Hi there, Looking for answers about my Mom. The short story is she had Triple Bypass surgery on July 2 2020, had a very good recovery where she was walking and doing things on her own after a few weeks. August 18th she gets cleared to drive and go on about her life. August 17th was diagnosed with a UTI and immedialty went on Anitbiotic (Cipro) for 3 days...2-3 days later she has slurred speech and cannot put sentences together . We call nurse she said thake her to ER. Goes to ER and gets some antibiotics and then gets tested for possible stroke..everything comes back negative. Even tested for UTI and it was negative. The 5 days in hospital she gets weaker and cannot get up by herslef or go the bathroom or put her clothes on...and still a bit confused from time to time. Hopsital says she sems fine and we can send her to rehab center to get her functions back....now been 7 days in rehab with little change in her abilty to do things on her own. So is this still the affect of the UTI? or is it possible she had a stroke that was undetectible? Know one can seem to give us kids any clear cut answers...The last hospital I think saw just as an elderly lady that needs help yet 5 days before that she was waling around baking a cake with her granddaughter. Do people usually bounce back after getting rid of the UTI? we are all confused on what has happened to Mom in just a few days and now in a rehab/nursing home wher she is misaerable and not getting any better. Looking for answers....is it possble she never regains her strength back to take care of herself? I mean she survived triple bypass surgery and now just not the same.
Thanks
Scott
It is confusing. Just thinking it over here with you.
First you are told she has a UTI and then that she doesn’t? Did they run a culture? If she tested positive they should want to see which antibiotic would be most affective. If she tested negative, they usually don’t run the culture. Of course I suppose the antibiotic that was given cleared it up. Often they will start with an antibiotic while waiting for the culture results.
is she able to do the therapy in rehab? When you talk with the therapist can he show you how she has improved and explained the goals or is she actually getting worse. What does her data indicate I’m trying to ask.
And yes, people die from unchecked UTIs. And perhaps she was more vulnerable to this one due to just having the medical procefure. It does sound like a stroke. Did she see a cardio and a neurologist while in the hospital? Perhaps you could check into that. If she didn’t see a specialist, I would want that done right away.
I hope she’s better soon.
ScottyJ -- Please do what I did not do -- demand another culture and see to it that the antibiotic is actually given. I don't care who tells you, "You don't know more than the doctors and nurses, let them do their job," ignore those voices and be the advocate your Mom needs right now.
What with hospitalists and different hospitalizations, where no one knows the patient or her history, what is a DRASTIC CHANGE gets missed.
Scott, you pegged it exactly. She was simply another old woman coming in.
Bypass is serious. The speech slurring could have been for many reasons, even from weakness or dry mouth, but the most common reason is a stroke.
Many strokes are missed. CT scans rule out BLEEDS or hemorrhagic strokes; the reason they are done, as no blood thinners can be given to someone with a bleed. Scans are good at diagnosing bleeds, less good at strokes.
Something has happened and it seems to me it happened suddenly and had a profound affect. That could mean clot to lung or brain.
I don't know how old your Mom was when she had a triple bypass. Much new literature is suggesting they should not be done past a certain age because of risk of complication without promise of benefit, and that often medications work as well. As with all articles, they change every six months. As my old Oncologist said "It's anything but an exact science". There are amazing studies out there on depression alone after bypass. Literature abounds.
I wish you the best of luck, and Mom as well. It is just my feeling something has been missed, mis-diagnosed, gone UNdiagnosed. When I was in nursing patients were still followed in hospital by their own doctors. It was a different world, and even then with the patient such a wholely KNOWN person, each entered as a mystery to be solved.
At this point knowing what happened may not mean much about recovery. That will be what it will be now moving forward. I am so sorry for this setback.
I, too, was getting UTIs several times a year. Finally found a great Urologist who recommended D-Mannose. I take a maintenance dose of 1,000 mg 2 x day. As you said, I would give up my heart meds too for it as going through an UTI is a nightmare.
So sorry to hear about your mom. My mother had a similar experience in the fall of 2019. My mother has a history of cancer and CHF and was getting around on her walker when suddenly one morning, she experienced: head spinning, hallucinations , slurred speech and inability to sit up and walk. She was rushed to the ER and they ruled out a stroke and cancer spread. However, she did have a UTI and was treated with antibiotics. She was sent to rehab then home with additional rehab but was never able to walk again. My mother has been bed bound since and has been under hospice care since Feb 2020 after blood clots were discovered on both of her lungs.
With the exception of mobility frustrations and occasional dementia related symptoms, mom is doing much better under hospice care.
Hope this helps and that things improve with your mom.
My dad had reoccurring UTIs
and one was antibiotic resistant.
Yes from my experience with my dad they can knock someone for a loop. Slurred speech , lack of appetite and lethargy.
I found my dad’s UTI’s accompanied
dehydration so ask about that too
My dad was totally independent up until he went into the hospital and later the facility. They seem to only look at what’s in front of them
They do seem to give up merely because someone is elderly.
To this day I feel my dad’s health issues could have been handled differently. The limited Medicare coverage seems to rule the nursing facilities.
After speaking with other families
it seems you have to fight hard for extra Medicare coverage. Most families are so knocked apart from the whole experience that they give up.
My wife was sent to rehab in June and on the 13th day, 2 employees that she had come in contact with tested positive, thus another 14 days of isolation. So 27 days of rehab limit done in-room only with little to no improvement.
She came home in early August and is now either wheelchair or bed bound.
Being miserable and depressed will make one go down hill and not even want to live.
If they caught the UTI right away and started her on antibiotics. It only takes a few days to get back to normal.
First thing bring her home !!!!
She will be Safer Happier and get Healthier...
