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I want to help but it is tough on our friendship. I never get a chance to spend any quality time with my friend and I took care of my own elderly mom who was in a wheel chair and also my very sick older brother for 10 years. I love my friend and her mom but don’t feel it’s a deal breaker if I don’t want to be obligated to watch over my friend’s ailing mom. She won’t hire anyone to help and brings her mom everywhere. My friend is a wonderful person but I don’t think she realizes how this impedes on our friendship. Not sure what to do. Want to be a supportive friend but don’t want to be taken for granted. It’s a difficult situation.

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Thanks for your response to me that you don't live together. That makes things a lot easier. So what does she expect from you that your uncomfortable about besides her being violent, which really is a good reason not to help right there. Me, toileting was the worst for me with Mom. I would not do it for someone else.
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Reply to JoAnn29
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You can be a supportive friend, but that does not mean you have to be burdened with the job of caring for her mother.

I love southernwaver's response - many ways to say NO!

Perhaps your friend simply does not know where else to turn. You can support her by talking through the options and even help finding appropriate resources.

We, as humans, seek out the path of least resistance. For her, having a friend with prior caregiving experience is an easy answer. Let her know that you can not do this, but you will be a supportive friend and help her through it.

It doesn't sound like a positive friendship if she only wants you as a friend as long as she can use you. If your refusal to be a caregiver for her mother harms the friendship, that's not a friend you want.
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Reply to CaringWifeAZ
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No you’re not obligated to do caregiving for your friend’s mom. Her mom comes first before any friendships now. Not your responsibility. She has to hire private pay someone mature, experienced and trustworthy . Experience with dementia/agitation preferably. Your friend needs to give her mother medicine for agitation, such as Seroquel. A neurologist should be seen asap..if she can get her there. My mother was home a long time & now in nursing home. I had private pay aide. About 35-40 hours a week so I can do whatever…I gave her medication or prepared it for aide to give if mom refused it before I left house. My mother had too many issues to leave with a “friend” . Incontinence, immobility, agitation. For some strange reason, I was able to handle mom even by myself when no aide was around. Even now I still do a ton of work as I go every day to help my mother eat supper & then do her mouth care..aides at NH never did this even once. I also started giving her extra bed bath..as her arms always cross crossed. They probably don’t wash underneath arms. She also had bug bites from May to Oct which I had to take her to outside dermatologist. It was a nightmare. It finally went away. 🙏🏼🙏🏼 I’m not done with caregiving just because mom in nursing home. Probably more stress since too many idiots to deal with. Always short staffed, short on supplies. I am surprised I haven’t had stroke yet. I brought her back to same nursing home I took her out of for her 90th bday. She stayed home 6 years. I thought I was going to just keep her home for weekend, but decided to keep her home. I told myself if she’s still here after 5 years, I was putting her back. Now I probably regret it as there’s so much problems in nursing home. & lawyer keeps dragging it out and asking for more $$$
hugs 🤗
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Reply to CaregiverL
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Saying no to caregiving for your friend's mother is not being unsupportive. No friend who was any kind of friend would expect you to.

It's your friend's choice not to hire homecare, or put her mother in LTC, or adult daycare, or find any other solutions for her mother's care needs. That's on her not you. So don't guilt yourself into saying no. They have choices. Unfortunately the only free choice is getting you to do the caregiving or your friend doing it herself.

Say no.
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Reply to BurntCaregiver
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Set your boundaries. Just say no. Being a supportive friend doesn't mean you have to give in to the request. If your friend is using "friendship" as a means to coerce you into submission, I'd question the nature of this friendship. It's not your responsibility for her mother.
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Reply to SOS369
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The one thing we need to know is do you live together? If not, I don't see why your friend feels you should be helping with the caregiving?

If you do live with them, then I can see why she may think you should help, but you are not obligated to. If you pay your portion of the rent, utilities and groceries, your a roommate. Friend or roommate, you need to set boundaries. No sorry, been there done that, not going there again.
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Reply to JoAnn29
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Lisa249 Nov 18, 2024
No we don’t live together.
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Tell friend about Aging Care Forum and to check out the local senior center.
Set boundaries on how much time you will spend with her and mom while her mom is in this stage.

