One sibling seems to be counting on inheritance and so is concerned with the cost of memory care. Others are more concerned with Mom's needs and a MC center with proximity to family.
At 94, Mom walks almost a mile a day and she has longevity in the family. Her sister passed away at 102, though she did not have dementia as Mom does.
Making this decision has torn our family apart as the one sibling doesn’t trust the elder care advocate and financial advisor hired by the sibling with power of attorney.
Anyone have this experience? Perhaps I just need to vent as my husband and I are the primary caregivers and we are tired as Mom keeps us up at night.
My advice is to do what is best for your mother and to heck with the rest of those money hungry siblings of yours. In the end what ever you do will never please them. I made the right decision and to heck with any family member that thinks otherwise. Follow your heart and take good care of your mother.
I can say that if your mother is able to walk a mile a day, she will feel very constrained in memory care.
The POA has a fiduciary duty to mom to handle her finances to benefit mom with her safety kept in mind. We all know MC and AL is very expensive. My father was a penny pincher all his life - child of depression. He was aghast at the cost of AL and wanted to leave bro and I an inheritance. He was very resistant to him and mom moving to AL - my response to him was that his and mom's needs were more important than leaving bro & I $. If there was $ left all well and good - but if it all went to their care then so be it. So to AL they went. Dad is now gone he lived to 91 - he thought he be dead by 65 based on his parents and bro. Mom is still kicking and doing well is 88 and if like her mother and paternal grandfather will be looking to still being alive at 97 - hopefully her money will hold out until then - just praying her MCI doesn't become dementia - so far so good.
To bro concerned about $, too bad - he needs to look at his mother and her needs - it sounds as if he doesn't believe she has the need of MC. POA needs to put his fiduciary hat on and do what's best for mom. Good luck to all of you.
For the one worried about inheritance - unless that person smartens up and understands the assets are MOM's until she passes and need to be used to provide the best care she can get, then they should be told they won't be part of the decision process. The person should also be told that inheritance is NEVER guaranteed and shouldn't be one's life goal. It is sad people boil down to this.
Deciding on which MC facility should have nothing to do with the EC advocate or financial advisor. That "tiff" can be handled separately, if at all. POA happy with them, that's all that counts. If all others are on board with making a decision, then you all meet and choose one of the places. If allowed in now, do make at least one more walk through of each place, observing all, asking questions, etc.
A well managed trust fund can go a long way. When I realized it was dementia, we revisited the EC atty who did it all for mom when dad was not well. He queried her and was satisfied she still understood enough, so he set up a trust and a life-estate** for the condo. As her CDs matured, I closed them and finally (waiting for YB to sign paperwork) deposited all that into the trust. I tried bringing in aides (never got past 1hr/day, to check on her and get her used to it, so she could remain there longer.) We moved her to MC and it took me (very little help from bros) 2.75 years to get condo sale ready - that also went into her trust. Despite taking at least 4k/month to cover the balance of the facility and anything else she needed/wanted, it was like we never touched it! Six years after I took over finances and four years of MC later, there were still plenty of funds! We all got a share (there's a little more tidying up to do, but the bulk is done.) IF mom didn't have strokes and lived more years, I wouldn't care if there was nothing left. It WASN'T our money, period. I didn't even take anything for managing it all, juggling everything, for 6 years, just to be sure there would be enough.
Two of us were named POAs, but you'd never know it. One was never used for anything. All 3 of us were trustees of the trust, but again, you'd never know it! There was some coordination initially, but only a little and then they faded into the woodwork, leaving me to do it all. At least they weren't up my butt about anything.
** I would not recommend a life-estate unless you know the person can remain there to the end or close to the end. It is a great benefit to those who inherit it, as the cost basis is bumped up, less or no cap gains to pay. However, if the person has to move before that, it is a pain in the butt and was expensive at closing because we had to use the EC atty ($400 or more per hour!) Also, the way this is set up, the bulk of the proceeds go to the "remaindermen", aka us. If you have siblings who are all into it for the money, say bye bye to that! The IRS has tables and mom got a very small part of it. Thankfully we were all okay with putting it into the trust.
