He requires 3 liters oxygen nightly. His son, my husband, insists on accommodating his demand to celebrate his 93rd birthday at our home. This involves FIL taking a 3+ hour flight. My husband works and won’t be home with him during the day. FIL has trouble walking - unsteady and has aspirated food before due to not wearing his teeth and bolting his food. I am concerned about the night time oxygen situation. No amount of reasoning or pleading will change their minds. FIL has always been a handful, has macular degeneration and won’t wear his hearing aids. This is happening - and is WAY out of my league - HELP!!!!
You’re being jerked around and forced to do something you are not equipped or trained to do and don’t WANT to do. So why do it? You’re a big girl. Make reservations at a nice hotel with a bangin’ Spa and have a blast.
I would not stress about pitsing “the boys” off. After all, neither one is considering your feelings, wants or needs.
Hubby will have to take time off to care for his father. They can have some “real bonding” time. Yeah, boy.
Make reservations, leave the day he arrives and come back after he leaves and be rested, refreshed and not stressed out by suddenly being an unwilling caregiver. If you get any flak, who cares? They didn’t care what you wanted!
but at least its only a week? Don't feel responsible for this mans health if you can.
just do your best and if something happens that is beyond your control during the day call 911.
let your husband deal with the nighttime situation (he's home by then?) of oxygen.
I think whenever something is going to happen and we fight it. It just makes us more uptight not to accept it. take a deep breathe and tell yourself I can make it thru one week.
Remind your husband that his dad should be careful to bring all his meds and his paperwork. DNR, insurance cards, list of meds and drs should he have to make phone calls on his dad’s behalf. FIL should bring extra meds just in case.
Perhaps you could contact a home health agency to know terms and availability should the flight leave your FIL needing personal care.
Have an urgent care in mind just in case.
Remind your husband of any accommodations his dad might need in the home, seating, special diet etc.
Perhaps a wheel chair rental for outings?
This trip sounds very important to both of them.
You might pick up the book “Being Mortal” by Atul Gawande. I think it would help you not be so anxious about your FIL traveling to your home and about taking care of him.
if he’s used to being alone most of the time, you should be fine going about your business as usual.
If you are very anxious about it remember it’s just a week. Get out for a walk everyday or meditate a bit each morning.
Plan your meals and set things up where it’s easy for FIL to wait on himself when he needs to.
Its pretty neat that he isn’t afraid to live his life and that your husband supports him.
I hope you help make the birthday special.
See it all went OK so dad can come and live with us, Oh BTW Im off for the next week you will manage alright scenario comes to mind.
Make your husband take time off and be there for HIS dad.
Unless you are a registered nurse who is trained in geriatrics, you certainly don't have the ability to do this.
If FIL has trouble walking I imagine there will be difficulties with the accessibility of the toilet and shower as well as his meals and oxygen, in addition to a transport wheelchair you might look into renting a shower chair and a commode that can be placed over the toilet which increases the height and provides arms for stability. Plan meals with his eating problems in mind - think soft and easy to eat without teeth (lasagna instead of steak). And I can't imagine DH allowing the poor man to navigate the airports on his own, unless he is a frequent flyer the flights alone will be a very stressful experience.
What are you concerned about with the oxygen? As long as no one is smoking in the house, it's pretty safe. As long as he wears the cannula, it's pretty effective. But if there's something about it that worries you, by all means ask. Several of us have lived with oxygen-using people for months or years and can answer all your questions.
Not sure what to think about 'needs 3 liters of oxygen at night'. First off, that's not really a 'quantity', it's a 'flow rate'. If he sleeps with a nasal cannula connected to a tank or a concentrator set at 3L, does he really not need oxygen in the daytime? Right away I would want to ask why -- maybe even phone his doctor so you can know how to care for him appropriately.
In my (limited) experience (and I'm not a doctor or a nurse), most people who only use oxygen some of the time are using it on the 2L setting, sometimes even less. Most of the people I know who are using 3L are using it continuously, day and night.
You should probably rent an oxygen concentrator for in-home use, and get it delivered the day BEFORE he is scheduled to arrive.
You should have at least a back-up tank or two in the home in case of power failure.
Macular degeneration = can't see well especially for detail, which can unfortunately contribute to aspiration as he puts something in his mouth without being sure what it is or how big a bite.
Probably he doesn't wear his dentures because they no longer fit properly and are uncomfortable. Ditto his hearing aids.
Obviously you can't make him wear either, but you can gently request that he wear his teeth while eating, and ask him to wear his hearing aids long enough for you to find out what he needs in the way of assistance and help him know how to navigate in your home.
Pro tip: bright lights on stairways and hallways can help prevent falls. Pick up any throw rugs for the duration (yes, even the ones I really love got put away for the visit).
Let's see, what did I forget? Oh, yes: the stent in November is actually good news -- he may have more stamina and be less forgetful than he was right before the heart attack, due to better blood flow to the heart allowing better blood flow to the brain and body. And it's long enough ago that healing is likely complete.
Any chance he uses a walker? That can be a great help with unsteadiness.
I'm sorry he's been such a handful and I have confidence that you can do this, with a little help. So sorry your hubby isn't taking time off to be home with his dad.
copdfoundation.org/COPD360social/Community/COPD-Digest/Article/6/Safe-to-Travel.aspx
Why can't u visit him?
You probably need to pre-arrange extra O2 to be delivered to your home while he is there - there is a lot to arrange so maybe hubby should fly to hid dad not other way around because what happens if he can't fly back? - then he will be with you permanantly
Or ... the (unrelated) spouse ... generally again the men ... say why should your parent(s) live with us or why do we have to visit them (at the home).
whichever it is seems to run away and feel taking care if a parent is the (unrelated) spouse's responsiblity.
but this doesnt provide an answer to the question.
