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It is like she thinks someone is two or three different people. My cousin has now become two people and she has named her other person. Some days she plays nice, other days she is argumentative. She lived with my brother and sister-in-law for 5 years and never liked my SIL. Now, when she is upset with me she calls me by my sister-in-laws name. She hurts people's feelings without any remorse and then gets angry if the people do not come back to visit her. I handle everything for her and get nervous giving her meds to calm her down. I can’t let her ugly side show for long, it's triggerig for me. The palliative care nurse says I’m doing fine, but I don’t always feel that I am.

You may now need to consider placement. This is very common in severe dementia. I am so sorry. If you cannot go on, time to speak with your own doctor and get documentation that you cannot continue in care you don't feel qualified to do. Ask palliative care RN to refer to social services for placement.
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Reply to AlvaDeer
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If you're giving her prescribed meds to calm her, there's no reason to feel nervous. They are medicines that she needs now that she's sick. You're doing her a favor by keeping her moods on an even keel so she can be the best she can be.

It seems to me that drugs have a bad rap now that we have so many addicts living among us. But drugs are a boon and a blessing for those who need them for medical reasons.

I'm a lifelong non-drinker, never smoked or used drugs of any kind. I don't even drink or eat anything with caffeine in it. I had family members who died of addiction. If there's anyone who should be opposed to any kind of drug, it should be me. Yet I have seen the wonders that drugs have worked in people who are close to me - pain meds properly taken for chronic pain, anti-anxiety meds for mom, antidepressives for friends, medicines for a chronic condition that I have.

We need to separate in our minds the good vs. the bad, and when our loved ones need help and the right drugs can help them, feel confident that we're doing the right thing.
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Reply to Fawnby
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First..,.
there is no "remorse" because what she says she believes.
People caring for people with dementia have to develop a suit of armor.
Ignore most of the comments because they are based in the reality of a person that has a brain that is not functioning.
Day to day you do what you can the best that you can.
No need to get nervous giving her meds. A medication to calm her also helps her, who wants to be anxious, fearful all the time.
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Reply to Grandma1954
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My dad did this in the end stages of a degenerative brain disease. He would recognize my mother some days, and some days he would say ”where is the other lady who takes care of me? There was no one else.

There is no shame in saying the caregiving is becoming too much for you. Your situation sounds similar to mine in that the palliative care nurse said I was doing fine because they had no where to place my mom. If you live in New England you’re in the same boat. However, this does not mean you can’t move her into a skilled nursing facility if you need to.

Are you caring for her alone in your home now?
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Reply to LilyLavalle
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The meds could also make things worse; those things are hit and miss with my dad as well. I'm no longer able to give him antidepressants because it makes him very depressed....go figure. You have to understand that she doesn't have "an ugly side", she has brain damage. If this has become too much to handle, you must also understand that her being with you is a choice....and you can simply change your mind (for me, really grasping onto that idea alone makes me feel better! I am *CHOOSING* this!)

Dad also thinks I'm two different people - just this week, he asked, "Are you V**** now?" He also tells me about "V" when I'm standing right in front of him. I make it a joke...I say, "Who was I before, dad? Was I a queen or a princess?" It makes him laugh.

My dad is a wonderful man, even with mid-to-late stage dementia... but he has his days of being argumentative, angry, difficult to deal with. I remind myself he's a brain injured individual and SOMETHING is setting him off, even if he can't verbalize it.

Check out Debra Kostiw on TikTok and Youtube. She's wonderful and helps to reframe things.

And if you decide this isn't for you, it's okay. This is hard.
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Reply to JustVee
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