems so much worse than that. She is 74 years old and her long term is fine, considering her age; she forgets some things here and there, but knows who everyone is etc. just gets dates wrong. but her short-term memory is completely gone. as in she can ask me a question and then ask it again in the same conversation. she doesn't remember any meals, any visits, having gone to church, nothing -- almost immediately after these events take place. Mild Cognitive Impairment is describes as losing a bit of memory but being able to cope on your own. there is no way my mother could cope on her own; i take care of all her banking/bill payments/etc, as well as all her grocery shopping (it could take her up to 10 min to choose a single item from her list; she would leave with a massive headache overtime); she of course lost her drivers licence so i drive her everywhere too.
we see her GP on a regular basis (and she's great); she has also seen a geriatric doctor (who diagnosed her with the MCI) who said we didn't need to come back because she doesn't have Alzheimer's (altho she did prescribe Aricept for her), and i don't think she does either based on everything I've read; it's really just her 100% complete loss of short term memory. it's almost like the movie Memento except without the paranoid bits.
any search i do online for "complete memory loss" just pops up alzheimer's related websites (which luckily & thankfully brought me to this very site) but nothing more than that. I will of course bring this up with her doctors but wondering if anyone was in the same boat.
Good luck on your journey.
Angela, your mum's abilities sound the same as mine; while she does live with us, it's in a self contained suite and she showers, etc. Is donepezil the same as aricept? if so, her geriatrician prescribed it, i suspect, only because i was unhappy with her MCI diagnosis and said it was more than that.
I've never read that Aricept was prescribed for anything but dementia. I'm not sure of your doctor's motives. It seems odd to me, so I would get another opinion.
My mom has atrial fib (heart condition) and I believe her heart meds (which act to slow her heart) have impacted her brain. And she was on Lipitor for quite a while until I took her off. Loss of memory has been reported as a side effect of that med. Her sister was much worse before she passed away at 92, so there may be a hereditary component as well.
I asked my mom what month it was when I showered her on Tuesday and she started with April. Then she just starts going through months, guessing. So she doesn't even know what season it is. She can't remember how old she is. Or how old I am. But she knows my birthday is this month and can sometimes say the right day and sometimes not. She still knows everyone and lives on her own, a mile and a half from me. She has a very set routine and she's OK as long as she's in that routine. She makes her own breakfast and reads the paper and still reads novels I bring her. How (or whether) she remembers anything I don't know. She can still work crossword puzzles, which she does daily. But if you ask her something about what she just read, she can't remember. My brother calls her every Sunday, but she can't remember what they talked about the next day. Or even 30 minutes later. She'll ask me the same thing 4X in 10 minutes. She knows her memory is bad, but will say, "Oh I'll remember that". But she won't and she doesn't remember that she won't. Sigh. It's hard...but I'm fortunate because she's still able to be independent, which she wants, with a lot of help from me. But my mom is 95, so she's got a lot of years on your mom.
blannie, my mum sounds almost exactly the same as yours as far as memory goes; she is still able to take care of herself physically however (and again almost 20 years younger so who knows at this point) but their daily routines are very similar. i too have no clue if she remembers what she's read in her novels. she also does does the crossword every morning. she claims to "devour" the newspaper every day but I've no clue if any of it sticks; we talk occasionally about current events but she rarely knows what I'm referring to, even tho it was front page news that day. my mother will also ask me the same thing 10x. on the way to the eye doctor (literally a 7 min drive) she must have asked me 7 times where we were going! she is also unclear of the seasons, etc. it's always a guess. I'm not sure about whether or not she remembers birthdays to be honest. I've got them all written on her big calendar but if i were to ask her, she tends to blank. if i ask her anything, she tends to blank actually.
i think the reason my mother suffers so badly is partly because she's never been a mindful person. before she got married and had kids, she was a secretary and as such, took dictation and then typed it all out. but she made a point of not paying attention to what she was writing down and then typing. and then when she left that to get married and have kids, she carried that system over. sure she'd write things down to keep track of them, but you know how they say when you write things down, it's a secondary way of remembering things? like not only do you hear your professor give the lecture, but by taking notes, it's like you're cementing it in there? well she made a point to clear out her head once she wrote whatever it was down. i remember her saying to me when i was a teenager (so 25 years ago) that she always tries to keep her head empty. so now when her doctors and OTs are encouraging her to be mindful, she really has no idea how to. it's like she's lost the ability to pay attention in the moment.
so bottom line, i guess i need to specifically ask her GP about vascular dementia.
thanks again for all your help and words of wisdom. nice to know her specific symptoms aren't unique to her. xo
I will definitely speak with her GP about paraneoplastic syndrome.
