We just went through the fun process of getting Medicaid for my dad in Wisconsin. He doesn't have much longer. He has end stage cirrhosis of the liver, serious cardio issues, kidney issues, low hemoglobin, encyphalopothy (not sure if I spelled correctly). We decided today to do palliative care. If we moved him to Minnesota, I'm worried about the hoops I'd have to jump through & the time it would take to transfer his Medicaid (he has to reapply). With my dad's prognosis, he doesn't have a lot of time.
Does he have other friends and family in Wisconsin who will step up and care for him, along with hospice, when he returns home?
It is understandable that he would prefer to stay out of a nursing home -- most people would. But that nevertheless might be the best placement available, all things considered. Where does he want to be? Does he understand that he is dying?
If he is likely to have more visitors if he stays near where he is, that is a factor to consider.
This whole situation is producing enough anguish -- I hope it is not also producing any feelings of guilt. The disease conditions your father has are Not Your Fault. The fact that he did not share advanced wishes with you is Not Your Fault. That Medicaid requires new application in each state is Not Your Fault. You are doing your best as a loving daughter. Certainly you feel sad. Please, please, do not also feel guilty.
He wants out of the hospital! He doesn't want to go to nursing facility. He's been back and forth from hospital to nursing facility back to hospital since August 29th.
I am working with a transplant social worker. Bit of history: my dad found out he had cirrhosis of liver back in 2008 or 2009. He continued his usual habit/routine of drinking. The result caught up with him 6-8 months ago & came full force 3 months ago. He went through liver work-up to see if he was a candidate for liver transplant, but he isn't because he's too sick - other important organs are not working properly. So the transplant social worker talked about putting him in nursing facility first & could go to hospice when necessary.
Where did you want your father to be in Minnesota? A facility near you? In your home? What is the reason for moving him?
If he is in a hospital now, there should be a social worker who can explain his options at this point.
I am so sorry your are dealing with this difficult situation.