Six months ago Mom was diagnosed with early-to-mid-stage Alzheimer's dementia. Before the official diagnosis, her decline in cognition had been apparent to her family for at least 6-7 years. To conceal her memory loss, Mom isolated herself from friends over the years and amazingly still manages to fool them into thinking she is "alright." I should mention that even before the diagnosis Mom has always been negative, self-absorbed, grandiose, blaming everyone but herself for her self-inflicted woes. Mom takes no responsibility for her emotions. It's always someone else (myself, my sister, or my father, etc) answerable for her misery and dissatisfaction, and the dementia only worsens her negativity. When my father passed away last year, my sister and I (against our better instincts) offered to have Mom move in with one or the other of us, which she refused. So, upon her MD's recommendation, my sister and I placed Mom in memory care. After 6 months, Mom has yet to settle in. She insists she doesn't belong there and scorns the scheduled activities. My sister and I call Mom regularly and take her out (often multiple times a week) for lunch dates, shopping excursions, church; anything we think she might enjoy, not to mention getting her to her doctor and dental appointments. In the meantime, as her POA I manage Mom's property, bills, and finances, making sure her needs (and many of her wants) are met. Mom is seldom thankful for any of our efforts. She complains about my sister and I to anyone who will listen, saying we "take advantage of her," "have no compassion," etc. I think she's looking for sympathy and strangely enough, often gets it from people who don't know any better. Here's my take on all of this: Mom's dementia is exacerbated by her narcissism. I have ceased trying to attribute her conduct to one or the other or both. What difference does it make, anyway? My sister and I still have to deal with the character assassination, the utter lack of gratitude, and constant complaints and demands. Thank God Mom didn't move in with us. In light of years of emotional abuse at her hand, I'm amazed I ever made the offer to begin with. So today, here's my question to any and all who have dealt with similar situation: Mom constantly demands to be removed from her current memory care to assisted living. My sister and I have explored other options but none (other than memory care) meet Mom's genuine needs for supervision and safety. How do we best respond to Mom's demands? Reasoning is useless; her lack of cognition prevents understanding, and at this point in her cognition, she's impossible to redirect. Mom seldom remembers much from day to day about our conversations on this topic; at most, all she remembers is her own feelings of outrage at our "failure" to cave in to her demands. I am exhausted with all of it. Please help!
Not ONE of the people I have met there felt they "belonged" there. Not one. I think that belief is pretty true in EVERY facility. It IS sad when the only safe/humane option for a loved one is a facility, but it often is.
Having said that--you and sister are WAAAAAY too involved with mom's care. She's likely paying quite a bit for services that you are taking her out of the site for--hair appts, meals, etc. You will burn yourselves out completely. AND mother won't care, as a narcissist never changes. You're never going to have her approval, sadly, and the harder you try to get it, the more she'll withhold. I'm not saying this to be mean, but to share with you what I have learned as the child of a totally self absorbed mother.
To others, she is "adorable" "sweetness itself" "amazingly thoughtful"--and yes, she can flip these qualities on and off like a switch. She can also turn around and say the most amazingly awful things about the person she just "conned".
I am still (age 60!!) trying to NOT let the bad stuff my mother says to me affect me.
Sometimes the only way to deal with her (and perhaps your mom, too?) is just to walk away, or as I put it, put myself in timeout. I will go a couple of weeks and not contact her. She doesn't even notice. She can't remember my phone number (same one, 38 years!!) and so she does not call.
You need some distance. She'll fuss and such, but please get some time to yourself. Talk to sis and be on the same page about how you're going to step back and stick to it.
I'll bet you she'll be making friends and trying to charm the staff if she doesn't have you two to pick on. At any rate--good luck.
She seems to focus so much on her needs that I feel like it crosses my boundaries ....that I desire. And respect that I desire. Don't know what to do.