Greed is everywhere... Not everyone, but they are all out there! We just did the interment of mom's ashes. One cousin had been mostly raised by our aunt. She lost her mom and dad at age 9/10 and this aunt finished raising the kids. Cousin ALWAYS took care of the others in the family. The aunt's own kids and grandkids had disabilities (some manifested in adult life, early death.) My cousin saw to it that all were cared for. She'd have to fly to FL for a doc appt right away, drop everything. She managed it all. She told me that the day after that aunt passed away, her eldest called wanting to know what the will said. UGH!
yes the sibling was asked they would take on caregiving duties. They researched 24/7 caregivers to find the cost to be over some of the MC centers. So that idea was scrapped.
“Making this decision has torn our family apart as the one sibling doesn’t trust the elder care advocate and financial advisor hired by the sibling with power of attorney.”
Perhaps you could say more about this distrust. Is there an alternate advisor that could be brought in or could this one provide references that could be contacted?
To say that someone’s distrust is tearing the family apart, that’s pretty strong distrust to overcome.
Maybe a mediator would be helpful?
I recently discovered a brief model of therapy focused on solutions rather than the problem.
Read a little about this here. Check out the blog as well. It might be a thought starter for your family.
https://solutionfocused.net/what-is-solution-focused-therapy/
The immediate idea (to me) would be to get you and hubby some rest right away. Respite for mom or a mom-sitter to come in at night and keep mom company while this is sorted out.
I’ve often read of Med modification when someone goes into care. So perhaps a partial solution would be to obtain the help of a geriatric psychiatrist to take a look at moms meds now? When she goes into MC would the expectation be that her meds wouldn’t be adjusted? Little by little many of the things that aren’t done at home are done when a person goes into a facility.
Predictable next steps have to be taken to get the patient from one stage to the next regardless of where they live. In addition the family has to make adjustments. Not everyone is ready at the same time. We recently had a hospital bed brought in for DH aunt, 94 with dementia. I was really dreading it. Turns out. she loves her bed. She can get up so much easier now. It was me who needed to catch up, not her.
Years ago aunt was out zooming around in her little car. When it was obvious there was a problem, the car had to go. She once told me, I walk these floors with my Gun in hand. Yikes. I had to get that gun immediately. As time went by, different problems surfaced that didn’t have such obvious solutions. Each time I think, should I place her now? How long will her money last? How will she manage another hurricane season? The list goes on as life unfolds. Each problem requiring it’s on solution. As caregivers burn out, only one solution comes to mind. Let the professionals manage it and that can be the best idea overall but if the caregiver had help all along, there would be less burnout.
Wishing you peaceful days and nights ahead regardless of where your mom lives. Have POA hire another layer of help while they work it out.
That's what I have to say about inheritances before they're actually inheritances. How dare 'children' even discuss such a thing or decide how their parents should be taken care of based on the inheritance they will or will not get as a result?
Disgusting.
Your 'one sibling' who's so worried about 'his inheritance' should be doing ALL the 24/7 caregiving for your mother who's suffering from dementia, all alone, with NO HELP at ALL. ONLY then will he begin to understand what you've been going through all this time and what a Godsend Memory Care AL really is. He'd gladly give up 'his inheritance' in a heartbeat if he was saddled with this task, I guarantee it. It's really really easy to have his attitude while doing NOTHING in the caregiving department, or having no responsibilities for his mother's daily care and management.
Drop mother off on his porch for a week and then ask him what he'd like to do next.
Wishing you the best of luck getting everyone to make the RIGHT decision for your mother's care moving forward.
Then check the entertainment director and his or her resources,, room and all-- do they use a TV too often as a baby-sitter? And look at the Nurses station in the main lobby-- do the staff sit around "doing paperwork" or are they up and about checking on all the people in the facility-- are there enough CNAs to go around-- how many will show up for breakfast duty? or is there just one to get all the people up, dressed, cleaned up for breakfast?
