Our mother is a healthy and spry 85 and the primary caregiver for our father who is in declining health. He is at the point at which our mother's safety and quality of life is at risk. She does not want to hear about outing him in a home but it must be done. We would love to hear suggestions about how to handle this.
My Dad was diagnosed with Alzheimer's and after a few years needed the additional care he could receive in AL. We moved both of my parents in a very nice (ALC) facility and they still had use of their car and could come and go as long as they checked out at the front desk. Dad's attitude was always cooperative, but Mom refused to accept their reality and was hateful and stubborn to the personnel and other residents. They were finally asked to leave. Several months later we noticed Dad wincing and pulling back when Mom approached him or sometimes just simply walked by. Her patience and ability to care for him as his disease progressed declined rapidly. She had begun to hit him when she became frustrated and it took an intercession with me telling her Dad was coming home with me for the night and then be placed in a facility. I made it very clear if she objected or caused any problems I would call the police immediately. Some reading this may have read my previous questions and posts and realize Mom was also abusive to her 3 children as they were growing up and it wasn't much of a stretch for us to accept Dad was now the recipient of her frustration and quick anger.
Dad passed away 5 years ago and now Mom has progressing dementia. She made it clear when Dad's health was declining that she would prefer to live fewer years, but in her own home. I've made peace with that. We have installed webcams throughout her home so I can get online and be certain she has not fallen. My girlfriend's mom left her home of 67 years and moved to another state where her daughter lived. The ALC is the same one my parents stayed, but she has accepted her reality and has shown grace and appreciation for the care she is receiving. I told her how impressed I was with her attitude and pleased that she was happy in her new living arrangements. She told me she decided before she ever moved she was going to be happy and "bloom wherever she was planted." I pray I remember this graciousness when it is my turn to accept additional help.
the aged are twice smarter than the dolts trying to push them around .
If your parents are still in their home of many years, you might suggest they look at a retirement village setting.... it's not a nursing home, or a rest home but a wonderful community of folks who are 55+ and where the community offers things to make life easier.... such as on-site doctor office, bank, hairdresser, transportation to grocery store, etc. The condos are huge, no different than a condo anywhere else where young people would move. Your Mom can meet new people and eventually have a new world of friends who could help out when needed. Some retirement communities also have on-site a "memory care" facility.
I've been trying to get my parents to go to the one we have here in our area.... but Dad says that's for old people.... HELLO, you are 92 and 96. But both my parents are in fairly good health for their age, just age related decline... hard of hearing and difficulty in walking.
Hearing people talk about forcing other people to do things they don't want to do always gets me edgy.
I too am an ancient looking after my disabled sweetheart at home. I shall do so for as long as I have breath in my body and strength in my joints and muscles, and none one had even think about trying to stop me.
Just because we are old does not mean we are automatically turned into gibbering idiots lacking the ability to make up our own minds.
Leave them alone unless you are helping by putting your hands on to do some work for them.
You say: " ... She does not want to hear about putting him in a home but it must be done."
Must it? Who says so?
You need to either cut bait, bail, row, or jump ship. If you cannopt assist them directly in practical ways, then get your 'must be done' attitude out of their lives and make them happy.
Sometimes people just do not understand the strength of true love.
Your parents cared for you when you couldn't care for yourself, as a baby, infant, and young child, so it's time to return the love. However, it must be done in a way that does not trample their feelings, rights, and wishes.
Hug them for me.
If she tries in-home care but doesn't like it or won't try it at all, the idea of them moving to assisted living together is another good idea. Also, many new living arrangements have "graduated" care so that if they moved into the same home or group of homes, they may eventually have to separate to different care units but she'd still be close to him. That gradual change may help her adjust.
She married him until "death do us part" and many of the older generation can't separate out that this promise sometimes means that what is best for the spouse may be hiring help in caring for him or her. If need be, ask for help from both of their doctors.
Work with her your mom. Lend your support as suggested. This is a very difficult decision for her so give her time if this isn't an emergency. Stressing your dad's needs and her own health may eventually help her make this decision.
Take care,
Carol
Explore the feasibility of hiring caregivers; see what options are available to help your mom; look at their finances; call senior services in your area and get them interviewed for assistance; explore Meals on Wheels; etc., etc. Once you get senior services involved, they'll have plenty of assistance to suggest.
Keep mom in the loop. Rather than starting out with, "Mom, dad needs to be in a nursing home," start out THIS way...exploring (and perhaps then ruling out) all the other options. Take "a journey" with your mom toward placing dad in a nursing home. Help her arrive at the conclusion that the most loving thing she can do for your dad is to get him placed outside the home.
