A temporary situation looks like it may be long term. My 90 year old mother was supposed to go live with her sister, then her sister suffered a stroke and my mother is now living with us. I had to remove her from her home because she could no longer live on her own. She is ok for a few hours at a time, but her vision is bad, she gets confused, so I cannot leave her for more than an hour or two. I am becoming very resentful, and feel like I am a prisoner in my own home. I am 70 and up to this point was an avid golfer and enjoyed being outside. I have multiple myeloma (cancer) and although doing well, I want to be able to enjoy what time I have left. Putting her in Assisted Living is really not an option, she has two small dogs and taking those away from her would be devastating. We have three dogs of our own. I guess I could look into having someone come into our home, but basically they would just be sitting around. I hate feeling resentful, but it is stressing me out. I have a sister, but she lives 12 hours away and has health issues of her own. My husband is still working fulltime and although a great help, cannot be a caregiver. Any advice would be welcomed.
If mom has the funds to pay for AL, getting a Senior Housing Advisor or registering with a place like A Place For Mom can be a good way to get someone else to do the legwork to find places that will accept animals.
You matter, too.
As you know MM is a hard diagnosis. It can limit the time YOU have left on this earth. Should you be a prisoner in your home because of dogs?
AL can provide things that may fill in that empty spot that the dogs leave. Friends. Activities. Neither of which YOU have time for now, as a prisoner in your home.
Your mom has lived her life. She could live another 10 years. Do those 10 years have to be lived as a captive?
Stress kills. Some caregivers die before their loved ones.
Consider placement. Then, you can enjoy your life, and go back to being a daughter, and a visitor to your Mom.
Best wishes to you.
Just curious and u don't have to answer...but since Mom is 90 her sister must be up there too? Who thought that she could care for ur mother?
Get caregiver assistance; go to counseling; ask your mother lots of questions and record her because, if she was a good mother, you would want to share these memories.
I made the decision long ago that no elders would be living in my home, and I've stuck to my guns. I saw how it wrecked all the relationships in our home to have my grandmother living with us when I was a child, and vowed to never repeat that fiasco as an adult in my own home.
If you hire a caregiver to come into your home, your mother would be paying for it, number 1. Number 2, that person wouldn't be 'sitting around' but would be doing light housekeeping and tending to your mother's needs. Which would allow YOU to get OUT of the house and go golfing or do something you'd like to do. Whatever the cost, it's cheap at the price, and should be done on a regular basis several times a week at a bare minimum if you refuse to get her into Assisted Living.
Wishing you the best of luck coming up with a plan to make YOUR life more enjoyable and less resentful
hug!! :)
dear nerees,
sending you hugs too!! :)
i just want to say, that 1 problem we’ve run into with caregivers is stealing. this means we can’t leave the caregivers alone in the house.
we don’t have cameras in the house. that might be a solution for some people.
we have several rooms.
without permission, caregivers go into other rooms, when we’re at an angle where it’s hard to see what they’re doing. medical equipment has gone missing daily (they take extra gloves, etc.).
they often open drawers, to check for valuables.
we changed caregivers many times. it’s happened with almost every caregiver.
one caregiver stole new clothes.
it’s not easy. if you can find competent and honest home caregivers, good!
courage and strength!!
bundle of joy :)
The facilities here allow volunteers to bring animals for the residents to enjoy spending time with. They love their furry friends!
If an assisted living facility isn’t an option please look into private or agency caregivers so you can have time for yourself.
At 70 years old, even without your own medical issues, it is a difficult job to care for an elder, esp with dementia. The dementia will only get worse, not better. That will require more and more of your time. It would be best to find a place for her that will allow the dogs. At some point, as she regresses, you may need to remove the dogs from her care. She will begin to forget about them and what they need. That isn't fair to the dogs either. If/when that time comes, there are some nice robotic pets that might fill the void. One resident in mom's MC had a stuffed dog that she treated like the real thing.
Find a good place. Let them do the hands on and allow yourself time to enjoy your life too. You can still visit with her, take her out on occasion, walk her dogs and be her daughter again, not her nurse maid.
(in addition to the usual AL/MC facilities, there are also smaller care homes. perhaps there are some in your area that might allow pets.)
If all of you have been vaccinated for covid, I see no reason why this cannot work. You feel like a prisoner now, just wait til a YEAR of this has passed!
I think its a good idea you have someone come in to care for your mom to free you up on a regular basis. This rather than have you become burned out and feel resentful toward your mother. She probably senses how you feel and yet what can she do because she is old and helpless. She took care of you when you were small and now she needs you.
