Hi all,
Has anyone experienced extreme anxiety or panic attacks when dealing with your LOs health issues? I'm starting to feel panicked about this like I'm not qualified or I'll do something wrong, etc. even though I've been caring for elderly LOs for almost 10 years.
If you've experienced this, what do you do to alleviate it?
Thank you!
The transplant was a success, although not w/o a ton of drama, near death and a re-admit due to sepsis. My Dh changed personalities 180--going from a kind and loving man to a grouchy, old angry person I don't even know.
He refused post op therapy and needed it, badly. It's been 15 years and he didn't ever really get better. After he was back to work, I had a total (hospitalized) breakdown. I've had to deal with living with a man I barely like, much less love. He's not mean, or bad, just has no energy and no desire to do anything with me. Our marriage essentially ended on 9/11/06 and since then I have been a FT caregiver and nurse.
I had to go on antidepressants and anti anxiety drugs. Therapy on how to live with a person I didn't like much. He looks on me for EVERYTHING and it's exhausting. I'm still working on NOT letting his anger/depression be MY problem.
Weirdly, he can work FT when needed, the rest of the time he is in bed, asleep. It's been a real joy.
I've created a life of my own. I don't apologize if I don't feel like making dinner. I had cancer in 2019 and he did not one thing to help me. That was the frosting on the cake.
We live like brother and sister. It is what it is.
I don't think my way to alleviate the stress/anxiety I feel has been particularly healthy. I'm actually quite lonely, and I wish all my friends weren't married or would go out w/o their DH's--I love to go out and such, DH has zero energy. He mowed the lawn (for me, he said) today and then was so exhausted he had to go to bed.
Looking back---I probably should have divorced him after he healed from the transplant, but I really wanted to prove to the world how tough I was. All it did was make me depressed beyond words.
You are probably being very hard on yourself. Trust me, you're very likely doing the absolute best you can and simply not getting much 'thank you' for it. We all need to feel gratitude for what we've done!
Take care of YOURSELF!!!!!!!!!!!!!!!!!!!!!!!!! I did not and suffered profoundly for it.
It is a huge responsibility to care for someone and it truly becomes a burden. I went to a therapist. I reached out to this forum for comfort. I also went to an in person caregiver group that I really liked.
You can also speak to a social worker to help guide you. If you truly feel overwhelmed, it may be time to allow others to do the caregiving. There are nice assisted living facilities and skilled nursing homes that will care for your loved one 24/7 and you can regain your life back.
You will be able to be an advocate and visit as often as you like.
Wishing you all the best.
I also started yoga and trying to go back to my routine. What is happening with mum + the pandemic certainly took a toll on me. I try to go to the office as often as I can and I avoid working for home. Staying at home the whole day working and taking care of my mum who has been completely bedridden for 6 weeks made me feel I was trapped and that I never would have my life... And the death of 2 friends last year made me think I risk to pass before my mum...
Try to breath deeply and slowly.
I have also read some psychology books on assertiveness.
Just make the best decisions you can at the time they need to be made..
Just a thought: is your loved one anxious. controlling, or having a lot of negative behavior? If so, you might be picking up on their anxiety which makes you anxious. They may need their anxiety treated by their doctor with anti-anxiety medication.
I continue to do the meditations on calm.com, there are “emergency calm” meditations for 3, 5 and 10 minutes. You can get a free 7 day trial. I also now see a therapist. It’s taken about a year but I can sleep better and don’t have the scary panic I used to.
I suffered from panic attacks since I was a little girl so I basically lived with them all my life. When I was in my 20's I went to a group therapy class designed for phobias and panic attacks which met once a week for 3 months. I did all the homework they assigned and when the class ended I was no better. Long story short the doctor that ran the group put me on medication which helped me.
Some people are just born with low serotonin which runs in all the females in my family. My Mom suffered from anxiety and panic attacks as well as my older sister.
On the other side of the coin panic attacks can be caused from stress and certain triggers such as caregiving.
Besides medication if I'm stressed I write down all my feelings on paper and that helps me. It's like purging all my anxiety and transferring it to paper.
I have also done yoga which really helps. If it's difficult to get out to take a yoga class you can do it at home in front of your TV. You can first try it out by watching youtube video's and if it helps you can buy a cd.
