I have received several calls and emails looking to see if we are interested in donation of the dementia brain for research.
There must be scams so I thought I asked you all.
I do feel if it would help fight this sickness it would be worthwhile. We will be cremated anyway.
Body donation is done. There are MANY uses the body may be used for. Read Mary Roach's excellent book "Stiff" to find out some of them.
If you wish to know about body donation possibilities check with your local University, or google possibilites in your area. Speak directly with the organizations. Ask your doctor.
My brother's friend donated his body. Arrangements were in ahead of time and instructions given. Body was picked up from the home. Ashes were returned to the family approximately one year later. No particular use was specified nor allowed to be specified.
My own Anatomy class had use of a donated body in teaching.
Once a body is donated, it may be years before it is 'used'. Or it may be prepared and put to use almost immediately. Just depends, I'm sure, on the supply/demand.
(I do not know how to write this without seeming ghoulish or uncaring)..
Studying a brain, in particular, to help to understand dementia and the many other brain diseases is important.
This is a very personal decision. I applaud people who can do this and their families who are supportive of it.
If you have worries that your LO would not be 'honored' by donating his/her body to science, I can say that my kids said they were expected to reverence the life that was lived and the body that they were learning from.
I have a dear friend who will be donating her body to our local teaching hospital after she dies. Again I think it's a great idea, and perhaps if more people would do it, especially those with any of the dementias, we would be much farther along with the research in this area and perhaps even find a cure.
One can only hope huh?
I agree with Alva in that one wonders about the organization that you were contacted by.
However, if you are interested in donating your body, contact a university that you admire and discuss the process. I would also let them know about the solicitation you received. You might find some useful information.
My uncle and his wife both donated to the same medical school. Aunt had generational Alzheimer’s and Parkinson’s. Uncle said he “always wanted to go to that school”. 😉
They neither wanted a funeral or memorial service which was difficult for some family. It gave me a greater appreciation for how a funeral helps the living.
This family could have truly benefitted.
Me, I am not even an organ donor and at my age now, I don't think they would want them. Donating my body... I would not appreciate my spouse or children making that decision for me. I would not make that decision for them.
My cousin has arranged for his body to be donated to a University in Cal. It is probably a teaching University.
Donated corneas can restore sight to someone who is going blind. A donated heart can provide years of life for someone whose heart is failing (my friend was killed in an accident years ago, and her heart kept a man alive years past when he thought he'd die; her family met him and were able to put their ears against his chest and hear her heart still beating). Another friend received a liver transplant and lived for 12 more years during which he was able to take care of his wife through her cancer treatment, so both their lives were tremendously helped by that donated liver.
I won't be around to meet the people I will be helping by my organ donation. But they will be around, and it's great to know that part of me will be too.
A teaching university that specializes in neurosciences would be the place to donate to if you specifically want to help dementia research. It might be an interesting project to research who does that kind of work.
I am not opposed to donating a body. I think it’s wonderful. My uncle who was single, never married, no children, not religious, did not want a funeral, a memorial, nothing. He suffered horribly with cancer and donated his body to a medical center.
My cousin feels like it’s the best thing to do as well. She could be buried in her family plot but would rather donate her body.
I don’t respond to any solicitors. I refuse to buy anything from them. You can’t sell me anything. I buy what I choose from the source that I want to buy it from.
I wouldn’t hesitate to say, ‘No thanks, please don’t ever contact me again because the answer will always be no.’
Once, I got one of those fake IRS calls over the phone.
He said, “You owe taxes and law enforcement will be knocking on your door shortly.”
I responded with ‘Send them over, I’ll put on a pot of coffee and we can chat.’
He was caught off guard with my answer, then he got mad. LOL 😆 I promptly hung up!
Guess I was bored that day and found him to be ‘free’ entertainment.
Another "free entertainment" was invented by a friend, who starts angrily saying "Where the hell is my pizza? I ordered it 3 hours ago. And don't leave off the anchovies this time..." The scammer will have hung up by then.
Sorry, this was very much off-subject, but it gave me a laugh and these days I grab laughs whenever I can get them. One thing about the caregiver life is the terrible lack of things that seem funny. And one reason I love this forum is that in addition to useful discussions about difficult questions and real sympathy and support, there are smiles here and there.
OP; if at all you and your family come to an agreement, and you are sure it will not weigh heavy on your heart...then go for it. A medical researcher or student somewhere in the world will learn from your donation, and your relative would have helped out future dementia patients.
