My mom is in the hospital now after she fell 2 weeks ago & never got any treatment then but the pain got so bad she must have fallen again & defecated all over herself & I found her sitting in it so I called paramedics to take her to the hospital.
So the ER doc told me that she will be there for a while, then I should consider putting mom in a nursing home since she shouldn't be living alone anymore & can't get around very well.
My mom receives Medicare & Medicaid.
Only $686 a month social security.
Has no savings, no other assets.
She does have a reverse mortgage on her home which is about 50% tapped out.
She can only get another $50,000 left from the RM.
Where can she go to live & get the care she needs after her hospitalization ?
I'm afraid because she is so low income that if its a nursing home it will be a bad one where patients are abused & mistreated.
Have heard horror stories & seen video of nursing home residents being battered by the staff, I don't want my mom to end up in a horrible place like that..
We live near Chicago.
Please help!!!
We did this when mom was in AL, fell, broke her hip and it was clear she was going to need rehab and THEN permanent NH care. We worked with the discharge planning folks, telling them about mom's finances so that they could tell us about places that would accept private pay first and then let her stay on as a medicaid patient. Ideally, you mom goes to rehab at someplace that will take her with her Medicare payment during rehab, private pays with her RM funds and then is accepted as a Medicaid patient.
When mom is on NH Medicaid, her Share of Cost will be her SS check and whatever other income she has (unless she has a living spouse). She will be allowed to keep a small Personal Needs Allowance (betweeen 35 and 90$ a month, depending upon what state she's in). Because all of her needs are being taken care of in the NH, money will be spent on haircuts, replacement clothes, etc). It seems like a reasonable arrangement to me, when the Fed/State is picking up several thousand $$s a month for her care.
I'm not sure how getting her a small apartment would work if she needs full time care. That doesn't seem like a very good plan. You'd need to pay for 24/7 aides, unless Medicaid covers that in your state.
You should have a choice as to which nursing home she enters, if approved for nursing care. You may want to google on "FL2" which is a hurdle for getting approved for nursing care.
You may want to engage an elder care lawyer for assistance.
Grace + Peace,
Bob
http://info.dhhs.state.nc.us/olm/forms/dma/dma-372-124-ach-ia.pdf
Grace + Peace,
Bob
2. Consider the age of the doctor. In my experience, it's not unusual for younger doctors to first consider a nursing home, after only a brief assessment of the patient, generally in a bad condition.
It took me a while to realize this and I did so only after a bad experience with a younger doctor. In retrospect, I realized that I had experienced this more than few times before, so now I try to find older doctors.
3. If you can get a geriatric doctor involved while your mother is in the hospital, do so. You can ask the charge nurse how to accomplish this.
4. In the meantime, get a list of potential placements from the discharge planner, research Medicare.gov to determine which might be the best facilities(Medicare rates them by various categories), then call the facilities and ask for a tour. Lunch or dinnertime are busy but give you a good chance to see how much staff there is. But also ask about the patient to staff ratio. It's very important.
5. Research online to see if there are any ombudsperson agencies in your area that deal with nursing homes and complaints. Contact them and ask if there are any with bad reputations.
6. If you do feel and the ortho doctor supports that your mother can live at home, start making arrangements for a medic alert and Meals on Wheels, and ask about home care nursing and PT after she returns home initially as well as thereafter.
A medic alert pendant or button is mandatory for someone who's fallen and is living alone.
Good luck with your search, but remember that these next days and weeks may seem overwhelming. I find it's best to make a checklist of everything for the short and longer term future, so I don't forget anything, as I did once and ended up having to move my father from one place to another.
PACE provides a day center, lunch, doctors, nurses, PT, OT, SLP, social worker, home healthcare, pharmacy, and transportation. I know they also provide laundry services, frozen meals and maybe other things I may not be aware of. This program has enabled us to care for our mother (in a senior apartment-her house was too big/expensive to maintain) without putting her in a nursing home.
Also, just because a doctor said your mother should be in a nursing home, doesn't make it so. Give your mother a chance to recover and regain some independence instead of automatically looking into nursing home care.
Since she's already on Medicaid, that's a big hurdle that's already been overcome. DO NOT assume that any skilled nursing facility that takes Medicaid is going to be a 'bad' one! Every county-owned nursing home takes Medicaid and, in our area anyway, they are on par with the best in terms of care. They're just not as fancy in the decor department.
Also, I don't know what your state's Medicaid laws are regarding assisted living, but if it's covered, see if mom can regain enough independence to get a placement there.
As for the reverse mortgage...go see a qualified elder law attorney ASAP! Even though it's not a huge amount of equity that's left, it's worth a few hundred dollars of a lawyer's time to talk through the options.
Who pays her rent?
I can't afford to pay any rent for my mom, I struggle to pay my own at times.
So if my mom has to stay in her house, would the program you mentioned (pace) still apply to her?
Also you said your able to care for your mom in her apartment, do you preform the (nursing care) yourself or do you have nurses stay w/your mom?
My mom can't be left alone so she would need nurses 24/7.
