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Just out of nowhere she'll yell out and she won't stop until you answer her. She'll continue with, "Hello, hello?" Then she'll say, "Did you call me?" or "Did you say something?" For her to shush I must answer her and say, no, I didn't call you or say anything. Lord, help me. Is this happening to anyone else?

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Yes, although the words were different. Talk to her doctor about her wakefulness, they may be able to give her something to help her sleep through the night, with my mom it was mirtazapine but that may not be suitable for yours. Another thing that helped was a baby monitor with two way communication so I could answer her without getting up.
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aging44 Mar 14, 2024
Thanks.. when nighttime comes around she gets anxious and will ask
me if If she can sleep in my bedroom with me. She'll lay the guilt trip on me with sad face and hostility. She'll sometimes say "I wish we could have a sleepover." I say were not children.." and she'll huff and puff.
It's a ritual here every night.
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No, I didn’t have that experience with my mom but she had frequent nightmares and would scream in the middle of the night and I would wake her up from her bed dream.

Mom was also trying to walk out of the front door in the middle of the night. Her doctor prescribed Seroquel and Ativan and she slept more peacefully.

Have you spoken with your mom’s doctor about this situation? Perhaps, meds would calm her down at night and she would be able to sleep without disturbing you.

I’m sorry that you aren’t getting enough sleep. It’s miserable for us to be exhausted the next day and have to endure being a caregiver.

How long has this situation been going on? Do you have any help with caring for your mom? Please seek help with your caregiving responsibilities when you need it. Call an agency or consider looking into facilities and become your mother’s advocate for her by overseeing her care by a professional staff.

Wishing you peace as you navigate through this difficult period in your caregiving journey.
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aging44 Mar 14, 2024
No help. I'm doing this alone. I can't see having anyone come into our home space. This is what it is now. Thank you 💓
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I doubt if it’s a habit. If she has dementia, she probably can’t help it. Either you need help or she needs meds. Maybe both.

Home care by family usually doesn’t work for long. When their condition gets more serious, professionals are necessary.
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It may be part of Shadowing or may be she is having auditory hallucinations. Is she hard of hearing? Does she normally wear hearing aids?
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aging44 Mar 14, 2024
She has a hearing problem but refuses a hearing aid. She
is anxious at night and i cannot close her door more than half way because of her anxiety. I cant close MINE either. If i dont leave my bedroom door open alittle she goes bananas. Separation anxiety.
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@needhelpwithmom because it wouldn't be home anymore. I couldn't deal with it.. had a physical therapist for mom for short term and it was just 2x a week and while it was beneficial and helped mom it caused stress..
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There comes a time when it’s too much, and that’s when the elder insists on having doors open. The next thing will be having the bathroom door open since she “worries” about you.
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My mother has done that. Didn't help my sanity as I was already having trouble sleeping due to the stress of being a live in caregiver for her. She'd deny that she called for me the next morning, and I could not tell if she genuinely didn't remember or simply lied, because she does a lot of the latter too.
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This is very typical in dementia and it often doesn't help to do anything other than have a baby monitor in her room so that you can more readily know she is up and in need of help.
I recommend Gretchen Staebler's fine book, Mother Lode. This memoir is about a woman taking care of her Mom from her 90s until she was 102. While she tried hard to keep her in home, the necessity of being up so much at night was one of the worst problems. Eventually, despite years of keeping mom in home, she was placed in care, where she actually did very well.
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