For some strange reason reading others delimma help me. Sorry to say. But I can't believe others share the same . WOW
Did counseling help? I suppose I could go to counseling because of my mother, but I'm not really interested in spending my money to probably just have meds pushed on me. I take enough meds, already. And many psych meds cause weight gain. I will NOT take them.
Besides, I already know the answer to my difficulties with my mother. Since I will not be persuaded to "put up, shut up, offer it up," my coping mechanisms are to get lots of physical exercise and to distance myself from my mother as much as possible.
My mother could use a geriatric psychiatrist because of her many anxieties. It was suggested by a neurologist. No way! My mother refused to consider it. I brought this up to my mother's PCP, and her answer was that she doesn't like to put her older patients on those meds. Thanks (NO THANKS!), Doctor!
The PCP said that my mother needs "social support." When I just looked at her, she said that "someone" needs to check in with my mother every day to see what she needs. Again, thanks (NO THANKS!), Doctor! That would just turn into a daily list of what she WANTS (not NEEDS).
(And I still don't understand how this "social support" in the form of my mother giving me the Daughter-Slave my daily list of demands will help when my mother is paralyzed with a "panic attack" as my mother calls it. One time she was paralyzed for quite a while, until she finally eased herself down onto the floor and crawled into the bedroom to her phone to call me. Her life-alert button was in the other bathroom.)
I hope my story helps you and gives you hope to take that first step toward freedom because you will never change the person she is now. Stop waiting for the person you're waiting for her to become, it won't happen. Move on with your life from where you are now into a better future.
A final thought is narcissists don't want to see you happy, and the best thing you can do for you is to not let the narcissist ruin your day when something really good happens for you. Don't talk about your money or other assets, she's probably trying to find some clever way to gain access to them.
If she can drain you financially, she will. If given your situation, I would never ever buy her anything. Don't spend any money on her, and if you already have, just stop because a narcissist will never be thankful. They are never truly thankful for nothing. Even if you were to jump through hoops or bring them the sun, moon, and stars, they will never be happy or even thankful. The narcissist will never appreciate anything you do for them though they may trick you into thinking they appreciate it but deep down inside, they're never satisfied with nothing you may do for them.
* You will never be able to reason with a narcissist either. No amount of talking will change a thing.
* They always want a better life than you. They want to live the highlife while you are left scraping and barely surviving. They will flaunt this at you any chance they have because they want a better life than you have.
The narcissist wants to have more than you and thinks they are better than you. I'm narcissist will never want their victims to have more than them. As soon as they find out one of their victims has goals for saving money, buying a home or car, the narcissist will find clever ways to sabotage your goals in some cases. This happened to me as I was trying to save for a car and each time I bought something from him, there went my car money. Each dollar I had in savings was my car money and it had to stop and fast. It may be sad, but I'm glad God finally took him out of this life because it probably only would've worsened had he been allowed to live. I don't know how many people he had already taken advantage of up till then or how many more he would've taken advantage of, but the problem would've definitely worsened and we don't know that peoples lives may not of been in danger because of the way he was talking at times. He definitely had a death wish anyway and wanted to set himself on fire at times but gladly it never happened. There were just ways he was talking that were very disturbing and given the chance, no one knows that he might not have actually carried out something with his mental condition. He was not even allowed to have a gun when there were laws about mental patients not being allowed to have a gun, and I'm sure many people were glad this particular person especially could not have a gun because we don't know what he may have done had he been allowed to have a gun. There are just some cases where some people just shouldn't have a weapon and he was definitely one of them. Yes, he was very dangerous. Combining narcissism, dementia and other underlying mental conditions, it definitely spells disaster and you don't need to be caught up in the middle of it. I personally would not even be involved with this person and would quickly disassociate with that kind of person because I'm careful what kind of company I keep just from my past experiences. I wouldn't do it in a cruel manner with the intent of being cruel but rather to protect my own self, my own sanity and well-being. Now is the time you really need to look after yourself and take care of you. Take care of your own needs and drop any and all toxic relationships and surrounding environments that just aren't healthy for you
I have now established a routine of fewer visits, phone calls and outings, and when I do go to visit I'm trying more and more to keep my visit on the premises, taking Mom to hairdresser appt, going on walks, etc. I mean to start a new project that I think Mom might enjoy: recording a verbal account of her earliest family memories. This will be something we can do on site, in her room. Not only will it preserve family history while Mom still has some long term memory, but be good mental exercise for her. Not to mention she'll love the focus on her!