But you can also share the care with someone else. If you have an extra room in your house you could contact a local college or nursing school's job center to find a serious student needing a quiet place to rest and study in exchange for some care duties for your mother such as reading to her, taking her out for fresh air and sun in wheelchair or helping do exercises...perhaps a little laundry, meal
prep, vacuuming. This to free you up to get away.. Many female foreign students especially enjoy being part of a US family to live with and just need a quiet place to rest and study in return. And you can tell them if they need to socialize they will need to do it outside your home
such as Starbucks or their friends' houses. Even if you have to pay someone to come in for a couple of days a week it will be worth it to for you to be able to get away and enjoy your life. This rather than dvelop animosity toward your helpless mom who probably doesn't want to impose on you either but has no where else to turn literally!
This was a bad idea from the word go and now you feel like a prisoner in your own home because she chose to get animals that would most likely outlive her. Rehome the dogs and place her in the best facility for her needs, you can bring your dogs to visit her. I promise you that she will not die without her pups.
I just convinced my 75 year old mom that adopting a puppy would be a really bad idea and she got a 10 year old that is a joy to her and I don't have to worry about the dog outliving her or creating work she can no longer handle.
Have you checked into board and care homes? My dad had his little dog with him and the staff helped take care of her, she was a comfort to the other residents as well.
Best of luck finding the strength to do what is best for everyone involved, including you.
Best wishes.
1 - List all of "mom tasks" - task you do for your mother, time. and frequency. Example - walking to toilet ____ time every __ hours.
2 - Mark "mom tasks" that require some training. Calculate "Mom task" weekly time spent. You will be amazed how much time that is.
3 - List of all your "essential needs" (doesn't include leisure activities) - task, time and frequency BEFORE mom: sleep 7-9 hours, 3 daily meals at reasonable pace, housework, meal prep, grocery shopping, personal care, personal health needs, at least 2 hours daily of alone time with spouse, time to meet spiritual needs...
4 - Star or asterisk next to those "essential needs" that are getting shorter amount of time now that mom lives with you. Underline those activities that others could do (grocery shopping, cleaning house, laundry...) Calculate the weekly time for all the starred/asterisk areas to see the least amount of time needed to recover.
5 - Make a list of all your "leisure activities" - meeting with friends, outings with spouse, hobbies... - mark time and frequency for each. Rank them from most important to least important. For the top 5 or so items, calculate "leisure time desired" for month and week.
6 - Final totals. Start with "minimum time" which is only the starred "essentials needs" added to "mom tasks" for week and month. Calculate "preferred time" which is "leisure time desired" added to "minimum time" for week and month. DO NOT shortchange yourself on the time in your calculations; it is better to be more generous with estimates and round up to full hours
7 - Enlist help. Contact people in this order: spouse, children, extended family, friends, members of faith community... not paid help yet) Use "mom tasks" list and underlined "essentials tasks" list. Let them know that you need help caring for your mom in order for her to continue staying in your home. Give them "mom tasks" and underlined "essential tasks". Ask them for a commitment on a regular basis (daily, weekly, monthly) of either time or for a task. Example: your sister who lives 12 hours away might take mom for a 3 day weekend every other month in your home so you and hubby can get away. Expect that most people may need to look at these lists (that is why you did all that calculating in detail) and talk with their spouse/family before getting back to you. Short waits are OK, you have been doing this without help already, but give a reasonable deadlines for answers. The goal: develop a schedule of helpers who consistently help meet "mom's tasks" and starred "essential tasks". Use the time "gained" to get back time for your essentials and leisure.
8 - Paid help. Contact home health agencies and private hire (sitters and home health aides) to fill in the voids in your list of "mom tasks" and "essential tasks." An administrative staff member with ask you how many hours of care you need weekly usually in 4-8 hour chunks of time and the types of help your mom needs. Those lists provide the answers. Home health aides can complete home "essential tasks" while they care for your mom; let them know the tasks not covered on your list. Agencies will tell you the cost and schedule to meet your needs. Talk with your spouse and mom about discussions agency and volunteers and the cost of care. Pay for it primarily with mom's resources, then your family resources - if available.
9 - Not enough resources to cover time and/or costs? Time to discuss other caregiving options: adult day program, senior living/assisted living, and potential transition to full residential care. Talk to local resources about "mom tasks" and costs. Her resources should pay and then Medicaid should pay.
Was she happy to go along with the idea first to move in with her sister, and then to move in with you? - did anyone have to do any arm twisting to persuade her?
What's the funding situation?