She is in AL and also on Aricept .
We just take it one day at a time. I visit frequently, about every day but i keep the visits very short. 30-60 minutes. It is all I can stand to be asked "what's new" over and over.
My Mum has just come out of hospital where she acquired Sepsis. She now has zero short term memory and is a changed person. Mum had mild dementia before she was admitted but 7 weeks later can't remember who she spoke to 5 minutes ago. The tragedy is, is that she is aware that something is wrong and is very frightened. She is (or was) a young 79 year old and living alone, fully independent. Now she needs help with all aspects of life. She is not ready for a care home but equally I don't think sheltered housing would accept her. (Which is where she was planning to move to 8 weeks ago).
I am not sure there is anything to DO as such except to make decisions that will keep her safe. Safe and comfortable.
She is on anti-anxiety meds and without those life would not be worth living (mine and hers!) But the meds keep her pleasant and content.
Things change. Being "happy" seems like less of a priority. Having things work out and being safe seems to be the goal.
Reading back through this whole thread, I sometimes had to double check whose entry I was reading; your mums sound EXACTLY like mine, right down to some of the specific examples!
I've talked to her occupational therapist about how I can best help her, and all I get is "keep on doing what you're doing!" Which doesn't help cos I seem to have become the enemy here. Obviously she can't track her meals or basically anything she's done, but she also forgets her own opinions on things! Half the time we speak, it's me convincing her that she wanted to do/buy/eat the thing we're talking about. I WISH I could leave her notes! If it's in my writing, she chucks the note cos its condescending; if I manage to get her the write herself a note, that too disappears -- "oh I can remember THAT!" and yeah I get a fair amount of silent treatment too. I'm def the bad guy.
Making her situation worse, her eyesight has diminished to the point where she needs 2 pairs of glasses now, pretty much 24/7. She's always had weak readers but now needs strong ones as well as a second pair of glasses for everything else. Of course she cannot keep it in her memory that she needs them. When she's squinting at something I remind her she needs her glasses and she tells me she can see just fine. She flat out refuses to wear her readers around her neck because she "can't stand the heavy weight" around her neck (???) Bottom line, she is stubborn as heck and I don't know how to help her help herself. She's also *only* 75.
How many of you guys have your mum living with you? It's definitely causing a strain here. My husband is amazing and takes her for a walk almost every afternoon before dinner (otherwise she gets 0 exercise) which makes me feel guilty cos she's MY mum, not his. I'm not sure what signs i'm supposed to be looking for with regard to assisted living or long term care or whatever it's called. As I mentioned in my original post, she showers, applies make up, keeps her suite clean. ALTHO she has taken to collecting her cat's waste in a plastic bag beside the litter box for several days before putting it in the outside garbage can, which makes her suite stink!! I've mentioned it several times and it just pisses her off. She can't smell it so I must be lying. The air freshener I snuck in there isn't strong enough!!
Mom is still aware enough that she still wants to be in charge of things she feels she can manage such as cleaning the kitty litter but forgets to take it out so as suggested just do it, it will be far less stressful for you.
I realize you feel Mom is still capable of some things and indeed she is but no longer has the "drive" to make herself do it. As far as the exercise is concerned it is just too much effort so hubby taking her for a walk is an excellent solution. it is an invitation not an order and he has so little interaction by being at work all day she probably feels he is a friend not an overseer.
You are doing an excellent job and it is very difficult to change your perception and behavior. You are competent but you still have the old ingrained patterns.
Same one 1 min later again and again
She forgets her meal as soon as she has eaten it .and where ever she goes . As soon as we home it's gone
I wonder if this is classed as no capacity
Can the doctor do anything should I go see him