I have now established a routine of fewer visits, phone calls and outings, and when I do go to visit I'm trying more and more to keep my visit on the premises, taking Mom to hairdresser appt, going on walks, etc. I mean to start a new project that I think Mom might enjoy: recording a verbal account of her earliest family memories. This will be something we can do on site, in her room. Not only will it preserve family history while Mom still has some long term memory, but be good mental exercise for her. Not to mention she'll love the focus on her!
Before we placed Mom in MC, Mom had dug her heels in about going to any doctors other than the dentist; saying "There's nothing wrong with me!" Dad (before passing) was so mentally beaten down by her and dealing with his own issues that he couldn't influence her to go to the appointments made for her. She was fearful, I'm sure, of a positive diagnosis of dementia. Consequently, once we finally did get Mom checked (by some miracle of cooperation) the doc found multiple problems that had to be addressed, some by himself and some referred to others. At the MC facility where Mom resides, there was a delay in getting her set up with the "house" internist (not the family's fault) but now he is managing most of Mom's needs. Consequently Mom is having fewer and fewer outside MD visits. The facility has encouraged sis and I to reduce Mom's outings to help her settle, which we've now begun to do, but truthfully, I doubt it will help much; we can only hope. However, it was never suggested to us that taking Mom out would cause her to "slide further into Alzheimer's" but rather it might impede her adjustment to MC. There's a wonderful in-house hairdresser who Mom goes to. Every so often the residents take the mini bus on different outings. Even though Mom plays down these perks, I think she probably enjoys them.
Mom's princess mentality knows no bounds. She expects special considerations, flies into a rage if she isn't personally consulted on everything, even things that are none of her her business. She has complete disdain for the rights or feelings of others. The rules must be broken for her. She is special, always the exception; everyone else can lump it. Her family knows that challenging her isn't worth the backlash of rages, revenge, emotional abuse, etc. How our wonderful father (whom she regarded as a provider-slave) stayed with her remains a mystery.
But now she's threatened with loss of control. The tables have turned. Her family (her "underlings") now call the shots, and regardless of how much tact and kindness we inject in the mix, we're a threat to her inflated sense of self. All we can do is stand firm and continue to act in Mom's best interest. Sadly, the concepts of emotional self reliance and introspection are skills she never learned. She's not going to learn them now.
In answer to your question, Granjan, Mom is sweet to the staff where she lives.
She never complains to them but brings her complaints to me or my sister. I wish she would deal directly; despite her profound memory loss, she's remarkably articulate; however, if her complaints seem legitimate, we bring them to the staff's attention. They report to me she's socially engaged with other MC residents, laughing, etc. and are shocked when I relay her complaints of loneliness, no one to talk to, "I wish I could die," and so on and so forth. Even though I suspect some Mama drama here, we'll have a geropsychiatrist investigate. I don't think such statements should ever be dismissed.
Despite my exasperation, I'm trying to make peace with all of it. I'm so sorry for what's happened to Mom.
Mom is following their direction and engaging in activities, making new friends.
Family IS GETTING MUCH NEEDED BREAK from all her crazy accusations, insults, paranoia and arguments over where she needs to be other than rattling around in her house and loss of all ability to make good decisions on her assets and health.
So I agree with above.
Can't reason with persons with dementia -- no matter how sane they sound at the time.
Meds can help (however, my mom is on no meds whatsoever and that made all the difference) in her function and engagement
Take a break -- that means limit visits to short periods when she is at her best and walk away/take leave from all arguments. Don't engage; just leave and start over another day.