Exercise also helps gets rid of anxiety and raises one's serotonin levels. I love Leslie Sansone's Walk Away The Pounds cd's. I feel so relaxed after doing 1 or 2 miles of aerobic walking in front of my TV.
I hope you feel better,
Jenna
Beleve in yourself and Do the Best you can, as that's all anyone can do.
I also do a lot of reading to keep up on new thoughts,, ideas with whatever the loved ones dealing with.
Also, make sure you don't get burn out by remembering to take care of yourself because if you don't, no one else will then you will be absolutely useless to be help for the loved ones.
Prayers
Prayers
One night before bed, I was taking a deep soak and happened to pick up an old Oprah magazine that had an article by Martha Beck. She said that when these feelings came, to ride them out, knowing they would pass. Just sit through it. Don’t run. Something about the way she described just how I felt and just what to do resonated. So I tried it and it worked. I knew if I just waited a bit, it would pass and I could go back to sleep. That was many years ago. Now when I wake In the night I notice I have a nauseated and breathless feeling. Very yuck. I remind myself of anxiety and know that this will leave if I release it. So that’s part of it, to recognize that uh oh, Here it comes. I don’t have to be afraid. I just wait for it to pass. To dissipate. To not go chasing after it.
Google Martha Beck on panic attacks or caregiving or anxiety and there were many links. If you aren’t familiar with Martha, check her out.
It sounds like your stress and panic are stemming from the insecurity of not knowing what to do or how to handle it. Not sure of the specifics of what you are up against, but if it involves an illness, like dementia or alzheimer's, check and see if there is a local organization branch or support group. I think if you share your concerns with another or others plural, you will feel better, know you're not alone, and may be pointed in the direction of some actual support or classes. Your loved one's MD or office may be able to guide you. You can always come here! Heck, none of us have all the answers and some of us take it a day at a time and deal with a problem at a time, creating our own solutions...some work, some don't. But know you tried and take comfort in knowing you are doing the best you can in a tough situation. I reached out for help from Hospice for my mother with dementia. There are some good people and good efforts, but truth be told, it has been an eye opener and the expectations of me have only increased. Is that helpful? I'm not sure. I found a solution to one tiny problem...night gowns needed to be laundered more frequently... and found these great washable hospital like gowns that have more coverage and cute prints...called Gownies....but dear god did I feel inept the other night when I couldn't seem to figure out how the hell to snap them back together! I know, it sounds insane...but it threw me! And I've said many times here, you be sure to take care of YOU. In my case I thought I had a handle on it all, part time social work job, dog mom, caregiver, chef, laundress, bookkeeper, advocate, manager...and then one day it all caught up with me no doubt blood pressure a factor, and I wound up going for a helicopter ride to emergency surgery, nearly dying of an aorta dissection. PLEASE do not risk that happening. Take good care, and remember we are here for you....also might want to touch base with a mental health pro or your MD for some meds that might help at especially rough times. Make sure you get some potassium and magnesium in. and remember, YOU'RE NOT ALONE. None of this specifically answered your question...and this from someone with a history of having had panic and anxiety attacks in my 20's. Now approaching 60+. I had a therapist at the time who was of limited help. He was arrogant and took that stance sort of, of what doesn't kill you makes you stronger...and no one ever died he claimed of a panic attack. SOB. I rode them out without meds for better or worse. At one point realized that I might be hyperventilating, so kept a paper bag handy to breath into. You say you've been caregiving for 10 years...that makes you a pro! Clearly you're doing something right. And lastly, maybe give your local area agency on aging or 211 if it works in your area a call...they can connect you to local resources. You might be able to get some additional help and learn from them to show you that you're not doing a bad job at all. IF the medical types have pushed some medical tasks/care on you, raise some hell. Tell them you are not trained and not capable and WILL NOT continue.
My advice is to find one or two knowledgeable people you trust, ask their advice and do what seems right at the time. When it comes to caring for others, there is almost never just ONE right solution to anything. You just do the best you can. Angels can do no more.
Hopefully, your LO will realize that you care about them. But if they complain or argue, realize that they are stressed and/or frightened, too. In a situation like what you are facing, perfection does not exist. You are to be commended for undertaking the tasks you face. Give yourself a break!