THE POA is going to have to do his or her homework and make wise choices-- legally speaking-- it is imperative and binding-- the responsibility goes both ways. AND-- anywhere you go it will cost an arm and a leg.. so choose wisely. Also be aware that many CNAs are quite inexperienced and do contribute to elder accidents by their basic ignorance. In older times-- community and families living under one roof-- kept people more aware of elder safety issues-- but fewer families do that anymore and kids are just not aware of such issues and all the responsibilities. And Jr Colleges cannot teach that-- that comes with OJT. ALSO-- make sure the facility manager/director is old and wise enough... and not a bimbo... good luck.
I did forget to mention-- a private room is so much more expensive but a shared room is a real pain since many of the residents will be going through greater decline and could be a real bad experience for Mom-- many of them since they cannot remember what belongs to them tend to be thieves to the N-th degree-- and there is no reasoning with them-- waste of time-- some eventually get moved to nursing homes.. BEST advice-- keep an eye out for places where the level of apathy is high.. good luck.
Inheritance is the 'leftover' of what mom doesn't need while she is alive. It's her money. I bet at least once in her/your dad's life, mom said she was saving for her old age. Well, old age is here and sounds like she funded quite well for her future medical needs.
There are two choices for the hold-out sibling. Use the money for facility care because current caregiver is worn out - or- sibling takes mom to her house and tries to save mom's money (just has been the financial arrangement while mom lived with you). If sibling agrees, then tell her if there comes a time she needs in-home health care for mom - y'all are agreeable to that. If she decides memory care is best - y'all are open to that as well. Sibs agreement to try and keep mom out of facility care is an option now. The facility/home health care conversation can be revisited if needed in the future.
Elder care advocate/financial advisor: Ask sibling if she has other recommendations - second opinion is not a bad thing, but remind sibling how much was spent for the initial consultants. Remember, the money belongs to mom, so no harm/no foul to get a second opinion if that would resolve issues with the sibling. You might find sib has no recommendation and/or doesn't want to spend more money for another opinion. Might have just been a roadblock on her part.
Give sibling the two options. If you're tired, make sure sib understands that your house is no longer an option. Sib takes over the care or mom goes to one of the nice facilities you found. Sib can check on her at facility and if not happy with the care - another family meeting.
over care of parents !!!!
it’s your dad’s money and should be all spent on his comfort and then some !!!!
Since you and your husband are the caregivers that are burning out, set a reasonable date to move Mom in a memory care facility.
Since a sibling has power of attorney, work with this person to find a memory care unit as Mom's new home: 1 - that Mom can afford and that will accept Medicaid if needed, and 2 - meets the standard of care (look online for your state/province's standards), and 3 - that makes it easy to visit Mom. Mom's finances are to care for Mom and not about providing an inheritance. This is why the person with the power of attorney needs to make these arrangements.
Is mom mentally able to look and decide which one she might like?
Wold ya'll be able to take her to visit a couple that ya'll are thinking about?
The best thing to do is visit and observe and talk to the people living there without anyone of the workers around.
Tare your mom to have lunch there, see the other residences at lunch and at a function and observe.
A Live In could be hired for mom if ya'll still want her living with you.
Inheritance does not become Inheritance until the person is dead so thinking about what might be left is not the way it should be.. the money belongs to your mom and should be spent on your mom, to find the best place for her placement possible.
As far as I'm concerned, there are many very beautiful places to the eye and when you visit you're told everything you want to hear but once the person is admitted it isn't what it seems.
Most are understaffed and you're treated as an object as something that have things to get done, not a person.
You lose everything, you lose your privacy, you have to bathe when they tell you no matter if it's 5:30 or 6 in the morning if that's whst it takes for the Aide to get thru to everyone and I know this 1st hand as my sister worked in one.
You get dressed every morning even if you just feel like lounging around in your pajamas, you eat when they tell you, ect.
The only thing that is yours to keep is your mind and they will take thst to by giving drugs, if you become what they see as a problem and you'll be turned in to a zombie.
If it's at all possible, the best place for mom would be with family.
Can't you be paid to let mom live there and you can have a Caregiver come in and do a 12 hr shift from 8 AM to 8 PM or more if needed.