If he's not been taking care of himself, is he bringing a care-giver? If not, hubby better call some agencies and get a qualified person there. Or perhaps there are facilities that offer adult day care where hubby could drop Dad off while he's working.
At 93, with COPD, etc., just wanting to see his son, maybe for the last time, has a certain poignancy. Don't stress about the details. If he makes it off the plane to see his boy, maybe that's enough. You have no control up to that point.
After that, think of the rest of the visit as extra benefits--just a little more time you all got to spend together. If he doesn't survive the week, it won't be your "fault," and he still got what he really wanted and more.
It's only a week, right? He has round-trip ticket, right? I always say "I can do anything for a week." It's a helpful psychological tool for a defined time frame.
Try to be up-beat about it, and cheerfully tell your husband all the suggestions you've seen here. Just so he'll be well-prepared...
My heart goes out to this woman; she's being put in a situation that is all too familiar to me. God speed to her.
be prepared for hubby to say ... well that visit worked out fine. Lets have him live with us.
no ... im not young but i wont be visiting my kids when im ill and shouldnt fly. Its hard enough now dealing with airplanes even with van transportation from gate to gate. Theres airport bathrooms/airplane bathrooms/sleeping most of the day after each part of the trip even if the trip is short.
and thats even if you dont need help.
Your FIL should be able to tell you how to hook up his oxygen for the night.
This is A LOT to be asked of you but I assure you, everything is temporary.
Might need to have the CNA watch out for blood clots... although 3 hours is not bad for younger people. .. it could pose a risk with him.
I wish you strength and luck.
Aye, MarLo
If not, you could insist on hiring professional nursing help for the week and suggest your husband's family look on it as part of the celebration expenses.
If they won't buy that, then all you can do is draw your own lines about what you will and won't do to assist; and not stepping out of your pay grade is a perfectly reasonable view to take. Stick to your guns.
Any consequences that then ensue are the responsibility of those making the decisions, and not yours, and you must just rise above any residual feelings of guilt. And happy birthday to him!
As far as the oxygen, it's a simple thing. But, contact a medical supply company to have extra tanks on hand. And any other equipment maybe needed to rent for the week..... a walker, a wheelchair. And talk to a home health company to have an idea about extra help should you need it.
And I would definitely talk to husband about taking some time off while father is there, maybe he can't take all of the time, but at least some of it. And then plan a couple of days out by yourself, maybe a movie, walking in a park, shopping or even window shopping, a lunch out with friends. Even time out each day for a walk, or go somewhere where you can read a book, i.e. if the weather is too hot to sit outside, then a bookstore where you can sit and read in the cool air, or even in a mall.
Good luck... you'll make it through this week!
Simply being on home oxygen is very common, people get around and even travel all the time. It's actually even easier these days with new equipment that's available and newer equipment or not there isn't much for you to fear or even do, certainly nothing to be afraid of or feel overwhelmed by. Don't let it be the thing making you uncomfortable. Hearing and dental needs change, like an eyeglass prescription does so when they aren't kept up to date they can become more of a hindrance than a help and this may be what is happening with your FIL. That ship may have simply sailed but if there is someone helping him at home maybe they could look into updating those things prior to his trip, sometimes it's just an adjustment for hearing aids. Maybe this is something you could help him do when he visits if you want to pitch in that way or maybe it's just something everyone deals with for a week. Either way my guess is if he were able he would wear them whenever he was around people because not having his teeth in and not being able to hear is hard for many elderly people, it's embarrassing but they stop seeming to care because they either can't afford to fix the situation or don't think it can be and the adjuncts they have now cause so much issue the embarrassment is the better option. I know my FIL was horrified when he had to take his teeth out in front of me in the ER.
As someone else mentioned the fact he has a stent now is a good thing and may mean much of his unsteadiness as well as his thought processes have improved. But it's hard to make suggestions in this area without knowing what his living and help situation is at home I don't see why you would be expected or need to steady him all day if he doesn't have or need that at home, if he does he probably has a walker and methods for accomplishing his daily routine. If he is in need of 24/7 type care then you and your husband should be in touch with his doctor and whoever coordinates that care (his POA?) so help can be set up while he is visiting. There are methods for setting things up temporarily while a patient visits family and having it all covered by insurance (whoever is paying for it at home) but that takes coordination with his doctor. We took my mom out to see my brother and his family in CA (from CT) recently and consulted all of her doctors. We also put together all the contact info and a plan should anything happen while she was out there, same thing as if she needed an ER visit at home really but at home they have her records handy so we just made sure we had that traveling with her. We also made sure she had enough meds but many meds can be ordered by regular docs & p/u at a chain pharmacy in another state for just this situation if needed too.
Unless there are ailments I'm not understanding this may not be as difficult as you are picturing, you obviously have spent time around him and unless there is something about the relationship that makes you uncomfortable I would suggest trying a different approach. Look forward to seeing him and being able to help facilitate this trip which is obviously important to both your DH & FIL. Express your love by embracing this and learning about these ailments along the way. It may help you in the future & a positive approach will change things a great deal. Fill this visit with love & create can do memories.We will hlp
There is also the chance of FIL needing medical care. Does his insurance cover out of state medical care? Many don’t. Will his medical records be available should he need care? If Hubby is away at work, would Castlekathy recognize FIL’s distress and know what to do? She states she has MS. Is she mobile?
In any case, Castlekathy hasn’t posted again. Hopefully, the issue has been resolved to everyone’s satisfaction.
Is he even capable of taking a 3-hour flight?
Shouldn't you hire a medical professional?
Aspiration pneumonia
I think I'd be doing a google search for an agency and contacting them to see if they can supply someone quickly if needed.
If he hasn't already made arrangements, maybe they won't let him on the plane!
Prayers!