My Mom is selling her house and decided she’d live with us. We moved all her stuff to our house. She did a 180 saying we’re not married, my husband is a crook, she is worried about what I’ve gotten myself into with him, she wants to go back to her house and asks when we can get all of her things back into her home. She doesn’t recall she’s sold her house and has to be out in a week. We’ve pulled one over on her. She was evil talking to me and my husband saying things I thought she’d never say to me.
She refuses to go to a doctor. I don’t know what to do!
Consider calling 911. She is delusional; something serious is happening that needs to be addressed immediately.
Can you tell you more about your mother, when this behavior started? What is her diagnosis? What made you decide she should move in with you?
Distract and redirect. You cannot argue.
If this is a sudden behavioural change, get her to a Dr for a urinalysis. A UTI can greatly magnify dementia symptoms.
I found this to be an incredibly difficult stage because it is obvious to everyone but them that they have cognitive decline. My mother refused to see a Dr. so I had to trick her. Perhaps your mother would go if she thought she was attending a consultation about something or some other false pretence. It is important for you to take the reins now because she is not thinking clearly. I was afraid of my mother’s temper but now realize I should have pushed her into the Dr’s office and had her assessed much sooner.
This forum is full of people who are or were in your position. Read all you can. Good luck.
Get her medical attention & explain her level of confusion.
If someone is confused they are unable to use their judgement sufficiently to decide if they require medical treatment or not.
What do YOU think about your mother coming to live with you? The "evil talking" you heard is probably only just the beginning...
I agree, she needs a urine test to rule out an infection. If this came on suddenly, that could be it. Its no longer what Mom wants, its what she needs. You are now the adult and her the child. Don't ask, do. Take her in the car, if she asks were she is going tell her for a ride. White lies now to get her to a doctor. Medicare is requiring her to get a physical to keep her insurance, whatever u can think up. Bribe her.
This is only the start of issues you will be having. The problem is that some days will be lucid and nice and other times, combative, angry, sad, crying, accusing, etc. When you wake up in the morning, you have no idea which ones, yes, plural, you will face.
By any chance, did she not get much sleep over the period of days prior to the move? If so, see if you can take her somewhere, like a hotel or on a long ride, so that they can get some really good rest.
You have to do 2 things, both start immediately. 1) You need to get her to a doctor 2) you need to start researching managed care like a Memory Care house.
You need to get her to a doctor so that they can order tests and rule out any infections. If you think you will be placing her in managed care, then make sure her shots are up to date. Hopefully she has a doctor that she likes. If she doesn't want to go to the doctor, just say that we need to visit xxx (call them by their first name and last name without the doctor). When she asks why, just say that you need to have a few things checked out. If her doctor is like our doctors, getting blood tests and urine tests and all those things, happen at a different place and time than the actual doctor visit. If she doesn't have a doctor, try and find one that specializes in geriatrics.
I would still start researching managed care options, regardless of whether you think you can be with this type of behavior 24 x 7 or not. Getting familiar with the terms, and what facilities look like and what they have to offer, will help you be aware of your options for the future.
Sometimes, to get my Mom out of the house, we told her we were taking her to a restaurant. Then arranged for other people to get whatever needed done. Otherwise, she would just fret the entire night before whatever was happening and not go to sleep, and then be cranky and combative and uncooperative the entire day.
Sucks....
My prayers are with you.
I would report any sudden changes in behavior to her doctor as soon as possible. When my mom was acting out of character, it was an often a physical issue like a UTI.
It is unsettling to see new behavior. I was fortunate to have doctors who were thorough in their assessment of my mom’s behavior changes.
What about meds? Have any of her meds been changed recently? Sometimes dosages need to be modified or additional new medication may be helpful.
Best wishes to you and your family.
If you are in another state perhaps there is something similar there and you could have a provider come to your house.
As someone else has suggested that those with dementia do best when things are kept the same. If possible maybe use her furniture and arrange her room, as much as possible, the same as how it looked in her own home.
I would advise not placing her in AL where she can leave more easily.
If you do not have the authority to act on her behalf you may have to obtain Guardianship if you want it, or another member of the family. If no one wants Guardianship she will be made a Ward of the State and a Guardian will be appointed by the Court.
I would start with doing an at home test for UTI because it is very possible that has a hand in this as well as the stress and fear that would have helped it come on. Then try approaching her as an ally rather than a caregiver “you know what mom, your right why go to the doctor if there isn’t anything wrong. I know from experience that UTIs seem to develop at times of stress and let’s face it we know you have been under stress. They have home tests you just do yourself for UTI maybe we should just do that and go from there”. Then move on to showing her the sale papers or refreshing her memory of events. Be prepared she may not agree at first or ever but she might bring it back up after having a chance to think about it. One thing that has been particularly hard for us is remembering that Mom needs time, often days or more to digest and absorb important conversations or topics, sometimes it takes multiple conversation in fact and often with each of us for her to come around. Her brain just can’t work as quickly as it used to, her lack of hearing is of course a factor too but you can see her trying to process something and when she has shut down because it’s too much to process, the hard things.