Stand strong. Mom appears to be in the right care level (memory care) so no matter what she wants; leave her put. Going to another facility or care level won't improve anything for her or you.
Dealing with it - Whenever she brings it up just respond "Well mom, you should look into it; talk with your dr and see what he suggests" or "I looked into it; they're going to let you know when a room opens (tell director what's going on and that you have no intention of moving her)-- believe me, won't happen and you are taken out of the equation. Onus is on mom to organize a change -- which won't happen but it stops the argument.
Have a mtg with Director, care team where she is and talk to them about your concerns and distress with mom. They can suggest some coping options for you (maybe even join a support caregiver group) and they have expertise to deal with mom. PS. Usually, we, the caregivers/family, are more the problem then the resident! lol.
Amber A - i am at a loss to add to your description, so thorough [and well written] - several EXACT DETAILS. ["...Reasoning is useless; her lack of cognition prevents understanding, ... impossible to redirect...."] many many times, i've come upon similar writings, but never to this degree. i have said to my sisters, friends and the staff of the IL facility [where she has been for 3 years, and is "just existing, not living!"] that her blame and accusations of stealing are only partly attributed to dementia; she has never taken responsibility for mishaps of any size; it was always denied and/or the blame put on someone else. ["...dementia is exacerbated by her narcissism..."]
oh! and how she can present herself as normal to others, quite an accomplished actor. when one of my sisters visited recently [tho she actually works in a similar facility and is knowledgeable of the disease] she saw first-hand what i have to deal with [i am the lucky sister who lives nearby]
i have visited less and less, eliminating taking her on outings.
as i was about to close, one other topic comes to mind - frequent calls [up to 10 per DAY, for a period, lessened lately] always the same thing "where is my furniture...my clothes...dad n i left the house with nothing but the clothes on our back" and "how much money did we get for the house...how much is rent here...how much money is in the acct...why don't i have a checking acct, a bank card..." these are the SAME repeated questions for about 2 of the 3 years she's been at the facility. i point out to family and staff - why isn't she calling her other daughters, grandson, her sisters, attending the myriad activities available, taking part in her meds-extended life..?.... no, instead: possessions, money...
for the time being, we are in holding pattern, awaiting the disease's slow but certain decline to determine when to move her to nh or mc.
{another observation - or unsure prediction: as she never worked.. [my much-loved 'can-do' renaissance-man dad was her slave, so glad he doesn't have to listen to her anymore] ..she is not experienced in problem solving, and seeks no creative solutions to everyday life [in a uniquely fine facility!] we can only hope that by having careers ourselves, we have some stored 'deal with it' neurons to help keep dementia at bay if/when it hits us...so as to not tax our own sons/daughters with this exhausting relationship}
btw - she just called me [chuckling]" the funniest things just happened..........[sparing you the details here]............the cleaning lady had to take it, it can't just walk off..." i replied i'll have a look... "no! it's not misplaced. someone HAD to take it!" hung up [not chuckling]
well, i ought read others' more helpful comments now, i trust they'll be valuable as they often are..thank you :)
I also encourage an evaluation by a geriatric psychiatrist. From what I've read, no drugs are effective for narcissism, and counseling doesn't work because they believe so strongly that nothing is wrong with them. But if there are other kinds of impairments along with the big N, it would be good to treat those, at least.
My suggestions (but without experience to back them up):
1) Detach somewhat. Visit less often. Drop down to one excursion a week. This is for your sanity, not hers.
2) Do not sit through uncomfortable episodes. Don't get mad. Don't get defensive. She can't help it. But don't stay and let her assassinate your character. "Mom, I can tell you are not having a good day. I'll come back on Wednesday and maybe things will be better." And LEAVE. Again, this is for your sanity. Don't expect it will teach her something. Her brain is broken now even more than it used to be.
3) Use a line like pamzimmrrt suggests. "Yes. I know what you would like. Sis and I are trying to locate a place that has an opening." Repeat every time she repeats the question.