She is quite aware of the difference in her thinking and reasoning abilities. She has had two neuropsychs in two years, first one dxed mild cog impairment, due to a small stroke a few years back; this year (just a few weeks ago) follow-up testing showed no progression.
Re the issue of antibiotics. One of the huge problems is administration of antibiotics prior to a culture being taken particularly for the elderly and where a UTI is suspected. Mum spent two weeks in hospital with not a real recovery, then a recurrence where we ended up taking her to the ED. I said to the ED doctors and nurses that they were not to bring an antibiotic near her until they took urine and blood for cultures. The upshot is that for about 4 weeks she was on antibiotics that had little or no chance against the specific bacteria she was fighting. She started improving about 3 days on the right antibiotics and needed two courses. This is the second time I have seen assumptions made on antibiotics in an older person that nearly cost them their life. (The bug Mum had has a 61% fatality rate in older women and boy was she ill).
I cant understand the hesitation in taking a urine sample by clinicians or nursing support. Its not costly and besides the normal dip stick that identifies if there is blood and white cells in the urine (not a definitive but pretty good inidication of infection) there is another dip stick can indicate pretty definitively that there is an infection (but not the type). That at least ensures that an analysis on the exact bacteria can be done in 24 hrs and the right antibiotic delivered. Given the incredible impact of UTIs on further cognitive damage Im going to talk to her doctor about regular urine tests. Certainly we have been told if we notice any change at all straight in for a urine test. On the issue of ongoing prophylactic antibiotics we have been told this is an option but not a great one - lots of issues with this apparently. And YES BGills probiotics are absolutely a must. While yogurt etc is great we use a one a day major dose of probiotics in capsule form - here it is called "Inner Health Plus" Easier to get Mum to take one or two of these a day than get her to eat the amount of yogurt etc needed.
Excellent discussion and so useful to hear about other's experiences and opinions.
Jools .. we have almost exactly the same issue: stroke, followed slowly by vascular dementia along with recurrent, persistent UTIs. We've learned her signs at early onset of them: she weakens, physically first, then shows signs of aphasic speech, often accompanied by muscle twitches/tics. Rarely does she present with other symptoms like fever, burning while urinating, etc. So, we had to learn HER signs/symptoms.
We also follow a strict regime with diet, supplements to help keep her bladder flushed, exercise, hygiene, etc.
And yet, the UTIs keep coming back .. and with each one, after the 'fog' clears, there's some small decline, compared with prior to the infection and treatment. It *does* help to add some cognitive exercises to her regime: logic questions, memory questions, hand-eye coordination, etc. I turn every normal daytime activity into an 'opportunity' to learn or a physical therapy type routine.
An aside: among her other conditions, she has diverticulosis. Normally, this just means we control flare ups with diet. Very recently, one of them bled out. Wanna know scary?? Ugh. Simultaneous to the GI bleed, she had another UTI and while they were testing and diagnosing she began her antibiotics; . She ended up needing a transfusion because of the blood loss. After her hospital release, within less than two days, her cognitive functions improved SO much, I felt like we'd gone back two years. Dunno if it was the transfusion and/or this specific round of meds, but I'll take it.
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