Trust or lack of it does seem to be a hallmark and one so very hurtful to us their children and loved ones. I know that my mother compleatley trusts us but this new form of my mother trusts me less and less. I’m hoping that comes back around again but it has now been the longest period of time I have ever gone with her not wanting to even hear my voice. “Shut up” and “I don’t want you” “Your wrong, you don’t know what your talking about” “just go away, leave me alone” and complaints about me to my brother and who knows who else have left me torn most recently, my head knows this is the disease and not the mother I have known all my life by my heart and soul are suffering pain and blows hearing from and being treated so horribly, mistrusted by this mother who has never even come close to hurting me this way in the 61 years I have known her. I feel you pain but have to warn you getting through this won’t be the end but if you remember to check yourself and try to learn this new way of communicating with Mom, ever changing way, it should help you all. It won’t be painless.
Small breaks are a Godsend for me.
What is important is that you have taken your Mom into your home, and she is suffering from dementia.
Do you have POA conferred upon you when Mom was well?
Mom almost certainly now needs placement, but that is not going to be easy at all. You say she refuses to go to a doctor yet we are told that she has dementia, so apparently she has already BEEN to a doctor?
I wish you good luck. I can't tell from your post what the history is here, and what powers you have to do anything for Mom, such as placement; however this does serve as a warning to those planning to take their elders into their homes.
For the moment, that might be the solution. Her house is sold. The furniture was moved out and I expect closing is imminent or already occurred. There was no way to back out of the sale and there was a good reason or many reasons for the sale.
Her room or rooms can be set up just like it was at home until you both can agree on something else.
My parents had my maternal grandmother living with them at a certain point when she could no longer manage in an independent living facility. She was a sweet person and she did become forgetful and couldn’t be left alone. But that was a labor of love that was easily managed for her.
There are seniors where the dementia is difficult. One day they are normal and the next one doesn’t know who they are or worst case scenario they are satan incarnate, so to speak. That is the dementia speaking and it can also be a result of the individuals’ delusions, how they grew up and how everything is coming together to cause fear with this disease in their old age as their body and mind begins to fail.
It might help to take your mother in to your mother’s primary care physician for a checkup and to check for a UTI. It might help to schedule an appointment with a neurologist as well. It takes months to get an appointment and many neurologists don’t want to deal with seniors, because they are difficult, complicated, insist nothing is wrong, etc. when problems manifest at home.
That is when it pays to take videos when it appears things are in the twilight zone at home - when the individual behaves strangely or out of the norm to show the doctor.
My MIL is one of those who can not come to live with us, because she presents one way to the public, but in private she is vicious and impossible. She refuses to bathe and in addition has a teacup yorkie that is not house trained, marks territory incessantly and barks incessantly. When she said she wanted to move in, she was told the dog had to go and was not welcome. She could give it away, have it put to sleep or give it to a no kill shelter, but it was not welcome at our house. She didn’t listen. When I told her that the room she wanted was given to her granddaughter, she was incensed. DH and I told her that she took too long to do something about the dog and to make up her mind, therefore the opportunity was no longer available to her. She now lives with a delusion that she can move to a cottage at the beach (formerly near us) with a middle aged woman to take care of her 24/7. Never going to happen. There is no such thing - that is a fantasy movie called “The Enchanted Cottage.”
This is a woman who when her husband died was supposed to be the executor to the estate and couldn’t do it and had not been paying any household bills ever. FIL had done all of that.
When someone visits, she begs and pleads to be removed from assisted living, because she says she is not getting food and she being abused. We know she eats and they take great care of her. We’ve asked certain individuals not to visit so that she doesn’t become overwhelmed and overexcited and anxious. She then turns around and abused the person roundly and says the nastiest things if they do not do as she says.
My mother, after moving in with me, would not stop nagging and haranguing me the entire time that I single-handedly cleaned out her house of 45 years of stuff and got it on the market to sell. It took me over a year because I would go over there a few hours at a time when she was with a sitter. All while working part-time and trying to help my sick brother who died.
Eventually she forgot all of that nagging and acted like I had sold her house without her permission.
She's full of criticisms and insults and fault-finding, rather than being even a little bit grateful that she has 24/7 one-on-one care in my home - mostly by me.
She is the same discontented person she always was. She will suck the life out of me - or whatever sitter is with her - by whining and demanding without ceasing. It literally goes on all.day.long.
If I ever try to enjoy a phone call, or am having a conversation with one of the sitters or her physical therapist, etc., she will angrily say "no one is paying any attention to me!!!" And there we have it.
Anyway, all of that to say that you have to figure out how to not get triggered or made to feel guilty by whatever accusations your mother comes out with.
Realizing that properly caring for our loved one does not include the responsibility of making them happy or contented is freeing.
Get an Adult Protective Services involved, they handle situations like this all the time. You will need to see and elder care attorney to get POA if you don’t have it already. You will want a Drs diagnosis…tell Adult Protective Service she refuses to go to. Dr. Show the she cannot live alone and cannot live with you. They should be able to help get her placed.
Sorry you have to hear her spew hate, for some reason, it’s common with dementia. You and your family do not want to live with that. Get her placed in assisted living ASAP.
My point is always check bladder first. Seriously this forum saved my samity with that info. <3
Years before she was also super crazed with post icu delirium / bladder infection she was sent home with after a kidney blocked up by a stone and shut down. She was like.. crazed/panicked until the right antibiotic was Rxed.. then nthe next day I woke up on her couch, smelled she brewed coffee saw her on her PC and it was like omg thank god she's back