Follow
Share

Her facility is pretty awful. They don't change enough which resulted in the uti. She says she has eaten when I visit even though I see food on tray. She won't eat what I bring her. I don't know what to do. Before this she called all the time. Now she's confused. They did eeg in hospital and it came back fine.


As far as the facility they tried to hide the UTI until she was almost unconscious. ER doc said she was fighting EMTs and they put her on a ventilor for several days.


I am a single only child with no family support or car. I am searching for permanent housing myself. I am willing to send her somewhere else if her care us better. I can try to move there.


My question is how long does it typically take to recover from UTI delirium? Also not eating can't be helping. I ask facility questions but they are more about protecting themselves and will lie. It's bad cause I have to work and take a lyft everywhere so I can't visit daily like some.


Also my mom's arm made some type of seizure like flinching in hospital... don't know what that is. They just rushed to release her quick.


I cannot quit my job to monitor this. Any help or ideas would be much appreciated.

This question has been closed for answers. Ask a New Question.
Find Care & Housing
do you have medical POA for your mother? then the doctors at the hospital must inform you of her diagnosis, even if she’s already been discharged.

very bad UTI can lead to sepsis, which can create permanent damage. did she have sepsis, or only UTI? sepsis can damage the mind and body.

only the doctors know her medical situation. you don’t trust the facility to answer honestly, so ask the hospital doctors.

if possible, please move your mother to a better facility.
Helpful Answer (10)
Report
Trying76 Jun 2023
I do.
(1)
Report
See 2 more replies
I'm so sorry you are going through this struggle... I'm an only too and understand the impact of lack of support.

Please know that UTIs are extremely common among elderly women, not just from hygiene but because of physiological changes such as pH and anatomy (ie the bladder muscles weaken and then doesn't fully void when urinating).

In the facility, if she refuses to take the antibiotics for the UTI it is possible she hasn't received ample treatment. Or, if she's in AL she may not be paying for someone to dispense the meds to her.

Talk to the admins or nurse of her facility to find out if she's getting help taking her antibiotics. If not, then this is where I would start to figure out a solution.

If she was at the ER for a UTI why was she put on a ventilator? This has nothing to do with a UTI. Did she have pneumonia and that's why she was "almost unconcious"? Does she have any other medical problems, like COPD?

If you are not her PoA or even her Medical Representative then the medical staff won't be legally able to share her info with you. If no one is her PoA and she is beyond having cognitive capacity to assign one, then eventually either the county or facility will become her legal guardian. Then they will make all her decisions and you won't have any control (although a good guardian will seek your input and consider your situation as well). I wish you success in helping her!
Helpful Answer (4)
Report
southernwave Jun 2023
Sepsis, maybe?
(1)
Report
See 2 more replies
I’m curious if she has diabetes. Thanks.
Helpful Answer (0)
Report
Trying76 Jun 2023
No.
(1)
Report
OP, if she had sepsis google “post sepsis syndrome” for more information. Lack of eating is one symptom.
Helpful Answer (0)
Report
southernwave Jun 2023
“The risk of having PSS is higher among people admitted to an intensive care unit (ICU) and for those who have been in the hospital for extended periods of time. PSS can affect people of any age, but a study from the University of Michigan Health System, published in 2010 the medical journal JAMA, found that older severe sepsis survivors were at higher risk for long-term cognitive impairment and physical problems than others their age who were treated for other illnesses. Their problems ranged from no longer being able to walk to not being able to participate in everyday activities, such as bathing, toileting, or preparing meals. Changes in mental status can range from no longer being able to perform complicated tasks to not being able to remember everyday things.”

https://www.sepsis.org/sepsis-basics/post-sepsis-syndrome/
(3)
Report
Trying,
you do not give us enough information here.
It sounds as though your mother is aging and in care, but that she is debilitated and deteriorating badly.