When my Dad was 95 he wasn't able to urinate and got really bad off went to the hospital with kidney failure but he got better and got out with having to be on a Catheter but the episode did something to his mind and then dementia set in and I did what he wanted and that's let him stay in his own home and I hired 24 7 Caregiver help.
More costly then putting him in a Senior Home but I knew he would be so confused, scared and unhappy if he lived there.
I had cameras installed so I could keep an eye on how the Caregivers are doing and how he's being treated.
Yes, he is going thru his money for his Care and there won't be an inheritance left but it was the right thing to do.
It's his hard earned money and it should be used to keep him as happy as he can be during his last day's.
Your Mom should be placed in the best place, which isn't always the prettiest or fanciest place and definitely a place close to family.
People are better off in homes if they're know to get visitor's.
You should also check about putting a nest camera in your mom's room so you can at least see how she is being treated I'm her room.
Prayers that your mom gets what is Best for your Mom.
than bringing him into your home !!!
that said ... good private care homes
offer lots companionship with other residents and staff .. activities... entertainment... and your dad never alone staring at a caregiver all day ...
i’d choose good small private home with my own suite and bathroom.
Personally I would select the one that...
At this point provides the best care
Next would be proximity to family
Since you are primary caregivers I would think the facility that can make her a resident as soon as possible would be on the list as priority.
Tactfully, gently remind sibling that is concerned with inheritance that the money mom and dad saved was saved for "their golden years, their retirement, their care" as the main goal for saving. That is what her money should be used for.
Sibling can save for her or his "golden years, retirement, care" just as mom and dad did. An inheritance is not guaranteed....
Regarding inheritance - no one is entitled to her money and its benefits other than your mom. I am certain that they sacrificed and planned to have enough money at the end of their lives that a burden would not be placed on the children.
Put mom in the best place for HER. Tell the sibling that it is your legal and moral right to take care of mom in the best way as possible. If they need money so badly that they are counting on mom passing, they should be ashamed.
YOUR wellbeing is paramount here. Sleep deprivation is a form of torture. Tell the POA sibling that you get more input than anyone else, and that if anyone disagrees, your mother moves to THEIR house. Enough is enough.
How long has your mother been living with you, and how did it happen to all fall to you?
Mom gets what Mom needs with MOM'S (not anyone's inheritance) money.
If it makes the greedy sibling any happier, my mother has been in a nursing home for 2 1/2 years at between $8900 and $12,000/month. Her money has been well-invested (by me), and she is worth more now than she was when she went in.
Focus on good investing of Mom's funds, and Mom can have what she needs and Greedy McGreedpants may have a windfall at the end, too.
In the end, it didn't matter, dad passed in the hospital, but BIL had dad's rental properties up for sale 3 days after the funeral. Anything that sold--he demanded HIS 1/3rd to be hand delivered at like 6 am. DH was executor and to keep the peace in the family, gave BIL and SIL much more than either OTHER BIL or us--just to placate this grasping relative. I lost all respect for him over this.
Dad's money was for DAD'S care, not to line BIL's pockets and I look at him to this day with distrust and will NEVER trust him again.
Looking back--DH, who was also POA, should have been tougher and had spreadsheets, etc to prove to BIL that we weren't cleaning out the estate. He even refused to allow DH to take an hourly fee for all the work he did on the estate. I flipped the condo and it sold for $50K more than it would have w/o all that work. BIL gave ME a budget and mafe me show him all the receits. I was not paid a dime.
DH is his mom's POA and also her executor. She really needs to be in an assisted living, but again, BIL just sees dollar signs and won't allow it. DH won't stand up to him, as he is a Dr. No Shot and will not do conflict of any kind. I see te writing on the wall--it's going to be a nightmare, again.
What's the POINT of having POA's if nobody respects their 'authority'? I don't think my brother is taking proper care of mother, but she is content enough and so I leave it alone. If she didn't like it, she could change it.
Its not fair that siblings want to hold onto the money for inheritance sake when one sibling is doing the caring and its effecting their health and lives. Tell the POA that you can no longer do the caring and he/she has the power to place Mom.