Fill up your calendar, start a pt time job, pet sit, anything to break the cycle of being available to mom sit. The best way to break a habit, is to start a new one to edge out the old one.

Here is an example. My daughter moved to a new city a few years ago. She missed her old friends and wanted a friend to do fun things with so she used an app that people use to find friends. She likes to go to estate sales and concerts. So she listed those activities.
Her new best friend in her new city is from Sweden and had done the same thing and they matched up. They now make regular dates to do those activities and find they share other interests. They both have busy husbands who don’t share these interests and neither has children, so it works well for them in this stage of their lives.
Another thing she did was start a book club in a community bookstore and now has 30 regular members. She has volunteered at food banks, etc, is big into cycling, when she had an injury she started swimming. So think about what you like to do and make some new plans.

If you need to be more straight forward, let friend know you are there for a phone call but not so much anything else with her mom at this stage. That you are still healing from your own time with hands on caregiving and you are finding too much time with her mom stressful.

I know it’s hard to do this and I have been blessed to have friends I can discuss caregiving with but I would never, ever be willing to subject anyone but willing family or paid caregjvers to this. Protect your own Emtional health. Let us know how it goes.
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Reply to 97yroldmom
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How did you get suckered into doing this? How is your friend such a "wonderful person" if she doesn't realize her mother is a burden to others and taking a stage 6 violent dementia patient everywhere creates a burden for everyone? How tone deaf IS she?

I would tell your friend you're sorry, but this caregiving gig for her mother is now out of your comfort zone. Looking after someone with violent behavior is not in your wheelhouse. If you lose the friendship over this, so be it. I'd rather not have this friend in my life than be stuck caring for this woman for one more moment! Friendship is a two-way street, btw. If she cannot understand your position on this matter, she truly isn't a friend anyway. I NEVER would've even thought to ask a friend to do caregiving for my mother with dementia. And she did not exhibit violent behavior, either. That's a lot of nerve what she's doing. Quit and don't look back.
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Reply to lealonnie1
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Just say that you don’t want to be a caregiver. You will have to be that direct. If she presses, say that you took care of 2 family members for 10 years, and don’t want to do it anymore. Then change the topic. Don’t get hooked.
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Reply to Danielle123
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Sometimes I have the same problem with a Senior friend who is retired and lives with her husband , the same age , but he is not quite as active as she is or not sharing in our same activities. At first , the friend and myself enjoyed our own Time Out , meeting up and doing our fun outdoor activities together and swapping stories about our families., and just spending Time- Breaking Away.
Eventually, my own husband wanted to join us as it was his only time to share in the activities, which he Can do, despite his disability. After that , my friend would bring Her husband, too, which involved more compromising as He didn't do the same activities, but would do something more passive in the Parks. Her husband would lose interest faster and rush us along, then mishandle our equipment tossing it in the car , feigning his "assistance" over it. In This case, at least my husband would join us sharing the same activities and really enjoyed it.
Anyway-my point is -that even sharing time with someone who is not disabled can have it's drawbacks. We are obviously two couples still trying to work out our Retirement as well as we can without too much disruption , but wanting to enjoy time spent with friends, and over favorite activities.
If the husbands end up too much of a drag on me, I am considering paying more attention to some "Girls Only" activities. Sometimes when I wanted to Get Away for a break, even overnight, somewhere, I'd make it all about going to a Spa Resort , with a daughter . My husband did Not care to join us over That , so off we'd go to what's considered a "Girls Weekend" and have the best time ! Maybe you could suggest that if your friend wants to arrange care for her mom, you'd be willing to spend some time with her somewhere nice that caters to your need for some R&R , which wouldn't hurt your friend to gain a little rest, herself.
(I am the Care person for my own spouse 24/7 , and "Best Friend" in our retirement yrs., and so , I get it about wanting to allow for a nice break from all that . Unfortunately, even over our activities, I end up fairly tired out again, as I'm still Doing for my husband and compromising when including friends. A Care Person needs to tend to their own needs first and foremost and if something isn't working out very well , or not much Fun, after all, and it's too much all about Everyone Else again , it's time to ask yourself, aside from hurting someone else's feelings, what do You Want -to do or not do that is respectful of your own needs that can become neglected, or over-looked?
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Reply to b8ted2sink
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This brings back a post from when I first started on AC. The OP was in her 50s or 60s. She had taken care of a parent and someone else for a number of years. She was ready to get her life back. A relative said to her since she was no longer caring for Mom, she could care for her Aunt. Yes, she told the person she did not think so. You don't know how hard that job is until you have done it.
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Reply to JoAnn29
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Just say " No My caretaking Days are Over . "
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Reply to KNance72
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"I took care of my own elderly mom who was in a wheel chair and also my very sick older brother for 10 years"