Your question brought back memories for me, and I hope that my experience with my parents is helpful for you.
I had this situation with my mother who lives in Texas, who at the time was 75 and has a heart condition. I can remember coming home to visit and my mother looked like she was at deaths door. She had been trying to take care of my father by herself, and my other siblings who lived 5 miles away (i myself was living in NYC), were allowing her to do so, and my mother has always been the " I don't want to bother anybody" type of person.
I can remember sitting her down and having the "talk". We talked for some time, and the main thing I expressed to my mother that there was no doubt that she loved my father, and in this instance the best live she could show for him was to get and provide the best care for him that she could, as she was not capable of handling my father by herself. And with that we BOTH sat down and planned what we were going to do, and we made all the necessary arrangements. And of course you must show her, as I did, that she was not "failing" my father, and that she is not and will not be alone.
And yes, it is never an easy decision to make, but the time comes where it is a necessary decision to make.
God bless you and good luck!
Remember, your parents (like mine -- my mother is 85 now, but was 80 when my father passed) are of a generation of "till death do us part, in sickness and in health". Their mindset is to take care of each other no matter what. Of course, she "does not want to hear" about moving your Dad to a nursing home (if that's what "must be done"). Would Assisted Living help? Can they afford that? Assisted Living is private pay. Would home health aides be a consideration?
You say your Mom's "quality of life" is at risk. Does she think that or is that your perception? I hope I'm not sounding mean but I'll give you my personal example:
My Mom's hearing was/is horrible. She had and currently has hearing aides in both ears. For the last 10-15 years, my mother was constantly "yelled at" by my Dad as a normal conversational tone. It was distressing to me that whenever I went over there to visit my parents' home, my father was always "yelling at" my mother. It was very frustrating to him (and to me now) to have to constantly repeat things to her, gradually upping the volume with each repeat so she could hear what we were saying. I have coped by making sure my mother is looking at my face BEFORE I speak to her so I only have to say things once so she "gets it". My father was not so patient. My brother, who lives with my mother, is just like my father (short-tempered, frustrated, and constantly "yells at" my mother). To the outside world, this definitely looks and feels like elder verbal abuse. Can my brother work on being more patient? Of course. Do I call him out about his yelling and behavior? Of course. Does he change his behavior? No.
My mother chooses to live that way. She lives in her own world (hard of hearing and just plodding along) getting by. Do I think her quality of life sucks? Perhaps, but again, she chooses to live that way and I have no right interfere. She adamently refuses to discuss this situation and just shrugs off my brothers "meanness". It's heartbreaking to me but again, her choice. It upsets me that my Mom lives this way but I am trying to "let it go".
If you have attempted to discuss your Mom's living situation with her and she is not at the point where she wants to discuss such a life changing move (putting her spouse of many years in a NH and perhaps her living alone), then you must respect her wishes. It's unfortunate. My Dad would NEVER discuss his feelings or anything related to his health or how to make his or my Mom's quality of life better. They lived like they wanted to live.
Sometimes, it takes an "incident" such as a fall or hospitalization to bring one or both parents around to the realization that they can no longer live safely at home without assistance. As I have stated previously on this forum, people of your Mom and Dad's generation are stubborn, self-sufficient individuals that don't want to believe that they can't take care of themselves or each other any more. It's difficult to convince them otherwise. All you can do is support them as much as you emotionally and physically can until there comes a point (an "incident") where a decision must be made. Then generally, a physician or social worker/discharge planner (in a hospital setting) can really get the ball rolling. Sometimes it takes an "outsider" to get through to elderly parents that something's got to give.
See Chicago1954's answer. She stated her Mom "went when she could no longer live alone at home". Perhaps that was determined by her family or her doctor, a hospitalization, etc. But I'm sure it had to be determined when there was a trigger point of some sort -- a fall, not thriving, etc. It's hard for our parents (and will be for US, too, when we get their age) to give up control of their lives to others. Would you want others to tell you that you no longer can live at home or take care of your husband? This is scary for them (losing control). The worst thing you can do is YOU make all the decisions, alienate your Mom and/or Dad, and put your Dad in a nursing home, especially if there are other viable options. Remember, your Mom's quality of life is how SHE perceives it. It's so hard. Believe me, I know. Take it one day at a time.
Good luck and let us know how you're doing.
We don't know the promises that they have made to each other. Perhaps she would consider moving to assisted living, with him.