This is something I'm learning that Medicare or Medicaid will not pay for.
I wish I could convince my mom to sell her house, take any remaining equity or what's left of the rm & move to assisted living but I don't know if that would be allowed (by the benefits that would be available to her because she will sell her home)..
Would an elder law (as someone else mentioned-thank you) attorney know all this??
While your mom is at rehab, this might be a chance to check out a few. If you find any that seem nice, you can ask them to put your mom's name on their waitlist (if they don't have immediate occupancy.) That way, if you are not happy with the place she begins with, you'll have other options lined up. (You can stay on the waitlist indefinitely, so if they have a space for your mom and you don't want to move her yet, just ask them if they can keep her on the list and call you the next time a space is available. ) In our family we are worriers and it helps to know there's a plan B when we're making big decisions like that.
My mother also requires 24/7 care. So working with PACE we are able to cover her this way...
She goes to the day center Monday -Friday.
8:00 a PACE provided CNA comes in to get her dressed and feed breakfast
10:00 the PACE bus picks her up and takes her to the center
4:00 she returns home - another PACE provided CNA comes in feeds her a snack and dinner until 9:00
We privately hired someone to be with her overnight.
The PACE provided CNA also comes in from 8-4 on Saturday. The rest of the weekend we cover.
The CNAs help with keeping her place clean and laundry
I feel like we have effectively created an assisted living facility in her own apartment.
My mother house is not a factor for us. She was able to use all the assets from her home to remodel, etc. years ago. The amount of the loan is greater than the house is worth so we will just return the house to the bank.
This arrangement is working for us right now and my mother is happy in her own place.
.
If I want to retain any profit from the sale of the house, I will need to repay the rm what is owed (zest money my mom has used so far, including interest), then of the sale exceeds the amount due, I would get the remainder.
If house sells for $200,000 and mom owed $170,000, I would get $30,000 I suppose.
The great part of having her in rehab is that it creates a window of time to work out the whole "stay or move" & house situation without mom being at the house. Do what you can to be positive about her rehab to keep mom on track with "progressing" in rehab so that she can stay ok for the maximum # of days under Medicare coverage.
The RM is probably going to be a real cluster to deal with. RM's have a pretty specific compliance requirements for the RM to stay in force. If they move from the house, the RM will be called in. I'd be very cautious in taking the remaining line of credit (50K) left on the RM and then mom moves into a NH and out of the house. Doing this could be viewed as a fraudulent gain of funds under the terms of the RM and you as her DPOA could be held accountable. If the house could sell and repay all the principal, fees and settlement charges on the RM, it could work out but if there is a negative balance on the RM, you could face issues in doing this. Understand?
Remember mom is responsible for paying all taxes, insurance, repair, utilities on the property under the terms of most RM's. Taxes are coming due in January for most areas too. Defaulting on any of these, could place additional fees on the RM.
How long has your mom been on Medicaid? You kinda need to find out to see if your mom start date for Medicaid is within MERP rules for Medicaid recipients. If she got onto Medicaid after 2005 or 2006, she's under MERP. All the states now have a requirement (MERP) that if they are over 55 and on Medicaid for LTC and most community based programs, that the state has to attempt a recovery of all Medicaid paid on them from their assets. If the RM gets paid off and there is any extra $ left, it will need to either be used to repay the state for Medicaid costs paid on her OR she will need to spend down the amount as she will be ineligible to continue on Medicaid due to the increase in her assets (her share of the proceeds from the sale of the house left after the RM is paid off). There will not likely ever be any funds left to you as her heir or beneficiary of the trust. So keep this in mind if there are any costs on the house that need to be paid between now & whenever it's sold.
Regarding PACE - this is kinda the new current trend for community based services for the elderly. There is a one by us (Benson Center, New Orleans) and it provides a pretty wide & encompassing range of services & activities. But one thing to keep in mind for PACE, is that family is expected & required to be able to provide any caregiving or support needed when the elder is not at the PACE center or a PACE provided caregiver. If there is not family able to fully do (or family hires & pays for caregivers) whatever coverage gaps exists apart from PACE, then PACE is not going to work for you. Also if the # of hrs needed for care and provided within PACE exceeds a certain # of hours (maybe more than 32/38 hrs a week) then they will be discharged from the program as the cost/benefit is over the formula for effectiveness. They are better served in a NH or other skilled nursing full-time caregiving facility. Ask social worker & nursing staff at the rehab place as to what realistically what mom will need as far as day to day support services to go back to live on her own.
All this is a lot to deal with and your gonna be overwhelmed. Try to break things down and have mom stay in rehab as long as possible within Medicare rules to get an idea of what the options are (or aren't). Good luck and keep a sense of humor going.
Pay for nursing care (24/7) w/the remaining $ left on her RM, then when that runs out, she may have to go to a NH that Medicaid will pay for.
If my mom outlived her $ from the RM, then I will have to deal with where she will go.
It's all too much right now.
I have been prescribed Effexor from my doctor today for anxiety.
Hope it works.
Thank you for all your help & suggestions everyone.
You have no idea how much this helps me.