You deffiently need to make a Dr's appointment with her Dr first, if her Insurance won't let her go to a Specialist Uroligist first.
Don't Delay.
Prayers
Mama ended up in a nursing home and went inexorably down hill for two more years and died at 101. At the last she still recognized all five of her kids but didn’t remember her husband at all, thought her parents we’re still alive, thought she still lived with them in her childhood home, got songs on her mind and sang at the top of her lungs, talked indiscreetly about sex, wheeled herself into other peoples rooms and climbed in bed with men, stole other people’s eye glasses, openly criticized the hairdos of the female staff and did a lot of other things that we have since come to think of rather humorously. Mama was the soul of Southern discretion and she was still wise enough to stay on the good side of the staff. At times she thought she was at the country club and formally introduced us to all the other out of contact people at the luncheon table. She would have hated to end the way she did, but, even so, kept her wits about her enough to one sunny day just peacefully grind to a halt.
My mother never wanted to die and we were so blessed that she accepted every stage of life with equanimity. Mama always said, “Every age has its compensations.” If your mother doesn’t recover, I suggest that you accept what has happened and find joy in all the things that made your mother what she was, understand that she is the same person, and make sure you and your siblings are at her bedside when she meets her maker. We still speak of her last days often and yet, after she died, she became younger and perfectly lucid again in our remembrance.
I still have nerve pain if I overdo it, and I had a bout of profound fatique right after the contagion period was over.
I had an antiviral perscribed plus I has the older vaccine.
Don't stop at nothing. Do not sit and wait. You keep going until they find your mother's problem/you get answers.
Hospitals are not always right. Sometimes you have to go to another hospital.
Also, if it were me, I would be giving my mom Cranberry juice to drink.
Every time she has required general anesthesia (Bowel Cancer and Knee surgery),
her dementia has increased within 1-2 days. No UTI's.
Your mom has experienced severe stress and trauma with heart surgery, UTI, hospitalization, and rehab. etc. Each person reacts differently to life’s health problems. While you may pursue answers, sometimes it may not be clear and definitive; especially for an older person. Your mom may get slowly somewhat better like where she was before, or she may never be the same again. You can only do the best you can to help her.
All too often medications are prescribed, but no one really checks to see what, if any, interactions their might be with other medications, including OTCs. If she has never had cipro before, it could be causing issues. While the majority of people can take the majority of medications, there are cases where meds can't be taken. My mother always said she was allergic to "mycins", and my daughter couldn't take erythromycin (Rxed to treat UTI at 9 months, didn't treat it and she ended up with vomiting even water and a bad case of hives!) While in hospital myself, they were daily injecting heparin (blood thinner) - these became more painful by the day. Hematologist came to my room and said when I came in my platelet count was fine, but has since shot sky high. Ummm, I'm not allowed to eat and anything going into me YOU all are putting it there, figure it out! When I ended up with a hematoma, the damn shots stopped, and magically my platelet count returned to normal! Heparin should NOT increase, but rather decrease platelet count to help prevent blood clots. My dad, after major heart surgery, was to take certain meds forever but adverse reactions led to the docs reducing the dosage until finally he could only take 2 baby aspirin/day.
Although medications or bad med interactions can cause these symptoms, there could be any number of causes and you need to push push push so these docs understand your mom was doing fine and this is a sudden change! ALL sudden changes have a cause and THEY need to find it.
Mom's first UTI at MC (she used to have at least one/year before dementia, sometimes more) resulted in sun-downing. She insisted she had to get out, she had guests coming and had to go home. Hours of this. Unfortunately it was Fri evening, no doc access until Mon! We had to use anti-anxiety along with the antibiotic to keep her calm. AFTER treatment there was no need for the other. No slurring, no trouble articulating (not that it means your mother couldn't exhibit these symptoms.) Subsequent UTIs showed up with night time bed wetting. Most recently she had TIA or mini-stroke. Slumped over, slurred speech, right side weakness. Some resolved quickly (she refused to go to hospital, we didn't push it - she's 97, no real hearing, overweight, dementia, won't stand or walk, mac deg, etc.) but nurse said still slurring a bit and still has the weakness rt side.
Again, given your mom is much younger (guessing), and did so well with surgery, I would push every doc and then some. She isn't doing this to be a pain, and it IS a sign that something is wrong. Medications. Too much or not enough water (yes, too much can wash your system out and cause confusion, etc). UTI (general rule is one should be AT LEAST 3 days past medication before testing, as it can show up negative! Been there done that with my son and his tonsils!) Even if "dip stick" test for UTI is negative, have them do a culture. Stroke or TIA. I'm not in the medical field, so there could be a whole list of other causes for this. PUSH!
Doctors, radiologists, nurses are all human and we ALL make mistakes or miss things. This is NOT who your mother was post-surgery and again, sudden onset of ANYTHING is a warning. If her current docs won't work with you, find better ones! Go to a highly regarded hospital and seek the best docs.
Funny too - despite being only 9 mo old, she fought taking the first medication. When we got a new Rx, sat nicely and took it like it was candy! So, her little tiny self knew better!
Garlic is a good product but if on blood thinners you need to check with the doctor. My mothers neurologist told me he did not want her taking garlic because she is on anticoagulants. My moms naturopath wanted her to take garlic instead of the blood thinners but I checked with doctor first and he said no.
My grandmother went through valve surgery, did fine and was going to be discharged. The same day, she had a clot that caused death.
that line of antibiotics can have crazy neurological effects, esp depending on other meds. He is on Parkinsons meds.
the type is quinelones? (Spelling) or something like that. There are others in this category as well. Look it up. (Sorry, can’t get to look it up while writing this)
christine