I am there because his hearing is so bad he doesn't get directions right many times concerning meds, etc. but he tells me HE is talking whenever I try to explain something to the Dr.
I am his caregiver, it is hard to speak up as he makes a scene, (embarrassing), I don't know what to do. He shows anger easily...
And if his anger is an issue, make sure it’s on the list.
Praise God for your diligence.
Grace + Peace,
Bob
To make it practical, write the main issues, stick to the facts and give examples, do not babble and do not write a novel, be brief but clear, so that the doctor would be able to read your input and focus on the important issues. You need to keep her attention focused. I have heard caregivers who have private discussion with the doctor after the visit, but I feel that is a bit late in the process. Whatever would work between you and the doctor.
Good luck.
Let him make a scene. I've made more than my share of scenes in the past, no reason for you to be embarrassed.
It's a balancing act to be honest. I let some non biggie things go or will do as others and shake my head slightly. But I always let her try to answer first.
Id also tell him its not the 1600 hundreds and that women can be seen and heard.
He will probably need you within 2 mins because he cant hear what they are saying, and directing him to do. He will realize you are much needed. Then I would tell him his embarrassing scenes in front of people will stop forthwith.
She’s very nervous to leave home, which makes me nervous. Sometimes when we are anxious it comes out as anger. Many dementia patients get tired of being bossed around. We caretakers are caught in a bind sometimes trying to get the job done and respecting the patients feelings at the same time.
When In front of the doctor your husband may feel he has an advocate in the doctor (that’s a good thing). He might speak up more forcefully at that time where he would ordinarily let it slide at home where he may not be listening anyway. His senses are heightened with the doctor. It’s his appointment. He wants to talk.
So use the many helpful hints you’ve received here but also listen closely because I’ve heard things for the first time come out of my loved ones mouth while at the doctors office.
Do your best to find a geriatric primary. Makes all the difference.
My guess is the doctor, at least if he or she is any good, is very happy to have you there and will sense or already knows, the discomfort for the patient but sees you as an important part of the team and will find ways to communicate with you. It might be trial and error a bit if this isn't a doctor your husband has had, knows and trusts for a long time, in which case they know you and the situation already but the will find a way to check your reaction to questions and answers like someone who mentioned a loved one in the background shaking their head or nodding, they might ask you about concerns and questions or accuracy of answers after sending him to the restroom to leave a urine sample or make themselves available when you excuse yourself to the ladies room. Look for the opportunities if there are things you feel are important but know will agitate your husband or make him uncomfortable. A smile, grin or scowl can say a lot to an experienced doctor taking a history and doesn't have to be seen by your DH. Or if and when you get to the place we have now with mom, a puzzled look or amused face to her in front of the doctor at her response includes her but puts her on notice and she comes cleaner adjusting her answer. But that's happened over time as she has become more relaxed about not being left out and more dependent on us (either my brother or I always take her to appointments) to speak for her. Since her aphasia she just look at me when she wants me to answer for her, I usually make her try partly wanting her to answer and partly wanting her to use her speech but when she's struggling but when I can see it's getting too frustration or the conversation needs to move on I help her with the words or just answer for her but including her or saying, is that right Mom? This way she doesn't start to feel excluded or fear of loosing control over her health decisions. So if you can find a way to present things or express things in a way that keeps him included, feeling in control it might help him feel more and more at ease with having you more actively involved in appointments. Oh the other thing I find helps is when there is something that hasn't been addressed I feel should be I will ask my mom about it with the doctor in the room like it was something mom wanted to ask about and I'm just reminding her. It also helps to have a list of questions or topics that you can hand the nurse who comes in ahead of the doctor or the doctor either up front, stuff you both talked about wanting to mention or ask or on the sly depending on circumstance. I have a notebook I take where I record things talked about at the appointments, all her medical stuff actually but where I record stuff from each appointment so I don't forget too, we can refer to it anytime and that comes in handy. I keep the minutes of the meeting. It's an adjustment for both of you so be patient with yourself and with your DH.
I dont know how long you and you
R husband have been married. But I will tell you this... with the home being narscistic as well as bipolar honey you got to put the law down. That is no life to live.
You dont have to be trapped in an unhappy marriage.
I don't talk much, but sit slightly behind and to the side of DH, Dr asks hims a question and as he is listening to DH's response, he's looking at me. All I need to do is nod or shake my head for "yep, that's right" or "are you kidding me?". We have a good relationship---and since DH is pretty deaf--he doesn't HEAR 80% of what is said. I take copious notes and then I have those to fall back on.
It's a tricky situation to be in. DH wants me to be as far as humanly possible from him when he's talking to a dr, but he NEEDS someone to be there, to HEAR.
I'm sure I could call his office, if I felt I needed to. His PCP doc also speaks with such a thick accent, he has often said he has no idea what she's said. But, he will only allow me to go with him to the Cardio doc.
On a funny/sad note: the increasing deafness was driving the entire family crazy, He FINALLY had his hearing checked and a thorough ENT checkup. He came home and said he was FINE and all the "hearing issues" were MY problem. Last week I was cleaning out a drawer and in it was a packet of info for hearing aids and a card from the Dr. saying "now that you have accepted your hearing loss as being serious enough so as to be addressed"..... and a sort of "prescription" for hearing aids...well, I got kind of mad. He literally lied to me to get me to stop bugging him. I threw all the info in a pile on his nightstand. He'll see it first thing when he comes home from his business trip.
Oh, he'll NEVER get hearing aids, just wears his bluetooth headphones 24/7 and doesn't have to deal with anything or anybody.