While an institution may MISS a UTI, I cannot imagine their HIDING it because patients with a UTI are almost impossible to care for. As to WHY she has it, her incontinence is a problem but more a problem is her AGE (can you tell us what it is) and the normal aging thinning of the muscus membrane lining of the urethra that TYPICALLY makes women so prone to UTIs and other factors of aging.

As to the poor appetite, this is an ongoing problem for seniors and they take in less and less food with the aging and debilitation problems. Ultimately and finally they stop eating. Tube feedings can and are used and in my humble opinion serve only to prolong the torment.

If this UTI has returned ask what dipstick testing is currently being done or when a specimen was last sent. It is almost impossible to get the needed clean-catch specimen in such a patient without catheterization, and that again introduces bacteria. It is a VICIOUS circle.

There may be more going on now. You may be looking at further mental deterioration not involved with UTI. It may be time for Hospice care. You may be looking at end of life care needs. This will also provide a bit more support to your Mom and the staff attempting her care.

I hope that you can tell us more about your Mom. I looked on your profile but there is no information as to her age, condition, how long in care, underlying disease and etc.

I wish you luck and hope you'll update us with more info. For now try not to blame the facility for everything that is happening with and for your mom. They are dealing with these symptoms with any number of people and are as frustrated as you in what to do. In truth, with the aging process, there ultimately is nothing that CAN be done. I'm so sorry.
Helpful Answer (7)
Report
anonymous1732518 Jun 2023
Your third paragraph 😆. Have you tried the food in many NHs?

No wonder many seniors won't eat the food.
(5)
Report
See 2 more replies
Did the heart doctor inform you about the sepsis? Who was being sneaky & lying about it? I don't have much faith in the health care system after what happened with my mother.
Helpful Answer (3)
Report
Trying76 Jun 2023
No the facility knew and my mom's friend who works there asked. She told me.
(3)
Report
Trying,
I don't know how much you know of sepsis. My brother died of it and it is very much a killer when our big gun antibiotics won't work. It can come of the UTI but it can move through into the bloodstream from any infection anywhere in the body. My brother had a tiny non-healing wound on his shin that no one noticed.

If you are dealing here with sepsis then you need to speak with the doctor. This will be, until there is a cure, a touch and go, life and death situation. Sepsis can shut down the major organs in the body within a week time, and they fall more or less one after the other like a line of dominos.

I wish you the very best. The POA needs to be in touch with the treating MD, the nurse manager and the social workers to coordinate CORRECT information on a daily basis. I hope you'll keep us updated and I wish you the best. This is very critical.
Helpful Answer (7)
Report
Trying76 Jul 2023
She no longer has the sepsis but it appears to be causing her to need oxygen. Maybe this is normal recovery time.
(1)
Report
How did they lie about supplies? Also, she may have had pneumonia that ultimately resulted in sepsis. Telling you she had pneumonia doesn't mean they lied!

It's not clear if she is still in the hospital or in another kind of care facility. Where she is makes a difference in her options. If in the hospital, you need to arrange to talk with the doctor who has primary responsibility for her care and tell her/him your concerns.
Helpful Answer (1)
Report
Trying76 Jul 2023
First of all, I know this place is shady based on other stuff they do. The nurse supervisor is now saying pneumonia. The hospital said uti and her facility front office told her friend who works there that it was uti that got so bad it turned septic. She is back to her old self except still needing oxygen. The constant miscommunication is crazy. Her medical records now say Copd which she has never been diagnosed with before. Our local hospital is very bad and the they constantly get sued. The copd was discovered on her medical report when facility sent her back to hospital last week for the carbon dioxide being too high in blood. They sent her right back and said with copd thats normal. I told them she doesn't have copd. She never needed oxygen this long until now. Someone is incompetent and it's not me. I ask questions and can never get a straight answer.
(5)
Report
See 1 more reply
Your questions need to go to a doctor, not a forum like this.If you are not happy with her facility then find another.Think about taking a leave from your job to help your mother.
Helpful Answer (2)
Report

Trying76 come back and tell us what happened
Helpful Answer (3)
Report

Mom may still have an UTI. Was a urine culture done to make sure it was cleared up? UTI's are hard on elderly and affects their brains and mental clarity. Once they have an UTI they are prone to more.