And there you have it, your friend looks at you and sees a built in caregiver - they have no clue just how incredibly difficult and draining that experience was. I had a friend like this too, fortunately one of my other friends discouraged her from approaching me because I might have said something... not nice. Remember no is a complete sentence, you don't have to offer any explanation. Practice this - No, that doesn't work for me. Repeat repeat repeat.
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Reply to cwillie
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Do you live together? If so, that makes it harder to say no. If you haven't already, you need to explain that you have done your share of caregiving. Maybe set boundaries on what you are willing to do to help. My boundary would be no toileting, bathing or transferring. By the time my Mom hit the 6th stage, I placed her. If the mother is violent, there are meds for that.
Caregiving is isolating, you only have time for the person you are caring for. Maybe you can help in other ways. Cleaning, cooking, laundry, grocery shopping. Give friend a break.
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Reply to JoAnn29
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Find ways to be a friend that you are comfortable with. I’m sure you realize the hard time your friend is experiencing and can think of ways to help that don’t involve direct caregiving. Maybe take a meal or offer to pick up meds or groceries. Take a magazine your friend enjoys, listen to her when she needs to vent, whatever will be a distraction or help. It’s okay not to feel comfortable as a caregiver, just don’t desert a friend in such a rough time
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Reply to Daughterof1930
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As a previous caregiver yourself I bet you remember how isolating and hard caregiving can be. I don't think you should watch her mother for her, but maybe you could be a support just by spending time together with her mom there too. Let her have some conversation and time with a friend.
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Reply to SteadyD
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Answer is no. Don't do it. You can support your friend to look into a hospice setting or home care for her mom. However, do not commit yourself to anymore caretaking situations.
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Reply to Scampie1
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Oh and for stage 6 dementia, the lady needs to be in hospice.
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Reply to southernwave
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b8ted2sink Nov 16, 2024
You're right. Who are we kidding believing otherwise? I was about to suggest a Senior Day Care facility closest to their home , but I doubt that would work well for the Mom or the staff when Mom is so far gone.
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No is a complete sentence.

“No.”

or if you have to add a few words “no, I can’t possibly do that.”

you are not her plan A B or C.

This isn’t a difficult situation at all. The answer is no, hell no, absolutely not, you will not burden me with this, I’m old too, 100% no, are you crazy, what makes you think you can rope me into solving your problem etc.
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Reply to southernwave
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Why would she realize how this impedes on your friendship when you haven't told her so.
I don't think you want to do this care. Say so.
And quite honestly, if this isn't a deal breaker, what is.
I say this assuming that you and your friend live together. Because if not this is really an easy one. Just don't show up so often. Any excuse will do. And when you are called on it just admit that really you do not wish to continue caretaking for family--not for your own and not for hers.

If this is a deal breaker for a "friendship" then this was never a friend.
If we are talking you are more than friends, rather are partners, then you have an issue which requires counseling and honesty now.

Good luck.
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Reply to AlvaDeer
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