My mother willed her body to our state university's medical school. When she died her body was completely crippled -- almost locked into a dwarfish fetal position -- with osteoporosis. The medical school wrote a very nice letter telling me that her body was not what they needed for cadaver study but they were able to use some bones for bone grafts (dentists do these, I've had a bunch of them) and I think some eye parts. The important thing was that she made the offer and did it with a real, respected place and did the research to go through the right offices; she wasn't responding to some possible scam request. I think a donation needs to be a true donation -- initiated by the owner of the body in question or by his/her legal representative, and done to a place where the practice is defined and there is a sort of protocol and the use is made clear.
I have a couple of MD friends who say that cadaver study was of GREAT importance to them -- particularly one who became a surgeon. We need good docs! Let's support their training! I've already done the paperwork to donate my body to my university medical school. If they don't want it for cadaver study, they are to use any and all parts that can be transplanted or made into grafts and then cremate the rest. My hubby for some reason was (when not in dementia) freaked-out by the idea of being a study cadaver but he asked our lawyer to draw up the request that he be cremated immediately after death. I'm a bit sorry for that because he has dementia and I'm sure the study of brains with any afflictions (Parkinson's, dementia, aphasia, etc) is of great importance. I certainly intend to honor his wishes, though. Thanks for bringing this up, DaveG!
Of course there are scams. The fact that there are people out there who would scam about something like this is what's morbid.
If where you live has a medical college, that would be a good place to ask. Or you can start by asking your own doctor,
Check University Teaching hospitals in your area. Mayo has a whole website program on donating your body to them (no idea if you must be in their area.).
Check with funeral directors tho know your intention to donate isn't their favorite idea for your body.
Check with Hospices in your area.
Ask your own MD.
Firstly, do not reply to any unsolicited requests to participate, like those you have been getting...it sounds like a scam. Investigate on your own volition, and if it then seems right for you, go for it. Here is what I wrote last month:
Yes our family has had 100% excellent experience with "Willed Body Programs", so much so that my partner and I have signed up for same.
I don't know if this list is comprehensive, and it is not aimed to brain dementia donation:
https://ieds.online/body-donation-programs-by-state/
I encourage you to consider this, as the donation of bodies helps medical students, researchers, etc to learn and, ultimately, to help the whole world. We all benefit.
We contacted our local program: they sent us easy-to-fill-out forms, we sent the filled-out forms back to be added to their system, and received a credit-card sized hard plastic ID card to place in wallet, so that anyone can grab the info card from the donor's purse or wallet and dial the phone number immediately upon loved one's death.
They also sent us big magnets to place on the fridge to alert emergency personnel (who will often look in fridge for medications, and on fridge for emergency instructions) that one has signed up for a Willed Body program. Card and big magnet both make totally clear to phone 24/7/365.
We live in California, so chose the University of California Willed Body program. Even if we are travelling throughout USA, we were told if the unthinkable occurs and one of us dies, to immediately dial the phone number which is answered 24 hours per day 365 days per year, and if the deceased isn't near the "home" research hospital, they will do their best to find another research hospital to accept the body. In our case, we are big travellers so we are comforted knowing the process is easier and better-thought-out than we had realized.
For our family members' deaths, in one case a professional caregiver happened to realize death had occured so immediately phoned the phone number on the card, then phoned us. We jumped in car and were there in less than an hour, and were amazed that the gentleman from the Willed Body program was already there with a discreet hearse-like vehicle (that didn't scream hearse or death, it was just properly capacious) and medical wheeled cot. He waited for us to say a last tearful goodbye, then gently covered our loved one's body, gave his condolences to us so respectfully and truthfully, then trundled the body to vehicle and that was that. We waved goodbye thru tears.
In the other cases, we happened to be with our loved ones as they failed, so knew when they died, and followed the identical procedure as above. In one case the program person asked if they could collect the body in two hours rather than immediately, and that was okay with us; we knew our loved one was finally out of agonizing pain, and was in a better place. I don't know what would've happened if we had refused to allow the delay in body pick-up.
In each case, we within days received a professional letter of condolence and letter of thanks for our loved-ones' generosity in agreeing to participate in the Willed Body program.
In the county where one of our family died, their program has an annual or bi-annual event where the bereaved can all come to honor their dead. In another county they sent us a packet of flower seeds to sow and as flowers come up, remember the beauty of our loved one's life well-lived, and beauty even in death.
In our own case, the bodies are eventually cremated, and there is NOT the possiblility of getting the cremains. That is okay with us, we know our loved ones are healthy, vibrant, happy and beautiful in Heaven. We want to remember that, and not their ill final days.
I hope this helps, and will be thinking good thoughts for you to help you make the decision that sits well with you.