Good information below and definitely talk to her doctor. See the facility director and voice your concerns about her care and eating.

Look online to see how mom's facility is rated by medicare. Frequent UTI's in the facility is a red flag.

Next hospital stay get the social worker involved to possibly get her into another facility.
Helpful Answer (4)
Report

Call Adult Protective Services to have her evaluate for a new placement.
Helpful Answer (2)
Report

Speak directly to her primary care doctor; speak with facility ombudsman or patient rights representative; speak directly with facility administrator/ clinical supervisor. Request facility social worker to call you and, enlist the help of that social worker or another one to assess facility placements options and/ or care options.
Make it clear to the facility administrator that you are pursuing all of the above paths of communication toward appropriate care for your mother. Get social services help for yourself also.
If none of the above helps with your mother, call APS, Adult Protective Services, and report the situation in the facility.
Helpful Answer (1)
Report

It's very possible the med she was given two weeks ago did not work. She needs to have urine tested again right away. Tell NH to test her again. She may need to return to hospital (they can take her via ambulance or other) to get IV antibiotics. The delirium is pretty good indicator she still has UTI or something else going on.
Helpful Answer (4)
Report

Gosh I read your update and I feel that way too. No one gives strait answers. Can your mom get appointment with a lung doctor. I think their called pulmiinary doctors who specialize in emphesema and copd. If that's not the right name look up lung specialists. Did your mom used to smoke? It can cause emphesema or copd.

I don't think I would believe the people telling you she has that if she never was diagnosed with that before. They sound too sketchy. I swear sometimes they just say anything if it sounds good when they don't have the real answer.
Helpful Answer (0)
Report
Trying76 Jul 2023
Never smoked or any lung issues. I have never heard of sudden onset COPD.
(3)
Report
See 1 more reply
Trying76: I am so sorry that your mother developed sepsis. Prayers sent.
Helpful Answer (1)
Report

Of all the things you've told us, one of the most disturbing is that it appears your friend who works there is getting information about your mother's condition. Unless your mother has specified that it's OK, it's not OK! The hospital or AL should not be giving specific medical info about your mother to your friend!

I do fail to see what the problem is about the supplies outside your mother's room. Whatever you thought about them is not the hospital's/AL's fault! BTW, like several of us, I'm not sure where your mother is right now. Is she at home in the AL or is she now in the hospital again? It makes a difference in terms of what is being done for your mother. Thank you!
Helpful Answer (0)
Report

It took my Dad a couple of months after his UTI went septic before he "came back" to reality, but he also had brain tumours.
She may need another round or stronger antibiotic. I would ask that her urine AND blood get tested again.
Helpful Answer (2)
Report

Its been two weeks since you posted your question. Has there been any improvement in Mom?
Helpful Answer (1)
Report

Just adding my 2 cents here, I was almost in a similar situation. Might there be a social worker or case worker you can discuss your situation with? See if the facility has one available? Sometimes your community legal services can offer advice or a senior medical service online. You need back up.
Helpful Answer (0)
Report

As long as your mom is fighting the infection - taking antibiotics, has a fever, has urine that is "off" (smells bad, looks cloudy, color off)... - she will be having toxins from the killed off bacteria floating in her bloodstream. Those toxins are responsible for the confusion. Making sure she drinks plenty of water and water-based fluids will help. Making sure she is toileted every 2-3 hours while she is awake. That is the standard in hospitals and long term care facilities.
Helpful Answer (1)
Report

This question has been closed for answers. Ask a New Question.
Ask a Question
Subscribe to
Our Newsletter